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My AF story (well part of it anyway)
Hi all, I've been on here a few times and thought I would share my AF story. I was diagnosed with IDC (Idiopathic Dialated Cardiomyopathy) around 18 years ago. After around two years I had my first atack of AF which was a shock so off to hospital i did go, lassted about 10 hours and went away. This happened
Hi all, I've been on here a few times and thought I would share my AF story. I was diagnosed with IDC (Idiopathic Dialated Cardiomyopathy) around 18 years ago. After around two years I had my first atack of AF which was a shock so off to hospital i did go, lassted about 10 hours and went away. This happened
xr1450
in
AF Association
4 years ago
Blood results
Well, I have finally recieved my blood results (with reference ranges) from the nurse. Intrinsic Factor - negative. Parietal Cell - negative. Serum B12 was way over range 2000 (180-900) as expected due to B12 injections. I was expecting a fight with my GP about withdrawing my B12 injections. Strange
Well, I have finally recieved my blood results (with reference ranges) from the nurse. Intrinsic Factor - negative. Parietal Cell - negative. Serum B12 was way over range 2000 (180-900) as expected due to B12 injections. I was expecting a fight with my GP about withdrawing my B12 injections. Strange
Wellington1
in
Pernicious Anaemia Society
4 years ago
New, scared and need some advice please
Hello, I am new to this forum but not RA. I was diagnosed in 2016 showing positive for the rheumatoid factor in my blood test. I was treated with hydroxychloroquine but not for long. I think it was stopped because my symptoms went away. Anyway 4 years on and I’m really struggling. I developed a hive
Hello, I am new to this forum but not RA. I was diagnosed in 2016 showing positive for the rheumatoid factor in my blood test. I was treated with hydroxychloroquine but not for long. I think it was stopped because my symptoms went away. Anyway 4 years on and I’m really struggling. I developed a hive
Hazel2020
in
NRAS
4 years ago
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Receiving monthly Avastin injections now 5 days past due and I notice a decrease in vision
Being treated for CNV. Somehow, I was given a 5 week follow up form my next injection so instead of receiving my scheduled 4 week injection last week, I will get it this week. My vision was getting better and I was able to read things I couldn't read before. Yesterday my vision wasn't nearly as good
Being treated for CNV. Somehow, I was given a 5 week follow up form my next injection so instead of receiving my scheduled 4 week injection last week, I will get it this week. My vision was getting better and I was able to read things I couldn't read before. Yesterday my vision wasn't nearly as good
Edman777
in
Macular Society
4 years ago
Hmm
I went to the A&E yesterday due to my chest pains... they done a chest X-ray and had a ecg all was normal he said but gave me antibiotics incase might be chest infection .. so the pains in my chest ain’t to do with my heart or anything I guess wonder what it could be!
I went to the A&E yesterday due to my chest pains... they done a chest X-ray and had a ecg all was normal he said but gave me antibiotics incase might be chest infection .. so the pains in my chest ain’t to do with my heart or anything I guess wonder what it could be!
Kaaayla
in
Anxiety Support
4 years ago
Tiredness continues.
It's over 6 months now since I had my transplant. I don't feel any pain from my abdominal area at all but the one thing that is making me really depressed to the point of screaming to the skies is the lethargy and tiredness. I can only walk about 2000- 3000 steps before I get absolutely breathless and
It's over 6 months now since I had my transplant. I don't feel any pain from my abdominal area at all but the one thing that is making me really depressed to the point of screaming to the skies is the lethargy and tiredness. I can only walk about 2000- 3000 steps before I get absolutely breathless and
Loungingsofa
in
British Liver Trust
4 years ago
Simple Goitre
I have recently had an upper chest X-ray as was having pains going up the left side of my neck, the doctor didn’t think this was cardiac and the X-ray see,s to have shown up a simple Goitre, has anyone any advice or whether I need to be concerned. Kind regards Ann
I have recently had an upper chest X-ray as was having pains going up the left side of my neck, the doctor didn’t think this was cardiac and the X-ray see,s to have shown up a simple Goitre, has anyone any advice or whether I need to be concerned. Kind regards Ann
Annsandra13
in
Thyroid UK
4 years ago
Petrified
Hello, Went back to work after shielding due to being clinically vulnerable. I’m in a class of 30 children and two other adults. Therefore, social distancing is not possible. I can’t breathe properly in my mask.. my visor steams up as my sinus are diseased and I’m awaiting sinus surgery. I struggle
Hello, Went back to work after shielding due to being clinically vulnerable. I’m in a class of 30 children and two other adults. Therefore, social distancing is not possible. I can’t breathe properly in my mask.. my visor steams up as my sinus are diseased and I’m awaiting sinus surgery. I struggle
Crimsoon
in
Lung Conditions Community Forum
4 years ago
First Rheumy appointment (since PMR diagnosis by GP) totally disappointing! Sorry no question just bringing myself back to reality!
