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UTI
Can anyone advise me please. I am due to start my third FCR on Thursday but have been to Walk in Centre today and had some antibiotics for a UTI. Could this delay my chemo?
Can anyone advise me please. I am due to start my third FCR on Thursday but have been to Walk in Centre today and had some antibiotics for a UTI. Could this delay my chemo?
sallyplest
in
CLL Support
7 years ago
Continuation of antivirals post treatment
Hi everyone, I completed round 6 of FCR in March. I've been building myself up and was beginning to feel somewhat normal again when 10 days ago I got shingles. Can I ask anyone out there who's had FCR how long you took antivirals for after treatment ended? I was told to stop after 2 months. Now I have
Hi everyone, I completed round 6 of FCR in March. I've been building myself up and was beginning to feel somewhat normal again when 10 days ago I got shingles. Can I ask anyone out there who's had FCR how long you took antivirals for after treatment ended? I was told to stop after 2 months. Now I have
Kenn123
in
CLL Support
7 years ago
Shingles post FCR
I finished FCR about 9 weeks ago and was beginning to feel better and thinking about a return date for work when the dreaded shingles struck. I'd just stopped taking the antiviral meds about three weeks before. It's been 9 days now since the rash appeared and the pain has actually gotten worse in the
I finished FCR about 9 weeks ago and was beginning to feel better and thinking about a return date for work when the dreaded shingles struck. I'd just stopped taking the antiviral meds about three weeks before. It's been 9 days now since the rash appeared and the pain has actually gotten worse in the
Kenn123
in
CLL Support
7 years ago
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platelet levels still dropping
My OH had his first FCR treatment 5 weeks ago. Was due for another to start last Tuesday, but platelet levels low (72), so delayed a week until another test and hopefully pick up in levels; however, have just got results, even lower now (68), so probably another week's delay. Is this standard? Is
My OH had his first FCR treatment 5 weeks ago. Was due for another to start last Tuesday, but platelet levels low (72), so delayed a week until another test and hopefully pick up in levels; however, have just got results, even lower now (68), so probably another week's delay. Is this standard? Is
shoppingtrolley
in
CLL Support
7 years ago
Any connection between HRT and CLL ?
Hi all, I was diagnosed in 2015 ,treated with FCR in nov2016, all went well considering how it affects some people, I came through well. So... just wondering if anyone has any opinions on whether starting hrt for menopause, it would exacerbate cll?
Hi all, I was diagnosed in 2015 ,treated with FCR in nov2016, all went well considering how it affects some people, I came through well. So... just wondering if anyone has any opinions on whether starting hrt for menopause, it would exacerbate cll?
Megellen
in
CLL Support
7 years ago
Haemophilus Influenzae
Hi Had anyone ever had Haemophilus Influenzae? Been unwell for months with what everyone thought was a chest infection, couldn't get rid of it with 3 lots of antibiotics. Sputum test showed Haemophilus Influenzae, got different antibiotics now and been on them for 3 days. I made the mistake of googling
Hi Had anyone ever had Haemophilus Influenzae? Been unwell for months with what everyone thought was a chest infection, couldn't get rid of it with 3 lots of antibiotics. Sputum test showed Haemophilus Influenzae, got different antibiotics now and been on them for 3 days. I made the mistake of googling
joannebond360
in
LUPUS UK
7 years ago
Impact of chemo on orthopedic healing process?
Hi, Was diagnosed CLL in 2010 and have been on WW since. However my ALC has increased from mid 20's to mid 40's in the last 6-9 months which has prompted my hematologist to start making noises re treatment. Feel reasonably well in myself and free from ongoing infections, but have significant lymph node
Hi, Was diagnosed CLL in 2010 and have been on WW since. However my ALC has increased from mid 20's to mid 40's in the last 6-9 months which has prompted my hematologist to start making noises re treatment. Feel reasonably well in myself and free from ongoing infections, but have significant lymph node
Redlion
in
CLL Support
7 years ago
Rituximab without MTX?
I have not been on a biologic since the Tocilizumab was stopped as it no longer worked. I have been informed today that the Rituximab cannot be approved if you don't take Methotrexate with it. Unfortunately I cannot tolerate MTX even at low doses so I'm stuck at the moment. Does anyone have rituximab
I have not been on a biologic since the Tocilizumab was stopped as it no longer worked. I have been informed today that the Rituximab cannot be approved if you don't take Methotrexate with it. Unfortunately I cannot tolerate MTX even at low doses so I'm stuck at the moment. Does anyone have rituximab
premierscfc
in
NRAS
7 years ago
Rituximab and Tiredness
Hi everyone, I've posted a couple of times about my Dad. He was put on Rituximab about 3 months ago after trying other meds which made him sick. He has been complaining of being exhausted. Says he does his two hour walk in the morning and is no good for anything else for the rest of the day. Is this
Hi everyone, I've posted a couple of times about my Dad. He was put on Rituximab about 3 months ago after trying other meds which made him sick. He has been complaining of being exhausted. Says he does his two hour walk in the morning and is no good for anything else for the rest of the day. Is this
Hidden
in
Vasculitis UK
7 years ago
Food Intolerance
My husband seems to have developed an intolerance to fish and crustaceans in the couple of years following his FCR chemotherapy. I was wondering if anyone else has had this sort of problem.
