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Kid ni Not
My book relating experiences, dialysis, and food choices. Available at Amazon and Barnes and Noble. Kid ni Not Paperback by Dorothy Chang-Van Horn (Author) See all formats and editions Kid ni Not is intended for readers with kidney failure and their relatives. It describes the kidneys' functions
My book relating experiences, dialysis, and food choices. Available at Amazon and Barnes and Noble. Kid ni Not Paperback by Dorothy Chang-Van Horn (Author) See all formats and editions Kid ni Not is intended for readers with kidney failure and their relatives. It describes the kidneys' functions
TuLiChang
in
Kidney Dialysis
3 years ago
Pruritus and peginterferon
Does anyone feel their pruritus has worsened while using peginterferon? Also if the itching becomes more bothersome does it mean the illness is getting worse? I am on weekly injections 90mcg for primary myelofibrosis for about 2 years and do not have a lot of itching, just occasional.
Does anyone feel their pruritus has worsened while using peginterferon? Also if the itching becomes more bothersome does it mean the illness is getting worse? I am on weekly injections 90mcg for primary myelofibrosis for about 2 years and do not have a lot of itching, just occasional.
caroline_284
in
MPN Voice
3 years ago
Help for those who need a kidney transplant
From a nonprofit organization: www.LKDN.org a Free online program that shows you how others have achieved a successful living kidney transplant experience. Having Your Kidney Donor Find YOU! www.havingyourkidneydonorfindyou.org Information developed by a 2-time kidney transplant recipient.
From a nonprofit organization: www.LKDN.org a Free online program that shows you how others have achieved a successful living kidney transplant experience. Having Your Kidney Donor Find YOU! www.havingyourkidneydonorfindyou.org Information developed by a 2-time kidney transplant recipient.
hmysel
in
Kidney Transplant Patient Support
3 years ago
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Webinar 11th August 12.30pm, CAR - T therapy update
Luminita Keating, CAR-T Clinical Nurse Specialist, Addenbrooke's, Cambridge University Hospitals NHS Foundation Trust Deborah Sims, CAR-T treated
chronic
lymphocytic
leukaemia
(CLL) patient Sophie Wheldon, CAR-T treated acute lymphoblastic leukaemia (ALL) patient
Luminita Keating, CAR-T Clinical Nurse Specialist, Addenbrooke's, Cambridge University Hospitals NHS Foundation Trust Deborah Sims, CAR-T treated
chronic
lymphocytic
leukaemia
(CLL) patient Sophie Wheldon, CAR-T treated acute lymphoblastic leukaemia (ALL) patient
HAIRBEAR_UK
Administrator
in
Leukaemia CARE
3 years ago
My HCT was low for me..help.
I have PV. Not taking any meds for it yet. I had a phlebotomy on 8-10. I normally don't get a CBC for 2-3 months after a PB to allow my HCT to get above 42 which is when I get a PB. By on 9-22 I was at the doctor so I got a CBC. It was about 40 days after my phlebotomy. My hemo just emailed that he
I have PV. Not taking any meds for it yet. I had a phlebotomy on 8-10. I normally don't get a CBC for 2-3 months after a PB to allow my HCT to get above 42 which is when I get a PB. By on 9-22 I was at the doctor so I got a CBC. It was about 40 days after my phlebotomy. My hemo just emailed that he
Elizka
in
MPN Voice
3 years ago
Am I miscarrying?
Hi, looking for any advice really. Been ttc for 6 years now and this is our fourth ivf cycle. Previous cycle was our first ever bfp but ended in a MMC at 6 weeks in September. We had an FET on the 2nd December and were excited but cautious to see our second BFP. Fast forward to Saturday just gone and
Hi, looking for any advice really. Been ttc for 6 years now and this is our fourth ivf cycle. Previous cycle was our first ever bfp but ended in a MMC at 6 weeks in September. We had an FET on the 2nd December and were excited but cautious to see our second BFP. Fast forward to Saturday just gone and
Hopingtobecomeamummy
in
Fertility Network UK
2 years ago
Sodabread
Hi can anyone give me some information about how they felt starting on Ruxolitinib. My consultant wants to start me on this but I am not sure how I feel about it - so some for and against answers would be helpful. I had been on Hydroxy for about 20 years but stopped a few months ago as leg ulcers etc
Hi can anyone give me some information about how they felt starting on Ruxolitinib. My consultant wants to start me on this but I am not sure how I feel about it - so some for and against answers would be helpful. I had been on Hydroxy for about 20 years but stopped a few months ago as leg ulcers etc
Sodabread
in
MPN Voice
3 years ago
Another try after miscarriage in 5th week 4 days
I had Fet on 14th oct and on 5th nov I miscarriage after BFP and gud beta HCG value, it was my 6th IVF cycle and 6th Fet, now I have 2frozen embreyo, shd I go for transfer in subsequent cycle after miscarriage. My clinic is ready for Fet in this cycle only. Please advise.
