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Costantini, Naviaux: chronic fatigue
Metabolic features of chronic fatigue syndrome. Naviaux RK, et al. PNAS 2016 https://www.ncbi.nlm.nih.gov/pubmed/27573827 Compare essay by Dr. Naviaux with essays by A. Costantini regarding fatigue that occurs in many illnesses. For examples, try google search: a costantini thiamine fatigue.
Metabolic features of chronic fatigue syndrome. Naviaux RK, et al. PNAS 2016 https://www.ncbi.nlm.nih.gov/pubmed/27573827 Compare essay by Dr. Naviaux with essays by A. Costantini regarding fatigue that occurs in many illnesses. For examples, try google search: a costantini thiamine fatigue.
aspergerian13
in
Cure Parkinson's
5 years ago
Nana
I was diagnosed with cll just before Christmas in 2018. Needless to say I was absolutely floored as I did not even feel sick. I was referred to Dr. Ahmed Galal at the Duke Cancer Center. The day I walked into his office the Grimm reaper was riding on my back. This wonderful man looked at me and said
I was diagnosed with cll just before Christmas in 2018. Needless to say I was absolutely floored as I did not even feel sick. I was referred to Dr. Ahmed Galal at the Duke Cancer Center. The day I walked into his office the Grimm reaper was riding on my back. This wonderful man looked at me and said
Hidden
in
CLL Support
5 years ago
CLL night sweats
Having horrible night sweats...have 3 fans going..on watch and wait..highest WBC 50,000..any relief for this?
Having horrible night sweats...have 3 fans going..on watch and wait..highest WBC 50,000..any relief for this?
truff4507
in
CLL Support
5 years ago
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Good News
I have had the results of my bone marrow biopsy this week and my six months of FCR chemo have done the trick, I am now clear of any signs of cll cancer cells. This obviously is a great relief and although fatigue is still part of my life I am hoping for many years of being cancer free. I wish every single
I have had the results of my bone marrow biopsy this week and my six months of FCR chemo have done the trick, I am now clear of any signs of cll cancer cells. This obviously is a great relief and although fatigue is still part of my life I am hoping for many years of being cancer free. I wish every single
dandelup
in
CLL Support
5 years ago
CKF 3 Plant based diet
My Creatinine level is 1.72. My GFR currently is 43. ( has been below 60 for the last 5 years and primary care doctor never mentioned any concern until I emailed about the consistently high creatinine levels, referred to nephrologist who put me on complete plant based diet along with no sodium, no processed
My Creatinine level is 1.72. My GFR currently is 43. ( has been below 60 for the last 5 years and primary care doctor never mentioned any concern until I emailed about the consistently high creatinine levels, referred to nephrologist who put me on complete plant based diet along with no sodium, no processed
nsm5813
in
Early CKD Support
5 years ago
Kidney failure following liver transplant.
Hi guys, just wondering if any of you have suffered chronic kidney failure following your liver transplant. Just been referred by my GP to nephrology, getting really worried. Just coming up to 2 yr liverversary.
Hi guys, just wondering if any of you have suffered chronic kidney failure following your liver transplant. Just been referred by my GP to nephrology, getting really worried. Just coming up to 2 yr liverversary.
raqs67
in
British Liver Trust
5 years ago
IgA nephropathy
Hello I have been diagnosed with IgA Nephropathy as I had increased levels of proteins in my urine. How to now move ahead and please tell if any treatment is available for this. My GFR is 71 at present. Please advise about diet and changes to maintain it at this level to avoid any further deterioration
Hello I have been diagnosed with IgA Nephropathy as I had increased levels of proteins in my urine. How to now move ahead and please tell if any treatment is available for this. My GFR is 71 at present. Please advise about diet and changes to maintain it at this level to avoid any further deterioration
Lifemoney
in
Early CKD Support
5 years ago
Lab Visit
Hi all, For those of you who remember me say I was going to visit the Lab! I went this week - what a fantastic encouraging view I had on the research being done in the Southampton Research Department , work and research results which are shared backwards and forwards between Bournemouth, Canada, America
Hi all, For those of you who remember me say I was going to visit the Lab! I went this week - what a fantastic encouraging view I had on the research being done in the Southampton Research Department , work and research results which are shared backwards and forwards between Bournemouth, Canada, America
retired46
in
CLL Support
5 years ago
Question about tac level
Hi all does anybody know what the ideal level is for tacrolimus I'm asking because mine is 8.7 I've let qe know but cant get through to anyone I know the level because I phoned my locall hospital and where I had a blood test over a week ago theye. Dont sound to sure thanks
Hi all does anybody know what the ideal level is for tacrolimus I'm asking because mine is 8.7 I've let qe know but cant get through to anyone I know the level because I phoned my locall hospital and where I had a blood test over a week ago theye. Dont sound to sure thanks
Treeclimber62
in
British Liver Trust
5 years ago
Cannabis oil
Hi folks, has any one on here tried cannabis oil , and does it help in any way with breathing, I am willing to give anything a try, can't walk more than four or five steps with out gasping for breath, that's with oxygen on or not .
Hi folks, has any one on here tried cannabis oil , and does it help in any way with breathing, I am willing to give anything a try, can't walk more than four or five steps with out gasping for breath, that's with oxygen on or not .
