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Cetuximab
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Rituximab Infusion
Anyone had Rituximab infusion? M having my first one on Monday as m worried and nervous Has it would for u ?
Anyone had Rituximab infusion? M having my first one on Monday as m worried and nervous Has it would for u ?
Mystik
in
Arthritis Action
2 years ago
Access to antiviral infusion
Hello, I tested positive for covid yesterday (second time round). I logged my LFT result on the NHS and took and sent of my emergency PCR. The advice says someone would contact me (I am CEV) within 24 hours to arrange an antiviral infusion, but I have heard nothing. I have recently had two infusions
Hello, I tested positive for covid yesterday (second time round). I logged my LFT result on the NHS and took and sent of my emergency PCR. The advice says someone would contact me (I am CEV) within 24 hours to arrange an antiviral infusion, but I have heard nothing. I have recently had two infusions
pino99
in
NRAS
2 years ago
Scleromytosis Rituximab
Hi all I had my appointment at royal free in London and they actually listened!! They have a high suspicion of myositis as well as scleroderma, they have recommended rituximab with reduced Mycophenelate. Anyone have any positive feedback about muscle aches/weakness, ILD and this medication combo. Always
Hi all I had my appointment at royal free in London and they actually listened!! They have a high suspicion of myositis as well as scleroderma, they have recommended rituximab with reduced Mycophenelate. Anyone have any positive feedback about muscle aches/weakness, ILD and this medication combo. Always
Aarts
in
Scleroderma & Raynaud's UK (SRUK)
2 years ago
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Post Rituximab guidelines
Hi all I’m just seeking a bit of guidance for the future months: I’ve recently completed 4 months of oral chemo and am nearly at the end 6 x 4 weekly treatments of Rituximab. Having read that it remains in the system for 6-12 months and that alcohol should be avoided during treatments, does this imply
Hi all I’m just seeking a bit of guidance for the future months: I’ve recently completed 4 months of oral chemo and am nearly at the end 6 x 4 weekly treatments of Rituximab. Having read that it remains in the system for 6-12 months and that alcohol should be avoided during treatments, does this imply
AudeRambler
in
CLL Support
2 years ago
Grateful
Thank you fellow members of the MS community for all your messages of support and for the information shared. I have decided to take a course of Rituximab starting coming Friday, 2 doses to begin with, with an interval in between. I have also been taught a new set of exercises for the right side of
Thank you fellow members of the MS community for all your messages of support and for the information shared. I have decided to take a course of Rituximab starting coming Friday, 2 doses to begin with, with an interval in between. I have also been taught a new set of exercises for the right side of
canimambo
in
My MSAA Community
2 years ago
First Rituximab Infusion Day Tomorrow
So I’m in what I think might be quite a unique position right now in the UK which is that I’m having Rituximab treatment for my ITP. Has anyone else had this recently or is currently undergoing it? I THINK I’m pretty lucky to be having it as initially my specialists said no to it and said that it’s not
So I’m in what I think might be quite a unique position right now in the UK which is that I’m having Rituximab treatment for my ITP. Has anyone else had this recently or is currently undergoing it? I THINK I’m pretty lucky to be having it as initially my specialists said no to it and said that it’s not
Cheshirecharlotte
in
ITP Support Association
2 years ago
Rituximab stopped in NI
Hi fellow luppies My Lupus nurse has just informed me that Rituximab is no longer being offered to patients because of the dangers it poses with COVID. Alternatives will have to be looked at. I personally find I’m doing quite well on leflunomide. Good luck with alternatives🤗
Hi fellow luppies My Lupus nurse has just informed me that Rituximab is no longer being offered to patients because of the dangers it poses with COVID. Alternatives will have to be looked at. I personally find I’m doing quite well on leflunomide. Good luck with alternatives🤗
Maverick77
in
LUPUS UK
2 years ago
To continue or not....that is the question
I started treatment in July 2021 after 18 months on W&W. Initially I was treated with Obinutuzumab but I had a severe reaction to the first 20mg and ended up in the A&E resuscitation ward. I was then swopped to Rituximab and Venetoclax, which was explained as normally being a second line treatment which
I started treatment in July 2021 after 18 months on W&W. Initially I was treated with Obinutuzumab but I had a severe reaction to the first 20mg and ended up in the A&E resuscitation ward. I was then swopped to Rituximab and Venetoclax, which was explained as normally being a second line treatment which
Dawson21
in
CLL Support
2 years ago
4th Vaccine
Just booked mine for Sunday. When i first tried to book on nhs site I didnt have my nhs no to hand. Went back on with that and have booked it. I havent the official letter but got the letter that mentions I am CEV and immunosuppressed and also my Rituximab card. Worse they can do is send me away.
Just booked mine for Sunday. When i first tried to book on nhs site I didnt have my nhs no to hand. Went back on with that and have booked it. I havent the official letter but got the letter that mentions I am CEV and immunosuppressed and also my Rituximab card. Worse they can do is send me away.
Evie3
in
NRAS
2 years ago
Chickenpox and rituximab
Hi, I have RA and being treated with rituximab and leflunomide. I am a children's nanny and one of the children possible has chickenpox. I had it as a child but I'm not sure if I should avoid being near it or not. I don't think I've been told this for this treatment but was for my previous biologic.
Hi, I have RA and being treated with rituximab and leflunomide. I am a children's nanny and one of the children possible has chickenpox. I had it as a child but I'm not sure if I should avoid being near it or not. I don't think I've been told this for this treatment but was for my previous biologic.