I had Fet on 14th oct and on 5th nov I miscarriage after BFP and gud beta HCG value, it was my 6th IVF cycle and 6th Fet, now I have 2frozen embreyo, shd I go for transfer in subsequent cycle after miscarriage. My clinic is ready for Fet in this cycle only. Please advise.
Priyasharma
in
Fertility Network UK
2 years ago
Et with calr gene
I finally got my diagnosis i have essential thrombocythemia with calr mutant gene, just started on an asprin platelets are at 690 would appreciate anyones stories on this Thanks Marie
I finally got my diagnosis i have essential thrombocythemia with calr mutant gene, just started on an asprin platelets are at 690 would appreciate anyones stories on this Thanks Marie
iffs
in
MPN Voice
3 years ago
Long Term INF Results
I've posted on other threads about INF treatments. I decided to start a new post since I just came across a most relevant study that should wake up our doctors if they are paying attention. In any other cancer I think this result would be called revolutionary, but since ours is such a slow motion and
I've posted on other threads about INF treatments. I decided to start a new post since I just came across a most relevant study that should wake up our doctors if they are paying attention. In any other cancer I think this result would be called revolutionary, but since ours is such a slow motion and
EPguy
in
MPN Voice
3 years ago
CLL and Hyperbaric chamber
Hi Diagnosed in 2013 and on W&W but blood tests not so good and expecting to get some sort of treatment soon. Trying out using Hyperbaric Chamber, will do 20 sessions and then drop to 1 per week as advised so will be interesting to compare blood results before and after. Any body had similar experience
Hi Diagnosed in 2013 and on W&W but blood tests not so good and expecting to get some sort of treatment soon. Trying out using Hyperbaric Chamber, will do 20 sessions and then drop to 1 per week as advised so will be interesting to compare blood results before and after. Any body had similar experience
roblaw
in
CLL Support
3 years ago
No more mutation test?
Hey guys! I just went to my hematologist and he said that only 50 to 60 percent of people will test positive on Jak2 mutation for ET, then here in our country the other 2 mutations are expensive each test is 300USD and he suggest that I should prioritize my bone marrow biopsy. Also should i choose being
Hey guys! I just went to my hematologist and he said that only 50 to 60 percent of people will test positive on Jak2 mutation for ET, then here in our country the other 2 mutations are expensive each test is 300USD and he suggest that I should prioritize my bone marrow biopsy. Also should i choose being
Anonymous022719-
in
MPN Voice
3 years ago
Has anyone tried oxymorphone?
Hi, has anyone here tried oxymorphone for RLS? oxymorphone is similar to oxycodone but with much less sleeping difficulties in comparison with oxycodone. I have been doing extensive research for an opioid which exerts less sleeping difficulties because the oxycodone I am taking gives me severe insomnia
Hi, has anyone here tried oxymorphone for RLS? oxymorphone is similar to oxycodone but with much less sleeping difficulties in comparison with oxycodone. I have been doing extensive research for an opioid which exerts less sleeping difficulties because the oxycodone I am taking gives me severe insomnia
halperinchen
in
Restless Legs Syndrome
3 years ago
***UPDATE***confirmed miscarriage at 21dpo
Today I had my Hcg done. It came back at a "wonderful" number of 3,4 iu/l from 130iu/l which was exactly 7 days ago. I found out it didn't had a chance in the first place. It failed to implant further, so my Hcg levels didn't even doubled in the first 48 hours. I'm still bleeding after about 36 hours
Today I had my Hcg done. It came back at a "wonderful" number of 3,4 iu/l from 130iu/l which was exactly 7 days ago. I found out it didn't had a chance in the first place. It failed to implant further, so my Hcg levels didn't even doubled in the first 48 hours. I'm still bleeding after about 36 hours
Hidden
in
Fertility Network UK
2 years ago
Inhixa pregnant 5 weeks 4 days and bleeding
First time posting on here.. looking for some sort of miracle …. 4 ivf cycles, 5 th transfer 24/11/21 BFP… so so strong in fact ( where the control line is faint)… yesterday 19 days post transfer I had a sudden painless gush of fresh red bleeding which soaked through all my clothes (sorry TMI) which
First time posting on here.. looking for some sort of miracle …. 4 ivf cycles, 5 th transfer 24/11/21 BFP… so so strong in fact ( where the control line is faint)… yesterday 19 days post transfer I had a sudden painless gush of fresh red bleeding which soaked through all my clothes (sorry TMI) which
Hopeful2021
in
Fertility Network UK
2 years ago
Extremely worried about the value of IL-6 and IL-8 explored, what should I do?
