Search
Search
About
Log in
Join
Experiences with
Cetuximab
Posts
Communities
2,435 public posts
Filter results
Idelalisib Plus Rituximab Highly Active in Treatment-Naïve Older Patients With CLL
This is a 'good news' story for CLL patients: http://www.cancertherapyadvisor.com/chronic-lymphocytic-leukemia/chronic-leukemia-cll-idelasib-rituximab-highly-active-treatment-older/article/447548/?DCMP=EMC-CTA_weekly&cpn=&hmSubId=yb1KkwzD43Y1&hmEmail=X-CuWXoBB--vMqNompZbUN9Sz-y1cfMN0&NID=&spMailingID
This is a 'good news' story for CLL patients: http://www.cancertherapyadvisor.com/chronic-lymphocytic-leukemia/chronic-leukemia-cll-idelasib-rituximab-highly-active-treatment-older/article/447548/?DCMP=EMC-CTA_weekly&cpn=&hmSubId=yb1KkwzD43Y1&hmEmail=X-CuWXoBB--vMqNompZbUN9Sz-y1cfMN0&NID=&spMailingID
wmay13241
in
CLL Support
9 years ago
FCR may CURE some of us - Dr Sharman
[i]"In today's CLL climate, web informed patients are rebelling against FCR - and in many cases, I think it is for good reason. FCR is a tough regimen. Even in the German CLL8 study, about 4% of patients die in the first 12 months after starting therapy. In the MD Anderson data set, it appears that
[i]"In today's CLL climate, web informed patients are rebelling against FCR - and in many cases, I think it is for good reason. FCR is a tough regimen. Even in the German CLL8 study, about 4% of patients die in the first 12 months after starting therapy. In the MD Anderson data set, it appears that
AussieNeil
Partner
in
CLL Support
9 years ago
iFCR Phase II Study Looks Promising
My wife, a younger, fit, otherwise healthy person diagnosed with CLL (unmutated IGHV, 11q deletion) began a Phase II Study of Ibrutinib Plus FCR in Previously Untreated, Younger Patients With Chronic Lymphocytic Leukemia (iFCR) at Dana Farber in Boston. She just completed 1st month of treatment with
My wife, a younger, fit, otherwise healthy person diagnosed with CLL (unmutated IGHV, 11q deletion) began a Phase II Study of Ibrutinib Plus FCR in Previously Untreated, Younger Patients With Chronic Lymphocytic Leukemia (iFCR) at Dana Farber in Boston. She just completed 1st month of treatment with
ltcbbaker
in
CLL Support
9 years ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Update re open lung bopst
Hi All, I hope you are as well as can be. I had my open lung biopsy on 25 June and to be honest it was nowhere near as bad as I was expecting and I was home after 6 days in hospital. Unfortunately the results are still trickling in and appear to be inconclusive as my specialist says " you are a mystery
Hi All, I hope you are as well as can be. I had my open lung biopsy on 25 June and to be honest it was nowhere near as bad as I was expecting and I was home after 6 days in hospital. Unfortunately the results are still trickling in and appear to be inconclusive as my specialist says " you are a mystery
dmc12
in
NRAS
9 years ago
Fish Test Results and Treatment Decisions
Hi everyone. I was with my consultant haematologist today and my FISH test results show no abnormalities - I didn't think that this was even possible. On the face of it, its good news, but has anyone else had such a result? I haven't been tested re mutated / unmutated status - seemingly not available
Hi everyone. I was with my consultant haematologist today and my FISH test results show no abnormalities - I didn't think that this was even possible. On the face of it, its good news, but has anyone else had such a result? I haven't been tested re mutated / unmutated status - seemingly not available
KateEvaLen
in
CLL Support
9 years ago
sourdough live yeast bread
I began making my beloved sourdough bread again after several years (thinking it a good way to relax) and then thought- oops- this is a live yeast. Possible fungus? So is it safe? Am about to start FLAIR on Ibrutinib/Rituximab arm so immunity not as compromised as FCR but nevertheless. Any advice or
I began making my beloved sourdough bread again after several years (thinking it a good way to relax) and then thought- oops- this is a live yeast. Possible fungus? So is it safe? Am about to start FLAIR on Ibrutinib/Rituximab arm so immunity not as compromised as FCR but nevertheless. Any advice or
romarin
in
CLL Support
9 years ago
ANTIBIOTICS BEFORE RITUXIMAB?
