Search
Search
About
Log in
Join
Experiences with
Cetuximab
Posts
Communities
2,435 public posts
Filter results
Trying to make a difference
Thanks for visiting my page. My name is Neil and I turned 46 while on life support. I have Vasculitis. Some of you will know me and some of you may even know my story; for those who don’t, please read and let’s get the word out there. I have deliberately described my early symptoms at length as this
Thanks for visiting my page. My name is Neil and I turned 46 while on life support. I have Vasculitis. Some of you will know me and some of you may even know my story; for those who don’t, please read and let’s get the word out there. I have deliberately described my early symptoms at length as this
Neildougherty
in
Vasculitis UK
8 years ago
FCR round 1
Just an update on my first treatment. I was extremely ill with nausea during round 1 but 14 days on I'm feeling better than I have in years. Nodes are down and I feel lighter and brighter. I don't want to frighten anyone waiting to start FCR so just want to let you know how well I'm doing now. I have
Just an update on my first treatment. I was extremely ill with nausea during round 1 but 14 days on I'm feeling better than I have in years. Nodes are down and I feel lighter and brighter. I don't want to frighten anyone waiting to start FCR so just want to let you know how well I'm doing now. I have
Kenn123
in
CLL Support
8 years ago
Methylprednislone with rituximab infusion
Hi everyone. I Recently seen my renal consultant and said they need to start me on treatment as my lupus is effecting my kidneys (lupus nephritis). I have 2 options- to have rituximab which has to be given with steroids but i dont tolerate steroids as i have a psychotic reation (very scary). Or take
Hi everyone. I Recently seen my renal consultant and said they need to start me on treatment as my lupus is effecting my kidneys (lupus nephritis). I have 2 options- to have rituximab which has to be given with steroids but i dont tolerate steroids as i have a psychotic reation (very scary). Or take
Rach459
in
LUPUS UK
8 years ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Rituximab
Diagnosed pmr officially 3yrs,previously provisionally 2yrs.Was on pred till june2015. but then taken off pred. Dec. 2015 had bad flare-up,lost 2 stone in 3 weeks,put back on 20mgs pred.This has now tapered to 7mg. Tomorrow is my 4th infusion or rituximab,when would I expect to come of pred. I am 75yrs
Diagnosed pmr officially 3yrs,previously provisionally 2yrs.Was on pred till june2015. but then taken off pred. Dec. 2015 had bad flare-up,lost 2 stone in 3 weeks,put back on 20mgs pred.This has now tapered to 7mg. Tomorrow is my 4th infusion or rituximab,when would I expect to come of pred. I am 75yrs
paisleyman74
in
PMRGCAuk
8 years ago
Itchy skin
Hi first post to this site though I've read others and it doesn't appear that any post is seen as trivial. I was diagnose with nhl about 13 years ago which was later classified as cll. After initial chlorambucil treatment I was on w and w until last year when my white cell and neutrophils count were
Hi first post to this site though I've read others and it doesn't appear that any post is seen as trivial. I was diagnose with nhl about 13 years ago which was later classified as cll. After initial chlorambucil treatment I was on w and w until last year when my white cell and neutrophils count were
Lolleper
in
CLL Support
8 years ago
FCR 6th Cycle and side effects ?
