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A weekend of vomiting
last weekend I started vomiting from Friday afternoon and had to be admitted to hospital so I could have my medication intravenously and fluids. I was also given medication to stop the vomiting and antibiotics because every time I have an infection I in my body I start to vomit. It all started with
last weekend I started vomiting from Friday afternoon and had to be admitted to hospital so I could have my medication intravenously and fluids. I was also given medication to stop the vomiting and antibiotics because every time I have an infection I in my body I start to vomit. It all started with
Maureenpearl
in
LUPUS UK
9 years ago
Which treatment is best for eye problems?
Hi everyone. I'm posting on behalf of my 75 year old father who was diagnosed 10 years ago with RA. Since that time, he has been treated intermittently with prednisolone and sulphasalazine but he has never had the disease fully under control. He prefers minimal amounts of treatment. The dry eyes
Hi everyone. I'm posting on behalf of my 75 year old father who was diagnosed 10 years ago with RA. Since that time, he has been treated intermittently with prednisolone and sulphasalazine but he has never had the disease fully under control. He prefers minimal amounts of treatment. The dry eyes
Fennella02
in
NRAS
9 years ago
Tooth extractions
Hi would just like some advice, I have WG taking Pred,Methotrexate, Rituximab and lots of other medications. I have not got very good teeth and the whole of my bottom jaw has been very sore for a few months. I had to find a new dentist as i have moved, he decided i needed 2 teeth removed i had an infection
Hi would just like some advice, I have WG taking Pred,Methotrexate, Rituximab and lots of other medications. I have not got very good teeth and the whole of my bottom jaw has been very sore for a few months. I had to find a new dentist as i have moved, he decided i needed 2 teeth removed i had an infection
may-3-6
in
Vasculitis UK
9 years ago
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Join CLL Global and MD Anderson for Oct 25th Patient Forum
Dear CLL friends: Right now about 300 people are registered for the CLL educational event from with Drs. Keating, Lamanna and Estrov at MD Anderson. We have room for more in person and many online to watch like a tv show. Please join me as in-person host and my spouse of 30 years, Esther, as the online
Dear CLL friends: Right now about 300 people are registered for the CLL educational event from with Drs. Keating, Lamanna and Estrov at MD Anderson. We have room for more in person and many online to watch like a tv show. Please join me as in-person host and my spouse of 30 years, Esther, as the online
andrewschorr
in
CLL Support
9 years ago
Join us for Patient Town Meeting Oct 25th
Dear CLL friends: Right now about 300 people are registered for the CLL educational event from with Drs. Keating, Lamanna and Estrov at MD Anderson. We have room for more in person and many online to watch like a tv show. Please join me as in-person host and my spouse of 30 years, Esther, as the online
Dear CLL friends: Right now about 300 people are registered for the CLL educational event from with Drs. Keating, Lamanna and Estrov at MD Anderson. We have room for more in person and many online to watch like a tv show. Please join me as in-person host and my spouse of 30 years, Esther, as the online
andrewschorr
in
CLL America Support
9 years ago
Sad news
When i first had chemo the nurse who was treating me sat me next to a fella called Freddie. A very thoughtfull gentleman who talked me through my horrible reaction to rituximab. He was a real inspiration and calming influence. Amazingly it turned out we only lived in the next village and we became good
When i first had chemo the nurse who was treating me sat me next to a fella called Freddie. A very thoughtfull gentleman who talked me through my horrible reaction to rituximab. He was a real inspiration and calming influence. Amazingly it turned out we only lived in the next village and we became good
grizzlebear
in
CLL Support
9 years ago
Part 2 of ASH Interview with Dr. Sharman, a patient meeting in Seattle and off to iwCLL later tonight
Friends, This week on the CLL Society website, in our Conference coverage section, we share the second part of an interview from ASH 2014 with Dr. Jeff Sharman with a discussion of the life and death pressures on our B cells and how that relates to ABT-199. We also cover the latest research on idelalisib
Friends, This week on the CLL Society website, in our Conference coverage section, we share the second part of an interview from ASH 2014 with Dr. Jeff Sharman with a discussion of the life and death pressures on our B cells and how that relates to ABT-199. We also cover the latest research on idelalisib
bkoffman
CLL CURE Hero
in
CLL Support
9 years ago
Rituximab
Morning. I have just stopped Enbrel injections and am now injecting Methotrexate which I've had to go back on due to having to have Rituximab infusion. I was meant to have the infusion last Thursday but I have postponed it. I want to have my blood test in two weeks to see if my ESR has reduced it was
Morning. I have just stopped Enbrel injections and am now injecting Methotrexate which I've had to go back on due to having to have Rituximab infusion. I was meant to have the infusion last Thursday but I have postponed it. I want to have my blood test in two weeks to see if my ESR has reduced it was
d-creasey
in
NRAS
9 years ago
How good are we meant to feel again?
