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Ceftazidime intravenous infusion
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Has anyone had ACDF/Discectomy & Spinal Fusion Surgery?
Has anyone had this surgery? I’m a potential candidate for this is have large herniated discs in C5-6 & C7-8. My Neurosurgeon said that first option would be a nerve block of pain wasn’t improving (it isn’t) but I feel this would only help pain and wouldn’t sort out the problem itself. I’m a 30 year
Has anyone had this surgery? I’m a potential candidate for this is have large herniated discs in C5-6 & C7-8. My Neurosurgeon said that first option would be a nerve block of pain wasn’t improving (it isn’t) but I feel this would only help pain and wouldn’t sort out the problem itself. I’m a 30 year
nurseblue
in
Fibromyalgia Action UK
4 years ago
Has anyone had ACDF/Discectomy & Spinal Fusion Surgery?
Has anyone had this surgery? I’m a potential candidate for this is have large herniated discs in C5-6 & C7-8. My Neurosurgeon said that first option would be a nerve block of pain wasn’t improving (it isn’t) but I feel this would only help pain and wouldn’t sort out the problem itself. I’m a 30 year
Has anyone had this surgery? I’m a potential candidate for this is have large herniated discs in C5-6 & C7-8. My Neurosurgeon said that first option would be a nerve block of pain wasn’t improving (it isn’t) but I feel this would only help pain and wouldn’t sort out the problem itself. I’m a 30 year
nurseblue
in
Action on Pain
4 years ago
Has anyone had ACDF/Discectomy & Spinal Fusion surgery?
Has anyone had this surgery? I’m a potential candidate for this is have large herniated discs in C5-6 & C7-8. My Neurosurgeon said that first option would be a nerve block of pain wasn’t improving (it isn’t) but I feel this would only help pain and wouldn’t sort out the problem itself. I’m a 30 year
Has anyone had this surgery? I’m a potential candidate for this is have large herniated discs in C5-6 & C7-8. My Neurosurgeon said that first option would be a nerve block of pain wasn’t improving (it isn’t) but I feel this would only help pain and wouldn’t sort out the problem itself. I’m a 30 year
nurseblue
in
Pain Concern
4 years ago
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IVIG: Wondering if it's right for me? Your experience?
Had anyone with CLL and on ibrutinib had IVIG treatment? I'm thinking about it -- but would like more information; eg side effects, duration of benefits, etc. (Iwas inthe ICU rhis summer with viral pneumonia after a trip to Israel).
Had anyone with CLL and on ibrutinib had IVIG treatment? I'm thinking about it -- but would like more information; eg side effects, duration of benefits, etc. (Iwas inthe ICU rhis summer with viral pneumonia after a trip to Israel).
suz02
in
CLL Support
4 years ago
Post 717 Positively is the only way to look at ms 12 Dec 2020
Good Saturday Morning my ms Sisters and Brothers. I slept well, last, night well but a little cold. 70 Fahrenheitish, which is on the cooler side for Phoenix. I guess it is winter so it is better than 110F but I am born English so it is understood that I have to complain about the weather. Massive
Good Saturday Morning my ms Sisters and Brothers. I slept well, last, night well but a little cold. 70 Fahrenheitish, which is on the cooler side for Phoenix. I guess it is winter so it is better than 110F but I am born English so it is understood that I have to complain about the weather. Massive
RoyceNewton
in
My MSAA Community
4 years ago
TLIF spinal fusion surgery
Hi I'm new to this community. I've had neck problems for about 9 years, and more recently have been experiencing lower back problems, both causing chronic pain, and numbness/tingling in foot, toes, calf, and one arm and fingers and lower arm. My symptoms have been getting much worse this year, and since
Hi I'm new to this community. I've had neck problems for about 9 years, and more recently have been experiencing lower back problems, both causing chronic pain, and numbness/tingling in foot, toes, calf, and one arm and fingers and lower arm. My symptoms have been getting much worse this year, and since
Kimi9
in
Neuro Support
4 years ago
Helioplex test
Hey y’all!!! It’s been a while. Things over yonder are friggin crazy if you haven’t heard. 😂😫😂 Got 3 IVIG infusions and they helped tremendously with swallowing and cranial neuropathy. However, the effects are not sustained so I’m back to square one. Neuro-optho is pushing rheum for a plan and rheum
Hey y’all!!! It’s been a while. Things over yonder are friggin crazy if you haven’t heard. 😂😫😂 Got 3 IVIG infusions and they helped tremendously with swallowing and cranial neuropathy. However, the effects are not sustained so I’m back to square one. Neuro-optho is pushing rheum for a plan and rheum
Jmiller623
in
LUPUS UK
4 years ago
Flu shot ?