Sooooo.... Long story short after a telehealth visit- according to the rheumatologist I was too young in March 2020 to be diagnosed at 51 years old with PMR. Really! Was I expecting something different? I lived in the hope that maybe my case would have a different outcome to so many others diagnosed
Sooooo.... Long story short after a telehealth visit- according to the rheumatologist I was too young in March 2020 to be diagnosed at 51 years old with PMR. Really! Was I expecting something different? I lived in the hope that maybe my case would have a different outcome to so many others diagnosed
Surami2020
in
PMRGCAuk
4 years ago
Worsening asthma, all very new to me
Hello, I am quite new to asthma, I got given a blue inhaler last year after having shortness of breath and then got prescribed a brown inhaler to take 2 puffs a day and it seemed to be managed. A few weeks ago my symptoms worsened, to ones I’d not experienced before- wheezing, cough, really tight chest
Hello, I am quite new to asthma, I got given a blue inhaler last year after having shortness of breath and then got prescribed a brown inhaler to take 2 puffs a day and it seemed to be managed. A few weeks ago my symptoms worsened, to ones I’d not experienced before- wheezing, cough, really tight chest
Laurenp4
in
Asthma Community Forum
4 years ago
Chest x-ray showed Left sided lower lung consolidation.
After a review with practice nurse, after noticing my bronchiectasis hasn't been right for a year now, numerous chest infection. Anyway change and increase of meds and I was sent for chest x-ray which showed consolidation. So antibiotics taken, sputum sample taken but shows no infection. Is this just
After a review with practice nurse, after noticing my bronchiectasis hasn't been right for a year now, numerous chest infection. Anyway change and increase of meds and I was sent for chest x-ray which showed consolidation. So antibiotics taken, sputum sample taken but shows no infection. Is this just
revcathfrog
in
Lung Conditions Community Forum
4 years ago
Anomaly in ECG
Hello, after suffering from shortness of breath for almost a year now and being diagnosed with low iron (put on iron tablets), I still don't feel right. Some symptoms have improved (muscle ache, pale face) but some symptoms have persisted (shortness of breath) and I also got a couple of new ones (hair
Hello, after suffering from shortness of breath for almost a year now and being diagnosed with low iron (put on iron tablets), I still don't feel right. Some symptoms have improved (muscle ache, pale face) but some symptoms have persisted (shortness of breath) and I also got a couple of new ones (hair
Heartlovehealth
in
British Heart Foundation
4 years ago
Shortness if breath
I have been dealing with shortness of breath for a few months now. So far i have had a chest x-ray, blood work and spirometry test. The x-rays and blood work came back good, just waiting on the last test. Anyone have these same tests and have normal results or get any other answers from your doctor?
I have been dealing with shortness of breath for a few months now. So far i have had a chest x-ray, blood work and spirometry test. The x-rays and blood work came back good, just waiting on the last test. Anyone have these same tests and have normal results or get any other answers from your doctor?
