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How Good is the Level of Scientific Evidence Underlying the National Comprehensive Cancer Network Clinical Practice (NCCN) CLL Guidelines?
Our community support team take pride in maintaining reliable content in this community. When your life depends on it, you need confidence that what you are reading will give you the information you need. That way you can intelligently question your medical support team for reassurance that they are
Our community support team take pride in maintaining reliable content in this community. When your life depends on it, you need confidence that what you are reading will give you the information you need. That way you can intelligently question your medical support team for reassurance that they are
AussieNeil
Partner
in
CLL Support
3 years ago
At what point do you just give up
How many times are we going to allow ourselves to get pregnant and have 2 miscarriages and 5 chemical pregnancies. First round of ivf. Had to fight to get it as doctors didn't want us to have it as I can get pregnant Im just unlucky. How insensitive is that to say I'm just unlucky after seeing a pregnant
How many times are we going to allow ourselves to get pregnant and have 2 miscarriages and 5 chemical pregnancies. First round of ivf. Had to fight to get it as doctors didn't want us to have it as I can get pregnant Im just unlucky. How insensitive is that to say I'm just unlucky after seeing a pregnant
Kieneyl
in
Fertility Network UK
3 years ago
Zero-bHCG 11 days after embryo transfer
Does anyone else had zero HCG , I had two fresh embryos transferred 11 days ago.
Does anyone else had zero HCG , I had two fresh embryos transferred 11 days ago.
babycometrue
in
Fertility Network UK
3 years ago
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Sensitive post! 7 weeks 4 days Preg with low and slow rising hcg numbers. Saw fetal heartbeat 145bpm. But embryo measuring 6 weeks 5 days.
Hi everyone IVF pregnancy. I’m very anxious. Had low hcg numbers and so they sent me for a scan at 6 weeks. Sac was small (they were concerned) and embryo measuring 5-6 days behind. But fetal heart beat was 128… then repeat scan a week later and heartbeat is now 145. Sac is still small. And embryo has
Hi everyone IVF pregnancy. I’m very anxious. Had low hcg numbers and so they sent me for a scan at 6 weeks. Sac was small (they were concerned) and embryo measuring 5-6 days behind. But fetal heart beat was 128… then repeat scan a week later and heartbeat is now 145. Sac is still small. And embryo has
Eggbabe
in
Fertility Network UK
3 years ago
I’m back 👋 Low HCG beta trying for no.2
Hi everyone, I’ve been popping back here and there since I had my daughter last year after four rounds of IVF. We recently decided to start trying for no.2 with our two remaining Frosties. Had a transfer on 9th aug so I’m currently 11dp5dt, had a good BFP at home and today was our beta blood test.
Hi everyone, I’ve been popping back here and there since I had my daughter last year after four rounds of IVF. We recently decided to start trying for no.2 with our two remaining Frosties. Had a transfer on 9th aug so I’m currently 11dp5dt, had a good BFP at home and today was our beta blood test.
KiboXX
in
Fertility Network UK
3 years ago
CLL Diet
My Oncologist told me diet has no effect on CLL. Does anyone have input as to a good diet while undergoing treatment now that it is soon to start for me? Even though we need Lipids, cutting back on them may help. Anybody heard that too? I gained too much weight during 2020 pandemic, and feel that will
My Oncologist told me diet has no effect on CLL. Does anyone have input as to a good diet while undergoing treatment now that it is soon to start for me? Even though we need Lipids, cutting back on them may help. Anybody heard that too? I gained too much weight during 2020 pandemic, and feel that will
Hugo51
in
CLL Support
3 years ago
Whirlwind emotional rollercoaster
Hi everyone, just needed to pop in here to share what happened this week… I had my laparoscopy and hysteroscopy appointment booked for Monday, was mentally prepared. They got me booked in did my blood pressure and urine test. About 5 mins before I’m due to go to theatre my consultant comes in and asks
Hi everyone, just needed to pop in here to share what happened this week… I had my laparoscopy and hysteroscopy appointment booked for Monday, was mentally prepared. They got me booked in did my blood pressure and urine test. About 5 mins before I’m due to go to theatre my consultant comes in and asks
VinoTinto
in
Endometriosis UK
3 years ago
Do I still have a chance
Hello all I had 2 fresh ICSI day 3 embryo transfer 9 days ago I have been testing & due to the pregnyl injection ( hcg ) it’s always a positive even though at day 8 it hasn’t darkened. My progesterone is sky high have some cramps, back ache, headache ( that could be due to the injections ) My blood
Hello all I had 2 fresh ICSI day 3 embryo transfer 9 days ago I have been testing & due to the pregnyl injection ( hcg ) it’s always a positive even though at day 8 it hasn’t darkened. My progesterone is sky high have some cramps, back ache, headache ( that could be due to the injections ) My blood
Jinas
in
Fertility Network UK
3 years ago
Do I still have a chance ?
