Search
Search
About
Log in
Join
Experiences with
Cetuximab
Posts
Communities
2,434 public posts
Filter results
Fcr round 4 icthing
Bad Icthing with fcr only at round 4 , itch all night Bath in morning soothes it
Bad Icthing with fcr only at round 4 , itch all night Bath in morning soothes it
Jsk1950
in
CLL Support
6 years ago
Test Results FCR- Remission!
Very happy to say that my BMB showed no signs of any CLL ! After 3 rounds of FCR, I am finished with treatment. I am hoping I have a long remission. I see my oncologist next month for check up then hopefully back to routine blood work. Will keep port in thru the winter. Hopefully get thru the next
Very happy to say that my BMB showed no signs of any CLL ! After 3 rounds of FCR, I am finished with treatment. I am hoping I have a long remission. I see my oncologist next month for check up then hopefully back to routine blood work. Will keep port in thru the winter. Hopefully get thru the next
GMa27
in
CLL Support
6 years ago
Chronic itp
My mother 57 yrs old has been suffering from chronic refreactory itp she is very optimist n highly will powered to against any odds she used to hav low platelet counts but that never stopped her from doing anything she was much active than most of the normal platelet count ppl but since last nov she
My mother 57 yrs old has been suffering from chronic refreactory itp she is very optimist n highly will powered to against any odds she used to hav low platelet counts but that never stopped her from doing anything she was much active than most of the normal platelet count ppl but since last nov she
sreea_dey90
in
ITP Support Association
6 years ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Fcr and flu jab
Should I have a flu jab while on fcr ?
Should I have a flu jab while on fcr ?
dandelup
in
CLL Support
6 years ago
CAR T-Cell Developments in Lymphoma Dr. Ian Flinn Highlights
Flinn Highlights CAR T-Cell Developments in Lymphoma by Brandon Scalea Published: Thursday, Aug 09, 2018 - https://www.onclive.com/web-exclusives/flinn-highlights-car-tcell-developments-in-lymphoma?eKey=bGVua2Vja0Bjb21jYXN0Lm5ldA==&utm_medium=email&utm_campaign=ONCSS%20NHL%20CC%20eNews%20%20Zydelig
Flinn Highlights CAR T-Cell Developments in Lymphoma by Brandon Scalea Published: Thursday, Aug 09, 2018 - https://www.onclive.com/web-exclusives/flinn-highlights-car-tcell-developments-in-lymphoma?eKey=bGVua2Vja0Bjb21jYXN0Lm5ldA==&utm_medium=email&utm_campaign=ONCSS%20NHL%20CC%20eNews%20%20Zydelig
lankisterguy
Volunteer
in
CLL Support
6 years ago
When will Rituximab start to work?
Hi its been 6 weeks since my ritux infusion and whilst at first I didn't feel any different, now i'm in more pain than ever! Is it the norm to feel worse before you feel better? or should I be concerned? I have always been very mobile, but three nights ago had the most excruciating pain and swelling
Hi its been 6 weeks since my ritux infusion and whilst at first I didn't feel any different, now i'm in more pain than ever! Is it the norm to feel worse before you feel better? or should I be concerned? I have always been very mobile, but three nights ago had the most excruciating pain and swelling
scorpiojack
in
NRAS
6 years ago
Rituximab
Hi all After seeing a very good and knowledgable nurse today looks like Rituximab is the next step. I would welcome your experiences please. xx Sarah
Hi all After seeing a very good and knowledgable nurse today looks like Rituximab is the next step. I would welcome your experiences please. xx Sarah
sjhewitt42
in
NRAS
6 years ago
Ibrutinib
My husband’s side effects are worse late afternoon early evening. I stay awake until I am sure he is more settled. He has horrible chills. He’s beginning to have head aches as well. He had headaches with FCR. Any advice on how to best comfort him or make life easier during Ibrutinib?
My husband’s side effects are worse late afternoon early evening. I stay awake until I am sure he is more settled. He has horrible chills. He’s beginning to have head aches as well. He had headaches with FCR. Any advice on how to best comfort him or make life easier during Ibrutinib?
Zappymom12
in
CLL Support
6 years ago
Newbie
Howdy. Pretty cool site with a lot of info, suggestions. I’m 63, finished FCR in November 2015, just started ibrutinib week ago last Saturday. Lot of side effects, mostly achy joints, bones, general weakness and not much appetite. The later is helping me with my weight—lol Anyway. Hope symptoms
Howdy. Pretty cool site with a lot of info, suggestions. I’m 63, finished FCR in November 2015, just started ibrutinib week ago last Saturday. Lot of side effects, mostly achy joints, bones, general weakness and not much appetite. The later is helping me with my weight—lol Anyway. Hope symptoms
gesch83ag
in
CLL Support
6 years ago
Post 4 cycles FCR side effects
FCR vasculitis & fungal pneumonia after 4 cycle
FCR vasculitis & fungal pneumonia after 4 cycle
Mathild
in
CLL Support
6 years ago
Fcr update
It’s now two weeks since my first session of chemo. On day four I felt exhausted and really nauseous so slept on and off most of the day,day five I managed to pass out and fall down the stairs and ended up in hospital as I banged my head, was allowed out the following day after a night on a drip . Since
It’s now two weeks since my first session of chemo. On day four I felt exhausted and really nauseous so slept on and off most of the day,day five I managed to pass out and fall down the stairs and ended up in hospital as I banged my head, was allowed out the following day after a night on a drip . Since
dandelup
in
CLL Support
6 years ago
Cheap Ibrutinib?
