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New research study reported in NEJM: Ibrutinib–Rituximab or Chemoimmunotherapy for Chronic Lymphocytic Leukemia
Found this to be a good news article. I know some will say study was funded heavily by drug companies, but so what....I base my opinion on the integrity of the researchers. https://www.nejm.org/doi/full/10.1056/NEJMoa1817073?query=oncology-hematology [i]This post by Dr Koffman provides very valuable
Found this to be a good news article. I know some will say study was funded heavily by drug companies, but so what....I base my opinion on the integrity of the researchers. https://www.nejm.org/doi/full/10.1056/NEJMoa1817073?query=oncology-hematology [i]This post by Dr Koffman provides very valuable
jdolinger
in
CLL Support
5 years ago
Tocilizumab infusions
Hi all, I was wondering how people feel after a Tocilizumab infusion and how long they take? I'm due for my first one tomorrow and would like to go back to work afterwards. I know after my Rituximab infusion (which was 5.5 hours) I was wiped out with a headache for a few days. But i'm not sure if Tocilizumab
Hi all, I was wondering how people feel after a Tocilizumab infusion and how long they take? I'm due for my first one tomorrow and would like to go back to work afterwards. I know after my Rituximab infusion (which was 5.5 hours) I was wiped out with a headache for a few days. But i'm not sure if Tocilizumab
Savannahseger
in
NRAS
5 years ago
Venetoclax day 1 (UK)
My husband was due to start venetoclax last week but it was postponed due to a lack of beds in the haematology ward. He started this morning. Started with a blood test. When the results from that were received they gave him 20mg of venetoclax along with anti-virals, antibiotics, anti gout and anti
My husband was due to start venetoclax last week but it was postponed due to a lack of beds in the haematology ward. He started this morning. Started with a blood test. When the results from that were received they gave him 20mg of venetoclax along with anti-virals, antibiotics, anti gout and anti
Fowey2009
in
CLL Support
5 years ago
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Rituximab maintenance treatment
Hi I'm on rituximab maintenance treatment following chemo for follicular non Hodgkin's lymphoma. the last few days I'm getting very breathless, gets worse on an evening, feels like I'm not getting enough oxygen , chest tight and palpitations, shakes and feel really lightheaded, I can cope during the
Hi I'm on rituximab maintenance treatment following chemo for follicular non Hodgkin's lymphoma. the last few days I'm getting very breathless, gets worse on an evening, feels like I'm not getting enough oxygen , chest tight and palpitations, shakes and feel really lightheaded, I can cope during the
Ozzadiah
in
Non Hodgkin's Lymphoma Friends
5 years ago
Don't give up just enjoy each day!
The_Eagle If you have CLL you need a CLL specialist. I have two and this month I am starting on Gayza only because I did FCR in 2009 and chemo pill in 2017 but could not tolerate it. My doctors told me to do the Gayza for 4- 6 months and hopefully my blood will be better but to continue living I will
The_Eagle If you have CLL you need a CLL specialist. I have two and this month I am starting on Gayza only because I did FCR in 2009 and chemo pill in 2017 but could not tolerate it. My doctors told me to do the Gayza for 4- 6 months and hopefully my blood will be better but to continue living I will
The_Eagle
in
CLL Support
5 years ago
Experience with Fludarabine & Rituximab?
Hi, My mom (now 62 yrs old) was diagnosed with CLL about 5+ yrs ago, and her doctor recently told her that she needs to begin treatment. He recommended her to begin with combination of Rituximab + Fludarabine (in-patient treatment, via injections). I just wanted to know if anyone else has received this
Hi, My mom (now 62 yrs old) was diagnosed with CLL about 5+ yrs ago, and her doctor recently told her that she needs to begin treatment. He recommended her to begin with combination of Rituximab + Fludarabine (in-patient treatment, via injections). I just wanted to know if anyone else has received this
Dolce1
in
CLL Support
5 years ago
Severe reaction to FCR
I posted a while ago regarding treatment options. In the end I chose FCR rather than entering the Flair trial as my markers met with a good outcome from FCR. Well, after one round it has been stopped as I had such a severe reaction to the treatment. 3 hospital stays for neutropenia and 1 hospital stay
I posted a while ago regarding treatment options. In the end I chose FCR rather than entering the Flair trial as my markers met with a good outcome from FCR. Well, after one round it has been stopped as I had such a severe reaction to the treatment. 3 hospital stays for neutropenia and 1 hospital stay
Racing1961
in
CLL Support
5 years ago
Rituximab causing itchy skin??
