Search
Search
About
Log in
Join
Experiences with
Cetuximab
Posts
Communities
2,435 public posts
Filter results
jak for RA
i would like to know if jak for RA is suirable as i have tried TNF And Rituximab and nothing only side efects
i would like to know if jak for RA is suirable as i have tried TNF And Rituximab and nothing only side efects
Al1954
in
NRAS
2 years ago
Co Trimoxazole
Hope everyone is ok with this heat. I just wanted to ask if anyone is on a maintenance drug Co Trimoxazole & if so how long have you been in remission. My consultant has said that by December we will start steroid reduction & cease rituximab but carry on with the co Trimoxazole. Although i am excited
Hope everyone is ok with this heat. I just wanted to ask if anyone is on a maintenance drug Co Trimoxazole & if so how long have you been in remission. My consultant has said that by December we will start steroid reduction & cease rituximab but carry on with the co Trimoxazole. Although i am excited
juli-pa
in
Vasculitis UK
2 years ago
NUREX - 2127 ONE YEAR ANNIVERSARY STARTING CYCLE 14
Here's an update of my second clinical trial. I started this BTK degraeder November 11, 2021, now here I am, over a year later and doing really well. Other than neutropenia, and having to get a monthly neulasta injection, my blood counts have continued trending to normal levels. Here are my starting
Here's an update of my second clinical trial. I started this BTK degraeder November 11, 2021, now here I am, over a year later and doing really well. Other than neutropenia, and having to get a monthly neulasta injection, my blood counts have continued trending to normal levels. Here are my starting
steve5441
in
CLL Support
2 years ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Evusheld after Rituximab
Hi Does anyone know how long after Rituximab infusions do you have to wait before you can have the Evusheld injections?
Hi Does anyone know how long after Rituximab infusions do you have to wait before you can have the Evusheld injections?
Birmingham64
in
Vasculitis UK
2 years ago
Latest Fish test results??
I just had another Fish test completed due to the fact that the Ibrutinib that I have been on for almost 5 years is not working as well anymore. In my first Fish test many many years ago I was Trisomy 12 .The new report now shows that I have acquired both deletions of 13q and 17p and still have Trisomy
I just had another Fish test completed due to the fact that the Ibrutinib that I have been on for almost 5 years is not working as well anymore. In my first Fish test many many years ago I was Trisomy 12 .The new report now shows that I have acquired both deletions of 13q and 17p and still have Trisomy
rcusher
in
CLL Support
2 years ago
Need Urgent help for CAR-T therapy
Hello! My friend, a 57 year old male, who resides in India, has been suggested CAR-T therapy as a last resort. Here’s his cancer chronology 9/2009 - DX - Grade 2 Follicular Lymphoma. 9/09 to 11/2016 - W&W 11/2016 - NHL - infiltrating liver 11/2016 to 3/17 - 6 rounds of R-CHOP 4-17 to 11
Hello! My friend, a 57 year old male, who resides in India, has been suggested CAR-T therapy as a last resort. Here’s his cancer chronology 9/2009 - DX - Grade 2 Follicular Lymphoma. 9/09 to 11/2016 - W&W 11/2016 - NHL - infiltrating liver 11/2016 to 3/17 - 6 rounds of R-CHOP 4-17 to 11
nuji
in
CLL Support
2 years ago
Covid testing PCR or LFT tests
My husband has Bronchiectasis, Asthma and other lung issues as well as Rheumatoid Arthritis, Peripheral Neuropathy , Vasculitis, Heart Failure and more. As he was CEV he was sent a PCR test in the event he caught covid and more recently the NHS sent him some LFTs. Fortunately he has not had to
My husband has Bronchiectasis, Asthma and other lung issues as well as Rheumatoid Arthritis, Peripheral Neuropathy , Vasculitis, Heart Failure and more. As he was CEV he was sent a PCR test in the event he caught covid and more recently the NHS sent him some LFTs. Fortunately he has not had to
