Search
Search
About
Log in
Join
Experiences with
Cetuximab
Posts
Communities
2,434 public posts
Filter results
When do you get answers...
So I was diagnosed with SLE & Lupus Nephritis in Feb, since then been on the wonderful treatment rollercoaster. As I am over 40 and was receiving fertility treatment when I was diagnosed, which I believe sped up the Nephritis, and now potentially premenopausal I 1st went on a course of strong steroids
So I was diagnosed with SLE & Lupus Nephritis in Feb, since then been on the wonderful treatment rollercoaster. As I am over 40 and was receiving fertility treatment when I was diagnosed, which I believe sped up the Nephritis, and now potentially premenopausal I 1st went on a course of strong steroids
MOOG144
in
LUPUS UK
6 years ago
Pneumonia injection
I need advice please on having the pneumonia injection 3 month after Rituximab I was diagnosed with GPA 5 years ago I had the pneumonia jab then so am due for another one After 5 years of not feeling well I am now starting to feel normal so don’t want to rock the boat I had forgotten how feeling
I need advice please on having the pneumonia injection 3 month after Rituximab I was diagnosed with GPA 5 years ago I had the pneumonia jab then so am due for another one After 5 years of not feeling well I am now starting to feel normal so don’t want to rock the boat I had forgotten how feeling
102637
in
Vasculitis UK
6 years ago
Please ask your friends and famly to give blood this holiday season
RED CROSS https://www.redcrossblood.org/local-homepage/news/article/red-cross-urges-blood-donation-as-one-last-gift-to-give-this-holiday-season.html 💉 NHS https://www.blood.co.uk 💉 Canada Blood Services https://blood.ca/en 💉 Australian Blood Services https://www.donateblood.com.au
PLEASE REMEMBER
RED CROSS https://www.redcrossblood.org/local-homepage/news/article/red-cross-urges-blood-donation-as-one-last-gift-to-give-this-holiday-season.html 💉 NHS https://www.blood.co.uk 💉 Canada Blood Services https://blood.ca/en 💉 Australian Blood Services https://www.donateblood.com.au
PLEASE REMEMBER
Cllcanada
Top Poster CURE Hero
in
CLL Support
6 years ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
90 days on Ibrutinib
Today marks the 90th day I have been on Ibrutinib. I feel blessed that I've only had a mild reaction and then only in the first month. I still suffer from Infections because of low immunity. This has been demonstrated in the last week with a sickness and diahorrea bug which lasted a week for me but 24
Today marks the 90th day I have been on Ibrutinib. I feel blessed that I've only had a mild reaction and then only in the first month. I still suffer from Infections because of low immunity. This has been demonstrated in the last week with a sickness and diahorrea bug which lasted a week for me but 24
Mick491
in
CLL Support
6 years ago
IR vs FCR - PFS Sub-Group Analysis
Thanks to twitter users posting slides from the late-breaking ASH 2018 presentation! In all sub-groups IR was better. I presume the dotted vertical line is the indicator of statistical significance. https://twitter.com/TeamHaem/status/1069990083946733568
Thanks to twitter users posting slides from the late-breaking ASH 2018 presentation! In all sub-groups IR was better. I presume the dotted vertical line is the indicator of statistical significance. https://twitter.com/TeamHaem/status/1069990083946733568
avzuclav
in
CLL Support
6 years ago
Chemo cycles
I would just like to let everyone know my experience regarding completion of chemo cycles. I am on the Flair trial having FCR and have now had three cycles fourth one today and my bloods are back to normal white cell count and platelets are a perfect score , so I asked the question why then do I need
I would just like to let everyone know my experience regarding completion of chemo cycles. I am on the Flair trial having FCR and have now had three cycles fourth one today and my bloods are back to normal white cell count and platelets are a perfect score , so I asked the question why then do I need
dandelup
in
CLL Support
6 years ago
Rituximab/Rituxan Side Effects
