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Asthma and work .
The thing is each asthma attack is getting put on my Bradford score and I get pulled in for a attendance review , think on number 6 now cause it keeps triggering a review , because I had a couple of separate incidence of sickness , I also get
chronic
migraine
under a neurologist and osteoarthritis in
The thing is each asthma attack is getting put on my Bradford score and I get pulled in for a attendance review , think on number 6 now cause it keeps triggering a review , because I had a couple of separate incidence of sickness , I also get
chronic
migraine
under a neurologist and osteoarthritis in
Jazz70
in
Asthma Community Forum
4 months ago
aimovig experiences
Hi Migraines have been dominating my life for ever but so much worse in the last 4-5 years when painkillers have been no use. After trying many preventatives that failed and having short lived success with keto for migraine I am now awaiting my first batch of aimovig injections next week. I'm hopeful
Hi Migraines have been dominating my life for ever but so much worse in the last 4-5 years when painkillers have been no use. After trying many preventatives that failed and having short lived success with keto for migraine I am now awaiting my first batch of aimovig injections next week. I'm hopeful
Discodog
in
National Migraine Centre
11 months ago
Supportive wife
Hi there! My husband was diagnosed with CLL in 2015. He had zero issues, I was just concerned about esophageal issues (burping) and requested a 50-year full physical so we could get a scope. Within two weeks my husband had diagnosis for esophageal cancer at GE junction (14% survival rate) and CLL.
Hi there! My husband was diagnosed with CLL in 2015. He had zero issues, I was just concerned about esophageal issues (burping) and requested a 50-year full physical so we could get a scope. Within two weeks my husband had diagnosis for esophageal cancer at GE junction (14% survival rate) and CLL.
Cb1391
in
CLL Support
8 months ago
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A new kid on the block? Nemtabrutinib
Hi All, There is a new targeted drug in Clinical Trials that may offer a new treatment option for us CLLers—Nemtabrutinib. For the entire article on this drug go to cancer.osu.edu and scroll down to “First in human trial of new drug raises hopes for patients with relapsed blood cancer” dated 11/06/
Hi All, There is a new targeted drug in Clinical Trials that may offer a new treatment option for us CLLers—Nemtabrutinib. For the entire article on this drug go to cancer.osu.edu and scroll down to “First in human trial of new drug raises hopes for patients with relapsed blood cancer” dated 11/06/
Varney
in
CLL Support
8 months ago
Nose question
I know this sounds really stupid but this evening I've developed a tingle / tickle to the outside of my left nostril. Originally I thought it was a hair perhaps attached to my glasses that was tickling, but it wasn't. I do have anxiety but have felt fairly relaxed today. Thank you
I know this sounds really stupid but this evening I've developed a tingle / tickle to the outside of my left nostril. Originally I thought it was a hair perhaps attached to my glasses that was tickling, but it wasn't. I do have anxiety but have felt fairly relaxed today. Thank you
hollyrain
in
Anxiety Support
11 months ago
Migraines got worse after surgery
It is 95 days since my ablation for AFIB and I'm still experiencing migraine with aura. I had a CT done as a precaution and all was normal. History: I have had migraines with aura since I was a teenager (40 years) so they are not new to me, but with Nurtec and Aimvoig, I had maybe one a month prior
It is 95 days since my ablation for AFIB and I'm still experiencing migraine with aura. I had a CT done as a precaution and all was normal. History: I have had migraines with aura since I was a teenager (40 years) so they are not new to me, but with Nurtec and Aimvoig, I had maybe one a month prior
Elizka
in
National Migraine Centre
11 months ago
Migraines Post Ablation Continue
It is 95 days since my ablation and I'm still experiencing migraine with aura. I had a CT done as a precaution and all was normal. History: I have had migraines since I was a teenager, so they are not new to me, but with Nurtec and Aimvoig, I had maybe one a month prior to my ablation. Woke up
It is 95 days since my ablation and I'm still experiencing migraine with aura. I had a CT done as a precaution and all was normal. History: I have had migraines since I was a teenager, so they are not new to me, but with Nurtec and Aimvoig, I had maybe one a month prior to my ablation. Woke up
Elizka
in
AF Association
11 months ago
Botox
I've recently had Botox for
chronic
migraine
. I had the injections two weeks ago and instead of seeing an improvement it seems to have flared everything up. I have worsening migraine and neck pain. Just wondered if this has happened to anyone else and when things improved or at least settled?
I've recently had Botox for
chronic
migraine
. I had the injections two weeks ago and instead of seeing an improvement it seems to have flared everything up. I have worsening migraine and neck pain. Just wondered if this has happened to anyone else and when things improved or at least settled?
Cara71
in
National Migraine Centre
1 year ago
Throat tightness
Hello has anyone had tightness in throat like pressure feeling? I can breathe and swallow ok but it's so annoying. I've been suffering severe fatigue and feeling like my body is full of led my GP continues to take blood and did mention I have hyperthyroidism before Christmas but didn't give me any
Hello has anyone had tightness in throat like pressure feeling? I can breathe and swallow ok but it's so annoying. I've been suffering severe fatigue and feeling like my body is full of led my GP continues to take blood and did mention I have hyperthyroidism before Christmas but didn't give me any
Joylene123
in
Thyroid UK
5 months ago
ACR (Microalbumin/Creatinine Ratio)
My Urine’s ACR result is 8.4 mg/mmol. HbA1C is 8.5. I am very worried. Kindly advise or provide insights.
My Urine’s ACR result is 8.4 mg/mmol. HbA1C is 8.5. I am very worried. Kindly advise or provide insights.