I'm 34 years old only, and have been in MF3 since 2017 diagnosed. Very bad state I was megalosplenia when I diagnosed. Now I take Ruxolitinib 7.5mg/bid /day and interferon per several days. The hemogram was controlled lower than normal, especially platelet. I have taken Ruxolitinib for 3 years, obviously
I'm 34 years old only, and have been in MF3 since 2017 diagnosed. Very bad state I was megalosplenia when I diagnosed. Now I take Ruxolitinib 7.5mg/bid /day and interferon per several days. The hemogram was controlled lower than normal, especially platelet. I have taken Ruxolitinib for 3 years, obviously
merlisa
in
MPN Voice
3 years ago
***Sensitive*** BFP that ended in miscarriage
After 2 IVF rounds. One failed and one that ended in 2 frozen embryos. We found out on Tuesday through a beta Hcg that I'm pregnant. Results coming with a hcg of 130 iu/l. My clinic wanted to see anything above 50iu/l. On Wednesday did a digital test that showed 2-3 meaning 4-5 weeks. Just on track,
After 2 IVF rounds. One failed and one that ended in 2 frozen embryos. We found out on Tuesday through a beta Hcg that I'm pregnant. Results coming with a hcg of 130 iu/l. My clinic wanted to see anything above 50iu/l. On Wednesday did a digital test that showed 2-3 meaning 4-5 weeks. Just on track,
Hidden
in
Fertility Network UK
2 years ago
Pregnancy updates
me and my husband planning for a baby for a year. i had last month miscarriage that was a chemical pregnancy. i missed my periods this month from 11 Dec i went for HCG Beta level the result is <2* now my body is doing discharge with watery and brownish color. can anyone tell me if it's a miscarriage
me and my husband planning for a baby for a year. i had last month miscarriage that was a chemical pregnancy. i missed my periods this month from 11 Dec i went for HCG Beta level the result is <2* now my body is doing discharge with watery and brownish color. can anyone tell me if it's a miscarriage
AnuBari
in
Pregnancy and Parenting Support
2 years ago
Pregnancy updates
me and my husband planning for a baby for a year. i had last month miscarriage that was a chemical pregnancy. i missed my periods this month from 11 Dec i went for HCG Beta level the result is <2* now my body is doing discharge with watery and brownish color. can anyone tell me if it's a miscarriage
me and my husband planning for a baby for a year. i had last month miscarriage that was a chemical pregnancy. i missed my periods this month from 11 Dec i went for HCG Beta level the result is <2* now my body is doing discharge with watery and brownish color. can anyone tell me if it's a miscarriage
AnuBari
in
Pregnancy and Parenting Support
2 years ago
Bleeding 5 weeks 3 days pregnant - help.
Last week we got our BFP and my wife’s hcg had a strong number, second hcg check also great number, and yesterday had another one (also great) and we had our 5 week scan where the doctor said he saw the yolk sack and the gestational sack and everything looked great. Today my wife started spotting some
Last week we got our BFP and my wife’s hcg had a strong number, second hcg check also great number, and yesterday had another one (also great) and we had our 5 week scan where the doctor said he saw the yolk sack and the gestational sack and everything looked great. Today my wife started spotting some
GBB87
in
Fertility Network UK
2 years ago
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