Search
Search
About
Log in
Join
Experiences with
Chronic migraine
Posts
Communities
7,040 public posts
Filter results
Has anyone tried Hydroxychloroquin for CLL?
There are studies showing HCQ causes apoptosis in CLL, lowering the WBC. Did anyone take HCQ for covid and find their WBC dropped?
There are studies showing HCQ causes apoptosis in CLL, lowering the WBC. Did anyone take HCQ for covid and find their WBC dropped?
sharksalive
in
CLL Support
2 years ago
PCV 20 Guidelines ? Get 20 if you already had 13 and 23 - or not ?
One pharmacist in Florida refused to give PCV 20 "because guidelines say that if you had other previous pneumo vaccinations you do not need PCV 20 !" I got PCV 13 in 2015 and PCV 23 in 2005. My understanding of the literature is that PCV20 is now "updated" and everybody should get it who may get it
One pharmacist in Florida refused to give PCV 20 "because guidelines say that if you had other previous pneumo vaccinations you do not need PCV 20 !" I got PCV 13 in 2015 and PCV 23 in 2005. My understanding of the literature is that PCV20 is now "updated" and everybody should get it who may get it
janvog
in
CLL Support
2 years ago
IgHV - unmutated and Acalabrutinib
Saw my CLL specialist yesterday and he had the results of the IgHV testing he requested. It seems I am unmutated status which isn't great news. At the time of starting treatment, we were in 1st year of pandemic and Acalabrutinib was offered. As he said normally I would have been offered FCR because
Saw my CLL specialist yesterday and he had the results of the IgHV testing he requested. It seems I am unmutated status which isn't great news. At the time of starting treatment, we were in 1st year of pandemic and Acalabrutinib was offered. As he said normally I would have been offered FCR because
Eucalyptus22
in
CLL Support
2 years ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Testing just before OTD
Hello ladies, me again. The I want to desperately test early person š I have never had an hcg shot before 2ww so need your experience. If I test just say the night before OTD, would the test result be quite accurate? Especially if the line goes really dark? My OTD is on day 13, by then the line should
Hello ladies, me again. The I want to desperately test early person š I have never had an hcg shot before 2ww so need your experience. If I test just say the night before OTD, would the test result be quite accurate? Especially if the line goes really dark? My OTD is on day 13, by then the line should
pink_lemon
in
Fertility Network UK
1 year ago
New to this and very afraid
Hello folks...My GP feels my bloods indicate CLL...PANIC. Referring me to a Haematology Doctor 58 with dependent kids and mortgage Any information re the below would be great. Immunophenotyping PB has been done with Tcell Tcell helper cells and cytoxiccell all low.. L22 L14 L7 B cells High 64 66
Hello folks...My GP feels my bloods indicate CLL...PANIC. Referring me to a Haematology Doctor 58 with dependent kids and mortgage Any information re the below would be great. Immunophenotyping PB has been done with Tcell Tcell helper cells and cytoxiccell all low.. L22 L14 L7 B cells High 64 66
Stew64
in
CLL Support
2 years ago
My MD Anderson doctor is leaving
I received a letter on Saturday that my oncologist at MD Anderson, Dr. Philip Thompson, is leaving effective January 3, 2023. Nooooooooo! Dr. Thompson is originally from Australia and has made the decision to return to Melbourne and join the Low-Grade Lymphoma and CLL group at the Peter MacCallum Cancer
I received a letter on Saturday that my oncologist at MD Anderson, Dr. Philip Thompson, is leaving effective January 3, 2023. Nooooooooo! Dr. Thompson is originally from Australia and has made the decision to return to Melbourne and join the Low-Grade Lymphoma and CLL group at the Peter MacCallum Cancer
Lisa-1959
in
CLL Support
2 years ago
Our 2022 Christmas Donations Appeal Will you help us to reach and support more CLL patients this Christmas?
This year has been another difficult year for everyone, especially for the vulnerable and the charities that support them, like CLL Support UK, the charity of which HealthUnlocked CLL Support is the online support presence.