Juliesb
in
NRAS
2 years ago
A very happy (and long-overdue) update
I thought that today, being World Encephalitis Day, I should finally write the post that I have been meaning to write for months. I can’t believe it’s been six months since my last update, and my oh my how different things are now! A brief recap: my husband was diagnosed with HSE In June 2021. He was
I thought that today, being World Encephalitis Day, I should finally write the post that I have been meaning to write for months. I can’t believe it’s been six months since my last update, and my oh my how different things are now! A brief recap: my husband was diagnosed with HSE In June 2021. He was
every_cloud
in
Encephalitis International
2 years ago
Rituximab Dental care
Hello. I was wondering if it is ok to have some dental work done after my Rituximab infusion. Thanks 😊
Hello. I was wondering if it is ok to have some dental work done after my Rituximab infusion. Thanks 😊
ks1966
in
NRAS
2 years ago
Rituximab or Leflunomide
Having stopped rituximab in October after being informed there was no immunity for patients on it, I started leflunomide in the meantime until I got all my vaccines and I find I’m feeling really well on it. Has anyone else tried Leflunomide and what are your thoughts on it.
Having stopped rituximab in October after being informed there was no immunity for patients on it, I started leflunomide in the meantime until I got all my vaccines and I find I’m feeling really well on it. Has anyone else tried Leflunomide and what are your thoughts on it.
Maverick77
in
LUPUS UK
2 years ago
Lupus Nephritis and Cyclophosphamide
Hi all, This is my first post here although I've been on this forum for a while. I'm 23 and got diagnosed with SLE and lupus nephritis a year ago in March. I've never had the nephritis treated until recently however. I take 400mg hydroxychloroquine (I should take 300mg based on weight though) and have
Hi all, This is my first post here although I've been on this forum for a while. I'm 23 and got diagnosed with SLE and lupus nephritis a year ago in March. I've never had the nephritis treated until recently however. I take 400mg hydroxychloroquine (I should take 300mg based on weight though) and have
CPower
in
LUPUS UK
2 years ago
How common is relapse within twelve months of rituximab?
How soon after rituximab did relapse happen for you? I was diagnosed with GPA December 2020, by March 18th I had my 2 covid jabs rushed to only 3 weeks apart then had 2 6 hour rounds of rituximab. Now it looks like I've relapsed. Is this common? I'm 34 with 2 young children and I'm petrified I'm not
How soon after rituximab did relapse happen for you? I was diagnosed with GPA December 2020, by March 18th I had my 2 covid jabs rushed to only 3 weeks apart then had 2 6 hour rounds of rituximab. Now it looks like I've relapsed. Is this common? I'm 34 with 2 young children and I'm petrified I'm not
Vqueen
in
Vasculitis UK
2 years ago
Ibrutinib Resistance
Hello Everyone, I have been a long time reader of this forum and it has been extremely helpful. My mother (73 yrs old) was diagnosed with CLL about 8 years ago. She went through several treatments: Chlorambucil for 3 yrs, then Bendamustine/Rituximab (6 cycles) with remission for 1.5 yrs. Afterwards,
Hello Everyone, I have been a long time reader of this forum and it has been extremely helpful. My mother (73 yrs old) was diagnosed with CLL about 8 years ago. She went through several treatments: Chlorambucil for 3 yrs, then Bendamustine/Rituximab (6 cycles) with remission for 1.5 yrs. Afterwards,
Adel1
in
CLL Support
2 years ago
Booster shot on Rituximab ?
Booster shot on Rituximab. Hi guys have just finished 4 week Rituxumab infusions platelets have gone up to 230. Do you know how long after finishing Ritux I will be able to have a booster shot? Am desperate to fly Australia to NZ to visit my adult children it’s been 3 years.
Booster shot on Rituximab. Hi guys have just finished 4 week Rituxumab infusions platelets have gone up to 230. Do you know how long after finishing Ritux I will be able to have a booster shot? Am desperate to fly Australia to NZ to visit my adult children it’s been 3 years.
Loftyc
in
ITP Support Association
2 years ago
Angel54
Hi anyone experienced anything similar ,been on Abatacept about two year ,since having my Covid vaccine and antibiotics for chest infection about two month ago I have felt so unwell, I am currently on 20 mg steroids and all I’m experiencing is pain everywhere and burning pain all over body . Last
Hi anyone experienced anything similar ,been on Abatacept about two year ,since having my Covid vaccine and antibiotics for chest infection about two month ago I have felt so unwell, I am currently on 20 mg steroids and all I’m experiencing is pain everywhere and burning pain all over body . Last
Angels54
in
NRAS
2 years ago
Rituximab?
Hello my dear community members, I would like to start off by thanking each of you for taking the time to reply to my previous question. We are all in this fight together and having your support means more to me than you know. I was recommended by by physician to start with Ocrevus as my Ms has been
Hello my dear community members, I would like to start off by thanking each of you for taking the time to reply to my previous question. We are all in this fight together and having your support means more to me than you know. I was recommended by by physician to start with Ocrevus as my Ms has been
canimambo
in
My MSAA Community
2 years ago
Cashing in life insurance and pensions
I have been diagnosed with cll/sll for 4 years now. Chemotherapy was not successful and now on 2 years of venetoclax and Rituximab in the UK. Has anyone been in a position, due to incurable cancer, to cash in life insurance and pensions? Due to also having MS and bot responding to chemotherapy - hope
I have been diagnosed with cll/sll for 4 years now. Chemotherapy was not successful and now on 2 years of venetoclax and Rituximab in the UK. Has anyone been in a position, due to incurable cancer, to cash in life insurance and pensions? Due to also having MS and bot responding to chemotherapy - hope
bettyba
in
CLL Support
2 years ago
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