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Coagulation factor X
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My body is playing silly B's again but I'm not laughing.
Hi everyone hope you are keeping as well as you can, off for my covid jab this weekend. I've had a whirlwind week and a half after having a funny turn in the supermarket went to GPs who sent me for a chest x-ray and all hell broke loose. X-ray Friday, Monday phone call from GP and from hospital. Tuesday
Hi everyone hope you are keeping as well as you can, off for my covid jab this weekend. I've had a whirlwind week and a half after having a funny turn in the supermarket went to GPs who sent me for a chest x-ray and all hell broke loose. X-ray Friday, Monday phone call from GP and from hospital. Tuesday
Boudica1
in
LUPUS UK
2 years ago
rash on my face and neck
hello.. I was diagnosed with fibromyalgia, rosacea, carpel tunnel, and reactive arthritis in 2019, after months of overall pain, inflammation, exhaustion to the bone, sausage fingers , pins and needles etc etc. Blood tests came back with inflammation markers, Epson Barr antibodies and a high rheumatoid
hello.. I was diagnosed with fibromyalgia, rosacea, carpel tunnel, and reactive arthritis in 2019, after months of overall pain, inflammation, exhaustion to the bone, sausage fingers , pins and needles etc etc. Blood tests came back with inflammation markers, Epson Barr antibodies and a high rheumatoid
Searching4insights
in
Fibromyalgia Action UK
2 years ago
Suspected Erythromelalgia - boiling red hands, began in early 2021. Urgent advice needed - feel very poorly
Hi I’m a 25 yo female from London, UK. I have hashimotos and hypothyroidism, both diagnosed and I am on treatment. I began to experience sudden hot and achy hands in early 2021 - characteristics were similar to that of erythromelalgia but GP reluctant to diagnose despite seeing photos - tested uric
Hi I’m a 25 yo female from London, UK. I have hashimotos and hypothyroidism, both diagnosed and I am on treatment. I began to experience sudden hot and achy hands in early 2021 - characteristics were similar to that of erythromelalgia but GP reluctant to diagnose despite seeing photos - tested uric
Hanna_josef
in
Scleroderma & Raynaud's UK (SRUK)
2 years ago
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RA and Fibromyalgia
I have been told I have RA maybe 4 years ago now but it has just got gradually worse with some better periods. No meds have worked for me the better periods were when off any drugs but have had worse times when off drugs too. I am wondering if i could have fibromyalgia as well or instead of I don't
I have been told I have RA maybe 4 years ago now but it has just got gradually worse with some better periods. No meds have worked for me the better periods were when off any drugs but have had worse times when off drugs too. I am wondering if i could have fibromyalgia as well or instead of I don't
Alicepirate
in
NRAS
2 years ago
Neurologists & hematologists in London for B12 neurological symptoms - recs pls?
Hi all - Can anyone recommend a good neurologist & hematologist in London to consult with privately about my B12 treatment/symptoms? I’ve recently been found to be B12 deficient (150), high MMA, I’m 40 yrs old. I just finished getting injections over 2 weeks. My symptoms have worsened a lot during
Hi all - Can anyone recommend a good neurologist & hematologist in London to consult with privately about my B12 treatment/symptoms? I’ve recently been found to be B12 deficient (150), high MMA, I’m 40 yrs old. I just finished getting injections over 2 weeks. My symptoms have worsened a lot during
PA_newbie
in
Pernicious Anaemia Society
2 years ago
lining is thinner than it was?!?! - edited
Hi all, so I had my day 11 scan for FET cycle and lining was 6.9mm and today at day 15 is 6.3mm :( it's good quality and triple layer. This is the 3rd try for a FET and they increased meds to taking progy 4 times a day (8mg) and patches and this time is worse. Cycle 1 was 6mg Prog and lining was
Hi all, so I had my day 11 scan for FET cycle and lining was 6.9mm and today at day 15 is 6.3mm :( it's good quality and triple layer. This is the 3rd try for a FET and they increased meds to taking progy 4 times a day (8mg) and patches and this time is worse. Cycle 1 was 6mg Prog and lining was
Melody79
in
Fertility Network UK
2 years ago
What tests do I need to ask my GP for to rule out/diagnose PA?
