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Co trimoxazole?
Hi everyone! My nephrologist has put me on co- trimoxazole as i am on Rituximab and will be every 6 months for 3 years. I have to take the tablets every other day to help stop infections. Any one ever had them? Any side effects? Im concerned as the side effects say you can hillucinate!
Hi everyone! My nephrologist has put me on co- trimoxazole as i am on Rituximab and will be every 6 months for 3 years. I have to take the tablets every other day to help stop infections. Any one ever had them? Any side effects? Im concerned as the side effects say you can hillucinate!
Rach459
in
LUPUS UK
7 years ago
Too High Platelet count following Rituximab and Romiplostim
My wife has had a very low platelet count (between 0-5) for a few months. She was put on Romiplostim injections but they did not have any effect. She was then given a round of Rituximab and following this her platelet count increased to over 200. The Romiplostim injections were halted. Her platelet count
My wife has had a very low platelet count (between 0-5) for a few months. She was put on Romiplostim injections but they did not have any effect. She was then given a round of Rituximab and following this her platelet count increased to over 200. The Romiplostim injections were halted. Her platelet count
sandyhutchison77
in
ITP Support Association
7 years ago
Churg Strauss syndrome that caused Mononeuritis multiplex
Last year November , I was diagnosed to have Churg Strauss syndrome . I have been on Prednisone since then, from 45mg to now 10mg. I was given Gabapentin since 3 Mar. I also on Gabapentin since 3 Mar. Also, I no just had two rounds of Rituximab Infusion done on 27 March and 11 Apr. Yesterday told me
Last year November , I was diagnosed to have Churg Strauss syndrome . I have been on Prednisone since then, from 45mg to now 10mg. I was given Gabapentin since 3 Mar. I also on Gabapentin since 3 Mar. Also, I no just had two rounds of Rituximab Infusion done on 27 March and 11 Apr. Yesterday told me
Thymery
in
Vasculitis UK
7 years ago
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New to all of this....
Hi everyone. I still feel relatively new to the Vasculitus world but I am hoping this group will help me understand it just that bit more. I was diagnosed with GPA in Feb 2016 at the age of 27. I was on 60mg of Steroids in hospital and have slowly been reducing them (currently on 7.5mg). I was also
Hi everyone. I still feel relatively new to the Vasculitus world but I am hoping this group will help me understand it just that bit more. I was diagnosed with GPA in Feb 2016 at the age of 27. I was on 60mg of Steroids in hospital and have slowly been reducing them (currently on 7.5mg). I was also
staceyfitz88
in
Vasculitis UK
7 years ago
New to this Community
I am new to this group but have been on other groups regarding vasculitis for a few years helping others with advice and support..... I am 54 years, I had PAN when I was 21 years and went into complete remission after 5 years. In 2013 I was diagnosed with GPA. I relapsed again in 2016 and struggled
I am new to this group but have been on other groups regarding vasculitis for a few years helping others with advice and support..... I am 54 years, I had PAN when I was 21 years and went into complete remission after 5 years. In 2013 I was diagnosed with GPA. I relapsed again in 2016 and struggled
philtw
in
Vasculitis UK
7 years ago
Nearly into Stage 4
I have recently had rituximab infusions for my kidney failure. ..it's an autoimmune disease. I'm 38 and my eGFR had been dropping approximately 12% per year over a few years.It then hovered between 38-44% and in 6months has dropped down to 34%. The doctors were hoping the rituximab would help but it
I have recently had rituximab infusions for my kidney failure. ..it's an autoimmune disease. I'm 38 and my eGFR had been dropping approximately 12% per year over a few years.It then hovered between 38-44% and in 6months has dropped down to 34%. The doctors were hoping the rituximab would help but it
madonbrew
in
Early CKD Support
7 years ago
Waiting so long for rituximab
I'm still trying to find out from anybody how long Rituximab takes to work. I've been waitingg since February the 14th, I've had two infusions already without any difference to my RA. I've had terribkf pain in hands and writs for months I take mextrate 7. mg a week. Please can someone tell me how long