Hi everyone. I am taking rituximab and reducing steroids monthly. I am feeling pretty good but just wondered if we ever feel completely well again on medicine and in remission. I always have some sort of symptom still, tired, achy and brain fog. Does anyone feel normal in times of remission without
Hi everyone. I am taking rituximab and reducing steroids monthly. I am feeling pretty good but just wondered if we ever feel completely well again on medicine and in remission. I always have some sort of symptom still, tired, achy and brain fog. Does anyone feel normal in times of remission without
joannebond360
in
LUPUS UK
9 years ago
MRD negative
After 6 rounds of FCR (2 rounds of 5 x days F&C, and 4 rounds with just 3 days of taking the tablets) we got the results of my husband's bone marrow biopsy yesterday. It was the best possible news - he is MRD negative ( minimal residual disease) ie complete remission. It was tough, but obviously worth
After 6 rounds of FCR (2 rounds of 5 x days F&C, and 4 rounds with just 3 days of taking the tablets) we got the results of my husband's bone marrow biopsy yesterday. It was the best possible news - he is MRD negative ( minimal residual disease) ie complete remission. It was tough, but obviously worth
Fowey2009
in
CLL Support
9 years ago
ITP since May this year. Currently on Revolade
I was diagnosed (in Sweden) after the usual doctors visit, I had bruising, mouth blood blisters, the red dots all over my body, and a 16 hour nose bleed that really told me something wasn't quite right! I was rushed into hospital with a count of 3, they tested it about 4 times in 24 hours. After 4 days
I was diagnosed (in Sweden) after the usual doctors visit, I had bruising, mouth blood blisters, the red dots all over my body, and a 16 hour nose bleed that really told me something wasn't quite right! I was rushed into hospital with a count of 3, they tested it about 4 times in 24 hours. After 4 days
JasonJ
in
ITP Support Association
9 years ago
Are you biologically young enough for FCR?
Wondering if you are biologically young and fit enough to tolerate say FCR (Fludarabine, Cyclophosphamide Rituximab), or whether a gentler treatment protocol such as BR (Bendamustine Rituximab) would suit you better? One interesting area of medical research is into designing a 'simple' blood test to
Wondering if you are biologically young and fit enough to tolerate say FCR (Fludarabine, Cyclophosphamide Rituximab), or whether a gentler treatment protocol such as BR (Bendamustine Rituximab) would suit you better? One interesting area of medical research is into designing a 'simple' blood test to
AussieNeil
Partner
in
CLL Support
9 years ago
Rituximab infusion
Hi I'm 48 yes old and I've had systemic lupus for 13 years.I started having Rituximab infusion every 6 months.After my first course I became neutropenic so I only have half a dose now every 6 months.it makes me feel poorly having it so it has to be given slowly and I usually feel poorly for few days
Hi I'm 48 yes old and I've had systemic lupus for 13 years.I started having Rituximab infusion every 6 months.After my first course I became neutropenic so I only have half a dose now every 6 months.it makes me feel poorly having it so it has to be given slowly and I usually feel poorly for few days
englishrose67
in
LUPUS UK
9 years ago
Newcastle University given £780,000 to find Graves' disease cure
'Dr Timothy Cheetham, from Newcastle University’s Institute of Genetic Medicine, is leading a trial to see if one dose of rituximab, a drug used to treat arthritis and leukaemia, could be given in conjunction with the standard treatment to see if it improves the chances of a cure.' http://www.chroniclelive.co.uk
'Dr Timothy Cheetham, from Newcastle University’s Institute of Genetic Medicine, is leading a trial to see if one dose of rituximab, a drug used to treat arthritis and leukaemia, could be given in conjunction with the standard treatment to see if it improves the chances of a cure.' http://www.chroniclelive.co.uk
shambles
in
Thyroid UK
9 years ago
Monoclonal Antibodies
Interesting article explaining a little bit about the history behind the development of monoclonal antibodies (like Rituximab, Infliximab, etc) https://theconversation.com/monoclonal-antibodies-the-invisible-allies-that-changed-the-face-of-medicine-45807
Interesting article explaining a little bit about the history behind the development of monoclonal antibodies (like Rituximab, Infliximab, etc) https://theconversation.com/monoclonal-antibodies-the-invisible-allies-that-changed-the-face-of-medicine-45807
RichardE
Volunteer
in
Vasculitis UK
9 years ago
Treatment Needed?