Hello everyone, I apologise in advance as this post will be quite long but I want to give as much info as possible about my situation. I have an autoimmune disease and take immune suppressing medication for it. Consequently I have regular blood tests, looking at, among other things, my WCC. Over the
Hello everyone, I apologise in advance as this post will be quite long but I want to give as much info as possible about my situation. I have an autoimmune disease and take immune suppressing medication for it. Consequently I have regular blood tests, looking at, among other things, my WCC. Over the
Hidden
in
Pernicious Anaemia Society
2 years ago
I’m worried about my dad and I’m not sure what to do
hello, I’d really like to here the experiences of some of you, so my dads mid 50s and has been suffering from a persistent cough for a few months, as well as shortness of breath and has had some ankle swelling. He’s had a chest x Ray and ecg and has an echocardiogram tomorrow. They’ve said he’s got
hello, I’d really like to here the experiences of some of you, so my dads mid 50s and has been suffering from a persistent cough for a few months, as well as shortness of breath and has had some ankle swelling. He’s had a chest x Ray and ecg and has an echocardiogram tomorrow. They’ve said he’s got
Snowydragon
in
British Heart Foundation
2 years ago
aortic stenosis,,,,,out of the blue
after an operation in january to remove a large cancer on my leg ( it went well ) I went for my annual asthma copd review in April this year ( after a 2year on line consultation due to the covid) . The nurse was lovely and made me feel at ease , we did the usual breathing tests and examinations ,,,
after an operation in january to remove a large cancer on my leg ( it went well ) I went for my annual asthma copd review in April this year ( after a 2year on line consultation due to the covid) . The nurse was lovely and made me feel at ease , we did the usual breathing tests and examinations ,,,
Nanny1086
in
British Heart Foundation
2 years ago
Always tough coming back
it has been a week since my last little outing. And that one was the first for many weeks! i have been swapping my working days around to accommodate my pupils always tricky when they go back to college and their timetables change. so today was a day off. i have been feeling a little bit
it has been a week since my last little outing. And that one was the first for many weeks! i have been swapping my working days around to accommodate my pupils always tricky when they go back to college and their timetables change. so today was a day off. i have been feeling a little bit
Instructor57
Graduate10
in
Bridge to 10K
2 years ago
Positive IFAB results just in.
Well, I got my intrinsic factor test back just now. It is positive! why am I happy about this? I guess I feel now that there is absolutely no question and that I have a definitive answer for what has plagued me most of my life. I actually feel relieved that I have pernicious anemia. How crazy is that
Well, I got my intrinsic factor test back just now. It is positive! why am I happy about this? I guess I feel now that there is absolutely no question and that I have a definitive answer for what has plagued me most of my life. I actually feel relieved that I have pernicious anemia. How crazy is that
EllaNore
in
Pernicious Anaemia Society
2 years ago
surprise surprise!
Hypertrophic Cardiomyopathy Hi there, New to here and to anything heart related Strong family history of heart issues on my dad's side....bypasses at 42 years old etc. Absolutely no heart or associated issues ( that I'm aware of ) in 53 years. Boom .... Dec 21 I noticed swelling in my legs
Hypertrophic Cardiomyopathy Hi there, New to here and to anything heart related Strong family history of heart issues on my dad's side....bypasses at 42 years old etc. Absolutely no heart or associated issues ( that I'm aware of ) in 53 years. Boom .... Dec 21 I noticed swelling in my legs
Sunnygirl007
in
British Heart Foundation
2 years ago
unsure about diagnosis.
I am 77 and just had spirometry test and been diagnosed with severe COPD. Chest X-ray normal, sputum normal, oxygen 99%., no crackles or wheezing. No breathlessness just morning and evening chesty cough a few times which sometimes means expelling clear phlegm but not always. I have not been prescribed
I am 77 and just had spirometry test and been diagnosed with severe COPD. Chest X-ray normal, sputum normal, oxygen 99%., no crackles or wheezing. No breathlessness just morning and evening chesty cough a few times which sometimes means expelling clear phlegm but not always. I have not been prescribed
Cruise1
in
Lung Conditions Community Forum
2 years ago
Thybon Henning doesn’t contain acacia?!