Are people with APS or compromised immune system not suppose to get the flu shot? My dr says I should as I also have IGA deficiency (barely have this in my system). I was doing IVIG infusions until a few years later I had a bad reaction - so I stopped them. I’m a lil confused as I read different things
Are people with APS or compromised immune system not suppose to get the flu shot? My dr says I should as I also have IGA deficiency (barely have this in my system). I was doing IVIG infusions until a few years later I had a bad reaction - so I stopped them. I’m a lil confused as I read different things
Youmi111
in
Hughes Syndrome APS Forum
4 years ago
Splenectomy or other options?
Our 6½ year old son has chronic itp. He was diagnosed with itp at 18 months old. His platelet counts have been all over the place but mostly low. We would be happy to have platelet numbers at 20,000-50,000. He has been on promacta for the last several years also has had many ivig transfusions. He is
Our 6½ year old son has chronic itp. He was diagnosed with itp at 18 months old. His platelet counts have been all over the place but mostly low. We would be happy to have platelet numbers at 20,000-50,000. He has been on promacta for the last several years also has had many ivig transfusions. He is
RJanna
in
ITP Support Association
4 years ago
ITP cured after parasites eradicated
On October 2020, I celebrated my 3 year anniversary since my last IVIG which was on 10/16/17. It has been about 2.5 years since needing to do Promacta, prednisone, etc. I am wanting to share my story in case it helps even one person with ITP; I no longer have ITP. I came back from a trip to Costa Rica
On October 2020, I celebrated my 3 year anniversary since my last IVIG which was on 10/16/17. It has been about 2.5 years since needing to do Promacta, prednisone, etc. I am wanting to share my story in case it helps even one person with ITP; I no longer have ITP. I came back from a trip to Costa Rica
CDmom
in
ITP Support Association
4 years ago
Results after 3 months on Venetoclax, with questions?
After suffering a major case of hemolytic anemia in July, I was put on Venetoclax and actually had stellar results for three months, until about a week ago now. After my blood tests moving into normal ranges on almost all numbers, I find myself in a situation where my WBC have moved to a below normal
After suffering a major case of hemolytic anemia in July, I was put on Venetoclax and actually had stellar results for three months, until about a week ago now. After my blood tests moving into normal ranges on almost all numbers, I find myself in a situation where my WBC have moved to a below normal
KevinCLLITP
in
CLL Support
4 years ago
Grandchildren
Hi wants your opinion please. My son,bless him, worries about me. Wants to wrap me in bubble wrap to stop me getting covid. Live on my own and have IVIG treatment. Issue is my daughter is due her 3rd baby and as it will be during half term i said I would have my grandson of 6yrs and my granddaughter
Hi wants your opinion please. My son,bless him, worries about me. Wants to wrap me in bubble wrap to stop me getting covid. Live on my own and have IVIG treatment. Issue is my daughter is due her 3rd baby and as it will be during half term i said I would have my grandson of 6yrs and my granddaughter
Frodo21
in
Positive Wellbeing During Self-Isolation
4 years ago
IVIG CURE?
