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Headache und Stiffness a sign of relapse?
My 18 years old sun was diagnosed with autoimmune encephalitis from unknown antibody in October 2018. He was getting better very slowly since then after steroids, plasmapheresis and rituximab every six month. He developed a very strong headache two weeks ago, almost after getting up in the mornings,
My 18 years old sun was diagnosed with autoimmune encephalitis from unknown antibody in October 2018. He was getting better very slowly since then after steroids, plasmapheresis and rituximab every six month. He developed a very strong headache two weeks ago, almost after getting up in the mornings,
Marty1234
in
Encephalitis International
4 years ago
D V T
Hi there just to say I had my second infusion on the 31 - 3- 20 and was due to go back to the clinic on the 21st April but had a phone consultation instead, I was asked how I was by the doctor at addenbrooke's and I said I was good exept my left leg from my knee down had started to swell up and I said
Hi there just to say I had my second infusion on the 31 - 3- 20 and was due to go back to the clinic on the 21st April but had a phone consultation instead, I was asked how I was by the doctor at addenbrooke's and I said I was good exept my left leg from my knee down had started to swell up and I said
Cookyboy1
in
Vasculitis UK
4 years ago
FDA approves ibrutinib plus rituximab for chronic lymphocytic leukemia
https://www.fda.gov/drugs/drug-approvals-and-databases/fda-approves-ibrutinib-plus-rituximab-chronic-lymphocytic-leukemia?fbclid=IwAR02tCtziW0mkgktq3Pg_o5drjFaH1xYBYArkn4ZlVicIo7pVzStrrFKWs4
https://www.fda.gov/drugs/drug-approvals-and-databases/fda-approves-ibrutinib-plus-rituximab-chronic-lymphocytic-leukemia?fbclid=IwAR02tCtziW0mkgktq3Pg_o5drjFaH1xYBYArkn4ZlVicIo7pVzStrrFKWs4
chickenandwaffles
in
CLL Support
4 years ago
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Advice on blood tests at the moment
Hi All I would really like your thoughts, I am soon due for for my 12 week post rituximab blood test and in all honesty am not at all keen to go. Would you say it was vital or in the circumstances would it be ok to give it a miss or delay for a while? Thanks Jenny
Hi All I would really like your thoughts, I am soon due for for my 12 week post rituximab blood test and in all honesty am not at all keen to go. Would you say it was vital or in the circumstances would it be ok to give it a miss or delay for a while? Thanks Jenny
Galaxy2
in
Vasculitis UK
4 years ago
Difficulty concentrating???
I had a hemorrhagic stroke in 2017 followed by my NHL diagnosis in 2018 & treatment with Rituximab. Ever since I've noticed a shift in my cognitive abilities especially with concentrating and comprehension. Anyone else had that experience? What did you do about it?
I had a hemorrhagic stroke in 2017 followed by my NHL diagnosis in 2018 & treatment with Rituximab. Ever since I've noticed a shift in my cognitive abilities especially with concentrating and comprehension. Anyone else had that experience? What did you do about it?
TigerM
in
Non Hodgkin's Lymphoma Friends
4 years ago
Rituximab infusion Feb. 9/26. Not feeling like it is working. Still have arthritis pain, in fact, it seems worse. How long until it works?
How Long Until Rituximab works? Or, is there a way to know that rituximab is not working for me?
How Long Until Rituximab works? Or, is there a way to know that rituximab is not working for me?
Hidden
in
NRAS
4 years ago
shielding letter at last
Finally received my letter instructing me to follow the shielding regime. Am now starting my 5th. week of isolating with my husband as we anticipated the lockdown. Life is very quiet but we are adjusting to the new normal gradually and the great weather this week has made life more pleasurable. Along
Finally received my letter instructing me to follow the shielding regime. Am now starting my 5th. week of isolating with my husband as we anticipated the lockdown. Life is very quiet but we are adjusting to the new normal gradually and the great weather this week has made life more pleasurable. Along
Pam-51
in
NRAS
4 years ago
Do something or not?
