Search
Search
About
Log in
Join
Experiences with
Cetuximab
Posts
Communities
2,434 public posts
Filter results
MRD-U Baby your one of four in two million!
So had a consultation with the amazing Prof Hillmen who is based in Leeds, but occasionally sees patients in Harley Street. He is great as a second opinion and to talk about odd things or decision points with. He explained that one of the tests that had been done in my bone marrow had a sensitivity
So had a consultation with the amazing Prof Hillmen who is based in Leeds, but occasionally sees patients in Harley Street. He is great as a second opinion and to talk about odd things or decision points with. He explained that one of the tests that had been done in my bone marrow had a sensitivity
AdrianUK
in
CLL Support
5 years ago
3 years since starting chemo ...son to do Iron Man!
I'm constantly dipping into this forum but sometimes it feels hard to read stories of people newly diagnosed with CLL...it makes the trauma that we've been through come flooding back... 3 years ago this week I started FCR and it is this weekend that my son Dan takes part in an Iron Man (Bolton). He has
I'm constantly dipping into this forum but sometimes it feels hard to read stories of people newly diagnosed with CLL...it makes the trauma that we've been through come flooding back... 3 years ago this week I started FCR and it is this weekend that my son Dan takes part in an Iron Man (Bolton). He has
Bethan49
in
CLL Support
5 years ago
Arm pain 😣😣😣
Hi all , i need to pick your brain about arm snd neck pain . I have Sjögrens and along with the usual dry eyes and mouth, i also presented with lymph node enlargement, muscle and joint pain and extreme exhaustion. I have been getting rituximab infusions for over 2 years now the last on was the beginning
Hi all , i need to pick your brain about arm snd neck pain . I have Sjögrens and along with the usual dry eyes and mouth, i also presented with lymph node enlargement, muscle and joint pain and extreme exhaustion. I have been getting rituximab infusions for over 2 years now the last on was the beginning
weathervane
in
LUPUS UK
5 years ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
The CLL Society Tribune: full of research, news, advice, art and sharing
Heading home from lecturing in Germany. Very proud of this quarter's CLL Society Tribune: https://cllsociety.org/quarter-2-2019-volume-5-issue-2/ this quarter. I have an interview with Dr. Shanafelt, the lead on the ECOG trial that showed the superiority of Ibrutinib over FCR in nearly all frontline
Heading home from lecturing in Germany. Very proud of this quarter's CLL Society Tribune: https://cllsociety.org/quarter-2-2019-volume-5-issue-2/ this quarter. I have an interview with Dr. Shanafelt, the lead on the ECOG trial that showed the superiority of Ibrutinib over FCR in nearly all frontline
bkoffman
CLL CURE Hero
in
CLL Support
5 years ago
Hi everyone who had FCR chemo
I am to have it for the first time, is it likely to have side effects when I will get back home after the drip ? I live alone, how did You feel ?
I am to have it for the first time, is it likely to have side effects when I will get back home after the drip ? I live alone, how did You feel ?
Ankakoza
in
CLL Support
5 years ago
CLL Society Tribune!
