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Rituximab & work
Hello all I’m wondering if anyone has any advice on the following please...? Has anyone been on Rituximab and is a health care worker in the community. I’m a CPN. I’ve just had my 2nd infusion, for vasculitis feeling pretty wiped out today with aches & chills. I’m off sick at the moment and plan to
Hello all I’m wondering if anyone has any advice on the following please...? Has anyone been on Rituximab and is a health care worker in the community. I’m a CPN. I’ve just had my 2nd infusion, for vasculitis feeling pretty wiped out today with aches & chills. I’m off sick at the moment and plan to
Mish-da
in
Vasculitis UK
4 years ago
RItuximab & Work
Hello all I’m wondering if anyone has any advice on the following please.....? Has anyone been on Rituximab and is a health care worker in the community. I’m a CPN. I’ve just had my 2nd infusion, for vasculitis feeling pretty wiped out today with aches & chills. I’m off sick at the moment and plan to
Hello all I’m wondering if anyone has any advice on the following please.....? Has anyone been on Rituximab and is a health care worker in the community. I’m a CPN. I’ve just had my 2nd infusion, for vasculitis feeling pretty wiped out today with aches & chills. I’m off sick at the moment and plan to
Mish-da
in
NRAS
4 years ago
unmutated
hi all is there any members who has had fcr who are unmutated had longer than 3 yrs remission just curious has one doctor says you can get remission up to 5 yrs plus and also which treatment would be best after fcr ,,thank you ,,kel
hi all is there any members who has had fcr who are unmutated had longer than 3 yrs remission just curious has one doctor says you can get remission up to 5 yrs plus and also which treatment would be best after fcr ,,thank you ,,kel
kel555
in
CLL Support
4 years ago
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covid vaccine
hi all its been a while since last post iam on my 5 fcr this Tuesday and i can tell you this as been the hardest task i have ever done the constant worry of covid 19 as my blood counts drop after every cycle, round 3 put me in hospital with sepsis which i recovered i had a bad cough for 2 weeks before
hi all its been a while since last post iam on my 5 fcr this Tuesday and i can tell you this as been the hardest task i have ever done the constant worry of covid 19 as my blood counts drop after every cycle, round 3 put me in hospital with sepsis which i recovered i had a bad cough for 2 weeks before
kel555
in
CLL Support
4 years ago
NICE approves venetoclax with obinutuzumab for patients with untreated CLL
Great news for patients in England and Wales as The National Institute for Health and Care Excellence (NICE) have made recommendations for venetoclax plus obinutuzumab as an option for treating chronic lymphocytic leukaemia (CLL).
Which group of patients can access this new treatment?
It is recommended
Great news for patients in England and Wales as The National Institute for Health and Care Excellence (NICE) have made recommendations for venetoclax plus obinutuzumab as an option for treating chronic lymphocytic leukaemia (CLL).
Which group of patients can access this new treatment?
It is recommended
HAIRBEAR_UK
in
Leukaemia Support
4 years ago
Flair trial end after 6 years.
Hi, haven’t posted in a while. My husband has been on the Flair trial taking Ibrutinib after an initial round of Rituximab. His part in the trial has now finished after 6years. He has tolerated the Ibrutinib very well with very few problems. Bloods all good and MRD very low. He would have liked
Hi, haven’t posted in a while. My husband has been on the Flair trial taking Ibrutinib after an initial round of Rituximab. His part in the trial has now finished after 6years. He has tolerated the Ibrutinib very well with very few problems. Bloods all good and MRD very low. He would have liked
annsathome
in
CLL Support
4 years ago
Scottish Medicines Agency has decided in favour of Venetoclax plus Obintuzumab for some patients.
