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Infection proneness after Imbruvica for CLL?
My chronic lymphocytic leukemia (CLL) has been treated with Rituximab and Imbruvica/ ibrutinib. My B-cells are gone, the bad, cancerous, but also the good ones. My Hb is 90, thrombocytes 62 and leukocytes 9.4. Those of you who have been in the same situation, have you suffered from many infections
My chronic lymphocytic leukemia (CLL) has been treated with Rituximab and Imbruvica/ ibrutinib. My B-cells are gone, the bad, cancerous, but also the good ones. My Hb is 90, thrombocytes 62 and leukocytes 9.4. Those of you who have been in the same situation, have you suffered from many infections
Veuveclique
in
CLL Support
5 years ago
Rituximab - worse before getting better?
Hi, anyone on Rituximab found that they had a flare after the first infusion? I'm having my worst flare in 15 years (I'd forgotten I could be such a wimp!). I'm due my second infusion tomorrow and am hoping that it will settle down. Anyone else had experience of getting worse before settling down to
Hi, anyone on Rituximab found that they had a flare after the first infusion? I'm having my worst flare in 15 years (I'd forgotten I could be such a wimp!). I'm due my second infusion tomorrow and am hoping that it will settle down. Anyone else had experience of getting worse before settling down to
Maggsie
in
NRAS
5 years ago
Mode of Progression After Frontline Treatment Predicts Clinical Outcomes in Patients With CLL
Not only is CLL heterogeneous in watch and wait, that's also the case after treatment. An analysis of over 2,000 patients from three German CLL Study Group clinical trials has identified that unfit patients developing lymphadenopathy (swelling nodes) have a significantly lower median overall survival
Not only is CLL heterogeneous in watch and wait, that's also the case after treatment. An analysis of over 2,000 patients from three German CLL Study Group clinical trials has identified that unfit patients developing lymphadenopathy (swelling nodes) have a significantly lower median overall survival
AussieNeil
Partner
in
CLL Support
5 years ago
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MRD
When I finished FCR in 4/2014 my blood showed MRD negative. Since than it showed starting 2/2015 CLL of 0,1 - 0,5% in 10/2017. next in 2018 UMRD as they told me, it was undetectable. In 10/2018 it was 0,01 % and in 5/2019 0,02%! Looks like 16 out of 10.000 lymphocytes. That means, it will increase by
When I finished FCR in 4/2014 my blood showed MRD negative. Since than it showed starting 2/2015 CLL of 0,1 - 0,5% in 10/2017. next in 2018 UMRD as they told me, it was undetectable. In 10/2018 it was 0,01 % and in 5/2019 0,02%! Looks like 16 out of 10.000 lymphocytes. That means, it will increase by
seoul
in
CLL Support
5 years ago
Rituximab reaction
Hello lovely people I have been having rituximab infusions for the past 2 years . It’s been my miracle drug , back to work 90% back to me .The problem is when they try to speed up the dose my blood pressure drops and my throat starts to itch . Last time they wanted to stop it .I literally begged them
Hello lovely people I have been having rituximab infusions for the past 2 years . It’s been my miracle drug , back to work 90% back to me .The problem is when they try to speed up the dose my blood pressure drops and my throat starts to itch . Last time they wanted to stop it .I literally begged them
Fifi2
in
NRAS
5 years ago
Thank you all!!!
