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flu and COVID vaccine at the same time (or few days apart)?
Some sources indicate that it's safe to receive a flu and COVID vaccine at the same time - and as a possible downside, cite modest side effects in a small number of people, i.e.: https://www.cidrap.umn.edu/news-perspective/2022/07/more-mostly-mild-side-effects-when-flu-vaccine-given-covid-booster https
Some sources indicate that it's safe to receive a flu and COVID vaccine at the same time - and as a possible downside, cite modest side effects in a small number of people, i.e.: https://www.cidrap.umn.edu/news-perspective/2022/07/more-mostly-mild-side-effects-when-flu-vaccine-given-covid-booster https
mantana
in
CLL Support
2 years ago
DENTIST VISIT & COVID PRECAUTIONS
When I visited the dentist in 2020 and 2021 the dentist and her assistant were well masked-up with at least FFP3s. But when I visited this year in August both were wearing just the ordinary light blue medical masks (the receptionist and other patients wore no masks at all). I am on Rituximab (for RA
When I visited the dentist in 2020 and 2021 the dentist and her assistant were well masked-up with at least FFP3s. But when I visited this year in August both were wearing just the ordinary light blue medical masks (the receptionist and other patients wore no masks at all). I am on Rituximab (for RA
Jimminey
in
NRAS
2 years ago
Concise summary of the treatment history of CLL from the 1950s to the present, by Dr Bruce Cheson, contributor to the iwCLL and much more
I knew Chlorambucil use for CLL dated back to the 1950's but I hadn't appreciated that was also the case for cyclophosphamide, (the 'C' in FCR). It took until the early 90's before Fludarabine, the 'F' in FCR joined, then Rituximab (the 'R') just over 20 years ago, started the long reign of FCR as the
I knew Chlorambucil use for CLL dated back to the 1950's but I hadn't appreciated that was also the case for cyclophosphamide, (the 'C' in FCR). It took until the early 90's before Fludarabine, the 'F' in FCR joined, then Rituximab (the 'R') just over 20 years ago, started the long reign of FCR as the
AussieNeil
Partner
in
CLL Support
2 years ago
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Covid-Induced ITP Recovery Questions
At the end of August 2022, I was diagnosed with covid-induced ITP. I only caught it because all my extremities were covered in little red dots (petechiae). I made a freaking-out visit to the ER, and they diagnosed me after they did labs and my platelet count came back 0. All these weeks later (October
At the end of August 2022, I was diagnosed with covid-induced ITP. I only caught it because all my extremities were covered in little red dots (petechiae). I made a freaking-out visit to the ER, and they diagnosed me after they did labs and my platelet count came back 0. All these weeks later (October
thestrugglebus
in
ITP Support Association
2 years ago
Evusheld availability in UK
Actually, I did receive a dose of Evusheld back in January 2021 as part of the PROVENT trial when it was called AZD7442. It was a painless intramuscular injection in each buttock. Unfortunately, it only lasts for 6-12 months. I have managed to avoid Covid-19 so I am not sure that I have demonstrated
Actually, I did receive a dose of Evusheld back in January 2021 as part of the PROVENT trial when it was called AZD7442. It was a painless intramuscular injection in each buttock. Unfortunately, it only lasts for 6-12 months. I have managed to avoid Covid-19 so I am not sure that I have demonstrated
RichardGPA65yrs
in
Vasculitis UK
2 years ago
Any recent experiences of AIHA developing in progressive CLL - particularly in those treated with or awaiting Venetoclax treatment?