Hi guys, I'm new to this community, been a member of NRAS for years; I've been on Rituximab and now the bio-similar 'Truxima' for about 5 years total. Very lucky, doing brilliantly on it but I think it is causing itchy skin that develops into small spots - but only on my arms, legs and tummy - weird
Hi guys, I'm new to this community, been a member of NRAS for years; I've been on Rituximab and now the bio-similar 'Truxima' for about 5 years total. Very lucky, doing brilliantly on it but I think it is causing itchy skin that develops into small spots - but only on my arms, legs and tummy - weird
Elpenor57
in
NRAS
5 years ago
Thyroid eye disease (TED) symptoms, diagnosis and treatment options.
Graves’ Disease: Complications https://www.ncbi.nlm.nih.gov/books/NBK285551/?report=reader The closest thing to seeing an ophthalmologist. A comprehensive detailed piece about thyroid eye disease (TED) symptoms, diagnosis and treatment options. For those interested in finding out what their TED symptoms
Graves’ Disease: Complications https://www.ncbi.nlm.nih.gov/books/NBK285551/?report=reader The closest thing to seeing an ophthalmologist. A comprehensive detailed piece about thyroid eye disease (TED) symptoms, diagnosis and treatment options. For those interested in finding out what their TED symptoms
ling
in
Thyroid UK
5 years ago
Rituximab causing wheezing catahhr and wet cough?
Rituximb causing wheezing catahhr and wet cough? Feeling very low after another build up of these symptoms which have now got bad enough for me to go to the doc today for Doxycycline abx. These calm down and get rid of the symptoms for a couple of months then they are back. Hard to know if I am getting
Rituximb causing wheezing catahhr and wet cough? Feeling very low after another build up of these symptoms which have now got bad enough for me to go to the doc today for Doxycycline abx. These calm down and get rid of the symptoms for a couple of months then they are back. Hard to know if I am getting
NeonkittyUK
in
NRAS
5 years ago
Gritty eyes
Hi all, have posted a few times on gritty eyes. Have had punctal plugs put in, and although they helped at first I noticed that after a few weeks my eyes became very gritty again, particularly my right eye. Finally getting an appointment at the eye clinic, my fears were realised, and one of the plugs
Hi all, have posted a few times on gritty eyes. Have had punctal plugs put in, and although they helped at first I noticed that after a few weeks my eyes became very gritty again, particularly my right eye. Finally getting an appointment at the eye clinic, my fears were realised, and one of the plugs
Callabag64
in
NRAS
5 years ago
Factors Identified for Risk of Second Cancer in CLL Following BTK Inhibition
There was hope that non-chemo CLL treatments would avoid the increased risk of subsequent secondary cancers, with concern about Myelodysplasia Syndromes and Acute Lymphocytic Leukaemia (MDS and ALL) of particular concern with FCR, due to possible DNA damage to bone marrow stem cells. It was thought
There was hope that non-chemo CLL treatments would avoid the increased risk of subsequent secondary cancers, with concern about Myelodysplasia Syndromes and Acute Lymphocytic Leukaemia (MDS and ALL) of particular concern with FCR, due to possible DNA damage to bone marrow stem cells. It was thought
AussieNeil
Partner
in
CLL Support
5 years ago
FCR and immunosuppression
For those of us who have had FCR chemotherapy would we expect to be immunocompromised in the long-term? I think here lymphocyte and neutrophil levels are relevant.
For those of us who have had FCR chemotherapy would we expect to be immunocompromised in the long-term? I think here lymphocyte and neutrophil levels are relevant.
