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Rituximab
Does anyone had Rituximab infusions to treat Lupus? If so how affective was it and have you had any side effects? Thank you
Does anyone had Rituximab infusions to treat Lupus? If so how affective was it and have you had any side effects? Thank you
SammyJ
in
LUPUS UK
4 years ago
Change away from FCR
https://www.onclive.com/view/dr-ghia-on-the-shift-from-chemotherapy-to-novel-agents-in-cll&ct. I guess this is the general and hopefully costs will come down so more of the world can benefit
https://www.onclive.com/view/dr-ghia-on-the-shift-from-chemotherapy-to-novel-agents-in-cll&ct. I guess this is the general and hopefully costs will come down so more of the world can benefit
Research123
in
CLL Support
4 years ago
CLL treatment prognosis
Hi all, I was told at my consult this week that because of the way my CLL was - the word immature was used - that I would not be one of the lucky people who have the FCR course of treatment and then nothing again for years. I’m about to start on the Flair programme next month. Does this mean my overall
Hi all, I was told at my consult this week that because of the way my CLL was - the word immature was used - that I would not be one of the lucky people who have the FCR course of treatment and then nothing again for years. I’m about to start on the Flair programme next month. Does this mean my overall
HarryMet
in
CLL Support
4 years ago
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Ibutrinib plus venetoclax?
As I told you my brother is in the rump up with venetoclax. Now he is in 100 mg now. This month he start relapsing his treatment with imbruvica monotherapy. He was 18 months with very good results with imbruvica, but as I said his cll start relapsing. And his doctors consider add venetoclax. He put
As I told you my brother is in the rump up with venetoclax. Now he is in 100 mg now. This month he start relapsing his treatment with imbruvica monotherapy. He was 18 months with very good results with imbruvica, but as I said his cll start relapsing. And his doctors consider add venetoclax. He put
Cgr2018
in
CLL Support
4 years ago
Hello peeps :)
Thanks for your good wishes for Friday, when I had my first dose of Tocilizumab. I did say I was going to let Flowers2020 know how I got on...sorry about delay...RA has been extra pain in the bum the last couple of weeks, then add in a bit of reservation about new drug and going into hospital at the
Thanks for your good wishes for Friday, when I had my first dose of Tocilizumab. I did say I was going to let Flowers2020 know how I got on...sorry about delay...RA has been extra pain in the bum the last couple of weeks, then add in a bit of reservation about new drug and going into hospital at the
Cookiecrumb
in
NRAS
4 years ago
How long does take Venetoclax to become the lymph nodes to normal size?
My brother started Venetoclax 2 weeks ago. He started with a swelling supraclavicular lymph node, and an pelvis node. The first week, almost with 20 mg dose, the lymph node in the supraclavicular start to be much smaller. Then the doctors check his tests labs this Monday, and there are ok, but he has
My brother started Venetoclax 2 weeks ago. He started with a swelling supraclavicular lymph node, and an pelvis node. The first week, almost with 20 mg dose, the lymph node in the supraclavicular start to be much smaller. Then the doctors check his tests labs this Monday, and there are ok, but he has
Cgr2018
in
CLL Support
4 years ago
Lumps under armpits
I have large swellings under both armpits. My GP says they are swollen lymph nodes each the size of half a tennis ball. Painless to the touch but beginning to give me a stinging pain as I move. I was diagnosed 2006 and had fcr 3 years ago. Lymphocytes are just under 200 but generally blood counts are
I have large swellings under both armpits. My GP says they are swollen lymph nodes each the size of half a tennis ball. Painless to the touch but beginning to give me a stinging pain as I move. I was diagnosed 2006 and had fcr 3 years ago. Lymphocytes are just under 200 but generally blood counts are
aloneifly
in
CLL Support
4 years ago
How effective is venetoclax for 17p tp53?
Hi!! My brother started his treatments with venetoclax last week. His treatments with imbruvica stops working and he relapsed. He is 17p to53zHe is now on the rump up in 50 mg per week. His node in the neck wents down at the first day on 20 mg. But still a little bit inflamate. Will it totally dessapear
Hi!! My brother started his treatments with venetoclax last week. His treatments with imbruvica stops working and he relapsed. He is 17p to53zHe is now on the rump up in 50 mg per week. His node in the neck wents down at the first day on 20 mg. But still a little bit inflamate. Will it totally dessapear
Cgr2018
in
CLL Support
4 years ago
Report from CLL Webinar: Prof Hillmen, 10th June 2020
I attended a webinar hosted by the CLL Support Association and Leukaemia Care. Thanks to everyone responsible for organising the event, I found it most informative. The guest keynote speaker was Prof. Peter Hillmen, Consultant in Clinical Haematology at Leeds Teaching Hospitals NHS Trust and Honorary
I attended a webinar hosted by the CLL Support Association and Leukaemia Care. Thanks to everyone responsible for organising the event, I found it most informative. The guest keynote speaker was Prof. Peter Hillmen, Consultant in Clinical Haematology at Leeds Teaching Hospitals NHS Trust and Honorary
Davdow
in
CLL Support
4 years ago
Change of medication
I have taken methotrexate and Etanercept medication for several years for Rheumatoid arthritis, I have been fairly well. I stopped the methotrexate last year but have only noticed a really bad flare up for last month, my joints have been inflamed and deteriorated in just a month. I have been given steroid
I have taken methotrexate and Etanercept medication for several years for Rheumatoid arthritis, I have been fairly well. I stopped the methotrexate last year but have only noticed a really bad flare up for last month, my joints have been inflamed and deteriorated in just a month. I have been given steroid
Flowers2020
in
NRAS
4 years ago
What to try next? Big flare after having baby and having problems finding a new medication.