I have just had my 5th FCR treatment and immediately before this my consultant suggested this would be my last instead of going for a sixth. When I next see him in 3 weeks time he said I will then have another BMB and CT scan to determine if the treatment has been successful. I am 63 years old and have
I have just had my 5th FCR treatment and immediately before this my consultant suggested this would be my last instead of going for a sixth. When I next see him in 3 weeks time he said I will then have another BMB and CT scan to determine if the treatment has been successful. I am 63 years old and have
Penkman
in
CLL Support
8 years ago
Anti sickness medication
Hi, Can anyone help me. I've just started first round of FCR. It went well for first two days but now I'm literally as sick as a dog. Have phoned nhs 24 and my husband is now going to pick up a prescription. Don't even know what it is for. Did any medication prove effective for anyone else? Any recommendations
Hi, Can anyone help me. I've just started first round of FCR. It went well for first two days but now I'm literally as sick as a dog. Have phoned nhs 24 and my husband is now going to pick up a prescription. Don't even know what it is for. Did any medication prove effective for anyone else? Any recommendations
Kenn123
in
CLL Support
8 years ago
Length of FCR treatment
Hello there! Well I've started my first course of FCR and it's going ok. Only thing I've had to contend with was a bit of nausea. I read an article a few weeks ago on this site about length of treatment but I can't seem to find it now. As far as I can remember it was written by an American female Cll
Hello there! Well I've started my first course of FCR and it's going ok. Only thing I've had to contend with was a bit of nausea. I read an article a few weeks ago on this site about length of treatment but I can't seem to find it now. As far as I can remember it was written by an American female Cll
Kenn123
in
CLL Support
8 years ago
Recent rituximab infusion
I had my latest Rituximab infusion 2 weeks ago. I feel very weak, dizzy and somewhat nauseous. Also my back hurts . I don't remember it being as bad as this with the last two rounds I had six months ago, although I do remember it took about 12 weeks for me to start feeling better than I did before the
I had my latest Rituximab infusion 2 weeks ago. I feel very weak, dizzy and somewhat nauseous. Also my back hurts . I don't remember it being as bad as this with the last two rounds I had six months ago, although I do remember it took about 12 weeks for me to start feeling better than I did before the
Neriah
in
LUPUS UK
8 years ago
Life after fcr...what can we expect?
Right guys, I have been chatting to our mad friend @Bellabee and we have been wonderinga few things as we are heading toward the end of our chemo.. nic due to do round 6 and me round 5... So at the end of this round what are the best possible outcomes that we can expect. What measures should we be
Right guys, I have been chatting to our mad friend @Bellabee and we have been wonderinga few things as we are heading toward the end of our chemo.. nic due to do round 6 and me round 5... So at the end of this round what are the best possible outcomes that we can expect. What measures should we be
Bethan49
in
CLL Support
8 years ago
Medical ID bracelets
Hello My wife was diagnosed with EGPA in February 2015 and is currently taking pred along with half yearly Rituximab infusions. We have been thinking about getting her a bracelet to record details of her condition/meds in case of an accident/emergency. Does anyone have experience as to the benefits or
Hello My wife was diagnosed with EGPA in February 2015 and is currently taking pred along with half yearly Rituximab infusions. We have been thinking about getting her a bracelet to record details of her condition/meds in case of an accident/emergency. Does anyone have experience as to the benefits or
Riff1954
in
Vasculitis UK
8 years ago
Anti inflammatories
I'm on rituximab and it has helped but not enough. I'd like something like methotrexate to give it a boost, but I'm back on the rheumy-gastroenterologist roller coaster because of worries about liver damage. Yesterday my GP showed me recent blood results which show I'm anemic and said I should stop my
I'm on rituximab and it has helped but not enough. I'd like something like methotrexate to give it a boost, but I'm back on the rheumy-gastroenterologist roller coaster because of worries about liver damage. Yesterday my GP showed me recent blood results which show I'm anemic and said I should stop my
cathie
in
NRAS
8 years ago
FLAIR Trial – Experiences post FCR – Recovery from Red Cell Cytopenia and Neutropenia
As I sit down to write this, having just been for my Flu jab, I realise how quickly time has gone by. Another year heading by. If you are new to CLL then have a look at Nick’s post about flu jabs: https://healthunlocked.com/cllsupport/posts/132460907/cll-patients-and-families-dont-forget-your-flu-vaccination
As I sit down to write this, having just been for my Flu jab, I realise how quickly time has gone by. Another year heading by. If you are new to CLL then have a look at Nick’s post about flu jabs: https://healthunlocked.com/cllsupport/posts/132460907/cll-patients-and-families-dont-forget-your-flu-vaccination
Ernest2
in
CLL Support
8 years ago
Rituximab infusions
Hi, I had my first rituximab infusion yesterday and my second will be in two weeks time. I was just wondering whether I should still have my yearly flu injection whilst on this treatment. I also take azathioprine so my immune system is really getting knocked back. Thanks in advance
Hi, I had my first rituximab infusion yesterday and my second will be in two weeks time. I was just wondering whether I should still have my yearly flu injection whilst on this treatment. I also take azathioprine so my immune system is really getting knocked back. Thanks in advance
Gillibun
in
NRAS
8 years ago
Rituximab - Its working :)
Just wanted to share my experience for anyone that is about to start on Rituximab...I had my first infusions in April, 2 weeks apart and felt so ill for 2 weeks after each one. Seemed to have pain in every joint in my body. I struggled through May and June with no signs of improvement at all. At the
Just wanted to share my experience for anyone that is about to start on Rituximab...I had my first infusions in April, 2 weeks apart and felt so ill for 2 weeks after each one. Seemed to have pain in every joint in my body. I struggled through May and June with no signs of improvement at all. At the
Livvy5
in
NRAS
8 years ago
What to expect.
