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OTD today and so confused
I stupidly tested early on 8dp5db and again on day 9 and 10. All 3 tests showed faint positive lines using the cheap strip tests. This morning for OTD I used a fresh new clear blue test and it showed negative but with no control line, so I'm assuming it was a dud test. Since then I've done 2 of the
I stupidly tested early on 8dp5db and again on day 9 and 10. All 3 tests showed faint positive lines using the cheap strip tests. This morning for OTD I used a fresh new clear blue test and it showed negative but with no control line, so I'm assuming it was a dud test. Since then I've done 2 of the
ButtercupGarden
in
Fertility Network UK
2 years ago
Focus on thalassemia and polycythemia vera.
« Silence Therapeutics’ stuttering effort to generate clinical data on SLN124 in myelodysplastic syndrome (MDS) has conked out. Facing recruitment challenges, the RNAi specialist has decided to stop enrollment in the MDS arm of an early-phase clinical trial to focus on thalassemia and polycythemia vera
« Silence Therapeutics’ stuttering effort to generate clinical data on SLN124 in myelodysplastic syndrome (MDS) has conked out. Facing recruitment challenges, the RNAi specialist has decided to stop enrollment in the MDS arm of an early-phase clinical trial to focus on thalassemia and polycythemia vera
Manouche
in
MPN Voice
2 years ago
Transplant Waitlist Survey
If you are currently registered on the national kidney transplant waitlist OR have received at least one kidney transplant from a deceased donor in the past we invite you to take this survey! https://utexas.qualtrics.com/jfe/form/SV_7R5A3kLyEiGLqZg The purpose of this survey is to determine what information
If you are currently registered on the national kidney transplant waitlist OR have received at least one kidney transplant from a deceased donor in the past we invite you to take this survey! https://utexas.qualtrics.com/jfe/form/SV_7R5A3kLyEiGLqZg The purpose of this survey is to determine what information
KelliC_NKF
in
Kidney Dialysis
2 years ago
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Query on flying
Newly diagnosed with essential thrombocythemia with cal-r mutant gene just on asprin at the moment but my question is how do i go on flying im suposed to be going tennerife my platelets are up to 803 and just waiting for my next appointment and really scared about the risks of flying
Newly diagnosed with essential thrombocythemia with cal-r mutant gene just on asprin at the moment but my question is how do i go on flying im suposed to be going tennerife my platelets are up to 803 and just waiting for my next appointment and really scared about the risks of flying
iffs
in
MPN Voice
2 years ago
Trying for a second pregnancy and symptoms (no live birth yet)
Hi ladies! I’m hoping some of you might be able share your experiences with me please? My second FET led to a viable pregnancy (but he passed away late on in pregnancy) and I’m wondering if I should experience the same symptoms during the two week wait when trying again? Around a week after my
Hi ladies! I’m hoping some of you might be able share your experiences with me please? My second FET led to a viable pregnancy (but he passed away late on in pregnancy) and I’m wondering if I should experience the same symptoms during the two week wait when trying again? Around a week after my
LadyM2019
in
Fertility Network UK
2 years ago
low rising HCG 😞
Hi everyone, I am wondering if anyone had low rising HCG. I got my BFP 4dp5dt. Since then I have had decent line profession. My beta was 70 9dp5dt and then only 78 at 11dp5dt transfer. On the back of this I assume I will miscarry. I took a digital test today but it has now changed to 2-3 weeks from
Hi everyone, I am wondering if anyone had low rising HCG. I got my BFP 4dp5dt. Since then I have had decent line profession. My beta was 70 9dp5dt and then only 78 at 11dp5dt transfer. On the back of this I assume I will miscarry. I took a digital test today but it has now changed to 2-3 weeks from
Hopeful1981
in
Fertility Network UK
2 years ago
CLL patient cured a decade after gene therapy
In 2010, doctors treated Doug Olson’s leukemia with an experimental gene therapy that transformed some of his blood cells into cancer killers. More than a decade later, there’s no sign of cancer in his body. The treatment cured Olson and a second patient, according to the University of Pennsylvania doctors
In 2010, doctors treated Doug Olson’s leukemia with an experimental gene therapy that transformed some of his blood cells into cancer killers. More than a decade later, there’s no sign of cancer in his body. The treatment cured Olson and a second patient, according to the University of Pennsylvania doctors
WinJ3
in
CLL Support
2 years ago
HCG level 1344 getting referred ASAP to a scan
so ladies I would be around 5 half weeks or 6weeks and levels are only 1344, getting referred ASAP to a early pregnancy scan unit to see what's happening. Feeling quite deflated now. anyone had levels like this at 6weeks and still had a good pregnancy?
