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rituximab infusion
Hi all please help me My kid is 7 years old she has given rituximab infusion 2 times but problem not solved her hemaglobin is some times 10.7 and some times less then 9 Recently she was given rituximab infusion in six months back at that time of rituximab infusion her got some rashes oh body Is that
Hi all please help me My kid is 7 years old she has given rituximab infusion 2 times but problem not solved her hemaglobin is some times 10.7 and some times less then 9 Recently she was given rituximab infusion in six months back at that time of rituximab infusion her got some rashes oh body Is that
Srinuwgl
in
NRAS
6 years ago
Am I having a lupus flare?
I haven’t posted in a while i last had rituximab in 2016 and haven’t needed to have another infusion. But for the last few weeks things are getting harder. I haven’t ever suffered a lupus flare it was just one big flare when I was diagnosed so am a bit lost. My joints are swollen I feel very dizzy and
I haven’t posted in a while i last had rituximab in 2016 and haven’t needed to have another infusion. But for the last few weeks things are getting harder. I haven’t ever suffered a lupus flare it was just one big flare when I was diagnosed so am a bit lost. My joints are swollen I feel very dizzy and
Sarahjj87
in
LUPUS UK
6 years ago
Cough post FCR
Hello everyone I completed FCR in January and now enjoying what I hope will be a long remission. Bone marrow test had no detectable CLL and my doctor has said this result is the best possible outcome of treatment. My health has been good since treatment but at the beginning of June I caught a nasty
Hello everyone I completed FCR in January and now enjoying what I hope will be a long remission. Bone marrow test had no detectable CLL and my doctor has said this result is the best possible outcome of treatment. My health has been good since treatment but at the beginning of June I caught a nasty
Eebie1234
in
CLL Support
6 years ago
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Front Line Treatment in Canada?
My father was just at his CLL appointment with a specialist here in Vancouver, BC and we were advised that targeted therapies like Ibrutnib are not approved in Canada unless you are 17p deleted. What are members in Canada using a front line treatment? Is it all just FCR even if you unmutated? Is Ibrutnib
My father was just at his CLL appointment with a specialist here in Vancouver, BC and we were advised that targeted therapies like Ibrutnib are not approved in Canada unless you are 17p deleted. What are members in Canada using a front line treatment? Is it all just FCR even if you unmutated? Is Ibrutnib
alpek
in
CLL Support
6 years ago
Confused about treatment option
Hi was diagnosed 10 years ago on watch and waiting... 2 months ago I had hemolytic anemia now ok after prednisone,but treatment on horizon.I am unmuteted no 17p only good one 13qI live I Ontario and this qualifies me for treatment with Imbruvica I am 67 years in good health otherwise.My onc feels that
Hi was diagnosed 10 years ago on watch and waiting... 2 months ago I had hemolytic anemia now ok after prednisone,but treatment on horizon.I am unmuteted no 17p only good one 13qI live I Ontario and this qualifies me for treatment with Imbruvica I am 67 years in good health otherwise.My onc feels that
Kotek
in
CLL Support
6 years ago
Diagnosed with Lupus
Recently diagnosed with Lupus in addition to RA that I have had for 5 years. Consultant wants me to go on Rituximab - has anyone tried this...good or bad experiences..
Recently diagnosed with Lupus in addition to RA that I have had for 5 years. Consultant wants me to go on Rituximab - has anyone tried this...good or bad experiences..