I'm still trying to find out from anybody how long Rituximab takes to work. I've been waitingg since February the 14th, I've had two infusions already without any difference to my RA. I've had terribkf pain in hands and writs for months I take mextrate 7. mg a week. Please can someone tell me how long
Ritaalice13
in
NRAS
7 years ago
First experience of Ibrutinin and rituximab
This week I started treatment and so far so good. 100ml on Thursday with no adverse effects then 500ml yesterday again no problems Making sure I hydrate and moisturise. Using coconut oil and frankincense twice a day on hands and feet to ward off cracks and sores. Daily tablets regime needs some getting
This week I started treatment and so far so good. 100ml on Thursday with no adverse effects then 500ml yesterday again no problems Making sure I hydrate and moisturise. Using coconut oil and frankincense twice a day on hands and feet to ward off cracks and sores. Daily tablets regime needs some getting
KAS8
in
CLL Support
7 years ago
Delayed 2nd FCR 🙄
Well I was mentally prepared for my 2nd FCR on May 8th but not physically it seems. I had my blood tests today and my WBC was down from 149 to 1.9, fantastic! But my neutrophils are also 1 so I can't have it. I'd be really grateful for some neutrophils info as I'm fairly ignorant in this area. Should
Well I was mentally prepared for my 2nd FCR on May 8th but not physically it seems. I had my blood tests today and my WBC was down from 149 to 1.9, fantastic! But my neutrophils are also 1 so I can't have it. I'd be really grateful for some neutrophils info as I'm fairly ignorant in this area. Should
sallyplest
in
CLL Support
7 years ago
Explainer: what is the blood-brain barrier and how can we overcome it?
[i]'The blood–brain barrier is generally very effective at preventing unwanted substances from accessing the brain, which has a downside. The vast majority of potential drug treatments do not readily cross the barrier, posing a huge impediment to treating mental and neurological disorders. One possible
[i]'The blood–brain barrier is generally very effective at preventing unwanted substances from accessing the brain, which has a downside. The vast majority of potential drug treatments do not readily cross the barrier, posing a huge impediment to treating mental and neurological disorders. One possible
AussieNeil
Partner
in
CLL Support
7 years ago
More bad news in shock
Hi all Sorry not posted for a while with not being well. Today I saw Rheumatologist and Neurologist. They said my lupus is not improving in fact getting quite aggressive. More tablets prescribed, plus need to inject myself with blood thinners every day into my stomach as blood really thick and sticky
Hi all Sorry not posted for a while with not being well. Today I saw Rheumatologist and Neurologist. They said my lupus is not improving in fact getting quite aggressive. More tablets prescribed, plus need to inject myself with blood thinners every day into my stomach as blood really thick and sticky
LSurtees
in
LUPUS UK
7 years ago
How long does Rituximab take to eork
I would like to know how long Rituximab takes to work. I had my second infushion on the 4 th February just gone and still haven't felt any benefit in extreme pain in writs and elbow, any advice sould really help. Loosen faith waiting so long.
I would like to know how long Rituximab takes to work. I had my second infushion on the 4 th February just gone and still haven't felt any benefit in extreme pain in writs and elbow, any advice sould really help. Loosen faith waiting so long.
Ritaalice13
in
NRAS
7 years ago
Treatment starts tomorrow.
Well, here we are - OH was diagnosed in August 2014, so W&W didn't last as long as we had hoped it would. Most figures have remained fairly stable, but platelet levels consistently around 80 for last 9 months, so FCR starting tomorrow. As he is pretty fit, we are hoping that 4 lots of treatment will
Well, here we are - OH was diagnosed in August 2014, so W&W didn't last as long as we had hoped it would. Most figures have remained fairly stable, but platelet levels consistently around 80 for last 9 months, so FCR starting tomorrow. As he is pretty fit, we are hoping that 4 lots of treatment will
shoppingtrolley
in
CLL Support
7 years ago
On biological infusions to help my arthritis caused by my Lupus and white blood cells keep dropping..