so ladies I would be around 5 half weeks or 6weeks and levels are only 1344, getting referred ASAP to a early pregnancy scan unit to see what's happening. Feeling quite deflated now. anyone had levels like this at 6weeks and still had a good pregnancy?
anonmous23
in
Fertility Network UK
2 years ago
Question for Jakafi takers.
I've been on 20mgs a day of Jakafi for over a year because of an enlarged spleen. I feel fine now but had earlier ongoing stomach issues. I wanted to know if anyone here has been on Jakafi for any extended period of time and if there are/were any troubling side effects. Also, any recommendations on
I've been on 20mgs a day of Jakafi for over a year because of an enlarged spleen. I feel fine now but had earlier ongoing stomach issues. I wanted to know if anyone here has been on Jakafi for any extended period of time and if there are/were any troubling side effects. Also, any recommendations on
Peaches230
in
MPN Voice
2 years ago
HCG levels to expect...
Hi all, Just had my HCG blood test after my positive pregnancy test at day 25 of 28 day cycle. I am wondering what to expect in terms of HCG levels for success.... anxiously awaiting the clinic to call.....
Hi all, Just had my HCG blood test after my positive pregnancy test at day 25 of 28 day cycle. I am wondering what to expect in terms of HCG levels for success.... anxiously awaiting the clinic to call.....
Hidden
in
Fertility Network UK
2 years ago
can't get a letter for a priority PCR with CLL.
Tearing my hair out and getting nowhere trying to get myself a priority PCR! I am starting to feel forgotten and about by both my CNS and surgery. I have CLL on W&W. The surgery said I just need to ring 119. They will not help unless I have a letter. The CNS said noone has asked her for a letter before
Tearing my hair out and getting nowhere trying to get myself a priority PCR! I am starting to feel forgotten and about by both my CNS and surgery. I have CLL on W&W. The surgery said I just need to ring 119. They will not help unless I have a letter. The CNS said noone has asked her for a letter before
CrazyDaisy68
in
CLL Support
2 years ago
5+4 no fetal pole
Hello! So after a stressful weekend of hcg tests, I had a scan at the epu this afternoon. I’m 5+4. They saw the gestational sac and yolk sac measuring 5 and half weeks. No embryo or fetal pole was seen but the sonographer said that’s normal, wouldn’t expect to see it. I’m beyond stressed over the whole
Hello! So after a stressful weekend of hcg tests, I had a scan at the epu this afternoon. I’m 5+4. They saw the gestational sac and yolk sac measuring 5 and half weeks. No embryo or fetal pole was seen but the sonographer said that’s normal, wouldn’t expect to see it. I’m beyond stressed over the whole
LSV23
in
Fertility Network UK
2 years ago
What main tests to check at 6 or 7 week
Hi ladies I will be getting my bloods back Tuesday to see if pregnancy hcg is going up. If they do GP said they will book a scan at 6 or 7 weeks. If I do get this far what main tests do I have to get done for any problems with the child? To make sure can check for any abnormalities?