sunshineday
in
Lung Conditions Community Forum
2 years ago
Rituxmab
I have RA with ana (+). Went on orencia and it's not working anymore. Rhemuy wants to stop orencia and start rituximab. I'm wondering if you guys can talk about your experience with the Rituximab.I know everyone's experiences are different on different biologics. I'm also wondering why I wasn't
I have RA with ana (+). Went on orencia and it's not working anymore. Rhemuy wants to stop orencia and start rituximab. I'm wondering if you guys can talk about your experience with the Rituximab.I know everyone's experiences are different on different biologics. I'm also wondering why I wasn't
Avi2013
in
NRAS
2 years ago
sleepy
Can I ask if anyone gets really sleepy when the Rituximab is due? My partner is having his next week and for the past couple of weeks he’s slept most of the day. Just wondering if it’s to do with this. Thanks for taking the time to read this x
Can I ask if anyone gets really sleepy when the Rituximab is due? My partner is having his next week and for the past couple of weeks he’s slept most of the day. Just wondering if it’s to do with this. Thanks for taking the time to read this x
Dot1958
in
Vasculitis UK
2 years ago
IgHV - unmutated and Acalabrutinib
Saw my CLL specialist yesterday and he had the results of the IgHV testing he requested. It seems I am unmutated status which isn't great news. At the time of starting treatment, we were in 1st year of pandemic and Acalabrutinib was offered. As he said normally I would have been offered FCR because
Saw my CLL specialist yesterday and he had the results of the IgHV testing he requested. It seems I am unmutated status which isn't great news. At the time of starting treatment, we were in 1st year of pandemic and Acalabrutinib was offered. As he said normally I would have been offered FCR because
Eucalyptus22
in
CLL Support
2 years ago
An injection of iloprost and rituximab for systemic sclerosis Raynaud's phenomenon
Has anyone received an injection of iloprost and rituximab? After it is received, is there any improvement noticed? Also does insurance cover these 2 medicine?
Has anyone received an injection of iloprost and rituximab? After it is received, is there any improvement noticed? Also does insurance cover these 2 medicine?
Lo1234
in
Scleroderma & Raynaud's UK (SRUK)
2 years ago
Rituximab
has anybody experienced flue like symptoms or fevers on Rituximab? Or chronic sinusitis?
has anybody experienced flue like symptoms or fevers on Rituximab? Or chronic sinusitis?
Hidden
in
Vasculitis UK
2 years ago
Follow up to Rituximab COVID paxlovid...
Follow up: I finished paxlovid 7/16. Felt ok until 7/22 with Different symptoms from 7/11 ED visit but similar to pneumonia and sinus congestion. First available GP appt was today. COVID positive again! (Yes, fully vaxxed, wear mask, live alone, isolate, etc.) Also, flu neg. Doctor also suspects bacterial
Follow up: I finished paxlovid 7/16. Felt ok until 7/22 with Different symptoms from 7/11 ED visit but similar to pneumonia and sinus congestion. First available GP appt was today. COVID positive again! (Yes, fully vaxxed, wear mask, live alone, isolate, etc.) Also, flu neg. Doctor also suspects bacterial
irishponies
in
Vasculitis UK
2 years ago
vasovagal syncope fainting - anyone else have this?
I’m in a Gpa flare up of extreme nasal, breathing,coughing, choking episodes, reflux especially at night.I went to go to bathroom in the morning and without warning went down flat on my face damaging an already damaged nose.Also facial bruising. Thankfully I don’t live alone and the alarm was raised
I’m in a Gpa flare up of extreme nasal, breathing,coughing, choking episodes, reflux especially at night.I went to go to bathroom in the morning and without warning went down flat on my face damaging an already damaged nose.Also facial bruising. Thankfully I don’t live alone and the alarm was raised
egre
in
Vasculitis UK
2 years ago
Rituximab covid paxlovid etc...
