An injection of iloprost and rituximab for systemic sclerosis Raynaud's phenomenon

[Lo1234]

Has anyone received an injection of iloprost and rituximab? After it is received, is there any improvement noticed? Also does insurance cover these 2 medicine?

[LucyJean]

Hi there, these drugs do completely different things. They are not given as a combined treatment. They will be giving you the Iloprost to help with the Raynauds, and poor circulation in general. They will be giving you the Rituximab to try and control the Scleroderma, to reduce/change the activity of your immune system.I can't comment on insurance, in the UK it comes under the NHS and is not given by any private providers.

All my best

Lucy x

[Joanne_Evans030365]

Hi, I've had illiprost infusions a few times, it does seem to improve the blood flow to my fingers, but only if it's kept at every 3 months, after that it just goes down hill. As for rituximab, I only had 1 dose, didn't have any benefits at all.

[trunchalobesity]

As Lucy Jean says Rituximab is a immune suppressant biologic given by infusion. It takes a while to notice benefits but is widely used to slow the Scleroderma.

Illoprost by infusion sometimes 3-6 monthly benefits Raynauds as it is a vasco dilator. It opens the blood vessels in other words.

I’m guessing you may be in America? Here in the UK these drugs are available free through the NHS.

Best wishes

[Lo1234 in reply to trunchalobesity]

I'm not from America. Im from Nepal. Due to the server vasculitis I recently have had my foot amputation.

[honeybug in reply to Lo1234]

Soooooo sorry Lo1234

Best wishes for your full recovery ❤️‍🩹.

EJ 🤝🤗♥️🙏🕊🌿🌸🦋

[Bruffingtons2 in reply to trunchalobesity]

Hello . I have had two sessions with Rituximab within the past couple of months.I have been told it can help Scleraderma but not in what way. I have felt no change so far but obviously needs time due to ‘work with’

the complex immune system.

Nobody has actually told me how it helps scleraderma?

Does anybody out there have a feeling in their feet, ankle joints, arms and legs feel like it is bound by very very tight cling film,

Toes fees tight, nails have grown with a chalky white substance coming from toe cuticles.

I live in the UK,

I am so sorry to hear about your surgery trunchalobesity. I hope you are getting support and those around are able to help you positively, a lot to adjust to in all do directions,

[trunchalobesity]

So sorry to hear that. I hope that you are recovering well and that you have the treatment you need as soon as possible x

Best wishes x

[Chakula]

My daughter has been treated with yearly Iloprost infusions for 5 years. Have helped her a lot.