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Rituximab
Hello,I've been reading through the posts a long time here but this is my first post. I have CKD 3b ...gfr 38% but recently dropped to 33. It's an autoimmune thing for me...my body just attacking itself. I also have autoimmune pancreatitis. I have been waiting for about a year now for funding &licensing
Hello,I've been reading through the posts a long time here but this is my first post. I have CKD 3b ...gfr 38% but recently dropped to 33. It's an autoimmune thing for me...my body just attacking itself. I also have autoimmune pancreatitis. I have been waiting for about a year now for funding &licensing
madonbrew
in
Early CKD Support
8 years ago
2 mths ago told I had stage 4CLL from Canada
Recently diagnosed with stage 4 CLL. What a shocker. Left side has been hurting last 5 yrs however, thought it was only bowel problems and took more enzymes and roughage. . Even had a colonoscopy, but found nothing and no one thought to check my white blood cell count. I was Tired but still was
Recently diagnosed with stage 4 CLL. What a shocker. Left side has been hurting last 5 yrs however, thought it was only bowel problems and took more enzymes and roughage. . Even had a colonoscopy, but found nothing and no one thought to check my white blood cell count. I was Tired but still was
234me
in
CLL Support
8 years ago
Rheumatoid Vasculitis
My husband was diagnosed with Rheumatoid Vasculitis two years ago. I am sure he has had it longer. He was very, very poorly and hospitalised after eventually being correctly diagnosed. He is currently on prednisolone, sulfasalazine, gabapentin, hydroxychloroquine and rituximab infusions (quarterly
My husband was diagnosed with Rheumatoid Vasculitis two years ago. I am sure he has had it longer. He was very, very poorly and hospitalised after eventually being correctly diagnosed. He is currently on prednisolone, sulfasalazine, gabapentin, hydroxychloroquine and rituximab infusions (quarterly
PhoebeO
in
Vasculitis UK
8 years ago
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Yakult
Hi, does anyone know if it's ok to have yakult or actively while taking methotrexate and Rituximab infusions please? x
Hi, does anyone know if it's ok to have yakult or actively while taking methotrexate and Rituximab infusions please? x
dozzer15
in
NRAS
8 years ago
Rituximab and Denosumab
Has anyone had Rituximab for GPA and Denosumab for osterpororis ? What I want to know is are they compatible ? Has anyone experienced side effects? I am so unsure about putting more drugs into my body but I know I need to have the Denosumab as I'm at a high risk for osterpororis Any suggestions ?!
Has anyone had Rituximab for GPA and Denosumab for osterpororis ? What I want to know is are they compatible ? Has anyone experienced side effects? I am so unsure about putting more drugs into my body but I know I need to have the Denosumab as I'm at a high risk for osterpororis Any suggestions ?!
102637
in
Vasculitis UK
8 years ago
As if Wegener's wasn't enough
71 year old male with Wegener's. Sept 16th. 2nd infusion Rituximab. 4th cycle. As usual followed by cough... antibiotics... cough cleared. Oct 9th. Cough again... one huge cough pulled/tore muscle in back. Pain went off the register but short lived. Pain only happens when I cough. GP appointment
71 year old male with Wegener's. Sept 16th. 2nd infusion Rituximab. 4th cycle. As usual followed by cough... antibiotics... cough cleared. Oct 9th. Cough again... one huge cough pulled/tore muscle in back. Pain went off the register but short lived. Pain only happens when I cough. GP appointment
lfu2
in
Vasculitis UK
8 years ago
Rituximab
Hi everyone new to this site but sooo glad I found it ! I've had RA for twenty odd years now, on hefty load of drugs but now they want to put me on biologicals as the triple therapy isn't really controlling it now. Wondered peoples thought's on Rituximab ? reading about it has really spooked me and am
Hi everyone new to this site but sooo glad I found it ! I've had RA for twenty odd years now, on hefty load of drugs but now they want to put me on biologicals as the triple therapy isn't really controlling it now. Wondered peoples thought's on Rituximab ? reading about it has really spooked me and am
285641
in
NRAS
8 years ago
Has anyone else had....
