The doctor has recommended Rituximab (1x a week for 4 weeks) to decrease the inflamed tissue. While researching chemo drugs for CLL/SLL I see several notices "as the first line of treat meant (initial treatment). My blood work is not bad (19yrs since diagnosis) and would not be a candidate for treatment if not for the soft tissue growth over the past 2 years. It is not blocking most of my sinuses and will have an MRI to get a better view. Please let me know if anyone has used Rituximab for diffuse infiltration of B cells and your experience. Thank You,
Sally
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Sallybee44
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You've done well lasting 19 years without treatment! Rituximab monotherapy isn't standard treatment for CLL, but some members have had it and will hopefully respond.
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Hi Sallybee. I'm sorry but I don't understand about your blocked sinuses. My nose is blocked and I've been diagnosed as having sleep apnea and given a CPAP. I'm assured that I just have to wait for an ENT appointment but I suspect I've been discharged . Whether or not it is my sinuses that are blocked I just don't know because I have never been diagnosed. I assumed my blocked nose was what was left over from having a chest infection. I had no idea that it was anything to do with my CLL. Could anyone give me some information and advice. BTW, my last FCR was August 2015 and I need more treatment now. My huge neck glands are probably contributing to my sleep apnea. I've recently had a Tp53 bloodtest and I'm waiting for the results and the subsequent decision as to how I am treated. Thanx in anticipation. xx
The Cat scans of my sinus cavities over 16 months showed increased blockages. I had sinus surgery (turbinate reduction) in Nov 17 and the symptoms continued. Finally in July 18 a biopsy was done by the third ENT and a B cell infiltration (SLL) was diagnosed. Sinus infiltration is rare..the new oncologist said he has never seen this though has seen B cell infiltration in the intestines. I had a sleep apnea test in August 16 that was negative. Hope this helps with any confusion.
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