Hello all I had 2 fresh ICSI day 3 embryo transfer 9 days ago I have been testing & due to the pregnyl injection ( hcg ) it’s always a positive even though at day 8 it hasn’t darkened. My progesterone is sky high have some cramps, back ache, headache ( that could be due to the injections ) My blood
Hello all I had 2 fresh ICSI day 3 embryo transfer 9 days ago I have been testing & due to the pregnyl injection ( hcg ) it’s always a positive even though at day 8 it hasn’t darkened. My progesterone is sky high have some cramps, back ache, headache ( that could be due to the injections ) My blood
Jinas
in
Fertility Network UK
3 years ago
Skin barnacles ??
CLL and Bladder cancer , past used Ibrutinib, Acalabrutinib and Gyzava … all worked in controlling CLL … BCG infusions for Bladder cancer working , I think…. I have developed what Dermatologist calls .. skin barnacles … she says it from past sun exposure… Anyone have this problem ?? I suspect it
CLL and Bladder cancer , past used Ibrutinib, Acalabrutinib and Gyzava … all worked in controlling CLL … BCG infusions for Bladder cancer working , I think…. I have developed what Dermatologist calls .. skin barnacles … she says it from past sun exposure… Anyone have this problem ?? I suspect it
fish61
in
CLL Support
3 years ago
Covid -19, still a big risk for some.
Some time ago, I wanted to post up a warning about the various covid vaccines, and of the lack of protection they might offer for some. Back in April, (not long after I had my first covid-19 vaccine), news began to filter through on the “Royal Free Hospital London, Liver Transplant Support Group” Facebook
Some time ago, I wanted to post up a warning about the various covid vaccines, and of the lack of protection they might offer for some. Back in April, (not long after I had my first covid-19 vaccine), news began to filter through on the “Royal Free Hospital London, Liver Transplant Support Group” Facebook
Richard-Allen
in
British Liver Trust
3 years ago
Day 8 post day 3 embryo transfer
Hello all I had 2 fresh ICSI day 3 embryo transfer 8 days ago I have been testing & due to the pregnyl injection ( hcg ) it’s always a positive even though at day 8 it hasn’t darkened. My progesterone is sky high have some cramps, back ache, headache ( that could be due to the injections ) My blood
Hello all I had 2 fresh ICSI day 3 embryo transfer 8 days ago I have been testing & due to the pregnyl injection ( hcg ) it’s always a positive even though at day 8 it hasn’t darkened. My progesterone is sky high have some cramps, back ache, headache ( that could be due to the injections ) My blood
Jinas
in
Fertility Network UK
3 years ago
D8PD3
Hello all I had 2 fresh ICSI day 3 embryo transfer 8 days ago I have been testing & due to the pregnyl injection ( hcg ) it’s always a positive even though at day 8 it hasn’t darkened. My progesterone is sky high have some cramps, back ache, headache ( that could be due to the injections ) My blood
Hello all I had 2 fresh ICSI day 3 embryo transfer 8 days ago I have been testing & due to the pregnyl injection ( hcg ) it’s always a positive even though at day 8 it hasn’t darkened. My progesterone is sky high have some cramps, back ache, headache ( that could be due to the injections ) My blood
Jinas
in
Fertility Network UK
3 years ago
Hcg trigger
Quick question ladies I am 10 days post HCG trigger. I only got 5000iu. I’m getting a faint line today could be the trigger shot or any early positive? Thanks in advance xx
Quick question ladies I am 10 days post HCG trigger. I only got 5000iu. I’m getting a faint line today could be the trigger shot or any early positive? Thanks in advance xx
Bump12
in
Fertility Network UK
3 years ago
Hope
I posted on here explaining that after a bfp I had experienced a bleed, some spotting, cramps, nausea and sweating. I had also had discharge and was feeling really pessimistic about the scan today. The scan was totally ok and out little 6 week embryo is in there with a heartbeat and a nice high HCG 🤢