The SMC has accepted venetoclax in combination with obinutuzumab for use in certain patients. There is a restriction that means that venetoclax may be used together with obinutuzumab as a fixed term treatment in two subgroups of patients with CLL who have not yet had any treatment for their CLL: - patients
The SMC has accepted venetoclax in combination with obinutuzumab for use in certain patients. There is a restriction that means that venetoclax may be used together with obinutuzumab as a fixed term treatment in two subgroups of patients with CLL who have not yet had any treatment for their CLL: - patients
Jm954
Administrator
in
CLL Support
4 years ago
Introduction
Hello, my wife was diagnosed with Stage 5 CLL in early November and commenced chemotheraphy with FCR on 16th November. She will be undergoing 6 cycles of chemo over 6 months. I joined this community as it seems to have excellent resources and a very supportive community. I am still on the journey to
Hello, my wife was diagnosed with Stage 5 CLL in early November and commenced chemotheraphy with FCR on 16th November. She will be undergoing 6 cycles of chemo over 6 months. I joined this community as it seems to have excellent resources and a very supportive community. I am still on the journey to
Tehtarek
in
CLL Support
4 years ago
NHS and CLL coverage: seeking advice
For those of you living in the UK we are moving to Scotland and I am seeking advice on NHS. Is this generally sufficient coverage for good care of CLL patients? Does one have access to quality services or is private insurance something we should really stretch to consider? My husband had FCR for CLL
For those of you living in the UK we are moving to Scotland and I am seeking advice on NHS. Is this generally sufficient coverage for good care of CLL patients? Does one have access to quality services or is private insurance something we should really stretch to consider? My husband had FCR for CLL
gingerlovesal
in
CLL Support
4 years ago
Treatment of Reynauds
I have had Reynauds for about 8 years. Despite wearing insulated gloves, having hand warmers etc I still get cold painful fingers. I've been offered medication but they don't work or the side effects are worse. The only relief I had 18 months ago was when I was receiving FCR for my CLL and miraculously
I have had Reynauds for about 8 years. Despite wearing insulated gloves, having hand warmers etc I still get cold painful fingers. I've been offered medication but they don't work or the side effects are worse. The only relief I had 18 months ago was when I was receiving FCR for my CLL and miraculously
Floxxy
in
CLL Support
4 years ago
Revisiting Ibrutinib , but then no Venetoclax?
I am a decade into the CLL journey with non mutated 11q deletion - woohoo! I went through FCR in 2014 and am now relapsing, so gearing up for the next round ... As I noted a couple of months ago here in the UK, I was told that if that: 1. if I start with Ibrutinib s my second line treatment, I cannot
I am a decade into the CLL journey with non mutated 11q deletion - woohoo! I went through FCR in 2014 and am now relapsing, so gearing up for the next round ... As I noted a couple of months ago here in the UK, I was told that if that: 1. if I start with Ibrutinib s my second line treatment, I cannot
Me2AsWell
in
CLL Support
4 years ago
Rituximab and PPE
Hello... I’m due to start my first infusion of Rituximab on 20th at Addenbrookes. This great forum has answered many of my questions around this treatment with the help of the search bar! One thing I’d like to ask... has anyone had this treatment during the pandemic and been told to wear face masks throughout
Hello... I’m due to start my first infusion of Rituximab on 20th at Addenbrookes. This great forum has answered many of my questions around this treatment with the help of the search bar! One thing I’d like to ask... has anyone had this treatment during the pandemic and been told to wear face masks throughout
Mish-da
in
Vasculitis UK
4 years ago
Rituximab & PPE
Hello... I’m due to start my first infusion of Rituximab on 20th at Addenbrookes. This great forum has answered many of my questions around this treatment with the help of the search bar! One thing I’d like to ask... has anyone had this treatment during the pandemic and been told to wear face masks
Hello... I’m due to start my first infusion of Rituximab on 20th at Addenbrookes. This great forum has answered many of my questions around this treatment with the help of the search bar! One thing I’d like to ask... has anyone had this treatment during the pandemic and been told to wear face masks
Mish-da
in
NRAS
4 years ago
Antibodies test CLL
I had my yearly appointment with the haematologist over the phone yesterday. I explained that I am worried about covid and cll as I am still prone to getting sinusitis which then sometimes ends up with chest infection. Also have some minor other issues. She then said that I should have an antibodies
I had my yearly appointment with the haematologist over the phone yesterday. I explained that I am worried about covid and cll as I am still prone to getting sinusitis which then sometimes ends up with chest infection. Also have some minor other issues. She then said that I should have an antibodies
Ellebele
in
CLL Support
4 years ago
The Flu Vaccine, Inflammatory Arthritis, and COVID-19: What You Need to Know
This year, the flu vaccine is more important than ever. Here’s what you need to know about getting vaccinated safely when you have inflammatory arthritis like rheumatoid arthritis, psoriatic arthritis, or axial spondyloarthritis.