We know that this
Christmas
may be more relaxed than the last
This year has been another difficult year for everyone, especially for the vulnerable and the charities that support them, like CLL Support UK, the charity of which HealthUnlocked CLL Support is the online support presence.
We know that this
Christmas
may be more relaxed than the last
AussieNeil
Partner
in
CLL Support
2 years ago
Lower back pain and spotting light brown
Ladies ā¦Mamas and mamas to be pls advise š Any one of you experienced bad lower back on and off as well as brown spotting before and after BFP. I had a FET and tested positive from 8 days past transfer now Im on day 10 .aMy OTD is Sunday as day 12 ,however this back pain and occasional pelvic
Ladies ā¦Mamas and mamas to be pls advise š Any one of you experienced bad lower back on and off as well as brown spotting before and after BFP. I had a FET and tested positive from 8 days past transfer now Im on day 10 .aMy OTD is Sunday as day 12 ,however this back pain and occasional pelvic
Seyedeh
in
Fertility Network UK - Pregnancy Support
1 year ago
Letrozole
Hi All, Iām currently on cycle 4 of letrozole. Currently DAY 22, I am now 9DPT - and have lower back pain, which Iām assuming is linked to AF being due anytime now. My question is how long did it take for the HCG to leave your system if you triggered, and when did it come back. Please find attached
Hi All, Iām currently on cycle 4 of letrozole. Currently DAY 22, I am now 9DPT - and have lower back pain, which Iām assuming is linked to AF being due anytime now. My question is how long did it take for the HCG to leave your system if you triggered, and when did it come back. Please find attached
Beela
in
Fertility Network UK
1 year ago
Early testing after hcg trigger
So probably a silly question, I have never been in this situation (did a natural FET last time). This time I got an hcg trigger plus hcg injections as progesterone support. Now, I want to test early but obviously I would still have hcg in my body from the trigger, so it would not be an accurate result
So probably a silly question, I have never been in this situation (did a natural FET last time). This time I got an hcg trigger plus hcg injections as progesterone support. Now, I want to test early but obviously I would still have hcg in my body from the trigger, so it would not be an accurate result
pink_lemon
in
Fertility Network UK
1 year ago
Symptoms OC after transvaginal ultrasound
Hi, I am 39. My cycle is very regular, and I've started to have heavy bleeding during my periods. I had a first pelvic ultrasound : the report says I have some irregularities in my endometrium and a small cyst. Two month after, right after the end of my period, I had a biopsy and an transvaginal
Hi, I am 39. My cycle is very regular, and I've started to have heavy bleeding during my periods. I had a first pelvic ultrasound : the report says I have some irregularities in my endometrium and a small cyst. Two month after, right after the end of my period, I had a biopsy and an transvaginal
suricat
in
My Ovacome
1 year ago
Liver Transplant first then kidney transplant after recovery
My husband has stage 4 CKD and liver cirrhosis and diabetes 2. Yesterday we had a meeting at the hospital with a professor from the transplant team in Birmingham. He has confirmed my husband needs a kidney and liver transplant due to uncontrollable hepatic encephalopathy If after all the health checks
My husband has stage 4 CKD and liver cirrhosis and diabetes 2. Yesterday we had a meeting at the hospital with a professor from the transplant team in Birmingham. He has confirmed my husband needs a kidney and liver transplant due to uncontrollable hepatic encephalopathy If after all the health checks
Canttakemyeyesoffyou
in
British Liver Trust
2 years ago
Low Beta HCG post FET and left groin pain.
I am wondering if anyone has had a similar experience to me but had a positive outcome? I had a Beta HCG of 38 10DPET, then my repeat 2 days later was 80. The nurse told me we are not out of the woods yet and even though itās doubled itās highly likely to be an ectopic or biochemical pregnancy. I have
I am wondering if anyone has had a similar experience to me but had a positive outcome? I had a Beta HCG of 38 10DPET, then my repeat 2 days later was 80. The nurse told me we are not out of the woods yet and even though itās doubled itās highly likely to be an ectopic or biochemical pregnancy. I have
Jodielee29
in
Fertility Network UK
1 year ago
Co-Managing Depression and My Other Chronic Illness
Angie Ebba, 41, who lives with a number of disabilities, including ankylosing spondylitis, fibromyalgia,
chronic
migraine
, and PTSD, says that depression had turned her world into shades of gray.
