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Uk What is the exact SNOMED code for CLL to get priority PCR test kit and letter?
In the continuing saga of trying to get a priority PCR test and letter does anybody know the exact SNOMED code For CLL that has to be on your medical records in the UK for you to get a priority PCR test and letter from NHS England? I am going round and round in circles being pushed from 119 back to
In the continuing saga of trying to get a priority PCR test and letter does anybody know the exact SNOMED code For CLL that has to be on your medical records in the UK for you to get a priority PCR test and letter from NHS England? I am going round and round in circles being pushed from 119 back to
Greencyclist
in
CLL Support
3 years ago
Accessing new treatments against COVID19 and priority PCR home test kits
Blood Cancer UK have sent me a survey "With an increase in Omicron cases, we know it's an understandably worrying time for people with blood cancer. That's why we've launched a new survey about blood cancer and vaccines, access to new treatments, and employment" I cannot direct you to this with a direct
Blood Cancer UK have sent me a survey "With an increase in Omicron cases, we know it's an understandably worrying time for people with blood cancer. That's why we've launched a new survey about blood cancer and vaccines, access to new treatments, and employment" I cannot direct you to this with a direct
Sumoldbloke
in
CLL Support
3 years ago
Is there anyone with M.E. and CLL ?
is there anyone especially in the UK , with Myalgic Encephalomyelitis. (M E ) and. CLL ? As you can see on my profile I was diagnosed with ME a long time ago and then in 2013 also with CLL. I am still on watch and wait but particularly interested if anyone with ME and CLL has had treatment as I
is there anyone especially in the UK , with Myalgic Encephalomyelitis. (M E ) and. CLL ? As you can see on my profile I was diagnosed with ME a long time ago and then in 2013 also with CLL. I am still on watch and wait but particularly interested if anyone with ME and CLL has had treatment as I
Greencyclist
in
CLL Support
3 years ago
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Is inositol, hexaphosphate form, bad for CLL?
Hi, all. IP6 (a form of inositol called inositol hexaphosphate readily available as a supplement) has been shown to be very anti-cancer, including at least one blood cancer, AML I think. However, as I read about how it works, it seems to indicate that it increases or activates Bruton Tyrosine Kinase
Hi, all. IP6 (a form of inositol called inositol hexaphosphate readily available as a supplement) has been shown to be very anti-cancer, including at least one blood cancer, AML I think. However, as I read about how it works, it seems to indicate that it increases or activates Bruton Tyrosine Kinase
Vlaminck
in
CLL Support
3 years ago
Venetoclax and calquence combo for Cll
Anyone have experience with V and Calquence together? My husband has been on calquence 4 months but Haemotolgist states his bone marrow still 80 to 90% full of cancerous lymphocytes. Doc wants V and R but husband has had no issues with Calquence and would prefer to stay on it along with Venetoclax. Lymphocytes
Anyone have experience with V and Calquence together? My husband has been on calquence 4 months but Haemotolgist states his bone marrow still 80 to 90% full of cancerous lymphocytes. Doc wants V and R but husband has had no issues with Calquence and would prefer to stay on it along with Venetoclax. Lymphocytes
smirnof
in
CLL Support
3 years ago
How do majority of CLL patients respond to Rituximab and venetoclax and what are common side effects?
Calquence not working to clear cll from bone marrow. Can person continue to do rather heavy work while on V and R?
Calquence not working to clear cll from bone marrow. Can person continue to do rather heavy work while on V and R?
smirnof
in
CLL Support
3 years ago
Shopping on AmazonSmile helps your CLL Charity!!!