Hi all, My sister has churg Strauss and on 4monthly infusions of rituximab. who has just been diagnosed with bilateral enlarged ovarian veins or pelvic venous congestive? Apparently this is another rare condition. Has anyone else experienced or had this? Just like to put it out there to question if
Hi all, My sister has churg Strauss and on 4monthly infusions of rituximab. who has just been diagnosed with bilateral enlarged ovarian veins or pelvic venous congestive? Apparently this is another rare condition. Has anyone else experienced or had this? Just like to put it out there to question if
Cloe
in
Vasculitis UK
8 years ago
Rituximab
So my doctor thought it would be fun for me to lower my diagnose of Rituximab from 2,400 ml to 400ml I'm scare it's not gonna work has anyone else had this done before
So my doctor thought it would be fun for me to lower my diagnose of Rituximab from 2,400 ml to 400ml I'm scare it's not gonna work has anyone else had this done before
falanw
in
ITP Support Association
8 years ago
Hi everyone I'm new here I need your help
I will start at the beginning... Nov 2013 I was 67 yr old diagnosed with GPA I was admitted into hospital with a kidney function of 9 !! After asking for a blood test After several visits to my GP over a period of 3 months with varying symptoms blocked ears , cough , eye problems, fatigue finally
I will start at the beginning... Nov 2013 I was 67 yr old diagnosed with GPA I was admitted into hospital with a kidney function of 9 !! After asking for a blood test After several visits to my GP over a period of 3 months with varying symptoms blocked ears , cough , eye problems, fatigue finally
102637
in
Vasculitis UK
8 years ago
Off Ibrutinib for nearly 4 months and still OK
Have been off the Ibrutinib now for nearly 4 months. (After 6 months of Rituximab and 8 months on Ib which was stopped due to painful side effects) My last check up about 3 weeks ago; my blood results remained normal. Doctors very pleased. Me too. So it seems I am still part of the FLAIR trial since
Have been off the Ibrutinib now for nearly 4 months. (After 6 months of Rituximab and 8 months on Ib which was stopped due to painful side effects) My last check up about 3 weeks ago; my blood results remained normal. Doctors very pleased. Me too. So it seems I am still part of the FLAIR trial since
romarin
in
CLL Support
8 years ago
Question about needing bone marrow biopsy after treatment
I've just completed 5 chemo rounds of FCR. My hematologist, when I asked him about needing a biopsy to check the effectiveness of treatment, said basically that a) my counts all looked right where they'd hoped they would be, and b) how would having more specific information from a biopsy help? His point
I've just completed 5 chemo rounds of FCR. My hematologist, when I asked him about needing a biopsy to check the effectiveness of treatment, said basically that a) my counts all looked right where they'd hoped they would be, and b) how would having more specific information from a biopsy help? His point
brian_in_Seattle
in
CLL Support
8 years ago
LUPUS AND THE AGONY OF HAVING TO GIVE UP MY JOB
Hello Pals Well. How do l start! After 17 years of working and living with SLE plus other associating conditions, it looks like l have to give up on my job! I love my job and it helps me psychologically as well as having a work life balance. However, since January 2016, l have not felt better since
Hello Pals Well. How do l start! After 17 years of working and living with SLE plus other associating conditions, it looks like l have to give up on my job! I love my job and it helps me psychologically as well as having a work life balance. However, since January 2016, l have not felt better since
eunidarling
in
LUPUS UK
8 years ago
Follicular Lymphoma Patient Survey
If you have follicular lymphoma and have been treated with obinituzumab (Gazyva) you can help by completing our survey. Lymphoma Canada is preparing a submission for the panCanadian Oncology Drug Review (pCODR) for: Obinituzumab in combination with chemotherapy, followed by obinutuzumab maintenance
If you have follicular lymphoma and have been treated with obinituzumab (Gazyva) you can help by completing our survey. Lymphoma Canada is preparing a submission for the panCanadian Oncology Drug Review (pCODR) for: Obinituzumab in combination with chemotherapy, followed by obinutuzumab maintenance
LCAdmin
in
Non Hodgkin's Lymphoma Friends
8 years ago
Follicular Lymphoma Patient Survey
If you have follicular lymphoma and have been treated with obinituzumab (Gazyva) you can help by completing our survey. Lymphoma Canada is preparing a submission for the panCanadian Oncology Drug Review (pCODR) for: Obinituzumab in combination with chemotherapy, followed by obinutuzumab maintenance
If you have follicular lymphoma and have been treated with obinituzumab (Gazyva) you can help by completing our survey. Lymphoma Canada is preparing a submission for the panCanadian Oncology Drug Review (pCODR) for: Obinituzumab in combination with chemotherapy, followed by obinutuzumab maintenance
LCAdmin
Lymphoma Canada
in
Lymphoma Canada
8 years ago
Can rituximab stop working?
