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Chest pain in CLL
Hi all am waiting to start fcr treatment for my cll quite soon, but for the past 3 week's I've been suffering from tightness and slight pain in the middle and right side of my chest. Had my heart checked and all ok. Just wondering if anyone has had this problem Thank you
Hi all am waiting to start fcr treatment for my cll quite soon, but for the past 3 week's I've been suffering from tightness and slight pain in the middle and right side of my chest. Had my heart checked and all ok. Just wondering if anyone has had this problem Thank you
Daisy1993
in
CLL Support
3 years ago
Nras web Facebook session about vaccines
It's very very In depth. Goes into huge detail about when it's best to have vaccine but the main messages I got was: Have the vaccine ! the ones passed are safe for RA patients . The oxford vaccine was a live vaccine that he have attenuated so we can have it therefore not a " live" vaccine when given
It's very very In depth. Goes into huge detail about when it's best to have vaccine but the main messages I got was: Have the vaccine ! the ones passed are safe for RA patients . The oxford vaccine was a live vaccine that he have attenuated so we can have it therefore not a " live" vaccine when given
allanah
in
NRAS
4 years ago
Facebook 7pm nras online webinar. Vaccines and rheumatoid arthritis
Should be a good watch. Maybe they will answer the topics worrying us about rituximab, etc. Etc
Should be a good watch. Maybe they will answer the topics worrying us about rituximab, etc. Etc
allanah
in
NRAS
4 years ago
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I all ,i started treatment august 2020 FCR, i was doing fine no problems until my 3 cycle October i seem to have a slight cough which would did not go away as time went on it got worse ,i was due to start my 4 cycle so i went to my doctors for a review before treatment i told him about the cough and
I all ,i started treatment august 2020 FCR, i was doing fine no problems until my 3 cycle October i seem to have a slight cough which would did not go away as time went on it got worse ,i was due to start my 4 cycle so i went to my doctors for a review before treatment i told him about the cough and
kel555
in
CLL Support
3 years ago
Astra Zeneca - any reactions?
Or is it just me? Had it yesterday, aged 61. Within minutes I felt peculiar, also throat and eyes aching. Perked up in the evening, though tired. Very tired and headachy today. Hopefully it just means it’s just doing it’s job. I am so much more sensitive to all kinds of things since FCR two and a
Or is it just me? Had it yesterday, aged 61. Within minutes I felt peculiar, also throat and eyes aching. Perked up in the evening, though tired. Very tired and headachy today. Hopefully it just means it’s just doing it’s job. I am so much more sensitive to all kinds of things since FCR two and a
Mandy56
in
CLL Support
3 years ago
Wegners disease and kidney function
Anyone out there with an auto immune disease that resulted in acute renal failure had any renewal or seen an increased kidney function over recovery time. If so , how many months after diagnosis. I have had another vasculitis flare up and back on a shed load of steroids. I'm now having a 2nd session
Anyone out there with an auto immune disease that resulted in acute renal failure had any renewal or seen an increased kidney function over recovery time. If so , how many months after diagnosis. I have had another vasculitis flare up and back on a shed load of steroids. I'm now having a 2nd session
Norfickgal
in
Kidney Disease
4 years ago
Covid vaccine effectiveness and rituximab
I just came across this MS-related blog: https://multiple-sclerosis-research.org/2020/06/the-mscovid-19-vacccination-window-of-ocrelizumab-rituximab-and-more-evidence-for-the-importance-of-memory-b-cells/ It's quite technical and contains links to related papers. It is very informative about vaccination
I just came across this MS-related blog: https://multiple-sclerosis-research.org/2020/06/the-mscovid-19-vacccination-window-of-ocrelizumab-rituximab-and-more-evidence-for-the-importance-of-memory-b-cells/ It's quite technical and contains links to related papers. It is very informative about vaccination
gooseflight
in
Vasculitis UK
4 years ago
Pfizer vaccine
I had my 6 monthly phone call with Rheumatologist cancelled this week. I was hoping to ask if it was ok to have the vaccine if offered. I am on Rituximab so immunosuppressed. Has anyone else gained an answer to this question pls?
I had my 6 monthly phone call with Rheumatologist cancelled this week. I was hoping to ask if it was ok to have the vaccine if offered. I am on Rituximab so immunosuppressed. Has anyone else gained an answer to this question pls?
Evie3
in
NRAS
4 years ago
COVID19 Vaccination Information for Vasculitis Patients
https://www.vasculitis.org.uk/news/covid-vaccination-and-vasculitis COVID 19 VACCINATION IMPORTANT INFORMATION FOR VASCULITIS PATIENTSWith the imminent arrival of two or more covid vaccines, many people with vasculitis are understandably confused and worried about safety and suitability of the new vaccines
https://www.vasculitis.org.uk/news/covid-vaccination-and-vasculitis COVID 19 VACCINATION IMPORTANT INFORMATION FOR VASCULITIS PATIENTSWith the imminent arrival of two or more covid vaccines, many people with vasculitis are understandably confused and worried about safety and suitability of the new vaccines
John_Mills
Vasculitis UK
in
Vasculitis UK
4 years ago
Confused about COVID vaccines and Immune Suppressed? I am!