Hello, a short summary.. After FCR in 2015 and BR in 2017, our doctor suggested my husband to start Ibrutinib since his lymph nodes in abdomen are almost 7-8cm, wbc above 25, platelets under 100 and he has lost 5-6kg in the last month. I want to thank you all because I've read so many posts about Ibrutinib
Hello, a short summary.. After FCR in 2015 and BR in 2017, our doctor suggested my husband to start Ibrutinib since his lymph nodes in abdomen are almost 7-8cm, wbc above 25, platelets under 100 and he has lost 5-6kg in the last month. I want to thank you all because I've read so many posts about Ibrutinib
aylinozel
in
CLL Support
5 years ago
Nearing stage 4
Hello, Saw the neph yesterday &my egfr has dropped down from 37 to 33 in 3 months. My consultant didn't seem too worried, but it's feeling a bit strange being so much closer to stage 4. I know the numbers vary but I'm only 40&know at some point I'll need a transplant or dialysis. I'm waiting for a
Hello, Saw the neph yesterday &my egfr has dropped down from 37 to 33 in 3 months. My consultant didn't seem too worried, but it's feeling a bit strange being so much closer to stage 4. I know the numbers vary but I'm only 40&know at some point I'll need a transplant or dialysis. I'm waiting for a
madonbrew
in
Early CKD Support
5 years ago
Rituximab recovery
Hi everyone, I have just done my third infusion of Rituximab and was wondering if anyone else could share their experiences in terms of recovering after the infusion and if you have noticed it making any differences to you? I am lucky enough to have had a week off from work recovering and must say
Hi everyone, I have just done my third infusion of Rituximab and was wondering if anyone else could share their experiences in terms of recovering after the infusion and if you have noticed it making any differences to you? I am lucky enough to have had a week off from work recovering and must say
JulezH
in
NRAS
5 years ago
Remission over .... venetoclax (&R) here we come
After 4 years of remission following FCR we heard yesterday that my husband’s remission is over. We had been suspecting this for about 6 months - the blood counts were going in the wrong direction, a chest infection and a nasty bout of pneumonia being the clues. His consultant has recommended venetoclax
After 4 years of remission following FCR we heard yesterday that my husband’s remission is over. We had been suspecting this for about 6 months - the blood counts were going in the wrong direction, a chest infection and a nasty bout of pneumonia being the clues. His consultant has recommended venetoclax
Fowey2009
in
CLL Support
5 years ago
New therapies for systemic lupus erythematosus - past imperfect, future tense
Source:
Nat Rev Rheumatol
New therapies for systemic lupus erythematosus - past imperfect, future tense; Murphy G, Isenberg D; Nature Reviews Rheumatology (Jun 2019) Tags: belimumab Lupus rituximab The failure of many new, mostly biologic, drugs to meet their primary end points in double-blind
Source:
Nat Rev Rheumatol
New therapies for systemic lupus erythematosus - past imperfect, future tense; Murphy G, Isenberg D; Nature Reviews Rheumatology (Jun 2019) Tags: belimumab Lupus rituximab The failure of many new, mostly biologic, drugs to meet their primary end points in double-blind
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
5 years ago
Work and RA
Work and RA I’m 36 and was diagnosed with seropositive RA nearly 18 years ago. The last 6 or so years I have really started to struggle with work. I have tried lots of different treatment options, the latest being Benepali injections and then Rituximab infusions, both of which haven’t worked for me.
Work and RA I’m 36 and was diagnosed with seropositive RA nearly 18 years ago. The last 6 or so years I have really started to struggle with work. I have tried lots of different treatment options, the latest being Benepali injections and then Rituximab infusions, both of which haven’t worked for me.
Billy2019
in
NRAS
5 years ago
Acerta trial
I’m being assessed for this trial but if I get put on 3rd arm fcr can I decline and go on flair trial I don’t want chemo
I’m being assessed for this trial but if I get put on 3rd arm fcr can I decline and go on flair trial I don’t want chemo
Yidarmy69
in
CLL Support
5 years ago
fish testing or lack of
Hi, I'm new to this group. Was diagnosed in 2011 and had first treatment of six rounds of FCR in 2013. Remission was about two and a half years. Have been on Ibrutinib for about 16 months now with 2 dose reductions along the way. My concern is I was never tested for mutations or deletions and when I
Hi, I'm new to this group. Was diagnosed in 2011 and had first treatment of six rounds of FCR in 2013. Remission was about two and a half years. Have been on Ibrutinib for about 16 months now with 2 dose reductions along the way. My concern is I was never tested for mutations or deletions and when I
rubberlegs68
in
CLL Support
5 years ago
Jak - kinase inhibitor
Hi all - guilty of being quiet for a few months, I've got a few questions though. It seems that my Rituximab infusion did not work for me... My doctor is keen to not waste more time trying it again, when we could start me on something more effective. I've been given two options to think about - Tocilizumab
Hi all - guilty of being quiet for a few months, I've got a few questions though. It seems that my Rituximab infusion did not work for me... My doctor is keen to not waste more time trying it again, when we could start me on something more effective. I've been given two options to think about - Tocilizumab
Savannahseger
in
NRAS
5 years ago
Bendamustine and Rituximab and liver toxicity
My first round of BR went fine with no change in liver numbers. My ALT and AST are usually under 20. Three days after my second round they were slightly over 20, 5 days after the second round they were close to 40, and 10 days after the second round (today) they are over 100, which concerns me. Has anyone
My first round of BR went fine with no change in liver numbers. My ALT and AST are usually under 20. Three days after my second round they were slightly over 20, 5 days after the second round they were close to 40, and 10 days after the second round (today) they are over 100, which concerns me. Has anyone
profrich
in
CLL Support
5 years ago
Bendamustine and Rituximab and Low Lymphocyte Count
After two sessions of B and R my ALC is 0.23. It went as low as 0.03 soon after the first session. I don't know whether such low numbers are good or bad. Does anyone else on B and R have anything to say about this? What number do we want?