Hidden
in
Lung Conditions Community Forum
5 years ago
Chronic Kidney Disease
My mother is 80, and last year she had a GFR rate of 26, this year she had a blood test and the following day several of her medicines were stopped without a reason being given. She also hasn’t drank the recommended fluid amount every day either, only about 1.5ltr. Lorsartan, Furosemide, Apixaban were
My mother is 80, and last year she had a GFR rate of 26, this year she had a blood test and the following day several of her medicines were stopped without a reason being given. She also hasn’t drank the recommended fluid amount every day either, only about 1.5ltr. Lorsartan, Furosemide, Apixaban were
Hidden
in
Early CKD Support
5 years ago
Red Sage
Has anyone taken Red Sage or some call it Danshen? Supposed to be very helpful for COPD. Find a quality Red Sage is most of my problem. If I could find it I would try it. Thank you Chris
Has anyone taken Red Sage or some call it Danshen? Supposed to be very helpful for COPD. Find a quality Red Sage is most of my problem. If I could find it I would try it. Thank you Chris
xx11xx
in
COPD Friends
5 years ago
Update on Possible Richter Transformation
At the recommendation of one our members I called UPENN and asked to speak with a covering hematologist. I received a call fairly quickly, explained the situation and the physician was able to get into my patient portal, read the report and compare it to my 2011node biopsy. He does not think it’s Richters
At the recommendation of one our members I called UPENN and asked to speak with a covering hematologist. I received a call fairly quickly, explained the situation and the physician was able to get into my patient portal, read the report and compare it to my 2011node biopsy. He does not think it’s Richters
ReneeSusan
in
CLL Support
5 years ago
CLL and sugar
I have had CLL ten years. After eating more food with sugar than usual during holidays, night sweats were horrible. After completely cutting refined sugar from my diet, the sweats have stopped completely.
I have had CLL ten years. After eating more food with sugar than usual during holidays, night sweats were horrible. After completely cutting refined sugar from my diet, the sweats have stopped completely.
Lthgj
in
CLL Support
5 years ago
CLL Remission
I have been in remission for just over 5 years since finishing treatment in 2014 of FCR. Lately my lymphocytes and WBC are going up double in about 2-3 months so my Hemotologist had me do blood work for possible relapse . So now I wonder what the results will show . These test like molecular take long
I have been in remission for just over 5 years since finishing treatment in 2014 of FCR. Lately my lymphocytes and WBC are going up double in about 2-3 months so my Hemotologist had me do blood work for possible relapse . So now I wonder what the results will show . These test like molecular take long
Kmegood
in
CLL Support
5 years ago
Are you 11qATM CLL too ? what treatment works best? Please reply ASAP
My wife who loves me put me on this site to get details from others suffering from CLL. One week diagnosed i have an 11qATM deletion heterozygote and a absolute monoclonal lymoh count of 12,000. My reds and platelets good . No splenomegaly but nodes “waxing and waning” all over. Plus a rash to pollen
My wife who loves me put me on this site to get details from others suffering from CLL. One week diagnosed i have an 11qATM deletion heterozygote and a absolute monoclonal lymoh count of 12,000. My reds and platelets good . No splenomegaly but nodes “waxing and waning” all over. Plus a rash to pollen
LovecuresCLL
in
CLL Support
5 years ago
Hugely varying eGFR results.
Here are my eGFR and some other results spread over some 9 months: 1. 13 September 2018 eGFR - 70, BUN - 18, Creatinine - 1.09. HbA1c - 6.2 2. 13 March 2019 eGFR - 54, BUN - 11.87, Creatinine - 1.34, HbA1c - 6.6 3. 17 March 2019 Creatinine - 1.14, HbA1c - 6.1 4. 22 March 2019 Creatinine - 1.04, HbA1c
Here are my eGFR and some other results spread over some 9 months: 1. 13 September 2018 eGFR - 70, BUN - 18, Creatinine - 1.09. HbA1c - 6.2 2. 13 March 2019 eGFR - 54, BUN - 11.87, Creatinine - 1.34, HbA1c - 6.6 3. 17 March 2019 Creatinine - 1.14, HbA1c - 6.1 4. 22 March 2019 Creatinine - 1.04, HbA1c
Rafion
in
Early CKD Support
5 years ago
IGVH Hypermutation test.
I went to a CLL specialist and they did IGVH testing. An email informed that I had a new test before the doctor actually called me. I think it is saying that I am not hyper mutated. It reads like this: "IGVH analysis by sequencing demonstrates a clonal but functionally unproductive rearrangement.
I went to a CLL specialist and they did IGVH testing. An email informed that I had a new test before the doctor actually called me. I think it is saying that I am not hyper mutated. It reads like this: "IGVH analysis by sequencing demonstrates a clonal but functionally unproductive rearrangement.
Camaroman
in
CLL Support
5 years ago
Expert Access Program at the CLL Society
The CLL Society is expanding our Expert Access program in 2019. Inclusion criteria are simple: a USA address, a diagnosis of CLL, and you are not currently seeing a top CLL doctor. That's it. It provides a free consult with a true CLL expert after getting and reviewing medical records from your local
The CLL Society is expanding our Expert Access program in 2019. Inclusion criteria are simple: a USA address, a diagnosis of CLL, and you are not currently seeing a top CLL doctor. That's it. It provides a free consult with a true CLL expert after getting and reviewing medical records from your local
bkoffman
CLL CURE Hero
in
CLL Support
5 years ago
Wondering about protein in urine
Hi, I have been loosing anywhere from 300mg to 800mg of protein in my urine per 24 hours for about 4 years now. My creatinine and GFR and all other markers are always perfect (thank God). I'm wondering how my kidneys are showing damage (by the proteinuria) but my blood tests are always perfect. I do
Hi, I have been loosing anywhere from 300mg to 800mg of protein in my urine per 24 hours for about 4 years now. My creatinine and GFR and all other markers are always perfect (thank God). I'm wondering how my kidneys are showing damage (by the proteinuria) but my blood tests are always perfect. I do
bacsichuabenhsoithan
in
Early CKD Support
5 years ago
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