A month and a half to 2 months after I finished my last infusion I started having side effects. I went on-line because I wasn't getting answers from my docs. I thought there just couldn't be any other explanation for what was happening. As best as I can understand once the body is ready for the anti-bodies
A month and a half to 2 months after I finished my last infusion I started having side effects. I went on-line because I wasn't getting answers from my docs. I thought there just couldn't be any other explanation for what was happening. As best as I can understand once the body is ready for the anti-bodies
TigerM
in
Non Hodgkin's Lymphoma Friends
6 years ago
Live vaccines
Hi all. I’m Considering a holiday tour for hubbys special birthday but destinations likely require live vaccinations eg yellow fever, typhoid etc. I have lupus and APS with medication including methotrexate and rituximab. I’m waiting to hear back about this from rheumatologist but wondered if others
Hi all. I’m Considering a holiday tour for hubbys special birthday but destinations likely require live vaccinations eg yellow fever, typhoid etc. I have lupus and APS with medication including methotrexate and rituximab. I’m waiting to hear back about this from rheumatologist but wondered if others
Pickzie
in
LUPUS UK
6 years ago
Grump Old Man
I’ve had severe RA since 1996. I struggled on working until the end of 2004 when I had to take early retirement from a high stress and well paid job, aged 55. Am I alone in being fairly “Grump” when I read posts like “now I’m on Whatevermab I’m doing a Charity climb of Mount Everest, a Triathlon and
I’ve had severe RA since 1996. I struggled on working until the end of 2004 when I had to take early retirement from a high stress and well paid job, aged 55. Am I alone in being fairly “Grump” when I read posts like “now I’m on Whatevermab I’m doing a Charity climb of Mount Everest, a Triathlon and
Leviset
in
NRAS
6 years ago
Flu jab
Can I have the flu jab whilst having rituximab infusions?
Can I have the flu jab whilst having rituximab infusions?
Peterborough67
in
NRAS
6 years ago
stopping humira after cancer
Hi all. I stopped humira while I had a breast cancer op (lumpectomy) and 3 weeks of radiotherapy treatment this August/September. My rheumatologist now says it is contraindicated to go back on humira, especially as I also had endometrial cancer in 2014. The cancers were unrelated and fortunately dealt
Hi all. I stopped humira while I had a breast cancer op (lumpectomy) and 3 weeks of radiotherapy treatment this August/September. My rheumatologist now says it is contraindicated to go back on humira, especially as I also had endometrial cancer in 2014. The cancers were unrelated and fortunately dealt
Girtonian
in
NRAS
6 years ago
First Cycle of FCR (IV)
I am writing this to document what I am going through and maybe compare with others experiences with FCR treatment for CLL. Intro: USA Male Diagnosed 2 years ago (age 50) with routine CBC labs and small swollen lymph nodes. CLL recently went from slow to rapid growth (Last 6 months). Hemo Dr. decided
I am writing this to document what I am going through and maybe compare with others experiences with FCR treatment for CLL. Intro: USA Male Diagnosed 2 years ago (age 50) with routine CBC labs and small swollen lymph nodes. CLL recently went from slow to rapid growth (Last 6 months). Hemo Dr. decided
Hidden
in
CLL Support
6 years ago
Google How does FLUAD work
If you scroll down to who should not take this it says if you are on Rituximab & a whole other lot of Biologics " you should speak to your doctor
who may suggest you stop taking it"
But maybe the under 65 vaccine says that too? Does anyone know how to " stop taking a drug infused 4 months ago"
If you scroll down to who should not take this it says if you are on Rituximab & a whole other lot of Biologics " you should speak to your doctor
who may suggest you stop taking it"
But maybe the under 65 vaccine says that too? Does anyone know how to " stop taking a drug infused 4 months ago"
AgedCrone
in
NRAS
6 years ago
Negative nancy
Hi I hate been negative Nancy but since I started rituximab I’ve had stomachs pain right in the upper middle is it a side effect of the drug ? Just a dull ache 😖
Hi I hate been negative Nancy but since I started rituximab I’ve had stomachs pain right in the upper middle is it a side effect of the drug ? Just a dull ache 😖