Hi I'm new to all of this. I am due to start Bendamustine & Rituximab Treatment in the next two to three weeks. Wondered if anyone could let know what I'm in for. Thanx.
Hi I'm new to all of this. I am due to start Bendamustine & Rituximab Treatment in the next two to three weeks. Wondered if anyone could let know what I'm in for. Thanx.
Jacksc06
in
CLL Support
8 years ago
Second treatment looming
I ama 70 year old male living in South Africa and was diagnosed with CLL in January 2013. I had no symptoms that I was aware of and after a particularly nasty fever was sent by my GP for a blood count which revealed the CLL . I was referred to an Oncologist and sent for a Catscan and Bone marrow biopsy
I ama 70 year old male living in South Africa and was diagnosed with CLL in January 2013. I had no symptoms that I was aware of and after a particularly nasty fever was sent by my GP for a blood count which revealed the CLL . I was referred to an Oncologist and sent for a Catscan and Bone marrow biopsy
plett1234
in
CLL Support
8 years ago
About to start FCR
Hi everyone, I have made the decision to accept FCR arm of trial even though I'd hoped for Ibrutinib. I'm 46 , mutated and have been w and w for five years. I've 5 days till my treatment starts and to be honest I'm up the walls even though I know I know I could get a good long remission. Anyone got
Hi everyone, I have made the decision to accept FCR arm of trial even though I'd hoped for Ibrutinib. I'm 46 , mutated and have been w and w for five years. I've 5 days till my treatment starts and to be honest I'm up the walls even though I know I know I could get a good long remission. Anyone got
Kenn123
in
CLL Support
8 years ago
Diet and excercise
Hello, I've had ITP since Feb 2012, this now my 3rd spell of it. first time I had 7 (probably had been lower but my symptoms were easing by time they checked!), I responded ok ish to steroids and after 9 months was discharged. By July 13 is was back, with a count of 27, (not as bad as some I know!),
Hello, I've had ITP since Feb 2012, this now my 3rd spell of it. first time I had 7 (probably had been lower but my symptoms were easing by time they checked!), I responded ok ish to steroids and after 9 months was discharged. By July 13 is was back, with a count of 27, (not as bad as some I know!),
Ironspur14
in
ITP Support Association
8 years ago
Follow up on Rituximab- induced Hypogammaglobulaemia
Have posted recently about my latest diagnosis of Rituximab-induced Hypogammagobulaemia. Now require immunoglobulin infusions x 3 three weeks apart to treat immunosuppression caused by Rituximab, metho and steroids. Had private appointment to talk to my Rheumatologist about repeated infections including
Have posted recently about my latest diagnosis of Rituximab-induced Hypogammagobulaemia. Now require immunoglobulin infusions x 3 three weeks apart to treat immunosuppression caused by Rituximab, metho and steroids. Had private appointment to talk to my Rheumatologist about repeated infections including
Scorer
in
NRAS
8 years ago
1
...
82
83
84
...
100
Next page
40
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
CLL Support
989 results
NRAS
553 results
Vasculitis UK
324 results
View top 10 communities
Sort by
Most Relevant
Newest