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Coagulation factor X
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diagnosed
Was originally diagnosed 8 years ago. I have not had injections for 2 years due to covid so asked GP to restart them but wouldn’t without blood test etc. blood test has come back saying b12 is normal and intrinsic factor is negative so he is saying I don’t have PA anymore? And therefore won’t treat me
Was originally diagnosed 8 years ago. I have not had injections for 2 years due to covid so asked GP to restart them but wouldn’t without blood test etc. blood test has come back saying b12 is normal and intrinsic factor is negative so he is saying I don’t have PA anymore? And therefore won’t treat me
Moon1309
in
Pernicious Anaemia Society
2 years ago
Want to speed things up
Hello, I am currently waiting for a diagnosis, after a chest X ray and chronic breathlessness suggested COPD (emphysema) may be a possibility. I have only been waiting for about four months for the spirometry test, but I really would like it over and done with before mid-September, when work gets
Hello, I am currently waiting for a diagnosis, after a chest X ray and chronic breathlessness suggested COPD (emphysema) may be a possibility. I have only been waiting for about four months for the spirometry test, but I really would like it over and done with before mid-September, when work gets
d0ttysslave
in
Lung Conditions Community Forum
2 years ago
feeling like I’m on a boat… light headed dizzy after increasing b12 lozenges
hi again guys I’ve been taking b12 lozenges daily now 5000mcg x 5-6 a day to increase the dose while I wait for GPS to do their investigations… intrinsic factor came back at 1.63 but I know it’s not reliable. Waiting to see haematology and neurology privetly so don’t want to take too many more supplements
hi again guys I’ve been taking b12 lozenges daily now 5000mcg x 5-6 a day to increase the dose while I wait for GPS to do their investigations… intrinsic factor came back at 1.63 but I know it’s not reliable. Waiting to see haematology and neurology privetly so don’t want to take too many more supplements
Cookiedough2022
in
Pernicious Anaemia Society
2 years ago
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Has anyone else had PMR pains affect their knee joints?
Hello all, I haven't been on site much of late as I've been pretty stable on 3 mg pred now for about 4 yrs plus. Never managed to get below successfully but finally I managed to do so at the Rhuematologists' suggestion and some alternative drugs he gave me to get me through any pain issues to see if
Hello all, I haven't been on site much of late as I've been pretty stable on 3 mg pred now for about 4 yrs plus. Never managed to get below successfully but finally I managed to do so at the Rhuematologists' suggestion and some alternative drugs he gave me to get me through any pain issues to see if
JudithWarrior
in
PMRGCAuk
2 years ago
Advice please, recently diagnosed with underactive thyroid.
Hi, I was started on 50mcg levothyroxine daily a few months ago which was then increased to 75mcg after I spoke with the doctor (GP), initially I was told that my levels were ok by the receptionist but discovered my TSH was still slightly elevated so asked for a doctor to contact me. I have now had the
Hi, I was started on 50mcg levothyroxine daily a few months ago which was then increased to 75mcg after I spoke with the doctor (GP), initially I was told that my levels were ok by the receptionist but discovered my TSH was still slightly elevated so asked for a doctor to contact me. I have now had the
Hidden
in
Thyroid UK
2 years ago
jevtana Cough
hi all. Dad just had his 3rd round of jevtana and has developed a cough ( sounds wet) with some increasing irritation in his throat. No fever etc. I know cough can be a side effect but just wondering if others have managed this or is this something more sinister going on? Mets have been limited to bones
hi all. Dad just had his 3rd round of jevtana and has developed a cough ( sounds wet) with some increasing irritation in his throat. No fever etc. I know cough can be a side effect but just wondering if others have managed this or is this something more sinister going on? Mets have been limited to bones
Poppi07
in
Advanced Prostate Cancer
2 years ago
should I be concerned
due to me still not feeling well, I decided to take another medichecks test. now I'm so confused about my results. how can my TSH come down, FT4 reduce and FT3 reduce oo? unmedicated undiagnosed took test how everyone advised to. negative celiac vitamins poor again after being prescription
