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FCR/UNmutated IGVH
Any unmutated IGVH fellow CLLers out there ever do FCR as frontline? I ask please for responses to this direct question...not commentary on the topic in general. Thanks!
Any unmutated IGVH fellow CLLers out there ever do FCR as frontline? I ask please for responses to this direct question...not commentary on the topic in general. Thanks!
YjbCLL
in
CLL Support
8 years ago
No symptoms! frustrating!!
Hi, just an update really, had this bout of ITP since start of September with a count of 10. Only symptom I had then was a 3 hour nose bleed. Since then I've had the standard steroids but wanted off them quick so I've been having weekly blood tests and injections of Nplate as required. Levels really
Hi, just an update really, had this bout of ITP since start of September with a count of 10. Only symptom I had then was a 3 hour nose bleed. Since then I've had the standard steroids but wanted off them quick so I've been having weekly blood tests and injections of Nplate as required. Levels really
Ironspur14
in
ITP Support Association
8 years ago
Dental abscess under tooth
Hi all. I have never had problems with any of my teeth until now. On 7.5 pred and rituximab infusions every six months. I have got an abscess under my 2nd from back tooth which will not heal up! Had route canal and it's been cleaned out 4 times! I'm back at the dentist tomorrow and think the only option
Hi all. I have never had problems with any of my teeth until now. On 7.5 pred and rituximab infusions every six months. I have got an abscess under my 2nd from back tooth which will not heal up! Had route canal and it's been cleaned out 4 times! I'm back at the dentist tomorrow and think the only option
joannebond360
in
LUPUS UK
8 years ago
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Low phosphate levels
just completed round 1 of FCR ,and so far so good!! The only worry is low phosphate levels? Anyone else had this and any problems associated with this , as far as I understand it could be kidney related?
just completed round 1 of FCR ,and so far so good!! The only worry is low phosphate levels? Anyone else had this and any problems associated with this , as far as I understand it could be kidney related?
Megellen
in
CLL Support
8 years ago
Carry on CLLERS go dating...With Bethan and Nic!
Hi everyone! This site has been an amazing resource for us this year; a place of expert information; a comforting hug when worried ; an agony aunt off load page as well as a chance to meet new friends! @Bellabee and I have had a little sisterhood on line relationship going on where we have kept
Hi everyone! This site has been an amazing resource for us this year; a place of expert information; a comforting hug when worried ; an agony aunt off load page as well as a chance to meet new friends! @Bellabee and I have had a little sisterhood on line relationship going on where we have kept
Bethan49
in
CLL Support
8 years ago
Rituximab??
Hi everyone it's been a while since I posted. Hope all doing ok. Quick question. I have just been told that my next treatment will be the rituximab infusion as the methotrexate does not seem to be working for me even though I feel good but my ESR and CRP levels are high. Has anyone had success with this
Hi everyone it's been a while since I posted. Hope all doing ok. Quick question. I have just been told that my next treatment will be the rituximab infusion as the methotrexate does not seem to be working for me even though I feel good but my ESR and CRP levels are high. Has anyone had success with this
Carbar
in
LUPUS UK
8 years ago
I rang that bell loud and clear ... Then breathed. FCR over!
A week ago today I dressed up in my lovely blue dress and new polka dress shoes and went for my final day trip to the Phoenix Unit Sunderland for a bit of Fcr. The chair was comfortable and the nurse warm and reassuring...I was on an unatural high! Very excitable ! I told everyone it was my last
A week ago today I dressed up in my lovely blue dress and new polka dress shoes and went for my final day trip to the Phoenix Unit Sunderland for a bit of Fcr. The chair was comfortable and the nurse warm and reassuring...I was on an unatural high! Very excitable ! I told everyone it was my last
Bethan49
in
CLL Support
8 years ago
Painful scalp during chemo
I have now had 4 cycles of FCR and although my hair is thinning a lot (fortunately I had very thick hair to start with) , I haven't actually lost it. However, I have very painful patches on my scalp & wondered if anyone has any remedies for this.
I have now had 4 cycles of FCR and although my hair is thinning a lot (fortunately I had very thick hair to start with) , I haven't actually lost it. However, I have very painful patches on my scalp & wondered if anyone has any remedies for this.
Grannajan
in
CLL Support
8 years ago
"Reasonable" time off work
Hi guys its been a while since i popped in so i thought i would just say hi to everyone & because its now December - Merry Christmas! I had FCR a while back and other than normal fatigue i have a pretty healthy life and good remission. I work full time and my job is quite demanding as im in management
Hi guys its been a while since i popped in so i thought i would just say hi to everyone & because its now December - Merry Christmas! I had FCR a while back and other than normal fatigue i have a pretty healthy life and good remission. I work full time and my job is quite demanding as im in management
grizzlebear
in
CLL Support
8 years ago
Disappointing day...
As you may know, my husband went through 6 treatments FCR ending December 2015 after 4 1/2 years W&W. Came through it like a champ, had BMB late August this year. Got the news that the results couldn't look better from his CLL specialist and then about 6 weeks ago felt a lump in his neck again after
As you may know, my husband went through 6 treatments FCR ending December 2015 after 4 1/2 years W&W. Came through it like a champ, had BMB late August this year. Got the news that the results couldn't look better from his CLL specialist and then about 6 weeks ago felt a lump in his neck again after
jules_c
in
CLL Support
8 years ago
Rituximab dose and frequency
Hello. I have been on rituximab for nearly two years now. It works well but at the six month mark it definitely wears off. Was with Rheumy last week and he is giving me one dose this round as he is worried about side effects of the two doses. Has anyone else had just one and has it worked? I am afraid
Hello. I have been on rituximab for nearly two years now. It works well but at the six month mark it definitely wears off. Was with Rheumy last week and he is giving me one dose this round as he is worried about side effects of the two doses. Has anyone else had just one and has it worked? I am afraid
Stynk
in
NRAS
8 years ago
Mantle Cell Lymphoma
Hello! Would really appreciate feedback on treatment options for Indolent Mantle Cell Lymphoma for a healthy 49 year old male. Anyone familiar with Bendamustine/ Rituximab followed by Autologous SCT? Thank you, Reem
Hello! Would really appreciate feedback on treatment options for Indolent Mantle Cell Lymphoma for a healthy 49 year old male. Anyone familiar with Bendamustine/ Rituximab followed by Autologous SCT? Thank you, Reem
Reem-ayoub
in
Lymphoma Canada
8 years ago
Disabled or not!