I just received this for my CLL Society Charity: This is the quarterly notification to inform you that AmazonSmile has made a charitable donation to the charity you’ve selected, Leukemia & Lymphoma Society, in the amount of $79,087.73 as a result of qualifying purchases made by you and other customers
I just received this for my CLL Society Charity: This is the quarterly notification to inform you that AmazonSmile has made a charitable donation to the charity you’ve selected, Leukemia & Lymphoma Society, in the amount of $79,087.73 as a result of qualifying purchases made by you and other customers
WinJ3
in
CLL Support
3 years ago
Can I take Imedeen if taking Theroxine 50
I have been diagnosed with under active thyroid in 2015 and have been on Theroxine 50 ever since. Feeling good. Would like to start taking the Marine Complex, exclusive to IMEDEEN Skincare tablets. From sources across the web I found it contains: Grape seed extract, Zinc, Vitamin C, Lycopene, Vitamin
I have been diagnosed with under active thyroid in 2015 and have been on Theroxine 50 ever since. Feeling good. Would like to start taking the Marine Complex, exclusive to IMEDEEN Skincare tablets. From sources across the web I found it contains: Grape seed extract, Zinc, Vitamin C, Lycopene, Vitamin
Supersoco
in
Thyroid UK
3 years ago
How long have we got? I just need info and experiences please
Hey all, I've come on here because I'd like some more info on liver failure and the helpline isn't open until Monday so I'm hoping you guys can help? My 93 year old grandad has been in heart failure for some years now and we know his organs are failing. In the last few months though, his tummy has been
Hey all, I've come on here because I'd like some more info on liver failure and the helpline isn't open until Monday so I'm hoping you guys can help? My 93 year old grandad has been in heart failure for some years now and we know his organs are failing. In the last few months though, his tummy has been
Bim16
in
British Liver Trust
3 years ago
HELP—Positive COVID test
Hi all, I’m thankful for this community, I’m a long time reader, I don’t comment often but I need some advice tonight. My mom was diagnosed with CLL in Spring 2019. She is on ibrutinib and her lymphocytes have come down from 711 (!) in May 2019 to 98 a few months ago at her last appointment. She developed
Hi all, I’m thankful for this community, I’m a long time reader, I don’t comment often but I need some advice tonight. My mom was diagnosed with CLL in Spring 2019. She is on ibrutinib and her lymphocytes have come down from 711 (!) in May 2019 to 98 a few months ago at her last appointment. She developed
DaughterofCLLfighter
in
CLL Support
3 years ago
Which monoclonal antibody would work with omicron covid 19?
Which monoclonal antibody would work with omicron covid 19? Reposted from CLLSLL@groups.io : https://groups.io/g/CLLSLL/message/32338 with permission from the author - [i] From: Rick Furman Date: Sat, 18 Dec 2021 19:29:29 EST Right now, the majority of variants isolated in the US are still delta
Which monoclonal antibody would work with omicron covid 19? Reposted from CLLSLL@groups.io : https://groups.io/g/CLLSLL/message/32338 with permission from the author - [i] From: Rick Furman Date: Sat, 18 Dec 2021 19:29:29 EST Right now, the majority of variants isolated in the US are still delta
lankisterguy
Volunteer
in
CLL Support
3 years ago
Night Sweats
I was diagnosed in March 2020 and have had treatment with both Ibrutinib and Venetoclax. I am currently on no chemo drugs and may restart Venetoclax late January 2022. My blood counts have been continuously low and particulary in 2021 I had to spend time in hospital while I received anti-biotics and
I was diagnosed in March 2020 and have had treatment with both Ibrutinib and Venetoclax. I am currently on no chemo drugs and may restart Venetoclax late January 2022. My blood counts have been continuously low and particulary in 2021 I had to spend time in hospital while I received anti-biotics and
Dym230109
in
CLL Support
3 years ago
Support for CLL Patients
This HU site, where we share information, experiences and friendship is a massive support for many and with Christmas approaching and many of us shielding to a greater or lesser extent, I thought it might be a good time to look at other support available for CLL patients and caregivers. In the UK, [
This HU site, where we share information, experiences and friendship is a massive support for many and with Christmas approaching and many of us shielding to a greater or lesser extent, I thought it might be a good time to look at other support available for CLL patients and caregivers. In the UK, [
Jm954
Administrator
in
CLL Support
3 years ago
Massage with Cll?
This could be a dumb question but do massages negatively impact people with Cll? Thoughts?
This could be a dumb question but do massages negatively impact people with Cll? Thoughts?