Hi All, My last CBC report (03 days back) was very depressing. My WBC has raised to almost 2 hundred thousand (200,000). RBC still just above 4 and HG just above 12. ALC 98% (198). But still no significant weight loss. night sweat, lymph nodes are there. One of my oncologist is of the view that now should
Hi All, My last CBC report (03 days back) was very depressing. My WBC has raised to almost 2 hundred thousand (200,000). RBC still just above 4 and HG just above 12. ALC 98% (198). But still no significant weight loss. night sweat, lymph nodes are there. One of my oncologist is of the view that now should
AAli
in
CLL Support
9 years ago
Explainer: what are biologics and biosimilars?
Biologics are medicines made from living organisms and their products to produce therapeutic proteins and polypeptides. They are better for treating cancer cells than older chemotherapy treatments that just target fast growing cells, because they are designed to lock onto the specific body cells that
Biologics are medicines made from living organisms and their products to produce therapeutic proteins and polypeptides. They are better for treating cancer cells than older chemotherapy treatments that just target fast growing cells, because they are designed to lock onto the specific body cells that
AussieNeil
Partner
in
CLL Support
9 years ago
Melanoma Risk Increased in CLL/SLL Patients
[i]Results of a new study have indicated that the risk of developing melanoma may be almost doubled among survivors of chronic lymphocytic leukemia (CLL)/small lymphocytic lymphoma (SLL) who were treated with certain chemotherapeutic agents or who had specific immune-related medical conditions.[/i] Hematology
[i]Results of a new study have indicated that the risk of developing melanoma may be almost doubled among survivors of chronic lymphocytic leukemia (CLL)/small lymphocytic lymphoma (SLL) who were treated with certain chemotherapeutic agents or who had specific immune-related medical conditions.[/i] Hematology
AussieNeil
Partner
in
CLL Support
9 years ago
Update on Rituximab relapse/flare due to delayed infusions, and oral steroids and tapering.
Still experiencing problems with not being able to access posts to reply .. sometimes I can sometimes I can't. Sadly still experiencing a major flare despite asking for oral steroids at my second infusion two weeks ago. I had to type and document all that had happened and ask the consultant to read
Still experiencing problems with not being able to access posts to reply .. sometimes I can sometimes I can't. Sadly still experiencing a major flare despite asking for oral steroids at my second infusion two weeks ago. I had to type and document all that had happened and ask the consultant to read
NeonkittyUK
in
NRAS
9 years ago
transport and feeling overwhelmed
After nearly two months of nothing much I've now got an appointment with anesthetist for knee op, and two rituximab infusions + the cardiology one for the knee op too. So I've got GP coming here to take bloods together with hospital transport for the various appointments. It really is a fantastic system
After nearly two months of nothing much I've now got an appointment with anesthetist for knee op, and two rituximab infusions + the cardiology one for the knee op too. So I've got GP coming here to take bloods together with hospital transport for the various appointments. It really is a fantastic system
cathie
in
NRAS
9 years ago
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