Hi ladies I will be getting my bloods back Tuesday to see if pregnancy hcg is going up. If they do GP said they will book a scan at 6 or 7 weeks. If I do get this far what main tests do I have to get done for any problems with the child? To make sure can check for any abnormalities?
anonmous23
in
Fertility Network UK
2 years ago
HCG not doubling
Hello! So sorry to write again but desperately looking for some positive stories/hope or honest advice. I put a post up the other day about a concerning hcg and I’ve managed to have another one done today at the early pregnancy unit. I’m beside myself with anxiety and can see this is already over. The
Hello! So sorry to write again but desperately looking for some positive stories/hope or honest advice. I put a post up the other day about a concerning hcg and I’ve managed to have another one done today at the early pregnancy unit. I’m beside myself with anxiety and can see this is already over. The
LSV23
in
Fertility Network UK
2 years ago
HCG stress
Hi everyone! I’m wondering if anyone might be able to share some advice with me. I’ve been having some hcg tests after my bfp last week. I’m extremely anxious due to a recent mmc and can’t seem to stop the worries every minute of every day. I’ve also had some blood yest which has sent me into a spiral
Hi everyone! I’m wondering if anyone might be able to share some advice with me. I’ve been having some hcg tests after my bfp last week. I’m extremely anxious due to a recent mmc and can’t seem to stop the worries every minute of every day. I’ve also had some blood yest which has sent me into a spiral
LSV23
in
Fertility Network UK
2 years ago
Stopping Ruxolitinib
I had ET which has progressed to MF and have been on 2x5mg ruxolitinib for about 8 months. I've had skin tingling from before I started on ruxolitinib but it has been getting more widespread. The gp has asked for a neurologist appointment but no idea when that will happen. Because rux can affect nerves
I had ET which has progressed to MF and have been on 2x5mg ruxolitinib for about 8 months. I've had skin tingling from before I started on ruxolitinib but it has been getting more widespread. The gp has asked for a neurologist appointment but no idea when that will happen. Because rux can affect nerves
Scaredy_cat
in
MPN Voice
2 years ago
Bleeding at 6 weeks
Hello Super stressed right now. Finally got a positive after FET. Hcg reading 14dp5dt was 2140. Have been spotting last hour with lower tummy ache. Nurses getting me in tmrw for a scan but has anyone had this? After my previous experience I’m just seeing miscarriage ahead. Thanks for any help or advice
Hello Super stressed right now. Finally got a positive after FET. Hcg reading 14dp5dt was 2140. Have been spotting last hour with lower tummy ache. Nurses getting me in tmrw for a scan but has anyone had this? After my previous experience I’m just seeing miscarriage ahead. Thanks for any help or advice
Albs171
in
Fertility Network UK
2 years ago
Evidence omicron risk is higher for blood cancer patients
after two vaccine doses, neutralising antibodies against omicron was detectable in 19% patients against delta was detetable in 39% against original SARS-CoV-2 in 89% patients (p<0.0001). After third vaccine dose, against omicron was 56% against delta 71% and original 86%. CLL patients may
after two vaccine doses, neutralising antibodies against omicron was detectable in 19% patients against delta was detetable in 39% against original SARS-CoV-2 in 89% patients (p<0.0001). After third vaccine dose, against omicron was 56% against delta 71% and original 86%. CLL patients may
Bartlet
in
CLL Support
2 years ago
Low beta HCG - Ectopic / chemical? Any hope?
Hi everyone, So we got our first ever BFP on Wednesday 6th July and also did a blood test the same day. We got the results from the bloods this morning and the beta hcg level is 15.8 and it says this is a “negative” pregnancy test. What I don’t understand is why the pee stick today is the strongest
Hi everyone, So we got our first ever BFP on Wednesday 6th July and also did a blood test the same day. We got the results from the bloods this morning and the beta hcg level is 15.8 and it says this is a “negative” pregnancy test. What I don’t understand is why the pee stick today is the strongest
Babymagic37
in
Fertility Network UK
2 years ago
Clinical trials for Richter's transformation
Hello. I would like to ask if you know of any current clinical trials for patients with Richter's Transformation who have already reached the Car-T and it did not work for them. We have in our group a very young 22-year-old boy whose Car-Ts didn't work for him in the UK. They have told him that they
Hello. I would like to ask if you know of any current clinical trials for patients with Richter's Transformation who have already reached the Car-T and it did not work for them. We have in our group a very young 22-year-old boy whose Car-Ts didn't work for him in the UK. They have told him that they
Priss69
in
CLL Support
2 years ago
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