Limeandlemon
in
Diabetes India
5 months ago
Optical nerve deterioration
I also have diagnosis of
chronic
migraine
with right side weakness and constant aura, and Parkinson's (early stages of) but just wondering how others cope, thanks xx
I also have diagnosis of
chronic
migraine
with right side weakness and constant aura, and Parkinson's (early stages of) but just wondering how others cope, thanks xx
Jan1964
in
Fibromyalgia Action UK
1 year ago
nutritional support/supplements for CLL
Hi we have just had recent diagnosis of CLL Any dietary or supplements tips? Have heard Green tea is helpful?
Hi we have just had recent diagnosis of CLL Any dietary or supplements tips? Have heard Green tea is helpful?
kingfishermountain
in
CLL Support
8 months ago
vaccines
hi everyone!! I’ve recently ( couple of weeks ago) been diagnosed with CLL waiting for bone marrow biopsy now as it’s not understood why I’m so poorly so no treatment yet until those biopsy results incase there’s more going on. I wanted to ask if anyone else isn’t comfortable or even refuses vaccines
hi everyone!! I’ve recently ( couple of weeks ago) been diagnosed with CLL waiting for bone marrow biopsy now as it’s not understood why I’m so poorly so no treatment yet until those biopsy results incase there’s more going on. I wanted to ask if anyone else isn’t comfortable or even refuses vaccines
Dragonfly766
in
CLL Support
8 months ago
Sugar Alcohols Ruined My Health: Learn from My Mistakes
Given the number of members who are intolerant to Teva levothyroxine, this video might be of some interest. Many suspect it is the mannitol content of Teva levothyroxine that lies behind the intolerance. After all, there were also many complaints around the world as Merck have slowly move from lactose
Given the number of members who are intolerant to Teva levothyroxine, this video might be of some interest. Many suspect it is the mannitol content of Teva levothyroxine that lies behind the intolerance. After all, there were also many complaints around the world as Merck have slowly move from lactose
helvella
Thyroid UK
in
Thyroid UK
5 months ago
Update re ASCT relapse
Due to my cll returning and having had several new lines of treatment my consultants both my Cll specialist and my transplant specialist have offered me Rchop chemotherapy as one of my few options. This treatment I believe is not used to treat cll but used to treat lymphomas. Apparently it has been
Due to my cll returning and having had several new lines of treatment my consultants both my Cll specialist and my transplant specialist have offered me Rchop chemotherapy as one of my few options. This treatment I believe is not used to treat cll but used to treat lymphomas. Apparently it has been
Kraskie1915
in
CLL Support
8 months ago
wondering about lithium orotate
I have recently been told, by a naturopath , that when receving B12 injections it is a good idea to take 5mg of Lithium Orotate daily. They felt it helped transport B12 out of the blood stream and into the cells. I am wondering if anyone else has heard of this? I don't know if it is some kind of scam
I have recently been told, by a naturopath , that when receving B12 injections it is a good idea to take 5mg of Lithium Orotate daily. They felt it helped transport B12 out of the blood stream and into the cells. I am wondering if anyone else has heard of this? I don't know if it is some kind of scam
Eowyn1
in
Pernicious Anaemia Society
11 months ago
B CELL lymphoma
Hello friends, Question- had a fish test done and the test revealed negative for B Cell lymphoma has anyone had this reading before and still have CLL? lol I’m totally confused.. nothing new there! I did call the Doc to see what he thinks haven’t heard anything yet. Thought I would ask to see if you
Hello friends, Question- had a fish test done and the test revealed negative for B Cell lymphoma has anyone had this reading before and still have CLL? lol I’m totally confused.. nothing new there! I did call the Doc to see what he thinks haven’t heard anything yet. Thought I would ask to see if you
Tchapman
in
CLL Support
8 months ago
Petechia
I have been treated with Ibrutinib for 16 months and have responded to treatment really well. My white blood count was 148.7 when I started treatment now I am 14.7. I have Petechia on arms and legs. My platelets are 278. Just wondering what could be causing this. This is my first time to post and
I have been treated with Ibrutinib for 16 months and have responded to treatment really well. My white blood count was 148.7 when I started treatment now I am 14.7. I have Petechia on arms and legs. My platelets are 278. Just wondering what could be causing this. This is my first time to post and
Glasstop
in
CLL Support
8 months ago
CLL/SLL and ischemic bowel death
My brother had untreated SLL. He died March 2022, after a week of omicron Covid infection that seemed to pass mid January of that year. We have heard rumors that many with CLL/SLL die of blood clot/ischemia, but I have been unable to confirm. Are there data to confirm this? I myself have CLL, which
My brother had untreated SLL. He died March 2022, after a week of omicron Covid infection that seemed to pass mid January of that year. We have heard rumors that many with CLL/SLL die of blood clot/ischemia, but I have been unable to confirm. Are there data to confirm this? I myself have CLL, which
prichman
in
CLL Support
8 months ago
Sabril (Vigabatrin) recall - 14 July 2023
The Medicines and Healthcare products Regulatory Agency (MHRA) has issued a medicines recall affecting some Sabril tablets and granules. Sabril is the brand name for the epilepsy medicine, vigabatrin. There's more information and the batches affected here https://www.epilepsy.org.uk/sabril-vigabatrin-recall
The Medicines and Healthcare products Regulatory Agency (MHRA) has issued a medicines recall affecting some Sabril tablets and granules. Sabril is the brand name for the epilepsy medicine, vigabatrin. There's more information and the batches affected here https://www.epilepsy.org.uk/sabril-vigabatrin-recall
EpilepsyAction1
Epilepsy Action
in
Epilepsy Action
1 year ago
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