My husband seems to have developed an intolerance to fish and crustaceans in the couple of years following his FCR chemotherapy. I was wondering if anyone else has had this sort of problem.
teragramb
in
CLL Support
7 years ago
rituximab
Does everyone with vasculitis Has to go on this treatment of rituximab is its mandatory. ?
Does everyone with vasculitis Has to go on this treatment of rituximab is its mandatory. ?
YOSELIN1006
in
Vasculitis UK
7 years ago
2nd session
I started my 2nd session FCR on Wednesday. No reaction this time with Rituximab! Only side effects so far are fatigue and nausea which unpleasant but manageable. Onwards and upwards. Best wishes to everyone out there x
I started my 2nd session FCR on Wednesday. No reaction this time with Rituximab! Only side effects so far are fatigue and nausea which unpleasant but manageable. Onwards and upwards. Best wishes to everyone out there x
sallyplest
in
CLL Support
7 years ago
Treatment Tradeoffs. Very good Video. Debate: Is it appropriate to treat patients with CLL earlier in the era of novel agents? Dr. Furman
Published on Apr 23, 2017 In this presentation from the 2017 Great Debates & Updates in Hematologic Malignancies, Dr. Richard R. Furman argues that, in the era of novel agents, it is not appropriate to treat CLL patients earlier than before. https://www.youtube.com/watch?v=AN3yUS8ZuKc FCR vs. Ibruvica
Published on Apr 23, 2017 In this presentation from the 2017 Great Debates & Updates in Hematologic Malignancies, Dr. Richard R. Furman argues that, in the era of novel agents, it is not appropriate to treat CLL patients earlier than before. https://www.youtube.com/watch?v=AN3yUS8ZuKc FCR vs. Ibruvica
Hoffy
in
CLL Support
7 years ago
Treatment choices and work or not to work
Hello again. When I returned to the hospital again on Monday the doctors are now urging me to begin treatment fairly soon. My WBC doubled from 68 in April 2016 to 118 in October and then 206 a few weeks ago. I don't remember my other blood numbers but no other concerns were mentioned. She said if we
Hello again. When I returned to the hospital again on Monday the doctors are now urging me to begin treatment fairly soon. My WBC doubled from 68 in April 2016 to 118 in October and then 206 a few weeks ago. I don't remember my other blood numbers but no other concerns were mentioned. She said if we
Eebie1234
in
CLL Support
7 years ago
Treatment
Hi just to let you all know I had treatment last Thursday for my skin. I had it by infusion it took nearly 6 hours. It was rituximab. My next treatment will be in two weeks time.
Hi just to let you all know I had treatment last Thursday for my skin. I had it by infusion it took nearly 6 hours. It was rituximab. My next treatment will be in two weeks time.
djsema
in
LUPUS UK
7 years ago
Sleepless night
I didn't sleep very well last night, silly thoughts kept going around in my head and I can't get this question out of my head which I think is probably just ignorance on my part, but I'm going to ask anyway because someone on here will be able to help me! I understand with FCR that rituximab is the
I didn't sleep very well last night, silly thoughts kept going around in my head and I can't get this question out of my head which I think is probably just ignorance on my part, but I'm going to ask anyway because someone on here will be able to help me! I understand with FCR that rituximab is the
sallyplest
in
CLL Support
7 years ago
6 months post FCR and let me introduce Brewster to you all!
It's hard to believe that 6 months have past by since Chemo... some days I feel nearly normal🤓 And don't give too much thought to CLL but other days it can be the burden that you carry around – On those days it feels as if i am on an isolated island, all by myself , trying to predict how long remission
It's hard to believe that 6 months have past by since Chemo... some days I feel nearly normal🤓 And don't give too much thought to CLL but other days it can be the burden that you carry around – On those days it feels as if i am on an isolated island, all by myself , trying to predict how long remission
Bethan49
in
CLL Support
7 years ago
Rituximab
I'm still waiting for some answers to my question on how long does Rituximab take to work. I've been waiting over ten week without any success, any advice would be gratefully excepted. God bless you all. One more thing I would like to mention I've been in so much pain since I started this drug, they've
I'm still waiting for some answers to my question on how long does Rituximab take to work. I've been waiting over ten week without any success, any advice would be gratefully excepted. God bless you all. One more thing I would like to mention I've been in so much pain since I started this drug, they've
Ritaalice13
in
NRAS
7 years ago
Rituximab Infusions
I am on my fifth round of rituximab infusion and have always experienced a few side-effects for a few days after and its been successful. About a week after the second one i became ill, chills in my legs, my body aches like its never ached before, sore throat, tingling sensation all over and I am worrying
I am on my fifth round of rituximab infusion and have always experienced a few side-effects for a few days after and its been successful. About a week after the second one i became ill, chills in my legs, my body aches like its never ached before, sore throat, tingling sensation all over and I am worrying
Launaloo9
in
NRAS
7 years ago
Week 2 Ibrutinin / rituximab update
Having had a good week one, things have changed little. - nauseas last couple of mornings post tablets - 200m into a walk, burning sensation from feet travelling up legs to chest. - love bite type marks when scratching following the above - today I have a sore right hand and knee and left ankle. They
Having had a good week one, things have changed little. - nauseas last couple of mornings post tablets - 200m into a walk, burning sensation from feet travelling up legs to chest. - love bite type marks when scratching following the above - today I have a sore right hand and knee and left ankle. They
KAS8
in
CLL Support
7 years ago
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