Welcome to the Second 2019 Issue of The CLL Society Tribune. https://cllsociety.org/quarter-2-2019-volume-5-issue-2/?utm_source=CLL+Tribune+Q2+2019&utm_campaign=Quarter+2+2019%3A+Volume+5+Issue+2&utm_medium=email Dear Friends and Supporters of the CLL Society. Welcome to the growing and evolving
Welcome to the Second 2019 Issue of The CLL Society Tribune. https://cllsociety.org/quarter-2-2019-volume-5-issue-2/?utm_source=CLL+Tribune+Q2+2019&utm_campaign=Quarter+2+2019%3A+Volume+5+Issue+2&utm_medium=email Dear Friends and Supporters of the CLL Society. Welcome to the growing and evolving
lankisterguy
Volunteer
in
CLL Support
5 years ago
Lupus, Vasculitis and Blocked Blood Vessels
Lupus, Vasculitis and Blocked Blood Vessels Adapted from a talk at The SLE Workshop at Hospital for Special Surgery Summary The word “vasculitis” means inflammation of the blood vessels. (Vasc refers to blood vessels and itis means inflammation.) Vasculitis can be a diagnosis in itself, but more often
Lupus, Vasculitis and Blocked Blood Vessels Adapted from a talk at The SLE Workshop at Hospital for Special Surgery Summary The word “vasculitis” means inflammation of the blood vessels. (Vasc refers to blood vessels and itis means inflammation.) Vasculitis can be a diagnosis in itself, but more often
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
5 years ago
Chimeric antigen receptor-modified T cell therapy in chronic lymphocytic leukemia
[i]Journal of Hematology & Oncology, November 2018[/i] CAR-T therapy, a promising adoptive T cell immunotherapy, has become more and more important in the treatment of CLL. In the last 2 years, enormous progress has been witnessed in CAR-T therapy for CLL. However, no comprehensive review had been reported
[i]Journal of Hematology & Oncology, November 2018[/i] CAR-T therapy, a promising adoptive T cell immunotherapy, has become more and more important in the treatment of CLL. In the last 2 years, enormous progress has been witnessed in CAR-T therapy for CLL. However, no comprehensive review had been reported
Jm954
Administrator
in
CLL Support
5 years ago
Bakers cyst
Hi everyone, well, managed my 2nd infusion of Rituximab ok, with no reaction. Got up following day and felt ok, steroid doing it’s job. Short lived though, after showering and washing my hair wrist painful, so took it easy for the rest of the day. However, by 8.30 last night it was evident that my
Hi everyone, well, managed my 2nd infusion of Rituximab ok, with no reaction. Got up following day and felt ok, steroid doing it’s job. Short lived though, after showering and washing my hair wrist painful, so took it easy for the rest of the day. However, by 8.30 last night it was evident that my
Callabag64
in
NRAS
5 years ago
Abatacept
Hi all, I have been struggling with my joints for years now. Nothing has worked I’ve tried every drug there is. Rituximab was my miracle drug, worked for 4 years! I was completely symptom free, it was amazing! Now I’m back to how I was before, in pain a lot :-( My consultant wants to try me on Abatacept
Hi all, I have been struggling with my joints for years now. Nothing has worked I’ve tried every drug there is. Rituximab was my miracle drug, worked for 4 years! I was completely symptom free, it was amazing! Now I’m back to how I was before, in pain a lot :-( My consultant wants to try me on Abatacept
EmLem89
in
NRAS
5 years ago
Results
Got Rituximab in March and when I was at the hospital 2 weeks ago my kidney function was stable and things looking ok, got bloods done then and recieved my letter from the hospital yesterday to say there'd been a slight decline in kidney function as creatinine level had shot up. It's one step forward
Got Rituximab in March and when I was at the hospital 2 weeks ago my kidney function was stable and things looking ok, got bloods done then and recieved my letter from the hospital yesterday to say there'd been a slight decline in kidney function as creatinine level had shot up. It's one step forward
Hidden
in
LUPUS UK
5 years ago
Move over MRD Negative and make way for uMRD - Undetectable Minimal Residual Disease
As Dr Brian Koffman mentioned here: https://healthunlocked.com/cllsupport/posts/141000734/eha part of his contribution to the European Hematology Association (EHA) 2019 Amsterdam congress https://ehaweb.org was as a panel member on a satellite event sponsored by the MRD Testing Collaborative, namely
As Dr Brian Koffman mentioned here: https://healthunlocked.com/cllsupport/posts/141000734/eha part of his contribution to the European Hematology Association (EHA) 2019 Amsterdam congress https://ehaweb.org was as a panel member on a satellite event sponsored by the MRD Testing Collaborative, namely
AussieNeil
Partner
in
CLL Support
5 years ago
Bendustamine - Rituximab poor reaction
Has anyone able to advise on a poor reaction to B + R treatment. As previously posted ,I began treatment on 19th March .AlC at 84 ,began well with Alc dropping to zero within 7 days and felt well. Left Hospital next day returned as temp had risen,placed in ICU and on life support and kidney dyalsis
Has anyone able to advise on a poor reaction to B + R treatment. As previously posted ,I began treatment on 19th March .AlC at 84 ,began well with Alc dropping to zero within 7 days and felt well. Left Hospital next day returned as temp had risen,placed in ICU and on life support and kidney dyalsis
Joffre1
in
CLL Support
5 years ago
R/A PMR to Vasculitis: Positive update 11months into (Rituximab intrusion) treatment.