Angie Ebba, 41, who lives with a number of disabilities, including ankylosing spondylitis, fibromyalgia,
chronic
migraine
, and PTSD, says that depression had turned her world into shades of gray.
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
2 years ago
5 weeks - heavy bleeding (potentially sensitive)
Hi All, Iāve been through a whirlwind over the last few days. BFP since 7dp5dt and with tests getting stronger every 48hrs up to 13dp5dt. Then on 14dp5dt I started to see dark brown and watery blood in the morning. By the evening, it was full on heavy, red blood with huge clots and pain. Eventually
Hi All, Iāve been through a whirlwind over the last few days. BFP since 7dp5dt and with tests getting stronger every 48hrs up to 13dp5dt. Then on 14dp5dt I started to see dark brown and watery blood in the morning. By the evening, it was full on heavy, red blood with huge clots and pain. Eventually
Rubyr3d
in
Fertility Network UK
1 year ago
Passing it on.
I was wondering if leukaemia can be hereditary. I was diagnosed with CLL 3 years ago, my wife died from AML and the thought of my children being susceptible crossed my mind. I did ask Doctor Google the question but it seems the jury is out on that subject.
I was wondering if leukaemia can be hereditary. I was diagnosed with CLL 3 years ago, my wife died from AML and the thought of my children being susceptible crossed my mind. I did ask Doctor Google the question but it seems the jury is out on that subject.
Bigglesworth
in
CLL Support
2 years ago
6 weeks baby implanted on the low side of the womb
hi , I am 6 weeks pregnant, went through so much so far , started with no meds enough ( ivf abroad) , bleeding, ā¦. I still have spotting, my doctor told me to start progynova ( estradiol) 2 times a day. I repeated hcg ( 9000 ) and done a scan . I was told I have a Subchorionic hematoma (SCH)Ā next to
hi , I am 6 weeks pregnant, went through so much so far , started with no meds enough ( ivf abroad) , bleeding, ā¦. I still have spotting, my doctor told me to start progynova ( estradiol) 2 times a day. I repeated hcg ( 9000 ) and done a scan . I was told I have a Subchorionic hematoma (SCH)Ā next to
MariannaB
in
Fertility Network UK
1 year ago
Early pregnancy cramping
I had my BFP this week, but I'm still getting on and off cramping. It's worse in the afternoon/evenings. It's like mild period pain, but it seems to go in for several hours. Someone tell me that this is normal! Worth saying my beta HCG was good and the clinic say it's just the hormones. But I just
I had my BFP this week, but I'm still getting on and off cramping. It's worse in the afternoon/evenings. It's like mild period pain, but it seems to go in for several hours. Someone tell me that this is normal! Worth saying my beta HCG was good and the clinic say it's just the hormones. But I just
Simmokt
in
Fertility Network UK - Pregnancy Support
1 year ago
covid and migraine
I have
chronic
daily headaches/
migraine
. I'm now wiped out with Covid but the worst part seems to be my migraine pain having gone up another level. Every time I cough the pain behind my eyes from the migraine is awful.
I have
chronic
daily headaches/
migraine
. I'm now wiped out with Covid but the worst part seems to be my migraine pain having gone up another level. Every time I cough the pain behind my eyes from the migraine is awful.
Cara71
in
Migraine Support
2 years ago
test interpretation
I have a rather long summary page from my flow cytrometry test and I understand none of it. Can someone here please help? translate to common language I can understand? I apologize if this is not the right thing to post. I had to push to get the test done as within this past year my lymphocytes and white
I have a rather long summary page from my flow cytrometry test and I understand none of it. Can someone here please help? translate to common language I can understand? I apologize if this is not the right thing to post. I had to push to get the test done as within this past year my lymphocytes and white
DianeSH
in
CLL Support
2 years ago
1
...
37
38
39
...
100
Next page
10
20
30
40
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
Fertility Network UK
1538 results
CLL Support
1457 results
National Migraine Centre
1041 results
View top 10 communities
Sort by
Most Relevant
Newest