I have just been advised of a formal warning in work due to Sick time (2 days) after my Rituximab infusions. Joy of working in the NHS!!. Are we classed as disabled having GPA? I have blue badges and have been classed as disabled with my local council and have a Hearing social worker. Can anyone answer
I have just been advised of a formal warning in work due to Sick time (2 days) after my Rituximab infusions. Joy of working in the NHS!!. Are we classed as disabled having GPA? I have blue badges and have been classed as disabled with my local council and have a Hearing social worker. Can anyone answer
Llinos
in
Vasculitis UK
8 years ago
Dr. Andrew Roberts with new data from EHA on Venetoclax used in combination with Rituximab. And my quick visit to San Francisco tomorrow
Friends, In the Conference Coverage section of the CLL Society website, we’ve posted an interview with Dr. Andrew Roberts from a discussion we had about the new data on Venetoclax used in combination with Rituximab for relapsed refractory CLL. You can find the interview on our front page. On Saturday
Friends, In the Conference Coverage section of the CLL Society website, we’ve posted an interview with Dr. Andrew Roberts from a discussion we had about the new data on Venetoclax used in combination with Rituximab for relapsed refractory CLL. You can find the interview on our front page. On Saturday
bkoffman
CLL CURE Hero
in
CLL Support
8 years ago
Rituximab and prednisone
Hi everyone as anyone who has GPA been treated with Rituximab while on high dose of prednisone (40mg)i If so how did you feel for the following months? It is now four month since my infusion I am down to 12mg pried but not feeling any better I get very tired and muscle ache back ache etc etc!!! Is
Hi everyone as anyone who has GPA been treated with Rituximab while on high dose of prednisone (40mg)i If so how did you feel for the following months? It is now four month since my infusion I am down to 12mg pried but not feeling any better I get very tired and muscle ache back ache etc etc!!! Is
102637
in
Vasculitis UK
8 years ago
Just had staging scan after cycle 3 of FCR
I was a little disappointed to be told yesterday, following a staging scan, that I would benefit from having the planned 6 FCR cycles event though my enlarged lymph nodes are more than 60% gone after 3 cycles. However, I do understand that this will hopefully put me into a longer remission. My husband
I was a little disappointed to be told yesterday, following a staging scan, that I would benefit from having the planned 6 FCR cycles event though my enlarged lymph nodes are more than 60% gone after 3 cycles. However, I do understand that this will hopefully put me into a longer remission. My husband
Grannajan
in
CLL Support
8 years ago
The end is in sight but I'm a blubbering wreck!
Hi guys! I am now a week away from round 6 FCR. It's been a journey and I have a great sense of wanting to be home now and in my own life again. However I keep breaking down and crying for no reason ... I think it's the relief that it's nearly done... That I've done it.. I've weathered the storm .
Hi guys! I am now a week away from round 6 FCR. It's been a journey and I have a great sense of wanting to be home now and in my own life again. However I keep breaking down and crying for no reason ... I think it's the relief that it's nearly done... That I've done it.. I've weathered the storm .
Bethan49
in
CLL Support
8 years ago
FCR and nausea
Hello fellow CLLERS, I have just finished round 2 of FCR. First round I had horrendous nausea so bad I couldn't sleep for days. This round they gave me Emend but the unfortunate side effect was severe constipation. I ended up extremely distressed and having to have two enemas and I was still nauseous
Hello fellow CLLERS, I have just finished round 2 of FCR. First round I had horrendous nausea so bad I couldn't sleep for days. This round they gave me Emend but the unfortunate side effect was severe constipation. I ended up extremely distressed and having to have two enemas and I was still nauseous
Kenn123
in
CLL Support
8 years ago
Rituximab
Hello,I've been reading through the posts a long time here but this is my first post. I have CKD 3b ...gfr 38% but recently dropped to 33. It's an autoimmune thing for me...my body just attacking itself. I also have autoimmune pancreatitis. I have been waiting for about a year now for funding &licensing
Hello,I've been reading through the posts a long time here but this is my first post. I have CKD 3b ...gfr 38% but recently dropped to 33. It's an autoimmune thing for me...my body just attacking itself. I also have autoimmune pancreatitis. I have been waiting for about a year now for funding &licensing
madonbrew
in
Early CKD Support
8 years ago
2 mths ago told I had stage 4CLL from Canada
Recently diagnosed with stage 4 CLL. What a shocker. Left side has been hurting last 5 yrs however, thought it was only bowel problems and took more enzymes and roughage. . Even had a colonoscopy, but found nothing and no one thought to check my white blood cell count. I was Tired but still was
Recently diagnosed with stage 4 CLL. What a shocker. Left side has been hurting last 5 yrs however, thought it was only bowel problems and took more enzymes and roughage. . Even had a colonoscopy, but found nothing and no one thought to check my white blood cell count. I was Tired but still was
234me
in
CLL Support
8 years ago
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