Koda1234
in
CLL Support
3 years ago
Dr. Koffman’s ASH 2021 Day 4 Highlights
Dr. Koffman’s ASH 2021 Day 4 Highlights: In this year’s Day 4 wrap-up, Dr. Koffman keeps us in touch with what currently stands front and center in the world of CLL-relevant clinical trials. His overview touches on combinations of novel agents, innovative treatment strategies, MRD status to guide therapy
Dr. Koffman’s ASH 2021 Day 4 Highlights: In this year’s Day 4 wrap-up, Dr. Koffman keeps us in touch with what currently stands front and center in the world of CLL-relevant clinical trials. His overview touches on combinations of novel agents, innovative treatment strategies, MRD status to guide therapy
bkoffman
CLL CURE Hero
in
CLL Support
3 years ago
UK Webinar this Friday - 3.30pm GMT 17th December - Making the best of your CLL medical appointments
Hi friends a reminder - You may find this Leukaemia Care webinar of interest. The webinar will focus on how CLL patients can get the most out of their medical appointments, regardless of purpose, format and at whatever stage of your pathway. You can join us and the discussion by registering here:
Hi friends a reminder - You may find this Leukaemia Care webinar of interest. The webinar will focus on how CLL patients can get the most out of their medical appointments, regardless of purpose, format and at whatever stage of your pathway. You can join us and the discussion by registering here:
HAIRBEAR_UK
Founder Admin
in
CLL Support
3 years ago
CLL Society ASH 2021 Highlights from Day 2 of ASH 2021! Dr. Brian Koffman gives up updates
ASH 2021 Highlights from Day 2 of ASH 2021! Dr. Brian Koffman gives up updates on the reversible non-covalently binding BTKi (Bruton’s tyrosine kinase inhibitor) pirtobrutinib (formerly LOXO-305), another reversable BTKi known as MK-1026 (formerly ARQ-531), 3-year follow-up data from the Ascend Trial
ASH 2021 Highlights from Day 2 of ASH 2021! Dr. Brian Koffman gives up updates on the reversible non-covalently binding BTKi (Bruton’s tyrosine kinase inhibitor) pirtobrutinib (formerly LOXO-305), another reversable BTKi known as MK-1026 (formerly ARQ-531), 3-year follow-up data from the Ascend Trial
bkoffman
CLL CURE Hero
in
CLL Support
3 years ago
Can I come to UK for transplant?
I am 23 and I am on dialysis from two years. I have been recommended kidney & liver transplant. Unfortunately from where i am doctors are not doing the transplant from out family donor. My younger has the same gene mutation so he is rejected for donating but my friends want to donate. I have seen UK's
I am 23 and I am on dialysis from two years. I have been recommended kidney & liver transplant. Unfortunately from where i am doctors are not doing the transplant from out family donor. My younger has the same gene mutation so he is rejected for donating but my friends want to donate. I have seen UK's
Devumair
in
Dialysis Support
3 years ago
Chronic fatigue
Hi There. Just a random question. Before I was diagnosed with endometriosis one of the symptoms I suffered with chronic fatigue. In November 2021 I had my laparoscopic surgery, all went well. After two months I am still suffering with chronic fatigue, no energy whatsoever. Can you still suffer with chronic
Hi There. Just a random question. Before I was diagnosed with endometriosis one of the symptoms I suffered with chronic fatigue. In November 2021 I had my laparoscopic surgery, all went well. After two months I am still suffering with chronic fatigue, no energy whatsoever. Can you still suffer with chronic
Cockapoo-2016
in
Endometriosis UK
3 years ago
Treating autoimmune hemolytic anemia (AIHA)
Does anyone have autoimmune hemolytic anemia (AIHA) along with your chronic lymphocytic leukemia (CLL). I believe it occurs for around 10% of CLL patients. Any experience or knowledge about it would help. My Haptoglobin has gone from 39 in September to 14 this past week. As I understand it, when it
Does anyone have autoimmune hemolytic anemia (AIHA) along with your chronic lymphocytic leukemia (CLL). I believe it occurs for around 10% of CLL patients. Any experience or knowledge about it would help. My Haptoglobin has gone from 39 in September to 14 this past week. As I understand it, when it
SantaZia
in
CLL Support
3 years ago
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