Vonnie10
in
NRAS
6 years ago
over 65 flu jab - bad reaction
Hello everyone - just a quick post to ask if anyone has had an adverse reaction to the flu jab given to over 65s this year? I have just had a very unpleasant and painful reaction to the flu jab with pain but more than anything extreme heat in my shoulders, elbows, wrists and finger joints. Have discussed
Hello everyone - just a quick post to ask if anyone has had an adverse reaction to the flu jab given to over 65s this year? I have just had a very unpleasant and painful reaction to the flu jab with pain but more than anything extreme heat in my shoulders, elbows, wrists and finger joints. Have discussed
rheumatoidsewer
in
NRAS
6 years ago
Update on rash 😬
Finally had gp appointment today . I had 3 issues to discuss , the rash , pain and swelling in joints , occipital pain and headaches. The rash had actually died down a bit over week though still itchy , he thinks it is due to photosensitivity as rash is on arms and stops at tee shirt line , a new problem
Finally had gp appointment today . I had 3 issues to discuss , the rash , pain and swelling in joints , occipital pain and headaches. The rash had actually died down a bit over week though still itchy , he thinks it is due to photosensitivity as rash is on arms and stops at tee shirt line , a new problem
weathervane
in
LUPUS UK
6 years ago
Inbrutnib side effects
Hello all, I'm Bill from Canada and I just wanted to vent and to ask what everyone thought about what's going on with my cll. To share a bit of history about my condition, I had FCR 5 years ago and after the 3 treatment I got very sick and this lead me to throwing out my back. To this today, I had fractures
Hello all, I'm Bill from Canada and I just wanted to vent and to ask what everyone thought about what's going on with my cll. To share a bit of history about my condition, I had FCR 5 years ago and after the 3 treatment I got very sick and this lead me to throwing out my back. To this today, I had fractures
Turntwo
in
CLL Support
6 years ago
Good News
Had a good report from the neurologist. He said it was the best he had seen my fingers and thinks the Rituximab is working (slowly). I’m to see him in a month’s time - perhaps for a top up. Thanks for all your nice replies to my post with the Harbour Bridge. This is the view from the next level (
Had a good report from the neurologist. He said it was the best he had seen my fingers and thinks the Rituximab is working (slowly). I’m to see him in a month’s time - perhaps for a top up. Thanks for all your nice replies to my post with the Harbour Bridge. This is the view from the next level (
lesleyg
in
Behçet's UK
6 years ago
Rituximab
Hi I had my first infusion today I’ve got a head ache and pain in my stomachedoes this pass , I was good having the infusion part from a little light headed I think that was the piriton infusion, just these pains and headache, hope it passes.
Hi I had my first infusion today I’ve got a head ache and pain in my stomachedoes this pass , I was good having the infusion part from a little light headed I think that was the piriton infusion, just these pains and headache, hope it passes.
Vonnie10
in
NRAS
6 years ago
Recommendation required for Rheamatology consultant Gloucestershire or Bristol area. GPA knowledge essential.
Hi can anybody recommend a good Rheamatology consultant in either the Bristol or Gloucestershire area. I have GPA which has been controlled with regular infusions of rituximab. My previous consultant left in August, recruitment has only recently started and the post is not guaranteed to be filled for
Hi can anybody recommend a good Rheamatology consultant in either the Bristol or Gloucestershire area. I have GPA which has been controlled with regular infusions of rituximab. My previous consultant left in August, recruitment has only recently started and the post is not guaranteed to be filled for
amandaje
in
Vasculitis UK
6 years ago
1
...
50
51
52
...
100
Next page
10
20
30
40
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
CLL Support
988 results
NRAS
553 results
Vasculitis UK
324 results
View top 10 communities
Sort by
Most Relevant
Newest