Blueyz76
in
Lung Conditions Community Forum
4 years ago
2 Cyst on baseline scan
hello all i am after some real help. day i went for my baseline scan to try a round of IUI after i was a poor responder to IVF last month. my period has already been a week later due to all the meds i was taking and i was over the moon to head to the clinic to start IUI. to my horror i was told i have
hello all i am after some real help. day i went for my baseline scan to try a round of IUI after i was a poor responder to IVF last month. my period has already been a week later due to all the meds i was taking and i was over the moon to head to the clinic to start IUI. to my horror i was told i have
Rumi40
in
Fertility Network UK
4 years ago
FERRITEN iron
FERRITEN level 39 Gp says in range I went b12 defiency in March this year had loading doses etc and folic to raise levels I eat meat etc and good food Intrinsic factor was normal It’s now sept still symptomatic mainly ear hiss and humming which is vile I requested h pylori test it was positive ?
FERRITEN level 39 Gp says in range I went b12 defiency in March this year had loading doses etc and folic to raise levels I eat meat etc and good food Intrinsic factor was normal It’s now sept still symptomatic mainly ear hiss and humming which is vile I requested h pylori test it was positive ?
Milley2
in
Pernicious Anaemia Society
4 years ago
Blood clots
Hi everyone I have had the pain in my back for awhile my Doctor sent me for a chest X-Ray today I had a canular in with dye to see if I have a clot I hope not I go back next week I got a good report from my last blood test I had around 890 in platelets I am on 1000mg a day of Hydrea I have gone down
Hi everyone I have had the pain in my back for awhile my Doctor sent me for a chest X-Ray today I had a canular in with dye to see if I have a clot I hope not I go back next week I got a good report from my last blood test I had around 890 in platelets I am on 1000mg a day of Hydrea I have gone down
Windy51
in
MPN Voice
4 years ago
always worrying about my heart rate
ugh.. I was having a great day, sat down whilst my food was cooking, glanced over at my Fitbit and saw 58bpm and got spooked. it's usually never below 60bpm when I'm sat down. started to feel dizzy and panicky and scared myself into thinking my heart was gonna stop or something!! this is so frustrating
ugh.. I was having a great day, sat down whilst my food was cooking, glanced over at my Fitbit and saw 58bpm and got spooked. it's usually never below 60bpm when I'm sat down. started to feel dizzy and panicky and scared myself into thinking my heart was gonna stop or something!! this is so frustrating
quixotic6
in
Anxiety Support
4 years ago
Falling apart
I know we are in the throws of a pandemic and gp’s are only doing telephone consults but can someone please advise me what I should do! For years now I have suffered from hypothyroidism and also have 3 monthly B12 injections (ouch). Since before lockdown I have had a cough the is evil at times, had
I know we are in the throws of a pandemic and gp’s are only doing telephone consults but can someone please advise me what I should do! For years now I have suffered from hypothyroidism and also have 3 monthly B12 injections (ouch). Since before lockdown I have had a cough the is evil at times, had
Geordi
in
Thyroid UK
4 years ago
Reference for not testing once b12 injections started? Threatening to stop injections due to high b12 levels in blood test.
Hiya I have a call booked with the practice nurse who wants to stop my b12 injections as a recent blood test shows levels that are 'too high'. Can anyone point me to NICE guidelines or smilar that state that once b12 injections have commenced, b12 levels should not be checked? I am diagnosed with pernicious
Hiya I have a call booked with the practice nurse who wants to stop my b12 injections as a recent blood test shows levels that are 'too high'. Can anyone point me to NICE guidelines or smilar that state that once b12 injections have commenced, b12 levels should not be checked? I am diagnosed with pernicious
TFH1
in
Pernicious Anaemia Society
4 years ago
No more injections for 3 months
hello, Just wanted to get the thoughts of forum members on this... My b13 levels have gone from undectectable to over 2000 since having 6 loading injections of hydro. I've been tested for the intrinsic factor and should get the results by next week. My GP doesn't want to give me any more injections for
hello, Just wanted to get the thoughts of forum members on this... My b13 levels have gone from undectectable to over 2000 since having 6 loading injections of hydro. I've been tested for the intrinsic factor and should get the results by next week. My GP doesn't want to give me any more injections for
katamarang
in
Pernicious Anaemia Society
4 years ago
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