Jotame
in
CLL Support
5 years ago
With a CLL diagnosis, knowing more about your immune system could save your life!
When we are diagnosed with CLL/SLL or the precursor MBL, we need to appreciate that we are immune compromised to some degree. Our immunity also worsens the longer we live with our diagnosis and also with CLL treatment, so infections can significant impact our life expectancy. (Growing older doesn't
When we are diagnosed with CLL/SLL or the precursor MBL, we need to appreciate that we are immune compromised to some degree. Our immunity also worsens the longer we live with our diagnosis and also with CLL treatment, so infections can significant impact our life expectancy. (Growing older doesn't
AussieNeil
Partner
in
CLL Support
5 years ago
Cannot control weight
Hi I have Hashimoto’s, Sjogren’s Syndrome, am border line Lupus, with heart and neuropathic problema also. Yay, go me ! I cannot lose weight. I suffer from fluid retention (about 30 years) which is sometimes under control but not often. I eat, according to my husband, like a bird. I’m allergic to gluten
Hi I have Hashimoto’s, Sjogren’s Syndrome, am border line Lupus, with heart and neuropathic problema also. Yay, go me ! I cannot lose weight. I suffer from fluid retention (about 30 years) which is sometimes under control but not often. I eat, according to my husband, like a bird. I’m allergic to gluten
sjogrens101
in
Thyroid UK
5 years ago
Treatment FCR with unmutated IGVH—clarify pls!
My husband is 13q del and unmutated IGVH. In Switzerland they propose FCR treatment and have said outcomes are generally the same. I have read differently. Any insights? Can you direct me to articles? Thank you, his wife
My husband is 13q del and unmutated IGVH. In Switzerland they propose FCR treatment and have said outcomes are generally the same. I have read differently. Any insights? Can you direct me to articles? Thank you, his wife
gingerlovesal
in
CLL Support
5 years ago
Remission after Bendamustine and Rituximab
I've not long completed treatment with Bendamustine and Rituxumab (FCR back in 2015). I'm now recovering, which mainly means getting my bowels back to normal. My bloods are good and expected to improve. I just wondered what is the average time in remission, after this treatment. Does anybody
I've not long completed treatment with Bendamustine and Rituxumab (FCR back in 2015). I'm now recovering, which mainly means getting my bowels back to normal. My bloods are good and expected to improve. I just wondered what is the average time in remission, after this treatment. Does anybody
snowdroprose
in
CLL Support
5 years ago
CLL and Statins
Here is the question, has anyone experienced a quick or sudden change in their blood counts since taking Atorvastatin? Hi All, I am reasonably new to this forum but was diagnosed with CLL in 2009. On W&W until 2017 when I had one cycle of FCR, after a bad reaction in intensive care with neutropenic sepsis
Here is the question, has anyone experienced a quick or sudden change in their blood counts since taking Atorvastatin? Hi All, I am reasonably new to this forum but was diagnosed with CLL in 2009. On W&W until 2017 when I had one cycle of FCR, after a bad reaction in intensive care with neutropenic sepsis
Richardmint
in
CLL Support
5 years ago
Rituximab
Hello my RA nurse suggested I ask on here if there is anyone who has been on this drug who could give me some information about their experience. I have tried all the other usual drugs but not had much benefit currently on Benepali for the past year but am in pain every day, perhaps I expected too much
Hello my RA nurse suggested I ask on here if there is anyone who has been on this drug who could give me some information about their experience. I have tried all the other usual drugs but not had much benefit currently on Benepali for the past year but am in pain every day, perhaps I expected too much
Jadness
in
NRAS
5 years ago
First cycle of Fcr
After my daughter25 years sll patients had taken the first dose of FCR the glands in her neck responded and Her size reduces and then returned to inflation again before the time of the second dose Is this normal
After my daughter25 years sll patients had taken the first dose of FCR the glands in her neck responded and Her size reduces and then returned to inflation again before the time of the second dose Is this normal
Baki74
in
CLL Support
5 years ago
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