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Shopping on AmazonSmile helps your CLL Charity!!!
I just received this for my CLL Society Charity: This is the quarterly notification to inform you that AmazonSmile has made a charitable donation to the charity you’ve selected, Leukemia & Lymphoma Society, in the amount of $79,087.73 as a result of qualifying purchases made by you and other customers
I just received this for my CLL Society Charity: This is the quarterly notification to inform you that AmazonSmile has made a charitable donation to the charity you’ve selected, Leukemia & Lymphoma Society, in the amount of $79,087.73 as a result of qualifying purchases made by you and other customers
WinJ3
in
CLL Support
2 years ago
Can I take Imedeen if taking Theroxine 50
I have been diagnosed with under active thyroid in 2015 and have been on Theroxine 50 ever since. Feeling good. Would like to start taking the Marine Complex, exclusive to IMEDEEN Skincare tablets. From sources across the web I found it contains: Grape seed extract, Zinc, Vitamin C, Lycopene, Vitamin
I have been diagnosed with under active thyroid in 2015 and have been on Theroxine 50 ever since. Feeling good. Would like to start taking the Marine Complex, exclusive to IMEDEEN Skincare tablets. From sources across the web I found it contains: Grape seed extract, Zinc, Vitamin C, Lycopene, Vitamin
Supersoco
in
Thyroid UK
2 years ago
How long have we got? I just need info and experiences please
Hey all, I've come on here because I'd like some more info on liver failure and the helpline isn't open until Monday so I'm hoping you guys can help? My 93 year old grandad has been in heart failure for some years now and we know his organs are failing. In the last few months though, his tummy has been
Hey all, I've come on here because I'd like some more info on liver failure and the helpline isn't open until Monday so I'm hoping you guys can help? My 93 year old grandad has been in heart failure for some years now and we know his organs are failing. In the last few months though, his tummy has been
Bim16
in
British Liver Trust
2 years ago
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HELP—Positive COVID test
Hi all, I’m thankful for this community, I’m a long time reader, I don’t comment often but I need some advice tonight. My mom was diagnosed with CLL in Spring 2019. She is on ibrutinib and her lymphocytes have come down from 711 (!) in May 2019 to 98 a few months ago at her last appointment. She developed
Hi all, I’m thankful for this community, I’m a long time reader, I don’t comment often but I need some advice tonight. My mom was diagnosed with CLL in Spring 2019. She is on ibrutinib and her lymphocytes have come down from 711 (!) in May 2019 to 98 a few months ago at her last appointment. She developed
DaughterofCLLfighter
in
CLL Support
3 years ago
Which monoclonal antibody would work with omicron covid 19?
Which monoclonal antibody would work with omicron covid 19? Reposted from CLLSLL@groups.io : https://groups.io/g/CLLSLL/message/32338 with permission from the author - [i] From: Rick Furman Date: Sat, 18 Dec 2021 19:29:29 EST Right now, the majority of variants isolated in the US are still delta
Which monoclonal antibody would work with omicron covid 19? Reposted from CLLSLL@groups.io : https://groups.io/g/CLLSLL/message/32338 with permission from the author - [i] From: Rick Furman Date: Sat, 18 Dec 2021 19:29:29 EST Right now, the majority of variants isolated in the US are still delta
lankisterguy
Volunteer
in
CLL Support
3 years ago
Night Sweats
I was diagnosed in March 2020 and have had treatment with both Ibrutinib and Venetoclax. I am currently on no chemo drugs and may restart Venetoclax late January 2022. My blood counts have been continuously low and particulary in 2021 I had to spend time in hospital while I received anti-biotics and
I was diagnosed in March 2020 and have had treatment with both Ibrutinib and Venetoclax. I am currently on no chemo drugs and may restart Venetoclax late January 2022. My blood counts have been continuously low and particulary in 2021 I had to spend time in hospital while I received anti-biotics and
Dym230109
in
CLL Support
3 years ago
Support for CLL Patients
This HU site, where we share information, experiences and friendship is a massive support for many and with Christmas approaching and many of us shielding to a greater or lesser extent, I thought it might be a good time to look at other support available for CLL patients and caregivers. In the UK, [
This HU site, where we share information, experiences and friendship is a massive support for many and with Christmas approaching and many of us shielding to a greater or lesser extent, I thought it might be a good time to look at other support available for CLL patients and caregivers. In the UK, [
Jm954
Administrator
in
CLL Support
3 years ago
Massage with Cll?