Hey everyone. I have been having rituximab infusions for the last two years with great results. Always have a spell of unwellness after the infusion for a few weeks but then 5 good months. After my last infusion in July I just have been feeling all of the lupus symptoms coming back and just feel that
Hey everyone. I have been having rituximab infusions for the last two years with great results. Always have a spell of unwellness after the infusion for a few weeks but then 5 good months. After my last infusion in July I just have been feeling all of the lupus symptoms coming back and just feel that
joannebond360
in
LUPUS UK
8 years ago
Trying to make a difference
Thanks for visiting my page. My name is Neil and I turned 46 while on life support. I have Vasculitis. Some of you will know me and some of you may even know my story; for those who don’t, please read and let’s get the word out there. I have deliberately described my early symptoms at length as this
Thanks for visiting my page. My name is Neil and I turned 46 while on life support. I have Vasculitis. Some of you will know me and some of you may even know my story; for those who don’t, please read and let’s get the word out there. I have deliberately described my early symptoms at length as this
Neildougherty
in
Vasculitis UK
8 years ago
FCR round 1
Just an update on my first treatment. I was extremely ill with nausea during round 1 but 14 days on I'm feeling better than I have in years. Nodes are down and I feel lighter and brighter. I don't want to frighten anyone waiting to start FCR so just want to let you know how well I'm doing now. I have
Just an update on my first treatment. I was extremely ill with nausea during round 1 but 14 days on I'm feeling better than I have in years. Nodes are down and I feel lighter and brighter. I don't want to frighten anyone waiting to start FCR so just want to let you know how well I'm doing now. I have
Kenn123
in
CLL Support
8 years ago
Methylprednislone with rituximab infusion
Hi everyone. I Recently seen my renal consultant and said they need to start me on treatment as my lupus is effecting my kidneys (lupus nephritis). I have 2 options- to have rituximab which has to be given with steroids but i dont tolerate steroids as i have a psychotic reation (very scary). Or take
Hi everyone. I Recently seen my renal consultant and said they need to start me on treatment as my lupus is effecting my kidneys (lupus nephritis). I have 2 options- to have rituximab which has to be given with steroids but i dont tolerate steroids as i have a psychotic reation (very scary). Or take
Rach459
in
LUPUS UK
8 years ago
Rituximab
Diagnosed pmr officially 3yrs,previously provisionally 2yrs.Was on pred till june2015. but then taken off pred. Dec. 2015 had bad flare-up,lost 2 stone in 3 weeks,put back on 20mgs pred.This has now tapered to 7mg. Tomorrow is my 4th infusion or rituximab,when would I expect to come of pred. I am 75yrs
Diagnosed pmr officially 3yrs,previously provisionally 2yrs.Was on pred till june2015. but then taken off pred. Dec. 2015 had bad flare-up,lost 2 stone in 3 weeks,put back on 20mgs pred.This has now tapered to 7mg. Tomorrow is my 4th infusion or rituximab,when would I expect to come of pred. I am 75yrs
paisleyman74
in
PMRGCAuk
8 years ago
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