So I average 42-45,000 thanks to Rituximab for the last couple years. Not great but better than 9-15,000, my average before treatment.
I injured my ankle real bad. It was swollen like a tennis ball. Hurt real bad and people could hear my F-bombs for miles away. I went to the ER to check to make sure it was not fractured and most importantly check my bleeding.
I made sure I went to the ER at the hospital where I have been receiving treatments for my ITP since 2014, so they could have all the info. I made sure I told everyone at the ER who would and wouldn't listen that I have chronic ITP and that they need to check my platelet count.
They refused to listen and most of the staff did not know WTF I was saying. Most responded by saying ok but one nurse actually said "What's ITP?" This made me so frustrated and terrified.
They refused to give me a cat scan of my leg and only gave me regular x-rays. They refused to take my blood and check for my platelets.
After 4.5 hours in the waiting room, I insisted to talk to someone about my treatment. That maybe they are just not hearing me right. The nurse comes out and I explain ITP, how serious my injury is and that I could be bleeding to death out here. She began to laugh at me. I mean LAUGH at me. I said don't laugh at my illness or needs. ITP is a serious illness, not something to laugh at. I told her she should not be a nurse cause she lacks compassion. I also continued to explain that they are failing to treat me properly and I am in serious risk for internal bleeding. She just laughed again. I told her off and walked out. I did write emails to my Hematologist, keeping her up to date about what was going on. But it was 12 AM - 430 AM a time I am sure she is fast asleep.
And it does not stop here. I tried to call patient relations to report her and the situation and she kept answering my call and told me "I don't know what you want but you need to just go away" and hanging up on me. When I finally was patched directly to the head nurse, thanks to the compassionate switchboard operator at the hospital, She apologized but had no answers to why they failed to treat me correctly.
Everyone in the ER from the woman in check-in, intake nurse, laughing nurse and shockingly the doctor even did not know what ITP was or the proper procedures in an emergency. They did not know that I needed a CBC. They did not know I needed a cat scan to check for internal bleeding. They had no f'n clue. This was shocking, frustrating and scary as hell for me.