Sharing for info but also a question around changes to formulation. I’ve recently had my T3 increased which meant moving to Thybon Henning 20s. Since I’m allergic to acacia, I set about trying to find out if it contained it. I spoke to 2 pharmacies (SmartWay and Roseseway Labs) as well as doing my
Sharing for info but also a question around changes to formulation. I’ve recently had my T3 increased which meant moving to Thybon Henning 20s. Since I’m allergic to acacia, I set about trying to find out if it contained it. I spoke to 2 pharmacies (SmartWay and Roseseway Labs) as well as doing my
hjh88
in
Thyroid UK
2 years ago
INTRINSIC FACTOR ANTIBODY TEST . Has any member with P.A. had to have more than one IFAB test to get a positive reading ?
Is it a fact that the Intrinsic Factor antibodies come and go continually ? Or do they not appear when the patient has had P.A. untreated for a long period ,and the antibodies have “done their job “ and destroyed the parietal cells ?
Is it a fact that the Intrinsic Factor antibodies come and go continually ? Or do they not appear when the patient has had P.A. untreated for a long period ,and the antibodies have “done their job “ and destroyed the parietal cells ?
wedgewood
in
Pernicious Anaemia Society
2 years ago
letter just recieved
we are looking at all our patients on B12 Injections; hence it is necessary that we check your current B12 levels and check for for Pernicious Aneamia which (is inability to absorb from your stomach)and So that we can continue to adminoster injections to those that have positive antibodies and advised
we are looking at all our patients on B12 Injections; hence it is necessary that we check your current B12 levels and check for for Pernicious Aneamia which (is inability to absorb from your stomach)and So that we can continue to adminoster injections to those that have positive antibodies and advised
Nackapan
in
Pernicious Anaemia Society
2 years ago
Tight chest ~ waiting for angiogram
Hi everyone. I went into A&E last weekend with chest tightness and some breathing difficulty, along with some other symptoms. They were brilliant, kept me in for a couple of days, lots of ECGs, a chest X-ray and contrast CT to rule out a PE, which was clear. Long story short, ECG shows some ischemic
Hi everyone. I went into A&E last weekend with chest tightness and some breathing difficulty, along with some other symptoms. They were brilliant, kept me in for a couple of days, lots of ECGs, a chest X-ray and contrast CT to rule out a PE, which was clear. Long story short, ECG shows some ischemic
Wolfgirl71
in
British Heart Foundation
2 years ago
Vitamin B12 deficiency update
After waiting over 3 weeks for my Intrinsic Factor blood test - it’s normal Intrinsic Factor ABS 2.30 - so I am to take CyanocoMinn 50mg - 2 each day for 8 weeks and then more tests including celiac test. I am feeling incredibly tired and wiped out at the moment, which I just put down to PMR so hope
After waiting over 3 weeks for my Intrinsic Factor blood test - it’s normal Intrinsic Factor ABS 2.30 - so I am to take CyanocoMinn 50mg - 2 each day for 8 weeks and then more tests including celiac test. I am feeling incredibly tired and wiped out at the moment, which I just put down to PMR so hope
jules1955
in
PMRGCAuk
2 years ago
Liver test & starting methotrexate.
hi everyone. I'm a bit confused, I had my chest x Ray and blood test ready to start methotrexate, but the nurse called and said my liver result was a bit high and also my immflamation markers were up although my CRP being raised doesn't surprise me in the slightest seeing as I'm still in my initial
hi everyone. I'm a bit confused, I had my chest x Ray and blood test ready to start methotrexate, but the nurse called and said my liver result was a bit high and also my immflamation markers were up although my CRP being raised doesn't surprise me in the slightest seeing as I'm still in my initial
Nelliekel
in
NRAS
2 years ago
confused re blood results
please help! I have many classic lupus (or rheumatoid arthritis) symptoms inc joint pain, skin rashes esp after being in sun, tingling in fingers, fatigue and headaches. ANA was negative but following a further set of bloods done by a private rheumatologist, he confirmed that they were all normal.
please help! I have many classic lupus (or rheumatoid arthritis) symptoms inc joint pain, skin rashes esp after being in sun, tingling in fingers, fatigue and headaches. ANA was negative but following a further set of bloods done by a private rheumatologist, he confirmed that they were all normal.
JFN1
in
LUPUS UK
2 years ago
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