Update re open lung bopst

[dmc12]

Hi All,

I hope you are as well as can be.

I had my open lung biopsy on 25 June and to be honest it was nowhere near as bad as I was expecting and I was home after 6 days in hospital.

Unfortunately the results are still trickling in and appear to be inconclusive as my specialist says " you are a mystery" He thinks I have gramulatosis but as of late September he was still waiting for more results and I have not heard anything.

I have also been retired from work on ill health grounds and although I am now able to have a limited social life I am still not as well as I hoped I would be and spend several days bed ridden.

I am waiting to start rituximab my fifth anti TNF so hopefully this will help.

In the meantime I am having major problems with my eyes re rheumatoid eye disease and I have constant nerve pain in my right knee (18 months after replacement ) after the nerve has started to regenerate. All in all feeling a bit rubbish but hope that time will heal/help and trying to remain positive. If anyone has any advice re nerve pain I would really appreciate it , got gabapentin and amatriptyline and lidocain patches.

Have a good weekend all xx

[Beverley-NRAS]

Hi dmc12,

sorry to hear that you are going through such a tough time at the moment. I hope Rituximab works for you. Just to let you know it isn't one of the anti-TNFs, it actually targets B cells and so works in a slightly different way to the anti-TNFs. Hopefully this one will be the one that works for you. I have put a link to our information on Riituximab for you to look at:

nras.org.uk/rituximab-mabth...

I do hope that you feel better soon

Regards

Beverley (NRAS Helpline)

[dmc12 in reply to Beverley-NRAS]

Thank you I will have a read . x