I don't often post, but would appreciate some thoughts today please, people. I have lupus nephritis and am at home self isolating. I take 200 mgs hydroxychloroquine and 50 mgs losartan a day and I have had several Rituximab infusions, the last being a couple of years ago. I had some sort of virus
I don't often post, but would appreciate some thoughts today please, people. I have lupus nephritis and am at home self isolating. I take 200 mgs hydroxychloroquine and 50 mgs losartan a day and I have had several Rituximab infusions, the last being a couple of years ago. I had some sort of virus
Neriah
in
LUPUS UK
4 years ago
FDA approval
I just read an article that stated that the FDA approves Ibrutinib plus rituximab for CLL on 4/21/2020 for INITIAL treatment. Approval was based on the E1912 trial. Patients with 17p deletions were excluded. The main efficacy outcome measure was progression-free survival. The patients were compared with
I just read an article that stated that the FDA approves Ibrutinib plus rituximab for CLL on 4/21/2020 for INITIAL treatment. Approval was based on the E1912 trial. Patients with 17p deletions were excluded. The main efficacy outcome measure was progression-free survival. The patients were compared with
kathymac52
in
CLL Support
4 years ago
Advice on Shielding
Hi All I have yet to get a letter telling me I'm high risk but am on rituximab and predisolone so know I am and just wanted advice on shielding. I live in a flat and have to come out into the communal area and go downstairs to get my post and also have to go out to take rubbish to the bins etc. I'm
Hi All I have yet to get a letter telling me I'm high risk but am on rituximab and predisolone so know I am and just wanted advice on shielding. I live in a flat and have to come out into the communal area and go downstairs to get my post and also have to go out to take rubbish to the bins etc. I'm
Galaxy2
in
Vasculitis UK
4 years ago
Rituximab risk from Covid19 coronavirus
Hi. Any advice re Covid19 would be appreciated. Im on rituximab for ra and lupus. Does anyone know what I should do. I work in social care so can't self isolate. From what I have read stringent social distancing is what I should be doing so I'm only going out when I go to work
Hi. Any advice re Covid19 would be appreciated. Im on rituximab for ra and lupus. Does anyone know what I should do. I work in social care so can't self isolate. From what I have read stringent social distancing is what I should be doing so I'm only going out when I go to work
jeanette60
in
LUPUS UK
4 years ago
Getting a letter?
Am I receiving a letter or not, according to the government guidelines I am, unfortunately the scottish government don't detail it enough so I'm unsure. Having SLE, on steroids, had rituximab in the last 6 months, have CKD and been on dialysis for the last 3 months too so I should qualify but really
Am I receiving a letter or not, according to the government guidelines I am, unfortunately the scottish government don't detail it enough so I'm unsure. Having SLE, on steroids, had rituximab in the last 6 months, have CKD and been on dialysis for the last 3 months too so I should qualify but really
Hidden
in
LUPUS UK
4 years ago
Rituximab/anxiety
Rituximab Hi here goes so the back story is I had ritx last year I was given pain page 6 weeks after the ritx of my gp.... anyhow 2 months later after the ritx last year ,I had huge anxiety overwhelming anxiety worst thing I’ve ever experienced, fast forward to this year had the ritx again in late
Rituximab Hi here goes so the back story is I had ritx last year I was given pain page 6 weeks after the ritx of my gp.... anyhow 2 months later after the ritx last year ,I had huge anxiety overwhelming anxiety worst thing I’ve ever experienced, fast forward to this year had the ritx again in late
Vonnie10
in
NRAS
4 years ago
Vasculitis chest probs
Hi had my first infusion of rituximab days ago, not expecting miricles but was wondering why I still have a husky voice and feel as though when I get like that (which is quite often) there's a need to clear flem from my throat, can anyone explain this please, lve done a peek test and am reaching 450,
Hi had my first infusion of rituximab days ago, not expecting miricles but was wondering why I still have a husky voice and feel as though when I get like that (which is quite often) there's a need to clear flem from my throat, can anyone explain this please, lve done a peek test and am reaching 450,
Cookyboy1
in
Vasculitis UK
4 years ago
I’m Self isolating but should my daughter still go to school?