I was feeling upbeat about the prospect of vaccines I probably was wrong thinking we could take them because they were not live, that’s my fault I guess, blind optimism maybe. Yesterday I went to see my specialist to check on progress of my transfer from Azathioprine to Rituximab, all seemed good until
I was feeling upbeat about the prospect of vaccines I probably was wrong thinking we could take them because they were not live, that’s my fault I guess, blind optimism maybe. Yesterday I went to see my specialist to check on progress of my transfer from Azathioprine to Rituximab, all seemed good until
Investigator1
in
Vasculitis UK
4 years ago
How things have changed
Admiral of the Fleet Sir Michael Le Fanu GCB DSC, First Sea Lord and (briefly) Chief of the Defence Staff was diagnosed in May 1970 with CLL. He was treated at the King Edward VII Hospital in London under Sir Ronald Bodley-Scott with cortisone and blood transfusions (Cortisone and Soda as he described
Admiral of the Fleet Sir Michael Le Fanu GCB DSC, First Sea Lord and (briefly) Chief of the Defence Staff was diagnosed in May 1970 with CLL. He was treated at the King Edward VII Hospital in London under Sir Ronald Bodley-Scott with cortisone and blood transfusions (Cortisone and Soda as he described
SERVrider
in
CLL Support
3 years ago
Lupus and Bowel Bleeding
Hi all, my daughter was diagnosed with Lupus last December and it has been a rollercoaster journey. She has had Rituximab and cyclophosphamide infusions been on steroids, the lot. She is now taking the following medication: Fluconazole, Omeprazole, Aspirin, Mycophenolate, Hydroxychloroquine. Because
Hi all, my daughter was diagnosed with Lupus last December and it has been a rollercoaster journey. She has had Rituximab and cyclophosphamide infusions been on steroids, the lot. She is now taking the following medication: Fluconazole, Omeprazole, Aspirin, Mycophenolate, Hydroxychloroquine. Because
chezevo
in
LUPUS UK
4 years ago
Rituximab and pregnancy
Has anyone had rituximab and tried for a baby? I’m roughly 7 years diagnosed and had only 1 relapse in between. GPA vasculitis
Has anyone had rituximab and tried for a baby? I’m roughly 7 years diagnosed and had only 1 relapse in between. GPA vasculitis
rrahman
in
Vasculitis UK
4 years ago
Rituximab and covid vaccination
Hi All I have a dilemma and would be interested if anyone can help with information. I am due to have rituximab infusions starting next week which are overdue and I haven't had any infusions since January. It was suggested earlier in the year that I delay the infusions for as long as possible unless
Hi All I have a dilemma and would be interested if anyone can help with information. I am due to have rituximab infusions starting next week which are overdue and I haven't had any infusions since January. It was suggested earlier in the year that I delay the infusions for as long as possible unless
Galaxy2
in
Vasculitis UK
4 years ago
Significantly Elevated LFT Levels
Good Evening, Hoping everyone is keeping well in these highly stressful times. I had some bloods done at my GP yesterday (CRP, FBC, LFT & UE). I get these particular bloods done every 3-4 weeks and have been doing so for several months. This afternoon, however, I got a call from the Rheumatology department
Good Evening, Hoping everyone is keeping well in these highly stressful times. I had some bloods done at my GP yesterday (CRP, FBC, LFT & UE). I get these particular bloods done every 3-4 weeks and have been doing so for several months. This afternoon, however, I got a call from the Rheumatology department
Vo321
in
Vasculitis UK
4 years ago
Pred Tablets or Depo Injection?
I have had uncontrolled RA for nearly 3 years since switching to a biosimilar of enbrel. I've tried 2 rounds of rituximab and have really only been managing through a series of steroid treatments. I'm currently managing on 5mg daily and have been for 8 weeks. I'm due to start tocilizumab shortly but
I have had uncontrolled RA for nearly 3 years since switching to a biosimilar of enbrel. I've tried 2 rounds of rituximab and have really only been managing through a series of steroid treatments. I'm currently managing on 5mg daily and have been for 8 weeks. I'm due to start tocilizumab shortly but
Maggsie
in
NRAS
4 years ago
Rituximab
I have been advised that Methotrexate makes Rituximab work better ....does anybody take Methotrexate with Rituximab please?
I have been advised that Methotrexate makes Rituximab work better ....does anybody take Methotrexate with Rituximab please?
-Mii
in
NRAS
4 years ago
SUGGESTIONS?
I started treatment (B+R) at the end of this past January for 6 months, the results were very good and my oncologist said he would probably start me on a 2 year maintenance program in 3 months of Rituximab every 3 months. I went back to see him after the 3 months and most of my blood work was good except
I started treatment (B+R) at the end of this past January for 6 months, the results were very good and my oncologist said he would probably start me on a 2 year maintenance program in 3 months of Rituximab every 3 months. I went back to see him after the 3 months and most of my blood work was good except
laldoroty
in
CLL Support
4 years ago
Mycophenolate effects
Hi, I have posted before last year. I live in Ireland but this site is excellent. I was diagnosed with Wegeners/GPA exactly ten years ago - very severe in sinuses and lungs, induced for 18 days. Negligible renal effect but flared in my kidneys in spring last year i.e. 2019. My renal/vasculitis consultant
Hi, I have posted before last year. I live in Ireland but this site is excellent. I was diagnosed with Wegeners/GPA exactly ten years ago - very severe in sinuses and lungs, induced for 18 days. Negligible renal effect but flared in my kidneys in spring last year i.e. 2019. My renal/vasculitis consultant
Corcaigh
in
Vasculitis UK
4 years ago
How long after the second infusion of Rituximab can I have a flu vaccination
Was wondering if flu vaccination would work after rituximab too.
Was wondering if flu vaccination would work after rituximab too.
achygran
in
NRAS
4 years ago
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