This could be a dumb question but do massages negatively impact people with Cll? Thoughts?
This could be a dumb question but do massages negatively impact people with Cll? Thoughts?
Koda1234
in
CLL Support
3 years ago
Dr. Koffman’s ASH 2021 Day 4 Highlights
Dr. Koffman’s ASH 2021 Day 4 Highlights: In this year’s Day 4 wrap-up, Dr. Koffman keeps us in touch with what currently stands front and center in the world of CLL-relevant clinical trials. His overview touches on combinations of novel agents, innovative treatment strategies, MRD status to guide therapy
Dr. Koffman’s ASH 2021 Day 4 Highlights: In this year’s Day 4 wrap-up, Dr. Koffman keeps us in touch with what currently stands front and center in the world of CLL-relevant clinical trials. His overview touches on combinations of novel agents, innovative treatment strategies, MRD status to guide therapy
bkoffman
CLL CURE Hero
in
CLL Support
3 years ago
UK Webinar this Friday - 3.30pm GMT 17th December - Making the best of your CLL medical appointments
Hi friends a reminder - You may find this Leukaemia Care webinar of interest. The webinar will focus on how CLL patients can get the most out of their medical appointments, regardless of purpose, format and at whatever stage of your pathway. You can join us and the discussion by registering here:
Hi friends a reminder - You may find this Leukaemia Care webinar of interest. The webinar will focus on how CLL patients can get the most out of their medical appointments, regardless of purpose, format and at whatever stage of your pathway. You can join us and the discussion by registering here:
HAIRBEAR_UK
Founder Admin
in
CLL Support
3 years ago
CLL Society ASH 2021 Highlights from Day 2 of ASH 2021! Dr. Brian Koffman gives up updates
ASH 2021 Highlights from Day 2 of ASH 2021! Dr. Brian Koffman gives up updates on the reversible non-covalently binding BTKi (Bruton’s tyrosine kinase inhibitor) pirtobrutinib (formerly LOXO-305), another reversable BTKi known as MK-1026 (formerly ARQ-531), 3-year follow-up data from the Ascend Trial
ASH 2021 Highlights from Day 2 of ASH 2021! Dr. Brian Koffman gives up updates on the reversible non-covalently binding BTKi (Bruton’s tyrosine kinase inhibitor) pirtobrutinib (formerly LOXO-305), another reversable BTKi known as MK-1026 (formerly ARQ-531), 3-year follow-up data from the Ascend Trial
bkoffman
CLL CURE Hero
in
CLL Support
3 years ago
Can I come to UK for transplant?
I am 23 and I am on dialysis from two years. I have been recommended kidney & liver transplant. Unfortunately from where i am doctors are not doing the transplant from out family donor. My younger has the same gene mutation so he is rejected for donating but my friends want to donate. I have seen UK's
I am 23 and I am on dialysis from two years. I have been recommended kidney & liver transplant. Unfortunately from where i am doctors are not doing the transplant from out family donor. My younger has the same gene mutation so he is rejected for donating but my friends want to donate. I have seen UK's
Devumair
in
Dialysis Support
2 years ago
Chronic fatigue
Hi There. Just a random question. Before I was diagnosed with endometriosis one of the symptoms I suffered with chronic fatigue. In November 2021 I had my laparoscopic surgery, all went well. After two months I am still suffering with chronic fatigue, no energy whatsoever. Can you still suffer with chronic
Hi There. Just a random question. Before I was diagnosed with endometriosis one of the symptoms I suffered with chronic fatigue. In November 2021 I had my laparoscopic surgery, all went well. After two months I am still suffering with chronic fatigue, no energy whatsoever. Can you still suffer with chronic
Cockapoo-2016
in
Endometriosis UK
2 years ago
Treating autoimmune hemolytic anemia (AIHA)
Does anyone have autoimmune hemolytic anemia (AIHA) along with your chronic lymphocytic leukemia (CLL). I believe it occurs for around 10% of CLL patients. Any experience or knowledge about it would help. My Haptoglobin has gone from 39 in September to 14 this past week. As I understand it, when it
Does anyone have autoimmune hemolytic anemia (AIHA) along with your chronic lymphocytic leukemia (CLL). I believe it occurs for around 10% of CLL patients. Any experience or knowledge about it would help. My Haptoglobin has gone from 39 in September to 14 this past week. As I understand it, when it
SantaZia
in
CLL Support
3 years ago
Two things. White blood count creeping up. And waiting for results from spike protein test.