Hi Everyone, I started doing research on treatments and how I can handle the cost, since our insurance does not cover anything. We are doing the bone marrow this week and we will know for sure, but our doctor assumes Ibrutinib, combination or FCR, I prefer the first. However the cost is insane, I found
Hi Everyone, I started doing research on treatments and how I can handle the cost, since our insurance does not cover anything. We are doing the bone marrow this week and we will know for sure, but our doctor assumes Ibrutinib, combination or FCR, I prefer the first. However the cost is insane, I found
paula_dae
in
CLL Support
6 years ago
Rituximab for B cell infiltration (diffuse) in all sinus cavities and suspected nasal septum infiltration
The doctor has recommended Rituximab (1x a week for 4 weeks) to decrease the inflamed tissue. While researching chemo drugs for CLL/SLL I see several notices "as the first line of treat meant (initial treatment). My blood work is not bad (19yrs since diagnosis) and would not be a candidate for treatment
The doctor has recommended Rituximab (1x a week for 4 weeks) to decrease the inflamed tissue. While researching chemo drugs for CLL/SLL I see several notices "as the first line of treat meant (initial treatment). My blood work is not bad (19yrs since diagnosis) and would not be a candidate for treatment
Sallybee44
in
CLL Support
6 years ago
Help confidence so low
Hi all, Hope you are all doing well? I have been on steroids now for 2 years and my dose changes all the time plus every three months I have injections and rituximab infusion. A couple of months ago I was put on beta blockers and now pregabalin. My weight is shooting up even tho I am on a strict calarie
Hi all, Hope you are all doing well? I have been on steroids now for 2 years and my dose changes all the time plus every three months I have injections and rituximab infusion. A couple of months ago I was put on beta blockers and now pregabalin. My weight is shooting up even tho I am on a strict calarie
LSurtees
3kg
in
Weight Loss Support
6 years ago
Weight Gain
Hi all, Hope you are all doing well? I have been on steroids now for 2 years and my dose changes all the time plus every three months I have injections and rituximab infusion. A couple of months ago I was put on beta blockers and now pregabalin. My weight is shooting up even tho I am on a strict calarie
Hi all, Hope you are all doing well? I have been on steroids now for 2 years and my dose changes all the time plus every three months I have injections and rituximab infusion. A couple of months ago I was put on beta blockers and now pregabalin. My weight is shooting up even tho I am on a strict calarie
LSurtees
in
LUPUS UK
6 years ago
Possible food poisoning when on rituximab
Hello all, ive had a bad night, diarrhoea, painful guts , bit dizzy and cold . Im thinking food poisoning or gastric flu . My worry is should I call the doctor because of rituximab or give it 48 hours . The gp isn’t taking calls unless it’s an emergency as low on staff in summer as you don’t get ill
Hello all, ive had a bad night, diarrhoea, painful guts , bit dizzy and cold . Im thinking food poisoning or gastric flu . My worry is should I call the doctor because of rituximab or give it 48 hours . The gp isn’t taking calls unless it’s an emergency as low on staff in summer as you don’t get ill
weathervane
in
LUPUS UK
6 years ago
adverse reaction to aromatherapy?
The cancer nurse at my GP practise suggested I might like to take advantage of various treatments our local hospice provides for cancer sufferers. I went today for a chat with the therapist to discuss the options. She had a diffuser, puffing out essential oils, mixed with water. My lungs started to
The cancer nurse at my GP practise suggested I might like to take advantage of various treatments our local hospice provides for cancer sufferers. I went today for a chat with the therapist to discuss the options. She had a diffuser, puffing out essential oils, mixed with water. My lungs started to
Mandy56
in
CLL Support
6 years ago
FLAIR Trial 2018 update
This trial is comparing ibrutinib alongside rituximab with fludarabine, cyclophosphamide, rituximab and venetoclax for chronic lymphocytic leukaemia. This trial is for people who haven’t yet had treatment for their chronic lymphocytic leukaemia (CLL). The CLLSA supports this research. The Flair Trial
This trial is comparing ibrutinib alongside rituximab with fludarabine, cyclophosphamide, rituximab and venetoclax for chronic lymphocytic leukaemia. This trial is for people who haven’t yet had treatment for their chronic lymphocytic leukaemia (CLL). The CLLSA supports this research. The Flair Trial
Myrddin
in
CLL Support
6 years ago
Ibrutinib vs FCR: does order of therapy matter?
Time for a really specific question that is at the nub of the decision faced by doctors and patients when it is time to initiate first treatment. Does it matter which treatment we choose first? If you are a younger patient then clearly one of the critical issues is that sadly our disease is rarely cured
Time for a really specific question that is at the nub of the decision faced by doctors and patients when it is time to initiate first treatment. Does it matter which treatment we choose first? If you are a younger patient then clearly one of the critical issues is that sadly our disease is rarely cured
AdrianUK
in
CLL Support
6 years ago
Just got my FISH results
Hi everyone, I've just been to see my haematologist for my FISH results, the first since diagnosed 3 weeks ago. He says I have both the 11q and 13 deletions. I know the 11q isnt very good so we were pretty disappointed. I am starting FCR treatment next week. Could someone let me know what to expect?
Hi everyone, I've just been to see my haematologist for my FISH results, the first since diagnosed 3 weeks ago. He says I have both the 11q and 13 deletions. I know the 11q isnt very good so we were pretty disappointed. I am starting FCR treatment next week. Could someone let me know what to expect?
fugazi
in
CLL Support
6 years ago
1
...
53
54
55
...
100
Next page
10
20
30
40
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
CLL Support
988 results
NRAS
553 results
Vasculitis UK
324 results
View top 10 communities
Sort by
Most Relevant
Newest