RobbieM
in
NRAS
6 years ago
R/A PMR to Vasculitis: Positive outcome to the worst 18 months !! Maybe some good sharing & one more request for support
Hi All, I have previously posted and discussed my farthers condition over the last 12-24 months. From my last update my farthers diagnosis changed from R/A PMR to Vasculitis responsible for Neuropathy secondary to R/A. The new treatment since then, Rituximab intrusion has seen a dramatic improvement
Hi All, I have previously posted and discussed my farthers condition over the last 12-24 months. From my last update my farthers diagnosis changed from R/A PMR to Vasculitis responsible for Neuropathy secondary to R/A. The new treatment since then, Rituximab intrusion has seen a dramatic improvement
Sonofjimmy
in
PMRGCAuk
6 years ago
U-MRD6 is the new MRD-
U-MRD6 = Undetectable-Minimal Residual Disease (U-MRD6) (10-6 sensitivity) Discussion The majority of pts with BM U-MRD4 after first-line FCR were MRD6+ and these patients had shorter PFS; MRD analysis with a more sensitive assay may therefore more accurately assign prognosis. Not accounting for
U-MRD6 = Undetectable-Minimal Residual Disease (U-MRD6) (10-6 sensitivity) Discussion The majority of pts with BM U-MRD4 after first-line FCR were MRD6+ and these patients had shorter PFS; MRD analysis with a more sensitive assay may therefore more accurately assign prognosis. Not accounting for
avzuclav
in
CLL Support
6 years ago
Fcr update
I thought I would let you all know how my fcr is going hopefully to give those that are soon to be starting treatment some encouragement . I am currently at my treatment centre just about to be plugged in to start my 3 rd course, I will be honest the first course wasn’t great but I think that was due
I thought I would let you all know how my fcr is going hopefully to give those that are soon to be starting treatment some encouragement . I am currently at my treatment centre just about to be plugged in to start my 3 rd course, I will be honest the first course wasn’t great but I think that was due
dandelup
in
CLL Support
6 years ago
BEAT-Lupus Clinical Trial - Now Recruiting
Hi everyone, Researchers from the National Institute for Health Research (NIHR) are asking for people with systemic lupus erythematosus to consider joining a clinical trial that is testing a combination of rituximab and belimumab as a treatment for the disease. Professor Mike Ehrenstein, University College
Hi everyone, Researchers from the National Institute for Health Research (NIHR) are asking for people with systemic lupus erythematosus to consider joining a clinical trial that is testing a combination of rituximab and belimumab as a treatment for the disease. Professor Mike Ehrenstein, University College
Paul_Howard
LUPUS UK
in
LUPUS UK
6 years ago
Rituximab and flu jab
Hi all. I had my infusion back in June. Is it ok to have a flu jab now? Seem to be so many conflicting comments on here. Plus they seem quite old comments so thought there maybe new advice .. My rheumatology nurse says to wait until 7 months after first infusion which brings me to January which is
Hi all. I had my infusion back in June. Is it ok to have a flu jab now? Seem to be so many conflicting comments on here. Plus they seem quite old comments so thought there maybe new advice .. My rheumatology nurse says to wait until 7 months after first infusion which brings me to January which is
Tessthomy
in
NRAS
6 years ago
Consultant and lung function yesterday
Hi. I had a very good appointment with both rheumatology and respiratory consultants yesterday straight after a lung function test. As I said once before I have had an infusion of rituximab in February and March this year. For the first 6 months I have been through hell, unable to breath or move had
Hi. I had a very good appointment with both rheumatology and respiratory consultants yesterday straight after a lung function test. As I said once before I have had an infusion of rituximab in February and March this year. For the first 6 months I have been through hell, unable to breath or move had
Hidden
in
Lung Conditions Community Forum
6 years ago
Rituximab
Hi all I’m due my first round of IV Rituximab. Has anyone got any tips to keep me occupied during the 6 hour treatment and how did you cope with it, any side affects or reactions Thanks T x
Hi all I’m due my first round of IV Rituximab. Has anyone got any tips to keep me occupied during the 6 hour treatment and how did you cope with it, any side affects or reactions Thanks T x