Hi quick question, How long is one customary to wait after taking antibiotics until she can complete her rituximab infusion? I've been getting various different information and it's confusing. Thanks Nina
Hi quick question, How long is one customary to wait after taking antibiotics until she can complete her rituximab infusion? I've been getting various different information and it's confusing. Thanks Nina
nk007
in
NRAS
9 years ago
Heartbeat in ears
Hi all, just a odd question. I have heard my heartbeat in my ears since my WG diagnosis 15yrs ago. Its noisy at times, especially at night if I curl up my body or bend any of my joints. Sometimes I use it as a relaxation technique to relax or to try to get to sleep ( back in the womb??) Sometimes its
Hi all, just a odd question. I have heard my heartbeat in my ears since my WG diagnosis 15yrs ago. Its noisy at times, especially at night if I curl up my body or bend any of my joints. Sometimes I use it as a relaxation technique to relax or to try to get to sleep ( back in the womb??) Sometimes its
Llinos
in
Vasculitis UK
9 years ago
Benefit Help Please
Hi all. fI was a full time carer for my 86 yr old mom but she's sadly passed away in 27/7/15 i'd say it was co depency. We kinda looked after each other. She was my reason to get up, to to carry on regardless of how much pain i was in. It's a long story but for now can anyone advise me please on what
Hi all. fI was a full time carer for my 86 yr old mom but she's sadly passed away in 27/7/15 i'd say it was co depency. We kinda looked after each other. She was my reason to get up, to to carry on regardless of how much pain i was in. It's a long story but for now can anyone advise me please on what
cheekyminx
in
Fibromyalgia Action UK
9 years ago
Rituximab
Jonathan Edwards, Emeritus Professor of Connective Tissue Medicine at University College London, provided these insights to readers of the Phoenix Rising website earlier this week: I need to look at the paper in detail but I think these are important findings. The only caveat to flag up
Jonathan Edwards, Emeritus Professor of Connective Tissue Medicine at University College London, provided these insights to readers of the Phoenix Rising website earlier this week: I need to look at the paper in detail but I think these are important findings. The only caveat to flag up
Moonlightshadows
in
Ramsays Disease
9 years ago
Influenza (flu) vaccinations in lupus
[i]Updated 22/08/2018[/i]
Flu season is upon us once again. To answer any questions you may have about the influenza vaccine Sue Brown (formerly lead specialist nurse in Rheumatology at the Royal National Hospital of Rheumatic Diseases in Bath), Jane Hollis (Lupus Nurse Specialist at Addenbrooke
[i]Updated 22/08/2018[/i]
Flu season is upon us once again. To answer any questions you may have about the influenza vaccine Sue Brown (formerly lead specialist nurse in Rheumatology at the Royal National Hospital of Rheumatic Diseases in Bath), Jane Hollis (Lupus Nurse Specialist at Addenbrooke
Paul_Howard
LUPUS UK
in
LUPUS UK
9 years ago
Update on rheumatologist appointment
Hi. Thanks to all who commented on my rituximab post. Was at the rheumatologist today. He wants me to reduce to a three day week until next treatment takes effect. While I agree I currently have no balance and spend all time away from work trying to give my kids time and recovering to start over. I
Hi. Thanks to all who commented on my rituximab post. Was at the rheumatologist today. He wants me to reduce to a three day week until next treatment takes effect. While I agree I currently have no balance and spend all time away from work trying to give my kids time and recovering to start over. I
Stynk
in
NRAS
9 years ago
Churg-Strauss and treatment
I have just been re-diagnosed with CSS having been treated specifically for GPA (Wegeners) for nearly 3 years, although I think I may have some cross over. I am on 6 monthly Rituximab but this has not controlled my symptoms well enough nor allowed adequate steroid reduction so I am trying Azathiaprine
I have just been re-diagnosed with CSS having been treated specifically for GPA (Wegeners) for nearly 3 years, although I think I may have some cross over. I am on 6 monthly Rituximab but this has not controlled my symptoms well enough nor allowed adequate steroid reduction so I am trying Azathiaprine
Maudy1
in
Vasculitis UK
9 years ago
Tapering prednisilone
Hi everyone. Currently trying to taper off prednisilone completely after being given rituximab. Doing 1/2 mg a month as I suffer badly with side effects. Just gone from 5mg to 5 and 4 alternate days for a month and then will do 4 for a month etc. Is there any other ways to reduce with less side effects
