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lymphocytes/neutrophils
Hello everyone, My name is Kim and I’m a 57 year old female with CLL. I was diagnosed 13 years ago and underwent aggressive chemo as a result. After 5 of 6 of fludarabine cyclophosphamide rituximab I went into semi remission and now after many hospitalizations with infection have IVIG once a month
Hello everyone, My name is Kim and I’m a 57 year old female with CLL. I was diagnosed 13 years ago and underwent aggressive chemo as a result. After 5 of 6 of fludarabine cyclophosphamide rituximab I went into semi remission and now after many hospitalizations with infection have IVIG once a month
Kimsome
in
CLL Support
8 months ago
Things that made a difference...
Trigger: Late loss and live birth mentions Quick list of things that worked for me after 3 years of IVF treatment , 6 rounds, a late loss at 18 weeks, and finally a live birth at 43 years old. I was lucky to have lots of eggs (averaging 14 each collection), good number of blasts (averaging 4 per
Trigger: Late loss and live birth mentions Quick list of things that worked for me after 3 years of IVF treatment , 6 rounds, a late loss at 18 weeks, and finally a live birth at 43 years old. I was lucky to have lots of eggs (averaging 14 each collection), good number of blasts (averaging 4 per
SB342
in
Fertility Network UK
8 months ago
SI joint fusion
Can anyone share what a typical recovery would entail?
Can anyone share what a typical recovery would entail?
Jeaniem130
in
Arthritis Action
8 months ago
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9 years PMR and counting!
Hello all, firstly, I cannot express my gratitude for this site well enough. It has educated me, waylaid my apprehensions and relieved my moments of aloneness - thank you all. My background is ICU nursing and then psychologist in private practice specialising in aged competency issues, head injuries
Hello all, firstly, I cannot express my gratitude for this site well enough. It has educated me, waylaid my apprehensions and relieved my moments of aloneness - thank you all. My background is ICU nursing and then psychologist in private practice specialising in aged competency issues, head injuries
AussieKid
in
PMRGCAuk
8 months ago
skin issue
I have had CLL for about four years. I am currently on active surveillance and treatment naive. I had a spinal fusion on July 17 for L4-5 due to Spondylolisthesis. I feel like I’m recovering as well as I can expect from the surgery. My hemoglobin dropped to 10 post surgery so I have been very tired but
I have had CLL for about four years. I am currently on active surveillance and treatment naive. I had a spinal fusion on July 17 for L4-5 due to Spondylolisthesis. I feel like I’m recovering as well as I can expect from the surgery. My hemoglobin dropped to 10 post surgery so I have been very tired but
BlueJk
in
CLL Support
9 months ago
Grover’s disease
I have had CLL for about five years. I am currently on active surveillance and treatment naive. I had a spinal fusion on July 17 for L4-5 due to Spondylolisthesis. I feel like I’m recovering as well as I can expect from the surgery. My hemoglobin dropped to 10 post surgery so I have been very tired but
I have had CLL for about five years. I am currently on active surveillance and treatment naive. I had a spinal fusion on July 17 for L4-5 due to Spondylolisthesis. I feel like I’m recovering as well as I can expect from the surgery. My hemoglobin dropped to 10 post surgery so I have been very tired but
BlueJk
in
CLL America Support
9 months ago
Getting IVIG prophylactically?