due to me still not feeling well, I decided to take another medichecks test. now I'm so confused about my results. how can my TSH come down, FT4 reduce and FT3 reduce oo? unmedicated undiagnosed took test how everyone advised to. negative celiac vitamins poor again after being prescription
Peppermints
in
Thyroid UK
2 years ago
FACTOR VIII RISTOCETIN COFACT and FACTOR VIII ACTIVITY ASSAY results
Hello, I hope you are all doing well! Quick question, does daily aspirin lower FACTOR VIII RISTOCETIN COFACT and FACTOR VIII ACTIVITY ASSAY or is this a result of ET? My 16 yo daughters results have dropped from date: 12/21 - 44L to date: 06/22 - 37L everything else is normal, with the
Hello, I hope you are all doing well! Quick question, does daily aspirin lower FACTOR VIII RISTOCETIN COFACT and FACTOR VIII ACTIVITY ASSAY or is this a result of ET? My 16 yo daughters results have dropped from date: 12/21 - 44L to date: 06/22 - 37L everything else is normal, with the
Piperpeeps
in
MPN Voice
2 years ago
intrinsic factor antibody test results
Hi all, I wrote some time ago to say that following having lots of symptoms of B12 problems for some time I paid for an online extended B12 test which showed I was positive for intrinsic factor antibodies but normal B12. I gave these results to my GP who arranged their own NHS intrinsic factor test
Hi all, I wrote some time ago to say that following having lots of symptoms of B12 problems for some time I paid for an online extended B12 test which showed I was positive for intrinsic factor antibodies but normal B12. I gave these results to my GP who arranged their own NHS intrinsic factor test
Tinglypalps
in
Pernicious Anaemia Society
2 years ago
My journey so far............
Hi guys I have only just joined this group and would like to share my journey so far with you all. I have had a tickly night cough since January this year, some nights I would cough for an hour, others for a couple of minutes some not at all. I eventually contacted my GP and was sent for a routine chest
Hi guys I have only just joined this group and would like to share my journey so far with you all. I have had a tickly night cough since January this year, some nights I would cough for an hour, others for a couple of minutes some not at all. I eventually contacted my GP and was sent for a routine chest
packla
in
The Roy Castle Lung Cancer Foundation
2 years ago
thyroid test results after a 25mg increase, could someone have a look for me ..
My results from Medichecks test done on 4th August & I will pop up previous results from 11th March underneath each result , all the same range . Unfortunately I waited a long time for an early appointment which was 9am but the lady & her baby ahead of me had some sort of problem & my test was not done
My results from Medichecks test done on 4th August & I will pop up previous results from 11th March underneath each result , all the same range . Unfortunately I waited a long time for an early appointment which was 9am but the lady & her baby ahead of me had some sort of problem & my test was not done
Spoticus
in
Thyroid UK
2 years ago
List of blood panel Abbreviations.
I hope this list helps others read their blood work panel.. I'm not sure if they are the same in the UK. A1A Alpha-1 Antitrypsin A1c Hemoglobin A1c AB Antibody ABG Arterial Blood Gas ABRH ABO Group and Rh Type ABT Antibody Titer ACA Anti-Cardiolipin Antibodies ACE Angiotensin Converting Enzyme
I hope this list helps others read their blood work panel.. I'm not sure if they are the same in the UK. A1A Alpha-1 Antitrypsin A1c Hemoglobin A1c AB Antibody ABG Arterial Blood Gas ABRH ABO Group and Rh Type ABT Antibody Titer ACA Anti-Cardiolipin Antibodies ACE Angiotensin Converting Enzyme
EllaNore
in
Pernicious Anaemia Society
2 years ago
Nocturnal hypertension A to B to C
I have nocturnal hypertension. The hypertension has caused kidney issues. I see a kidney specialist in September. I think we have figured out the cause. In 1999 I had surgery for reflux. The surgery is called a Nissen fundoplication. The surgery was incorrectly done. In 2002 I had to
I have nocturnal hypertension. The hypertension has caused kidney issues. I see a kidney specialist in September. I think we have figured out the cause. In 1999 I had surgery for reflux. The surgery is called a Nissen fundoplication. The surgery was incorrectly done. In 2002 I had to
phebamom
in
PMRGCAuk
2 years ago
privet blood tests and privet specialist
can anyone help with the best places to get a privet blood test for intrinsic factor , MMA etc? I am in the uk . GP has sent for some but are taking ages to come back and it seems the levels can vary so much so like to investigate for myself… thanks in advanced. also can anyone message me privately