I just went for my regular hematologist appointment. My white blood count hovered between 18 and 20. Today it was 23. My doctor isn't worried but is having me come back in 3 months instead of 4. She said not to worry but I see a slight upward trend. Any advice? Also I'm waiting for my results from
I just went for my regular hematologist appointment. My white blood count hovered between 18 and 20. Today it was 23. My doctor isn't worried but is having me come back in 3 months instead of 4. She said not to worry but I see a slight upward trend. Any advice? Also I'm waiting for my results from
elm1
in
CLL Support
3 years ago
UK Webinar - 3.30pm GMT 17th December - Making the best of your CLL medical appointments
Hi friends you may find this Leukaemia Care webinar of interest. The webinar will focus on how CLL patients can get the most out of their medical appointments, regardless of purpose, format and at whatever stage of your pathway. You can join us and the discussion by registering here: https://us02web.zoom.us
Hi friends you may find this Leukaemia Care webinar of interest. The webinar will focus on how CLL patients can get the most out of their medical appointments, regardless of purpose, format and at whatever stage of your pathway. You can join us and the discussion by registering here: https://us02web.zoom.us
HAIRBEAR_UK
Founder Admin
in
CLL Support
3 years ago
Antibody test, optimal timing
hi from Poland I have been on Zanubrutinib (small molecule inhibitor of Bruton's tyrosine kinase) for three years. I had a moderna booster two weeks ago. I wonder after how long to do the antibody test. I called 5 different labs and they suggested doing a blood test over a period of two weeks to six
hi from Poland I have been on Zanubrutinib (small molecule inhibitor of Bruton's tyrosine kinase) for three years. I had a moderna booster two weeks ago. I wonder after how long to do the antibody test. I called 5 different labs and they suggested doing a blood test over a period of two weeks to six
BART4
in
CLL Support
3 years ago
Abstract in regard to P-LL as a diagnosis entity is an interesting read and proposal
While there is no definitive decision, there is clinically-based validity to the suggestion. We have a few members who are diagnosed P-LL (P-LL is rarer than CLL, so numbers are few) who can relate to this as they are being treated much the same as we with CLL. https://mdanderson.elsevierpure.com
While there is no definitive decision, there is clinically-based validity to the suggestion. We have a few members who are diagnosed P-LL (P-LL is rarer than CLL, so numbers are few) who can relate to this as they are being treated much the same as we with CLL. https://mdanderson.elsevierpure.com
cllady01
Volunteer
in
CLL Support
3 years ago
Curious -- family leukemia history anyone?
I recall reading early on that CLL was thought to be possibly genetic, with 20 years younger in succeeding generations. I have two sons. I was diagnosed at 70. Ironically or not, one of my 4 uncles got leukemia around 90 (couldn't find out what kind), so I've wanted to follow the genetic implications
I recall reading early on that CLL was thought to be possibly genetic, with 20 years younger in succeeding generations. I have two sons. I was diagnosed at 70. Ironically or not, one of my 4 uncles got leukemia around 90 (couldn't find out what kind), so I've wanted to follow the genetic implications
Vlaminck
in
CLL Support
3 years ago
Is strength training helpful?
Hi Everyone, I have just joined and also recently diagnosed with cll. I have learned that diet and exercise is very helpful with controlling cll. I just wondered if strength/weight training was also helpful? Thanks
Hi Everyone, I have just joined and also recently diagnosed with cll. I have learned that diet and exercise is very helpful with controlling cll. I just wondered if strength/weight training was also helpful? Thanks
arsenal0
in
CLL Support
3 years ago
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