Hi, everyone - My husband has been on Calquence since April 2021 and responding well. Unfortunately, between that and the CLL it's managing, his compromised immune system has lately become a welcome harbor for infection - he was in hospital for several weeks after a staph infection was found in his
Hi, everyone - My husband has been on Calquence since April 2021 and responding well. Unfortunately, between that and the CLL it's managing, his compromised immune system has lately become a welcome harbor for infection - he was in hospital for several weeks after a staph infection was found in his
OaktownA
in
CLL Support
9 months ago
First IVIG infusion
I've learned so very much here in this group, from so many here, Thank you all. Although I post very little and do read and am concerned for everyone. I want to ask what are some of your experiences with getting IVIG ? Side effects ? Reactions ? I've been told very little by Dr and PA. Dr did say
I've learned so very much here in this group, from so many here, Thank you all. Although I post very little and do read and am concerned for everyone. I want to ask what are some of your experiences with getting IVIG ? Side effects ? Reactions ? I've been told very little by Dr and PA. Dr did say
Lo16
in
CLL Support
9 months ago
My only PGTA embryo has failed to implant
Hi all It's been such a deflating week. We transferred our only PGTA tested embryo last week and it has failed to implant. We honestly worked so hard to maximise our chances and have spent so much money. It's even more frustrating because of the time we spent which now feels totally wasted. We spent
Hi all It's been such a deflating week. We transferred our only PGTA tested embryo last week and it has failed to implant. We honestly worked so hard to maximise our chances and have spent so much money. It's even more frustrating because of the time we spent which now feels totally wasted. We spent
Skittles11
in
Fertility Network UK
10 months ago
Mylo Fibrosis, et al
Hello. I'm new to this community and frankly new to social networking on health. My abbreviated story is that I transitioned to Mylo Fibrosis (MF) a few years ago, after dealing with Polycythemia Vera (PV) for 25+ years (I'm 66 years old). The PV regimen was inclusive of Phlebotomies, meds such as Agrilyn
Hello. I'm new to this community and frankly new to social networking on health. My abbreviated story is that I transitioned to Mylo Fibrosis (MF) a few years ago, after dealing with Polycythemia Vera (PV) for 25+ years (I'm 66 years old). The PV regimen was inclusive of Phlebotomies, meds such as Agrilyn
luvinretirement
in
MPN Voice
10 months ago
PIP Application form (Typing replies)
A little about me.I have been diagnosed with :- Lupus Rheumatoid Arthritis Fibromyalgia Underactive thyroid Hyperparathyrodism Carpal tunnel syndrome Osteoarthritis Depression Lower back spinal fusion Constant huge fatigue and brain fog I am planning on applying for PIP for the first time and
A little about me.I have been diagnosed with :- Lupus Rheumatoid Arthritis Fibromyalgia Underactive thyroid Hyperparathyrodism Carpal tunnel syndrome Osteoarthritis Depression Lower back spinal fusion Constant huge fatigue and brain fog I am planning on applying for PIP for the first time and
SLEepyhead123
in
NRAS
9 months ago
CAR-T Trial Update #3
Hello friends, I had planned on updating everyone much sooner, but life got in the way a bit. Last I wrote, I had received my T-cells back on June 5, 2023. The first few days were totally uneventful. I was walking the halls a lot, staying active, reading, and getting dressed in regular clothing every
Hello friends, I had planned on updating everyone much sooner, but life got in the way a bit. Last I wrote, I had received my T-cells back on June 5, 2023. The first few days were totally uneventful. I was walking the halls a lot, staying active, reading, and getting dressed in regular clothing every
nvp815
in
CLL Support
11 months ago
Lori, NURSE
I worked in a homeless program where I worked 70-70 hours a week. I was in a BSN program full time. I caught meningitis from the homeless program. I went from a thriving healthy nurse who got the scholarship for school by being an exemplary Nurse. At first I thought it was a bad flu with light sensitivity
I worked in a homeless program where I worked 70-70 hours a week. I was in a BSN program full time. I caught meningitis from the homeless program. I went from a thriving healthy nurse who got the scholarship for school by being an exemplary Nurse. At first I thought it was a bad flu with light sensitivity
FeelingDesperate
in
Meningitis Now
10 months ago
alternative therapies
Hi, I was diagnosed in Feb2020, SLL, Unmutated, started treatment with FCR which gave me 18months before swollen nodes and spiking bloods showed the SLL was back. During my no treatment time I had a nasty case of Shingles which lasted 3 months then RSV which lasted 6 months. In September 22 I started
Hi, I was diagnosed in Feb2020, SLL, Unmutated, started treatment with FCR which gave me 18months before swollen nodes and spiking bloods showed the SLL was back. During my no treatment time I had a nasty case of Shingles which lasted 3 months then RSV which lasted 6 months. In September 22 I started
MareeM
in
CLL Support
11 months ago
Thrombocytopenia?