Hi All, Hope everyone is keeping well. I’m sure lots of people are asking the same thing...but sorry I couldn’t find the answer. I have RA and take Enbrel, methotrexate and prednisone. Currently in a bad flare after having a baby 7 months ago and was due to change meds to Rituximab which I imagine will
Hi All, Hope everyone is keeping well. I’m sure lots of people are asking the same thing...but sorry I couldn’t find the answer. I have RA and take Enbrel, methotrexate and prednisone. Currently in a bad flare after having a baby 7 months ago and was due to change meds to Rituximab which I imagine will
Claire32
in
NRAS
4 years ago
Structure of CD20 in complex with the therapeutic monoclonal antibody rituximab
The picture shown above is a ‘flower-vase’ plot* of the molecular interaction between Rituxan and CD20. The grey ‘vase’ represents a micelle which stabilizes the CD20 dimer in vitro; in vivo, CD20 is embedded in the B cell plasma membrane. The yellow ‘root’ represents the transmembrane domains of the
The picture shown above is a ‘flower-vase’ plot* of the molecular interaction between Rituxan and CD20. The grey ‘vase’ represents a micelle which stabilizes the CD20 dimer in vitro; in vivo, CD20 is embedded in the B cell plasma membrane. The yellow ‘root’ represents the transmembrane domains of the
gardening-girl
in
CLL Support
4 years ago
Coronavirus - very worried
Suffer from Rituximab induced Hypogammaglobulinaemia which means than my immune system has been compromised by 12 years treatment with Rituximab. I now require immunoglobulin infusions weekly to maintain my immune system. Have been careful over the last month or so but am now going into purdah as I
Suffer from Rituximab induced Hypogammaglobulinaemia which means than my immune system has been compromised by 12 years treatment with Rituximab. I now require immunoglobulin infusions weekly to maintain my immune system. Have been careful over the last month or so but am now going into purdah as I
Pam-51
in
NRAS
4 years ago
CCL n ibrutinib side effects
My dad was detected with CLL in December 2019..2 chemos of Rituximab and endoxon .He was doing well..bt he was put in ibrutinib which is working wonders bringing wbc from 500000 to 150000.But had to stop the medicine after 8 days dur to side effects ..capillary burst and internal bleeding in the legs.Initial
My dad was detected with CLL in December 2019..2 chemos of Rituximab and endoxon .He was doing well..bt he was put in ibrutinib which is working wonders bringing wbc from 500000 to 150000.But had to stop the medicine after 8 days dur to side effects ..capillary burst and internal bleeding in the legs.Initial
sweetromeet
in
CLL Support
4 years ago
Hospitals treating Coronavirus
Hi all I really needed somewhere just to have a little (or big) panic but thanks to Twitter I've just read that the hospital I'm due to have my second Rituximab infusion at tomorrow is treating patients with the Coronavirus in their infectious diseases unit. I was worried about the infusion anyway but
Hi all I really needed somewhere just to have a little (or big) panic but thanks to Twitter I've just read that the hospital I'm due to have my second Rituximab infusion at tomorrow is treating patients with the Coronavirus in their infectious diseases unit. I was worried about the infusion anyway but
BookishVibes
in
LUPUS UK
4 years ago
Analysing and Resequencing Gene Panels from the UK CLL4 trial (1999-2004) is helping patients today.
The CLL4 study compared conventional chlorambucil therapy versus fludarabine - alone or in combination with cyclophosphamide - note there was no Rituximab in those days. End points were: survival, response to therapy, duration of response, toxicity and quality of life. For patients who required further
The CLL4 study compared conventional chlorambucil therapy versus fludarabine - alone or in combination with cyclophosphamide - note there was no Rituximab in those days. End points were: survival, response to therapy, duration of response, toxicity and quality of life. For patients who required further
Jm954
Administrator
in
CLL Support
4 years ago
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