Hi all I hope your are all keeping well both physically and mentally during this time. Just looking for some advice/experience please. I was well controlled on Enbrel and methotrexate for years. Almost forgot I had RA. So much so decided to try for another baby. Now have a beautiful baby boy 9 months
Hi all I hope your are all keeping well both physically and mentally during this time. Just looking for some advice/experience please. I was well controlled on Enbrel and methotrexate for years. Almost forgot I had RA. So much so decided to try for another baby. Now have a beautiful baby boy 9 months
Claire32
in
NRAS
4 years ago
Rituximab
Thanks everyone for responding and sharing your experience of taking rituximab. How long did it take for you to notice the rituximab working after the first infusion?
Thanks everyone for responding and sharing your experience of taking rituximab. How long did it take for you to notice the rituximab working after the first infusion?
Flowers2020
in
NRAS
4 years ago
Rituximab infusion
Hi, I am new to this but would really like some help or advice in regards to Starting the rituximab infusions? How safe is this medication and effective? I have been on methotrexate combined with Etanercept injections for about 7 years and stopped methotrexate as it causing me bad side effects. Having
Hi, I am new to this but would really like some help or advice in regards to Starting the rituximab infusions? How safe is this medication and effective? I have been on methotrexate combined with Etanercept injections for about 7 years and stopped methotrexate as it causing me bad side effects. Having
Flowers2020
in
NRAS
4 years ago
Has anyone had a similar situation?
Hi, I was wondering if anyone has had these problems. I have been on Rituximab and Bendamustine treatment since the end of January with only minor annoyances and so far good results. Since this past Saturday I both pulled a muscle in my shoulder and started getting a fever starting in the afternoon till
Hi, I was wondering if anyone has had these problems. I have been on Rituximab and Bendamustine treatment since the end of January with only minor annoyances and so far good results. Since this past Saturday I both pulled a muscle in my shoulder and started getting a fever starting in the afternoon till
laldoroty
in
CLL Support
4 years ago
Rituximab
Hi all, hope everyone is staying safe and well? Just wondering if anyone has had any rituximab treatment whilst all the lockdown has been in place. I’m due for my next infusion end of May and am wondering if it will go ahead. Guess it’s a toss up between the risks of a flare or catching Covid. Neither
Hi all, hope everyone is staying safe and well? Just wondering if anyone has had any rituximab treatment whilst all the lockdown has been in place. I’m due for my next infusion end of May and am wondering if it will go ahead. Guess it’s a toss up between the risks of a flare or catching Covid. Neither
lismacb
in
Vasculitis UK
4 years ago
MMF and Myforctic
Anyone else had bad side effects with these tablets? Was first put on MMF late summer 2018 after the lupus came back with a bang, within a few days I'd noticed that toilet visits were becoming a lot more regular. I mentioned it to the consultant who didn't want to change things as we were hoping the
Anyone else had bad side effects with these tablets? Was first put on MMF late summer 2018 after the lupus came back with a bang, within a few days I'd noticed that toilet visits were becoming a lot more regular. I mentioned it to the consultant who didn't want to change things as we were hoping the
Hidden
in
LUPUS UK
4 years ago
Feeling shivery cold after rituximab - had infusion four weeks ago and am feeling very cold and shivery - anyone else feel like this ?
Feeling cold shivery and very tired after having rituximab infusion - anyone else feel like this ?
Feeling cold shivery and very tired after having rituximab infusion - anyone else feel like this ?
beachbabe
in
NRAS
4 years ago
Calquence Headaches and Low Blood Counts?
Hello!! I am writing on behalf of my dad. He was diagnosed with Mantle Cell Lymphoma in October 2019, he is 76 years old. He went through 5 months of chemotherapy (R-DHAP) and was deemed to be in remission from a PET scan. He was about to prep for stem cell transplant... however, they found some more
Hello!! I am writing on behalf of my dad. He was diagnosed with Mantle Cell Lymphoma in October 2019, he is 76 years old. He went through 5 months of chemotherapy (R-DHAP) and was deemed to be in remission from a PET scan. He was about to prep for stem cell transplant... however, they found some more
stonefilly
in
Non Hodgkin's Lymphoma Friends
4 years ago
What is your experience of Rituximab infusions for Wegeners?
Hi there, I hope everyone is well! I was diagnosed with Wegeners last year. I had a cycle of Cyclophosphamide and was on Azathioprine and Prednisolone after. Lately I had nose bleeding (one lasted for an hour) and also bad conjunctivitis in one of the eyes for 2month ,what didn't go away with increasing
Hi there, I hope everyone is well! I was diagnosed with Wegeners last year. I had a cycle of Cyclophosphamide and was on Azathioprine and Prednisolone after. Lately I had nose bleeding (one lasted for an hour) and also bad conjunctivitis in one of the eyes for 2month ,what didn't go away with increasing
Condensation
in
Vasculitis UK
4 years ago
Side affects of Rituximab - Pred steriod
Hi had my 2nd Infusion on 31st March been OK apart from now having a D V T in my left leg, but now am getting 2-3 Sores on my head and skin is very dry and corners of my mouth are red and cracking, eyes are continually watering and mild soreness and a light headache, been putting Suda cream and Vaseline
Hi had my 2nd Infusion on 31st March been OK apart from now having a D V T in my left leg, but now am getting 2-3 Sores on my head and skin is very dry and corners of my mouth are red and cracking, eyes are continually watering and mild soreness and a light headache, been putting Suda cream and Vaseline
Cookyboy1
in
Vasculitis UK
4 years ago
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