I have APS, Sjogren's, hypothyroidism and a host of other complaints. One of these is easy bruising and bleeding. So much so that I can no longer play with the dogs in case their claws catch me, I can't get to the outdoor tap because it's buried in the hedge that will attack me and wrench off a lump
I have APS, Sjogren's, hypothyroidism and a host of other complaints. One of these is easy bruising and bleeding. So much so that I can no longer play with the dogs in case their claws catch me, I can't get to the outdoor tap because it's buried in the hedge that will attack me and wrench off a lump
Coppernob
in
Hughes Syndrome APS Forum
11 months ago
Anxiety about all the immune based meds
HiIt looks like when I do an embryo transfer I will be on quite a large cocktail of medication. Recommendations for me are IVIG, steroids, clexane, asprin and intramuscular progesterone. I had an array of tests done which showed high NK cells and cytokines and an issue with the blood hence this medley
HiIt looks like when I do an embryo transfer I will be on quite a large cocktail of medication. Recommendations for me are IVIG, steroids, clexane, asprin and intramuscular progesterone. I had an array of tests done which showed high NK cells and cytokines and an issue with the blood hence this medley
Skittles11
in
Fertility Network UK
11 months ago
ivig advice and experiences
hi all I need to have IVIG for my frozen embryo transfer soon. We have been quoted 1.8k . …just wondering how much you paid and how many infusions of IVIG you needed? thanks!
hi all I need to have IVIG for my frozen embryo transfer soon. We have been quoted 1.8k . …just wondering how much you paid and how many infusions of IVIG you needed? thanks!
Poop84
in
Fertility Network UK
1 year ago
ERA results advice needed
Hi I have had my endo trio me test my Emma Alice and era results back. All is fine but I have elevated nk cell blood markers in particular cd19 ….I did a Google and it says it’s indicative of b lymphoma or an auto immune issue. Has anyone experienced this? I don’t want to worry but my consultant didn
Hi I have had my endo trio me test my Emma Alice and era results back. All is fine but I have elevated nk cell blood markers in particular cd19 ….I did a Google and it says it’s indicative of b lymphoma or an auto immune issue. Has anyone experienced this? I don’t want to worry but my consultant didn
Poop84
in
Fertility Network UK
1 year ago
Candida with Cellcept
I am being treated for primary ethromelalgia, Sjogrens, and Scleroderma. Has anyone had oral thrush associated with taking Cellcept? I have been on Cellcept for three months and IVIG for 14 months. Today, the inside of my lower lip exploded with white bumps. My research indicates that Candida is common
I am being treated for primary ethromelalgia, Sjogrens, and Scleroderma. Has anyone had oral thrush associated with taking Cellcept? I have been on Cellcept for three months and IVIG for 14 months. Today, the inside of my lower lip exploded with white bumps. My research indicates that Candida is common
HALNEUROPATHY
in
Scleroderma & Raynaud's UK (SRUK)
1 year ago
Zanubrutinib and water intake and sodium level
I am a 78 year old woman who has been on a very long watch and wait since 1999. I was diagnosed in 1998 and given a small amount of prednisone and chlorambucil and have received nothing since except ivig which started in June2021 due to infections. My watch and wait is over as I will be starting treatment
I am a 78 year old woman who has been on a very long watch and wait since 1999. I was diagnosed in 1998 and given a small amount of prednisone and chlorambucil and have received nothing since except ivig which started in June2021 due to infections. My watch and wait is over as I will be starting treatment
Bethsaida
in
CLL Support
1 year ago
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