Hi all. Well, 2nd line treatment day one came yesterday, and I dutifully scrubbed up and turned up at the hospital for 0830 to start my planned Venetoclax ramp up. I was somewhat apprehensive tbh, partly because of side effects, partly because of having to hang around haem/onc waiting room for 6 hrs
Hi all. Well, 2nd line treatment day one came yesterday, and I dutifully scrubbed up and turned up at the hospital for 0830 to start my planned Venetoclax ramp up. I was somewhat apprehensive tbh, partly because of side effects, partly because of having to hang around haem/onc waiting room for 6 hrs
jibs60
in
CLL Support
2 years ago
Lupus / Rituximab Infusion and Stomach problems
Hi, I had COVID Vaccine (no 5) on 10 of August and 10 days later caught COVID for 1st time and on 22 Sept had my 6 monthly Infusion. I felt fairly awful while I had COVID cough, aches, stomach upset, very bad fatigue, loss of taste & smell etc. I have had bad stomach bloating, cramps after eating
Hi, I had COVID Vaccine (no 5) on 10 of August and 10 days later caught COVID for 1st time and on 22 Sept had my 6 monthly Infusion. I felt fairly awful while I had COVID cough, aches, stomach upset, very bad fatigue, loss of taste & smell etc. I have had bad stomach bloating, cramps after eating
Haired
in
LUPUS UK
2 years ago
Systemic sclerosis
Hello everyone. I would like to know about health system in the UK and the rituximab and iloprost.
Hello everyone. I would like to know about health system in the UK and the rituximab and iloprost.
Lo1234
in
Scleroderma & Raynaud's UK (SRUK)
2 years ago
Rituximab and Flu Vaccination
Hi, I am due my next Rituximab infusion tomorrow. I was wondering how long after infusion do I have to wait before taking Flu Vaccination ? Many thanks, Marian
Hi, I am due my next Rituximab infusion tomorrow. I was wondering how long after infusion do I have to wait before taking Flu Vaccination ? Many thanks, Marian
Haired
in
LUPUS UK
2 years ago
A brief update post Venetoclax+Rituximab - treatment number 4
Many of you have been kind enough to ask about my current situation. For those not aware, briefly - I relapsed within days of stopping Ibrutinib (due to funding and end of the trial) which I had received as part of the FLAIR trial. I had 7cm nodes under my arms which had come up almost overnight
Many of you have been kind enough to ask about my current situation. For those not aware, briefly - I relapsed within days of stopping Ibrutinib (due to funding and end of the trial) which I had received as part of the FLAIR trial. I had 7cm nodes under my arms which had come up almost overnight
Jm954
Administrator
in
CLL Support
2 years ago
Problems with Venetoclax & Obinutuzumab-feeling low about the future
I started V& O in the Royal Marsden, London back in June, and the first few days which I spent as an inpatient were pretty tough. I have had about 4 O infusions and six weeks of the V but the V has now been suspended (about 10-14 days ago) because of low platelets (last at 35-have been as low as 14 after
I started V& O in the Royal Marsden, London back in June, and the first few days which I spent as an inpatient were pretty tough. I have had about 4 O infusions and six weeks of the V but the V has now been suspended (about 10-14 days ago) because of low platelets (last at 35-have been as low as 14 after
ornstin
in
CLL Support
2 years ago
Unexpected remission - Maybe it will help (even one person)
Hi all, I was diagnosed with ITP in March 2021 with a count of 3, however it began October 2020. Until then I was just normal and quite fit and active, around that time I caught a virus and just never seemed to get better I was exhausted and developed digestive issues (trapped gas) it was soo very
Hi all, I was diagnosed with ITP in March 2021 with a count of 3, however it began October 2020. Until then I was just normal and quite fit and active, around that time I caught a virus and just never seemed to get better I was exhausted and developed digestive issues (trapped gas) it was soo very
Loftyc
in
ITP Support Association
2 years ago
Immunoglobulin substitution in patients with secondary antibody deficiency in chronic lymphocytic leukemia and multiple myeloma...
Please excuse me, but I believe that this study will be "lost" if I cite it in connection with the other topic I posted today. Therefore, I am posting it as a new topic. The study concerns important data and affects at least 1/3 of all patients with CLL. Quotes: Methods: This was a retrospective
Please excuse me, but I believe that this study will be "lost" if I cite it in connection with the other topic I posted today. Therefore, I am posting it as a new topic. The study concerns important data and affects at least 1/3 of all patients with CLL. Quotes: Methods: This was a retrospective
Yalokin
in
CLL Support
2 years ago
Follow up on low platelets and stopping Acalabrutinib
Hi to all my CLL friends , i was doing well after 9 months on calquence ... i had minimal side effects which were occasional stabbing pains in my joints and muscle stiffness . I also had petechiae in my lower legs and feet as well as purpura on my hands and arms . to me this was no big deal compared
Hi to all my CLL friends , i was doing well after 9 months on calquence ... i had minimal side effects which were occasional stabbing pains in my joints and muscle stiffness . I also had petechiae in my lower legs and feet as well as purpura on my hands and arms . to me this was no big deal compared
craterlake
in
CLL Support
2 years ago
People's lived experience of complete remission after long illness?