Inflammatory Arthritis Flu Vaccine
Getting a flu vaccine is important
This year, the flu vaccine is more important than ever. Here’s what you need to know about getting vaccinated safely when you have inflammatory arthritis like rheumatoid arthritis, psoriatic arthritis, or axial spondyloarthritis.
Inflammatory Arthritis Flu Vaccine
Getting a flu vaccine is important
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
4 years ago
VenR in Relapsed CLL: 4-Year Results and Evaluation of Impact of Genomic Complexity and Gene Mutations from MURANO 3 study
This is an important evaluation and insight into how your CLL profile affects your response to VR in relapsed and refractory CLL. Sadly it looks like bad genetics is still relatively bad news in terms of PFS even on VenR. "[i]In previous analyses of the MURANO study, fixed-duration venetoclax plus rituximab
This is an important evaluation and insight into how your CLL profile affects your response to VR in relapsed and refractory CLL. Sadly it looks like bad genetics is still relatively bad news in terms of PFS even on VenR. "[i]In previous analyses of the MURANO study, fixed-duration venetoclax plus rituximab
Jm954
Administrator
in
CLL Support
4 years ago
Infusion and COVID-19
I live in Shropshire and was due to have a Rituximab infusion in June but hospital say they have stopped giving biologic infusions because of Covid. Is this the same in other areas of the country?
I live in Shropshire and was due to have a Rituximab infusion in June but hospital say they have stopped giving biologic infusions because of Covid. Is this the same in other areas of the country?
AcerGriseum
in
NRAS
4 years ago
Cannaboid oil and Rituximab
I'm still suffering from back ache even after my infusions. I have some cannaboid oil which I'm told might help, but am hesitating as I'm not sure whether I should take it with Rituximab. Anyone had an experience of this? Thanks.
I'm still suffering from back ache even after my infusions. I have some cannaboid oil which I'm told might help, but am hesitating as I'm not sure whether I should take it with Rituximab. Anyone had an experience of this? Thanks.
cathie
in
Positive Wellbeing During Self-Isolation
4 years ago
Rituximab
Hi has anyone been having Rituximab alongside Cyclophosphamide pulse infusions? This maybe my next course of action as I have just had my 5th cyclophosphamide infusion & there’s some improvement in my skin but not with my ILD. Many thanks.
Hi has anyone been having Rituximab alongside Cyclophosphamide pulse infusions? This maybe my next course of action as I have just had my 5th cyclophosphamide infusion & there’s some improvement in my skin but not with my ILD. Many thanks.
cheryldn
in
Scleroderma & Raynaud's UK (SRUK)
4 years ago
Encephalitis Newbie - Seizures and Sports
Hi Everyone! I'm from Australia and very thankful to find this community and to have read all your stories/posts - thank you for sharing. It's nice to know I'm not alone with this condition and I hope everyone is staying positive and strong through your recoveries 💪🏽 I was diagnosed with Anti NMDA
Hi Everyone! I'm from Australia and very thankful to find this community and to have read all your stories/posts - thank you for sharing. It's nice to know I'm not alone with this condition and I hope everyone is staying positive and strong through your recoveries 💪🏽 I was diagnosed with Anti NMDA
Elle2090
in
Encephalitis International
4 years ago
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