I posted on here explaining that after a bfp I had experienced a bleed, some spotting, cramps, nausea and sweating. I had also had discharge and was feeling really pessimistic about the scan today. The scan was totally ok and out little 6 week embryo is in there with a heartbeat and a nice high HCG 🤢
3700jane
in
Fertility Network UK
3 years ago
Fibromialgia y Covid persistente
The symptoms of persistent coronavirus are the same as I have. I passed the cytomegalovirus and I wonder if all the problems stem from there. However, there is no research on this, it influences women more and they call us neurotic. A vaccine for cytomegalovirus should be made to prevent so many women
The symptoms of persistent coronavirus are the same as I have. I passed the cytomegalovirus and I wonder if all the problems stem from there. However, there is no research on this, it influences women more and they call us neurotic. A vaccine for cytomegalovirus should be made to prevent so many women
Encarnita
in
Fibromyalgia Action UK
3 years ago
Flare?
So, I mentioned earlier that I hade overdoen tthe exercis eabout 4 weeks ago and then also contracted some virus - was man down for a few days and afetr that felt really low - reminded me of having glandular fever - so maybe EBV reactivted. I played around a bit withupping my Pred dose from 5.5mg to
So, I mentioned earlier that I hade overdoen tthe exercis eabout 4 weeks ago and then also contracted some virus - was man down for a few days and afetr that felt really low - reminded me of having glandular fever - so maybe EBV reactivted. I played around a bit withupping my Pred dose from 5.5mg to
Slosh
in
PMRGCAuk
3 years ago
Miscarriage diagnosed, finally got the go ahead to stop the meds
My regular doctor got back from vacation and saw us for a scan. Diagnosed miscarriage. Should be over 7 weeks but was measuring more like under 5, no heartbeat. Had stopped developing. HCG levels going down. Have been told to stop the drugs and to expect a bleed. How long does it usually take for the
My regular doctor got back from vacation and saw us for a scan. Diagnosed miscarriage. Should be over 7 weeks but was measuring more like under 5, no heartbeat. Had stopped developing. HCG levels going down. Have been told to stop the drugs and to expect a bleed. How long does it usually take for the
LuxFleur
in
Fertility Network UK
3 years ago
Beta Hcg slow?
I stupidly went to have 2 blood tests after my positive hcg at A&E and now worried! It was 81 hours between the last 2 and the number doubled in 57.5 hours. Is that slow??? I will not go for more! 05/08 – 23:30 – 8pt (A&E): 181 10/08 – 8:30 – 13pt (private lab): 756 13/08 – 17:30 – 16pt (private lab
I stupidly went to have 2 blood tests after my positive hcg at A&E and now worried! It was 81 hours between the last 2 and the number doubled in 57.5 hours. Is that slow??? I will not go for more! 05/08 – 23:30 – 8pt (A&E): 181 10/08 – 8:30 – 13pt (private lab): 756 13/08 – 17:30 – 16pt (private lab
FrancyItaly
in
Fertility Network UK
3 years ago
Ashermans, thin lining, low ovarian reserve, poor responder.. trying ivf one last time with donor sperm for possible surrogacy if lucky
After many years of having a Mirena coil for heavy periods, my then partner and I decided to start to try for a baby. I thought it was strange that when I had the coil out my periods remained just as light as when I had it in. I decided to do some hormone tests, and discovered I had a high prolactin
After many years of having a Mirena coil for heavy periods, my then partner and I decided to start to try for a baby. I thought it was strange that when I had the coil out my periods remained just as light as when I had it in. I decided to do some hormone tests, and discovered I had a high prolactin
Hidden
in
Infertility Support
3 years ago
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