Hello. Just joined, first post. Quick background: dx in 2008 when I was 43 yo; FCR 2011 → MRD (minimal residual disease); lenolidamide 2011-14; zanibrutrinib 2014-2019; BCl2 inhibitor 2019-now; adenocarcinoma lung removed 2018. Current tx is a trial BCl2 inhibitor (Beigene). I entered the trial at
Hello. Just joined, first post. Quick background: dx in 2008 when I was 43 yo; FCR 2011 → MRD (minimal residual disease); lenolidamide 2011-14; zanibrutrinib 2014-2019; BCl2 inhibitor 2019-now; adenocarcinoma lung removed 2018. Current tx is a trial BCl2 inhibitor (Beigene). I entered the trial at
Greyhound23
in
CLL Support
2 years ago
Advice pls
Had my Blood test in readiness for my next Rituximab which I was told could be 2 months wait but cant get thro to anyone to get a date. I have to have my 2nd Shingrix jab on 12th (shingles). I was booked for my 5th Covid on 10th but mayb too close. I want to get them out the way as I think there has
Had my Blood test in readiness for my next Rituximab which I was told could be 2 months wait but cant get thro to anyone to get a date. I have to have my 2nd Shingrix jab on 12th (shingles). I was booked for my 5th Covid on 10th but mayb too close. I want to get them out the way as I think there has
Evie3
in
NRAS
2 years ago
Good news and Bad news?
( IGHV mutated, No 17P or TP53 deletion and borderline for 13Q 6.5% and W&W for 18 years) I recently had bloods drawn and to my surprise WBC went down from 29K to 24K and Hgb is holding steady at between 10.5 - 11.0. However, platelets have fallen to 62 from 72 in just about four months. Otherwise
( IGHV mutated, No 17P or TP53 deletion and borderline for 13Q 6.5% and W&W for 18 years) I recently had bloods drawn and to my surprise WBC went down from 29K to 24K and Hgb is holding steady at between 10.5 - 11.0. However, platelets have fallen to 62 from 72 in just about four months. Otherwise
bertie260
in
CLL Support
2 years ago
Ever Elusive Remission
Everyone is so supportive in this group! Thanks! I admit to being jealous every time I read "I am in remission". I myself, am NOT in remission. Meds: Prednisone 5 mg daily (20 mg in Aug 2021 through March 2022 - almost no taper just reduced to 5 due to side effects) Methotrexate 20 mg since Dec 2021
Everyone is so supportive in this group! Thanks! I admit to being jealous every time I read "I am in remission". I myself, am NOT in remission. Meds: Prednisone 5 mg daily (20 mg in Aug 2021 through March 2022 - almost no taper just reduced to 5 due to side effects) Methotrexate 20 mg since Dec 2021
irishponies
in
Vasculitis UK
2 years ago
CoVid 19 and CLL
Hi everyone, As I consider how to live with CLL and Covid with a spouse that is NOT on board with logical approach to me safety, I am wondering how all of you are protecting yourselves with spouses, young or grown children etc. Questions are do they all wear masks when out of the home or are willing
Hi everyone, As I consider how to live with CLL and Covid with a spouse that is NOT on board with logical approach to me safety, I am wondering how all of you are protecting yourselves with spouses, young or grown children etc. Questions are do they all wear masks when out of the home or are willing
skipro
in
CLL Support
2 years ago
rituxan treatment
My CLL has caused a condition called warm autoimmune hemolytic anemia and they are wanting to start Rituximab to keep my hgb counts from tanking. I am not a big fan of treatments and have refused treatments several times for other cancers. I am just wondering about your alls experience with this
My CLL has caused a condition called warm autoimmune hemolytic anemia and they are wanting to start Rituximab to keep my hgb counts from tanking. I am not a big fan of treatments and have refused treatments several times for other cancers. I am just wondering about your alls experience with this
Bluegillking
in
CLL Support
2 years ago
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