Hi all, im on Abatacept 4weekly infusions at hospital to help as my lupus has attacked my joints aparently there is only a choice of a couple of the biological infusions as most of them can actually make luus worse. It doesnt help lupus but helps the side affect inflamation only of the extreme joint
Hi all, im on Abatacept 4weekly infusions at hospital to help as my lupus has attacked my joints aparently there is only a choice of a couple of the biological infusions as most of them can actually make luus worse. It doesnt help lupus but helps the side affect inflamation only of the extreme joint
Mellisa1066
in
LUPUS UK
7 years ago
FCR...the "gold standard" for CLL
Well, after all kinds of advice and doing some serious research, I decided to go to OSU James Cancer Center for treatment. Dr. Byrd will give me FCR outpatient. I start Wed. May 3. I cant sleep or do much of anything. I am anxious but relieved to finally start treatment. I am trisomy 12 simple karotype
Well, after all kinds of advice and doing some serious research, I decided to go to OSU James Cancer Center for treatment. Dr. Byrd will give me FCR outpatient. I start Wed. May 3. I cant sleep or do much of anything. I am anxious but relieved to finally start treatment. I am trisomy 12 simple karotype
queencalabrese
in
CLL Support
7 years ago
Flair Trial - FCR first dose
Hi all Arrived hospital Monday morning 8.45am for first infusion of rituximab but pharmacy had lost my prescription, so after waiting 3hrs sent home to return Tuesday. Yesterday started first infusion 17ml for first half hr then increased to 35ml coped fine until increased to 48ml and had reaction.
Hi all Arrived hospital Monday morning 8.45am for first infusion of rituximab but pharmacy had lost my prescription, so after waiting 3hrs sent home to return Tuesday. Yesterday started first infusion 17ml for first half hr then increased to 35ml coped fine until increased to 48ml and had reaction.
sallyplest
in
CLL Support
7 years ago
Question!
Please can you tell me if Rituximab (Mabthera) will cause hair fall??? Who tried or have experience with this drug! I read the possible side effects and I was completely scared! I don't know what to do!!!
Please can you tell me if Rituximab (Mabthera) will cause hair fall??? Who tried or have experience with this drug! I read the possible side effects and I was completely scared! I don't know what to do!!!
Deniss
in
ITP Support Association
7 years ago
Room spinning- help!
Woke up this morning and when i moved my ear went dead for 2-3 seconds and everything started shifting and spinning. I put my head down again and eventually settled but when i moved again i felt strange . I sat back for a while then got up found if i bend down and turned slightly or moved my head up
Woke up this morning and when i moved my ear went dead for 2-3 seconds and everything started shifting and spinning. I put my head down again and eventually settled but when i moved again i felt strange . I sat back for a while then got up found if i bend down and turned slightly or moved my head up
weathervane
in
The Australian Sjögren's Syndrome Association
7 years ago
Room spinning- help!
Woke up this morning and when i moved my ear went dead for 2-3 seconds and everything started shifting and spinning. I put my head down again and eventually settled but when i moved again i felt strange . I sat back for a while then got up found if i bend down and turned slightly or moved my head up
Woke up this morning and when i moved my ear went dead for 2-3 seconds and everything started shifting and spinning. I put my head down again and eventually settled but when i moved again i felt strange . I sat back for a while then got up found if i bend down and turned slightly or moved my head up
weathervane
in
LUPUS UK
7 years ago
Fludarabine, cyclophosphamide, and rituximab as first-line treatment for CLL
The current study compared the effectiveness of FCR to FC alone. 817 patients were randomly assigned to FCR treatment or FC treatment. None of the patients had been treated previously. Average PFS was longer in the FCR group (51.8 months) than the FC group (32.8 months). The risk of progression was
The current study compared the effectiveness of FCR to FC alone. 817 patients were randomly assigned to FCR treatment or FC treatment. None of the patients had been treated previously. Average PFS was longer in the FCR group (51.8 months) than the FC group (32.8 months). The risk of progression was
wmay13241
in
CLL Support
7 years ago
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