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Nearly there
I'm 50 ad was diagnosed with follicular NHL stage 2 in June. I've already had 6 cycles of R-CVP and about to have 7th this Friday. The 8th and last cycle is on 16 Dec, so just finished in time for Christmas. I'll then go onto maintenance therapy with Rituximab for 2 years administered by sub-cutaneous
I'm 50 ad was diagnosed with follicular NHL stage 2 in June. I've already had 6 cycles of R-CVP and about to have 7th this Friday. The 8th and last cycle is on 16 Dec, so just finished in time for Christmas. I'll then go onto maintenance therapy with Rituximab for 2 years administered by sub-cutaneous
Hidden
in
Non Hodgkin's Lymphoma Friends
8 years ago
How remission is decided...
The nutcase in me is rearing her ugly head again! I saw my consultant last week, 2 weeks after completing 6 rounds of FCR. He is delighted with the scan results post round 4 and has said they are as near to normal as they could be. He is repeating the ct scan in Feb after I have recovered from the chrmo
The nutcase in me is rearing her ugly head again! I saw my consultant last week, 2 weeks after completing 6 rounds of FCR. He is delighted with the scan results post round 4 and has said they are as near to normal as they could be. He is repeating the ct scan in Feb after I have recovered from the chrmo
Bethan49
in
CLL Support
8 years ago
MRD Negative in the Bone Marrow - clinical trial update
Hi all just a quick update on me - I'm in europe starting cycle 13 of venetoclax on my ven plus obinutuzimab phase1b trial at Barts for relapsed and refractory patients. Still commuting every 3 months from Australja for my one day Appt and to collect my Venetoclax but just found out my bone marrow results
Hi all just a quick update on me - I'm in europe starting cycle 13 of venetoclax on my ven plus obinutuzimab phase1b trial at Barts for relapsed and refractory patients. Still commuting every 3 months from Australja for my one day Appt and to collect my Venetoclax but just found out my bone marrow results
Debinoz
in
CLL Support
8 years ago
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rituximab infusion
Hi I am a 21y/o female with SLE. Had my first rituximab infusion on Tuesday, have felt quite ill achey and tired ever since. Is this normal ? Has anyone else on here has rituximab and seen benefits?
Hi I am a 21y/o female with SLE. Had my first rituximab infusion on Tuesday, have felt quite ill achey and tired ever since. Is this normal ? Has anyone else on here has rituximab and seen benefits?
Charlottelauren
in
LUPUS UK
8 years ago
Molecular remission after 6 rounds of FCR
Glad to report that after finishing 6 rounds of F C R and waiting 6 weeks to have bone marrow tested and CT scans done, I have been told I am in molecular remission for my CLL.. Happy days are here again. Keep a positive attitude and G d willing I live many more years
Glad to report that after finishing 6 rounds of F C R and waiting 6 weeks to have bone marrow tested and CT scans done, I have been told I am in molecular remission for my CLL.. Happy days are here again. Keep a positive attitude and G d willing I live many more years
ucallihaul
in
CLL Support
8 years ago
Rituximab
Have see a locum consultant on Sunday. He told me stop taking Lefludomid straight away as my blood pressure is very high. He examined me, read my history and says I am a candidate for biological treatment. He then arranged for me to have a steroid injection. I then returned to the hospital Tuesday
Have see a locum consultant on Sunday. He told me stop taking Lefludomid straight away as my blood pressure is very high. He examined me, read my history and says I am a candidate for biological treatment. He then arranged for me to have a steroid injection. I then returned to the hospital Tuesday
Ellieellie
in
NRAS
8 years ago
FCR/UNmutated IGVH
Any unmutated IGVH fellow CLLers out there ever do FCR as frontline? I ask please for responses to this direct question...not commentary on the topic in general. Thanks!
Any unmutated IGVH fellow CLLers out there ever do FCR as frontline? I ask please for responses to this direct question...not commentary on the topic in general. Thanks!
YjbCLL
in
CLL Support
8 years ago
No symptoms! frustrating!!
Hi, just an update really, had this bout of ITP since start of September with a count of 10. Only symptom I had then was a 3 hour nose bleed. Since then I've had the standard steroids but wanted off them quick so I've been having weekly blood tests and injections of Nplate as required. Levels really
Hi, just an update really, had this bout of ITP since start of September with a count of 10. Only symptom I had then was a 3 hour nose bleed. Since then I've had the standard steroids but wanted off them quick so I've been having weekly blood tests and injections of Nplate as required. Levels really
Ironspur14
in
ITP Support Association
8 years ago
Dental abscess under tooth
Hi all. I have never had problems with any of my teeth until now. On 7.5 pred and rituximab infusions every six months. I have got an abscess under my 2nd from back tooth which will not heal up! Had route canal and it's been cleaned out 4 times! I'm back at the dentist tomorrow and think the only option
Hi all. I have never had problems with any of my teeth until now. On 7.5 pred and rituximab infusions every six months. I have got an abscess under my 2nd from back tooth which will not heal up! Had route canal and it's been cleaned out 4 times! I'm back at the dentist tomorrow and think the only option
joannebond360
in
LUPUS UK
8 years ago
Low phosphate levels
just completed round 1 of FCR ,and so far so good!! The only worry is low phosphate levels? Anyone else had this and any problems associated with this , as far as I understand it could be kidney related?
just completed round 1 of FCR ,and so far so good!! The only worry is low phosphate levels? Anyone else had this and any problems associated with this , as far as I understand it could be kidney related?
Megellen
in
CLL Support
8 years ago
Carry on CLLERS go dating...With Bethan and Nic!