Teaspoon13
in
LUPUS UK
6 years ago
Life with ITP with no steroids
I was diagnosed with ITP in 2012 and never took steroids medication, ever. First of all as working physical therapist I can’t accept all the side effects. I am exposed to patients in hospitals and/or outpatient clinics and need my immune system to protect me some how. Have 8 rounds of Rituximab with
I was diagnosed with ITP in 2012 and never took steroids medication, ever. First of all as working physical therapist I can’t accept all the side effects. I am exposed to patients in hospitals and/or outpatient clinics and need my immune system to protect me some how. Have 8 rounds of Rituximab with
hannaITP
in
ITP Support Association
6 years ago
Neulasta side effects
I am going through FCR and I had a rough time after the 4th round. I am thinking that it was the Neulasta shot that did the most damage. Earlier in my treatment, my oncologist mentioned a possibility of reducing the dosage of pegfilgrastim. I was wondering if anybody else has had similar issues or
I am going through FCR and I had a rough time after the 4th round. I am thinking that it was the Neulasta shot that did the most damage. Earlier in my treatment, my oncologist mentioned a possibility of reducing the dosage of pegfilgrastim. I was wondering if anybody else has had similar issues or
gfreiman
in
CLL Support
6 years ago
Status update 17 months post-FCR
I've seen a few posts recently from folks starting or considering starting FCR. I wanted to give you some thoughts re: my experience in hopes they might help someone. Background: I am a 66yr old male, diagnosed at 59. Short story of FISH and other tests is that I have the "good" things and don't have
I've seen a few posts recently from folks starting or considering starting FCR. I wanted to give you some thoughts re: my experience in hopes they might help someone. Background: I am a 66yr old male, diagnosed at 59. Short story of FISH and other tests is that I have the "good" things and don't have
cwturley
in
CLL Support
6 years ago
Rituximab
I have been selected to go on this drug Rituximab as an in fusion so that i can get of off steroids I take 50mg per day. This was given to me because of eye trouble. Has any of our R/A friends had any dealings with it. I understand there are a lot of side effects. But i also have a lot of side effects
I have been selected to go on this drug Rituximab as an in fusion so that i can get of off steroids I take 50mg per day. This was given to me because of eye trouble. Has any of our R/A friends had any dealings with it. I understand there are a lot of side effects. But i also have a lot of side effects
Sophie17
in
NRAS
6 years ago
Rituximab for PMR/GCA? And more effective for Vasculitis.
Food for thought. https://www.nyp.org/amazingadvances/clinical-innovations/rethinking-therapeutic-and-diagnostic-approaches-for-vasculitis My doctor, Robert Spiera 👍
Food for thought. https://www.nyp.org/amazingadvances/clinical-innovations/rethinking-therapeutic-and-diagnostic-approaches-for-vasculitis My doctor, Robert Spiera 👍
Canygirl61
in
PMRGCAuk
6 years ago
Platelets & me
Hi guys, I am somewhat new here and wanted to introduce myself. My name's Luke and ITP is a fairly new thing for me. I might have suffered from mild ITP early on in my life but it only started to be problematic after I've undergone treatment in 2013 (4 years of remission so far, so I am definitely hopeful
Hi guys, I am somewhat new here and wanted to introduce myself. My name's Luke and ITP is a fairly new thing for me. I might have suffered from mild ITP early on in my life but it only started to be problematic after I've undergone treatment in 2013 (4 years of remission so far, so I am definitely hopeful
conquerator2
in
ITP Support Association
6 years ago
Update: No FCR, we will start Ibrutinib
Just got back from the CLL specialist to who we went for the second opinion. Background: 146k WBC, bone marrow showed 14p only, swollen lymph nodes and enlarged spleen, 68 years old. The doctor suggested FCR will be most efficient but due to the age we will try Ibrutinib (which is a relief since I
Just got back from the CLL specialist to who we went for the second opinion. Background: 146k WBC, bone marrow showed 14p only, swollen lymph nodes and enlarged spleen, 68 years old. The doctor suggested FCR will be most efficient but due to the age we will try Ibrutinib (which is a relief since I
paula_dae
in
CLL Support
6 years ago
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