Hi everyone. Currently trying to taper off prednisilone completely after being given rituximab. Doing 1/2 mg a month as I suffer badly with side effects. Just gone from 5mg to 5 and 4 alternate days for a month and then will do 4 for a month etc. Is there any other ways to reduce with less side effects
joannebond360
in
LUPUS UK
9 years ago
2nd round rituximab
Hi anyone here on the second round of rituximab? My rheumatologist wanted to wait 8m between infusion and I am back to where I was before the first round. I won't want to wait as long again. The question I have is how long did it take the second time to work? It worked well for me 8-10 weeks first time
Hi anyone here on the second round of rituximab? My rheumatologist wanted to wait 8m between infusion and I am back to where I was before the first round. I won't want to wait as long again. The question I have is how long did it take the second time to work? It worked well for me 8-10 weeks first time
Stynk
in
NRAS
9 years ago
FCR soon/confused
I am 49 and was dx. In April 2015. I have been on watch & wait or should I say watch & worry. I am being followed by a cll doctor at Dana Farber in Boston. My markers are 11q (less than 10 per cent), CD 38 positive, Zap 70 negative an unmutated ighv. My only symptoms are many swollen lymph nodes ( neck
I am 49 and was dx. In April 2015. I have been on watch & wait or should I say watch & worry. I am being followed by a cll doctor at Dana Farber in Boston. My markers are 11q (less than 10 per cent), CD 38 positive, Zap 70 negative an unmutated ighv. My only symptoms are many swollen lymph nodes ( neck
Dinasantos
in
CLL Support
9 years ago
Ibrutinib + FCR Phase II Study
My wife Michele began treatment with Ibrutinib last week, one week prior to FCR chemo as part of a Phase II Study of Ibrutinib Plus FCR in Previously Untreated, Younger Patients With CLL (iFCR), NIH Trial Number: NCT02251548. The goal of this study is to be cancer free (minimum residual disease MRD
My wife Michele began treatment with Ibrutinib last week, one week prior to FCR chemo as part of a Phase II Study of Ibrutinib Plus FCR in Previously Untreated, Younger Patients With CLL (iFCR), NIH Trial Number: NCT02251548. The goal of this study is to be cancer free (minimum residual disease MRD
ltcbbaker
in
CLL Support
9 years ago
Confusion of being told my lupus has 'disappeared' because I'm nearing 60 years of age
I apologise for this long post thank you for taking the time to read it. I am at a loss because I've always been led to believe that SLE is incurable and that symptoms are managed with medication. I was diagnosed with MS in 2000 and in 2001 my neurologist thought I had something more going on than
I apologise for this long post thank you for taking the time to read it. I am at a loss because I've always been led to believe that SLE is incurable and that symptoms are managed with medication. I was diagnosed with MS in 2000 and in 2001 my neurologist thought I had something more going on than
hazel595
in
St Thomas Lupus Trust
9 years ago
Feedback from the new Northumberland and Cumbria first support group meeting
Just wanted to say what a great meeting we all had at the very first Northumberland and Cumbria support meeting, at the weekend.. We were a group of 22, patients and famiies. We met old friends and made new friends. :-) John gave a presentation about the importance of doctors and patients working together
Just wanted to say what a great meeting we all had at the very first Northumberland and Cumbria support meeting, at the weekend.. We were a group of 22, patients and famiies. We met old friends and made new friends. :-) John gave a presentation about the importance of doctors and patients working together
Suzym2u
Vasculitis UK
in
Vasculitis UK
9 years ago
Statistical analysis of REACH trial patients identifies Progression Free Survival prognostic factor for FCR patients
Why is this news about FCR - an 'old' immunochemotherapy treatment, so important now that we have non-chemotherapy treatments like Ibrutinib and Idelalisib? Many CLL specialists recognise that for some CLL patients, FCR may be a better choice. Just 6 month's treatment and they can hopefully forget
Why is this news about FCR - an 'old' immunochemotherapy treatment, so important now that we have non-chemotherapy treatments like Ibrutinib and Idelalisib? Many CLL specialists recognise that for some CLL patients, FCR may be a better choice. Just 6 month's treatment and they can hopefully forget
AussieNeil
Partner
in
CLL Support
9 years ago
1
...
91
92
93
...
100
Next page
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
CLL Support
989 results
NRAS
553 results
Vasculitis UK
324 results
View top 10 communities
Sort by
Most Relevant
Newest