Hello, I managed to get COVID despite precautions such as vaccinations, mask wearing, isolation, etc. I had a fever, and painful, loud breathing, etc. Rheumatologist (phone consult) sent me to emergency dept at hospital. That doctor prescribed paxlovid for 5 days. Rheumatologist stopped methotrexate
Hello, I managed to get COVID despite precautions such as vaccinations, mask wearing, isolation, etc. I had a fever, and painful, loud breathing, etc. Rheumatologist (phone consult) sent me to emergency dept at hospital. That doctor prescribed paxlovid for 5 days. Rheumatologist stopped methotrexate
irishponies
in
Vasculitis UK
2 years ago
Still testing positive after 10 weeks
Hello everyone. I need some help. My mum has CLL and had been on venetoclax + rituximab since November 2021 (rituximab suspended early due to lowered neutrophils). We had several mishaps (e.g. frequent diarrhoea) however she was quite well until she got on 16 May and she tested covid positive. She
Hello everyone. I need some help. My mum has CLL and had been on venetoclax + rituximab since November 2021 (rituximab suspended early due to lowered neutrophils). We had several mishaps (e.g. frequent diarrhoea) however she was quite well until she got on 16 May and she tested covid positive. She
Marymary19
in
CLL Support
2 years ago
Role of RITUXIMAB in CLL treatment in combination with Venetoclax
Hello to all fellows in the CLL journey! Has anyone found a clear answer as to what exactly is the necessity and / or contribution of Rituximab when used together with Venetoclax in our CLL treatment? As far as I am aware there is no clinical study comparing results of V+R treatment as opposed to V
Hello to all fellows in the CLL journey! Has anyone found a clear answer as to what exactly is the necessity and / or contribution of Rituximab when used together with Venetoclax in our CLL treatment? As far as I am aware there is no clinical study comparing results of V+R treatment as opposed to V
RamsesII
in
CLL Support
2 years ago
Finishing 2 years of Rituxan and Venetoclax
Hello everyone, My 46 yo husband was dx with CLL in 2009. He was treated with the following: - FCR (4 year remission) - Imbruvica (worked for 5 years but caused A-fib) - And since 2020, 6 cycles of Rituxan and 2 years of Venetoclax CBCs are okay except for Platelets just below normal (around 120
Hello everyone, My 46 yo husband was dx with CLL in 2009. He was treated with the following: - FCR (4 year remission) - Imbruvica (worked for 5 years but caused A-fib) - And since 2020, 6 cycles of Rituxan and 2 years of Venetoclax CBCs are okay except for Platelets just below normal (around 120
Carolinaj
in
CLL Support
2 years ago
Five-year results for the iFCG regimen: first-line treatment of CLL patients with mutated IGHV and without del(17p)/TP53 mutation
Published 4 months ago, https://journals.lww.com/hemasphere/Fulltext/2022/06003/S149__LONG_TERM_OUTCOMES_OF_IFCG_REGIMEN_FOR.50.aspx is an update of the Phase 2 study S149, initiated in 2017 and previously reported here in "Novel Combos Are Shaking Up the CLL Landscape but FCR still has its place" https
Published 4 months ago, https://journals.lww.com/hemasphere/Fulltext/2022/06003/S149__LONG_TERM_OUTCOMES_OF_IFCG_REGIMEN_FOR.50.aspx is an update of the Phase 2 study S149, initiated in 2017 and previously reported here in "Novel Combos Are Shaking Up the CLL Landscape but FCR still has its place" https
bennevisplace
in
CLL Support
2 years ago
What a journey
THANKS FOR THE ADD....Back in 2010 I was sent to a local oncologist, and he was my doctor for 3 years, he pushed for FCR straight out of the gate, I had done so much reading and research, I knew better than doing it. So, a trip to the James to a CLL specialist, after multiple tests and a lot of sole
THANKS FOR THE ADD....Back in 2010 I was sent to a local oncologist, and he was my doctor for 3 years, he pushed for FCR straight out of the gate, I had done so much reading and research, I knew better than doing it. So, a trip to the James to a CLL specialist, after multiple tests and a lot of sole
CAM729
in
CLL Support
2 years ago
1
...
15
16
17
...
100
Next page
10
20
30
40
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
CLL Support
989 results
NRAS
553 results
Vasculitis UK
324 results
View top 10 communities
Sort by
Most Relevant
Newest