can anyone help with the best places to get a privet blood test for intrinsic factor , MMA etc? I am in the uk . GP has sent for some but are taking ages to come back and it seems the levels can vary so much so like to investigate for myself… thanks in advanced. also can anyone message me privately
Cookiedough2022
in
Pernicious Anaemia Society
2 years ago
wheeze cough
Hi all Since May quad CBAG 7 weeks ago I have a couple of things that I thought would go away and haven’t the first is I’m getting a lot more phlegm I don’t think this is down to my heart I think it’s more likely to be the fact I don’t swallow very well and I was tube for around 10 hours. The second
Hi all Since May quad CBAG 7 weeks ago I have a couple of things that I thought would go away and haven’t the first is I’m getting a lot more phlegm I don’t think this is down to my heart I think it’s more likely to be the fact I don’t swallow very well and I was tube for around 10 hours. The second
Jako999
in
British Heart Foundation
2 years ago
Given Bisoprolol as a precaution due to chest pain
Hi I'm new to the group but wanted to know if anyone has had a similar experience to me. over the past 2/ 3 months I have been getting chest pain one night I felt very unwell so went to A&E where I had an ECG and blood tests and a chest x-ray. All came back clear so got referred to chest pain clinic
Hi I'm new to the group but wanted to know if anyone has had a similar experience to me. over the past 2/ 3 months I have been getting chest pain one night I felt very unwell so went to A&E where I had an ECG and blood tests and a chest x-ray. All came back clear so got referred to chest pain clinic
14566787
in
British Heart Foundation
2 years ago
Is Warfarin/blood-thinner given by GPs (in UK) for suspected Pulmonary Hypertension - or does it require Hospital scanning first?
My situation is, a recent Echocardiogram stated I have "intermediate probability of Pulmonary Hypertension". I had this scan done because I have persistent high systolic-BP (which averages in the 140-150 range). I don't really have any troublesome symptoms other than this high-BP. And the rest of
My situation is, a recent Echocardiogram stated I have "intermediate probability of Pulmonary Hypertension". I had this scan done because I have persistent high systolic-BP (which averages in the 140-150 range). I don't really have any troublesome symptoms other than this high-BP. And the rest of
reb_1951
in
Lung Conditions Community Forum
2 years ago
Trying to get a diagnosis of PA via a GP
Good evening Due to feeling unwell with loss of appetite, feeling of being full, chronic fatigue, shortness of breath, impaired vision with floating black dots - i could go on! and already knowing i was anaemic, I asked the GP for a bit b12 blood test, this came back as normal but I have low serum
Good evening Due to feeling unwell with loss of appetite, feeling of being full, chronic fatigue, shortness of breath, impaired vision with floating black dots - i could go on! and already knowing i was anaemic, I asked the GP for a bit b12 blood test, this came back as normal but I have low serum
4daughters1971
in
Pernicious Anaemia Society
2 years ago
my new rummy 🥹🤔
can’t knock her. Gave me 12 boxes of pred 😱 A very good check over sent me for another chest X-ray blood test I was with her 40 minutes. Nothing positive yet kept me on 6 tabs until further notice.but she is nice. One Day 🤷♂️ Sum things will come up And I have a contact number. 🍀🍀🍀🍀🍀🍀🍀
can’t knock her. Gave me 12 boxes of pred 😱 A very good check over sent me for another chest X-ray blood test I was with her 40 minutes. Nothing positive yet kept me on 6 tabs until further notice.but she is nice. One Day 🤷♂️ Sum things will come up And I have a contact number. 🍀🍀🍀🍀🍀🍀🍀
Ronzy
in
PMRGCAuk
2 years ago
Worth a Spit ? Why saliva could hold the answer
Trying to work out how B12 makes the journey: - Salivary glands produce Haptocorrin (HC), which binds to the B12 in food (the extrinsic factor) - HC/ B12 mix then travels on via oesophagus into the stomach - HC/B12 mix can survive the low PH of stomach - Parietal cells produce hydrochloric
Trying to work out how B12 makes the journey: - Salivary glands produce Haptocorrin (HC), which binds to the B12 in food (the extrinsic factor) - HC/ B12 mix then travels on via oesophagus into the stomach - HC/B12 mix can survive the low PH of stomach - Parietal cells produce hydrochloric
Cherylclaire
Forum Support
in
Pernicious Anaemia Society
2 years ago
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