Hi everyone! This site has been an amazing resource for us this year; a place of expert information; a comforting hug when worried ; an agony aunt off load page as well as a chance to meet new friends! @Bellabee and I have had a little sisterhood on line relationship going on where we have kept
Hi everyone! This site has been an amazing resource for us this year; a place of expert information; a comforting hug when worried ; an agony aunt off load page as well as a chance to meet new friends! @Bellabee and I have had a little sisterhood on line relationship going on where we have kept
Bethan49
in
CLL Support
8 years ago
Rituximab??
Hi everyone it's been a while since I posted. Hope all doing ok. Quick question. I have just been told that my next treatment will be the rituximab infusion as the methotrexate does not seem to be working for me even though I feel good but my ESR and CRP levels are high. Has anyone had success with this
Hi everyone it's been a while since I posted. Hope all doing ok. Quick question. I have just been told that my next treatment will be the rituximab infusion as the methotrexate does not seem to be working for me even though I feel good but my ESR and CRP levels are high. Has anyone had success with this
Carbar
in
LUPUS UK
8 years ago
I rang that bell loud and clear ... Then breathed. FCR over!
A week ago today I dressed up in my lovely blue dress and new polka dress shoes and went for my final day trip to the Phoenix Unit Sunderland for a bit of Fcr. The chair was comfortable and the nurse warm and reassuring...I was on an unatural high! Very excitable ! I told everyone it was my last
A week ago today I dressed up in my lovely blue dress and new polka dress shoes and went for my final day trip to the Phoenix Unit Sunderland for a bit of Fcr. The chair was comfortable and the nurse warm and reassuring...I was on an unatural high! Very excitable ! I told everyone it was my last
Bethan49
in
CLL Support
8 years ago
Painful scalp during chemo
I have now had 4 cycles of FCR and although my hair is thinning a lot (fortunately I had very thick hair to start with) , I haven't actually lost it. However, I have very painful patches on my scalp & wondered if anyone has any remedies for this.
I have now had 4 cycles of FCR and although my hair is thinning a lot (fortunately I had very thick hair to start with) , I haven't actually lost it. However, I have very painful patches on my scalp & wondered if anyone has any remedies for this.
Grannajan
in
CLL Support
8 years ago
"Reasonable" time off work
Hi guys its been a while since i popped in so i thought i would just say hi to everyone & because its now December - Merry Christmas! I had FCR a while back and other than normal fatigue i have a pretty healthy life and good remission. I work full time and my job is quite demanding as im in management
Hi guys its been a while since i popped in so i thought i would just say hi to everyone & because its now December - Merry Christmas! I had FCR a while back and other than normal fatigue i have a pretty healthy life and good remission. I work full time and my job is quite demanding as im in management
grizzlebear
in
CLL Support
8 years ago
Disappointing day...
As you may know, my husband went through 6 treatments FCR ending December 2015 after 4 1/2 years W&W. Came through it like a champ, had BMB late August this year. Got the news that the results couldn't look better from his CLL specialist and then about 6 weeks ago felt a lump in his neck again after
As you may know, my husband went through 6 treatments FCR ending December 2015 after 4 1/2 years W&W. Came through it like a champ, had BMB late August this year. Got the news that the results couldn't look better from his CLL specialist and then about 6 weeks ago felt a lump in his neck again after
jules_c
in
CLL Support
8 years ago
Rituximab dose and frequency
Hello. I have been on rituximab for nearly two years now. It works well but at the six month mark it definitely wears off. Was with Rheumy last week and he is giving me one dose this round as he is worried about side effects of the two doses. Has anyone else had just one and has it worked? I am afraid
Hello. I have been on rituximab for nearly two years now. It works well but at the six month mark it definitely wears off. Was with Rheumy last week and he is giving me one dose this round as he is worried about side effects of the two doses. Has anyone else had just one and has it worked? I am afraid
Stynk
in
NRAS
8 years ago
Mantle Cell Lymphoma
Hello! Would really appreciate feedback on treatment options for Indolent Mantle Cell Lymphoma for a healthy 49 year old male. Anyone familiar with Bendamustine/ Rituximab followed by Autologous SCT? Thank you, Reem
Hello! Would really appreciate feedback on treatment options for Indolent Mantle Cell Lymphoma for a healthy 49 year old male. Anyone familiar with Bendamustine/ Rituximab followed by Autologous SCT? Thank you, Reem
Reem-ayoub
in
Lymphoma Canada
8 years ago
Disabled or not!
I have just been advised of a formal warning in work due to Sick time (2 days) after my Rituximab infusions. Joy of working in the NHS!!. Are we classed as disabled having GPA? I have blue badges and have been classed as disabled with my local council and have a Hearing social worker. Can anyone answer
I have just been advised of a formal warning in work due to Sick time (2 days) after my Rituximab infusions. Joy of working in the NHS!!. Are we classed as disabled having GPA? I have blue badges and have been classed as disabled with my local council and have a Hearing social worker. Can anyone answer
Llinos
in
Vasculitis UK
8 years ago
Dr. Andrew Roberts with new data from EHA on Venetoclax used in combination with Rituximab. And my quick visit to San Francisco tomorrow
Friends, In the Conference Coverage section of the CLL Society website, we’ve posted an interview with Dr. Andrew Roberts from a discussion we had about the new data on Venetoclax used in combination with Rituximab for relapsed refractory CLL. You can find the interview on our front page. On Saturday
Friends, In the Conference Coverage section of the CLL Society website, we’ve posted an interview with Dr. Andrew Roberts from a discussion we had about the new data on Venetoclax used in combination with Rituximab for relapsed refractory CLL. You can find the interview on our front page. On Saturday
bkoffman
CLL CURE Hero
in
CLL Support
8 years ago
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