Hi All, long time no post sorry!! Quick update on my farther who turns 70 next week and he is in a position to enjoy it, in the best way he knows how to PARTY with the family (Miracle considering were he was 12 months ago) As stated in the title he is now into his 11 month of Rituximab treatment.
Hi All, long time no post sorry!! Quick update on my farther who turns 70 next week and he is in a position to enjoy it, in the best way he knows how to PARTY with the family (Miracle considering were he was 12 months ago) As stated in the title he is now into his 11 month of Rituximab treatment.
Sonofjimmy
in
PMRGCAuk
5 years ago
POST BMT 1-Year & 7 Months, BOY OH BOY!!!
“Ring the bells that still can ring Forget your perfect offering There is a crack, a crack in everything That’s how the light gets in.” Leonard Cohen “Anthem,” The Future album 1992 It has been far to long since my last post but boy have we been through the ringer!! I do want to apologize for
“Ring the bells that still can ring Forget your perfect offering There is a crack, a crack in everything That’s how the light gets in.” Leonard Cohen “Anthem,” The Future album 1992 It has been far to long since my last post but boy have we been through the ringer!! I do want to apologize for
NMMP
in
CLL Support
5 years ago
FCR VS BR
My father's cytogenetics test shows he's trisomy 12. Zap 70 negative CD 38 positive 45% The oncologist has suggested BR. My father is physically fit 57 years old. Apart from mild fatigue and lymphodentpathy he's fine. I've read on this forum FCR give longer remission. But there's a greater risk of
My father's cytogenetics test shows he's trisomy 12. Zap 70 negative CD 38 positive 45% The oncologist has suggested BR. My father is physically fit 57 years old. Apart from mild fatigue and lymphodentpathy he's fine. I've read on this forum FCR give longer remission. But there's a greater risk of
Haider98
in
CLL Support
5 years ago
Prednisolone
Well, after saying I would never go back to oral steroids, I have had to this week. The pain was so bad, I could not take much more. Rheumy nurse said I could have 5 days supply to tide me over till next Rituximab infusion. The last one ( my first ) had reaction, so only had third of the dose. So pain
Well, after saying I would never go back to oral steroids, I have had to this week. The pain was so bad, I could not take much more. Rheumy nurse said I could have 5 days supply to tide me over till next Rituximab infusion. The last one ( my first ) had reaction, so only had third of the dose. So pain
Callabag64
in
NRAS
5 years ago
Rituximab
Has anyone on rituximab had either/or IBS symptoms or sinusitus as a side effect of this med.
Has anyone on rituximab had either/or IBS symptoms or sinusitus as a side effect of this med.
LUPIELASSY13
in
NRAS
5 years ago
Effectiveness of Rituximab
Hi all! It's been nearly 5 weeks since my first round of Rituximab infusions. I've been feeling ok joint wise, but having terrible fatigue. Doing all I can to listen to my body and combat that though. Recently I've experienced a flare 'niggling' - if that makes sense to you. I'm getting indications
Hi all! It's been nearly 5 weeks since my first round of Rituximab infusions. I've been feeling ok joint wise, but having terrible fatigue. Doing all I can to listen to my body and combat that though. Recently I've experienced a flare 'niggling' - if that makes sense to you. I'm getting indications
Savannahseger
in
NRAS
5 years ago
Rituximab
Hi all, finally got my appointment brought forward and got my first infusion of Rituximab on Thursday. Unfortunately, after an hour and a half I had a reaction, and it was stopped. I was given antihistamine and waited for doctor to let me know if it was safe to continue. Usual dose is 1000ml, It was
Hi all, finally got my appointment brought forward and got my first infusion of Rituximab on Thursday. Unfortunately, after an hour and a half I had a reaction, and it was stopped. I was given antihistamine and waited for doctor to let me know if it was safe to continue. Usual dose is 1000ml, It was
Callabag64
in
NRAS
5 years ago
1
...
44
45
46
...
100
Next page
10
20
30
40
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
CLL Support
988 results
NRAS
553 results
Vasculitis UK
324 results
View top 10 communities
Sort by
Most Relevant
Newest