After two sessions of B and R my ALC is 0.23. It went as low as 0.03 soon after the first session. I don't know whether such low numbers are good or bad. Does anyone else on B and R have anything to say about this? What number do we want?
profrich
in
CLL Support
5 years ago
Newly diagnosed with Chronic Lymphocytic Leukemia or Small Lymphocytic Lymphoma - CLL/SLL or just found us? This post is for you!
Welcome to the CLL Support community on HealthUnlocked, a very active community with over 22,000 members. This pinned post is specifically for new members, in particular those that have been recently diagnosed with Chronic Lymphocytic Leukaemia/Small Lymphocytic Lymphoma CLL/SLL. (CLL and SLL are the
Welcome to the CLL Support community on HealthUnlocked, a very active community with over 22,000 members. This pinned post is specifically for new members, in particular those that have been recently diagnosed with Chronic Lymphocytic Leukaemia/Small Lymphocytic Lymphoma CLL/SLL. (CLL and SLL are the
AussieNeil
Partner
in
CLL Support
5 years ago
Creatinine goes up after bendamustine and rituximab infusion
I had B and R Thursday. Beforehand I had a cocktail of drugs including tylenol. prednisone, and benadryl. My creatinine went from 0.96 on Thursday to 1.11 before drug infusion on Friday. I wonder if the drugs raised my levels. Has anyone else experienced something like this?
I had B and R Thursday. Beforehand I had a cocktail of drugs including tylenol. prednisone, and benadryl. My creatinine went from 0.96 on Thursday to 1.11 before drug infusion on Friday. I wonder if the drugs raised my levels. Has anyone else experienced something like this?
profrich
in
CLL Support
5 years ago
Please help me....
Hello all, I am writing this from India. I m now 40 years male. I am In problem from 2016 and had been diagnosed as primary cns vasculitis in 2017. It took longer to diagnose and with biopsy they confirmed it's primary CNS angitis I am under treatment from AIIMS delhi . I have been on cyclophosamide
Hello all, I am writing this from India. I m now 40 years male. I am In problem from 2016 and had been diagnosed as primary cns vasculitis in 2017. It took longer to diagnose and with biopsy they confirmed it's primary CNS angitis I am under treatment from AIIMS delhi . I have been on cyclophosamide
Mustang3336
in
Vasculitis UK
5 years ago
WTF ER Visit - Nurse LAUGHS at me at a TOP hospital in Maywood Illinois, Loyola University Hospital
So I average 42-45,000 thanks to Rituximab for the last couple years. Not great but better than 9-15,000, my average before treatment. I injured my ankle real bad. It was swollen like a tennis ball. Hurt real bad and people could hear my F-bombs for miles away. I went to the ER to check to make sure
So I average 42-45,000 thanks to Rituximab for the last couple years. Not great but better than 9-15,000, my average before treatment. I injured my ankle real bad. It was swollen like a tennis ball. Hurt real bad and people could hear my F-bombs for miles away. I went to the ER to check to make sure
Justicekelly
in
ITP Support Association
5 years ago
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