HI EVERYONE!!! I know this is a difficult time for folks and I pray for my CLL friends, I wanted you to know. My question after a brief explanation. My user name is Kimsome. I was diagnosed with lymphoma SLL/CLL in 2010 when I was 45 year old female. I had aggressive chemo with a mix of Fludara, Cytoxin
HI EVERYONE!!! I know this is a difficult time for folks and I pray for my CLL friends, I wanted you to know. My question after a brief explanation. My user name is Kimsome. I was diagnosed with lymphoma SLL/CLL in 2010 when I was 45 year old female. I had aggressive chemo with a mix of Fludara, Cytoxin
Kimsome
in
CLL Support
4 years ago
IVIg Infusion feedback
Hi everyone, I am thinking this is probably going to seem like a mild problem, and I tend to be very overly anxious about anything new, but my Immuneglobulin g is down to 245. I have had no infections, been on Imbruveca for 2.5 years and my numbers are all really very good and I feel great. My Oncologist
Hi everyone, I am thinking this is probably going to seem like a mild problem, and I tend to be very overly anxious about anything new, but my Immuneglobulin g is down to 245. I have had no infections, been on Imbruveca for 2.5 years and my numbers are all really very good and I feel great. My Oncologist
Cgolen99
in
CLL Support
4 years ago
Spinal fusion
Has anyone ever had a seven level fusion. If so, how did it turn out?
Has anyone ever had a seven level fusion. If so, how did it turn out?
5490
in
Cervical Myelopathy
4 years ago
IVIG Infusion - Patients with no masks
I attended the chemo ward today for my IVIG infusion, the first in 5 months. I suspended this 5 months ago in line with the CLLForum's Recommendations of reducing the risk of CLL patients contracting COVID. Because it had been 5 months since my last infusion, I had to go through the ramp up procedure
I attended the chemo ward today for my IVIG infusion, the first in 5 months. I suspended this 5 months ago in line with the CLLForum's Recommendations of reducing the risk of CLL patients contracting COVID. Because it had been 5 months since my last infusion, I had to go through the ramp up procedure
RobertCLL
in
CLL Support
4 years ago
CLL for 6 years, 80 years old!
My husband has CLL, AND HAS HAD THREE issues with fluid in his lungs, and the last one was very serious , with infection! So they stopped Imbruvica, and have him once a month doing infusions of IVIG. VERY EXPENSIVE, even with insurance , monthly it is 549 per month. We can’t afford this indefinitely!
My husband has CLL, AND HAS HAD THREE issues with fluid in his lungs, and the last one was very serious , with infection! So they stopped Imbruvica, and have him once a month doing infusions of IVIG. VERY EXPENSIVE, even with insurance , monthly it is 549 per month. We can’t afford this indefinitely!
Dummer70
in
CLL Support
4 years ago
Gazyva and Low Platelet Count?
Hi all. I completed the first 1000mg of Gazyva last week and am scheduled for round two in a couple days. I don’t have the actual numbers, but white blood cell, red blood dell and lymphocyte counts are all “looking good”. My oncologist said the drop in platelet count was unexpected. He immediately
Hi all. I completed the first 1000mg of Gazyva last week and am scheduled for round two in a couple days. I don’t have the actual numbers, but white blood cell, red blood dell and lymphocyte counts are all “looking good”. My oncologist said the drop in platelet count was unexpected. He immediately
msccsm11
in
CLL Support
4 years ago
Ankyolosing Spondylitis and Adalimumab
I have Ankyolosing Spondylitis with a number of spinal fusions already. I started on Adalimumab at the end of April but it's not really helping. I have just had a phone appointment with the specialist nurse who told me that I can't expect to be pain free as I have a lot going on. I told her I don't
I have Ankyolosing Spondylitis with a number of spinal fusions already. I started on Adalimumab at the end of April but it's not really helping. I have just had a phone appointment with the specialist nurse who told me that I can't expect to be pain free as I have a lot going on. I told her I don't
Stephanie6637
in
NRAS
4 years ago
Persistence Paid Off
Hello fellow loopies. Got my first dose of IVIG for cranial and autonomic neuropathy over the last 2 days. No side effects so far. Not even a headache... I’ll keep my fingers crossed and stay hydrated. Wondering if anyone has had IVIG for NPSLE? I know some people get it for PID but at a lower dose
Hello fellow loopies. Got my first dose of IVIG for cranial and autonomic neuropathy over the last 2 days. No side effects so far. Not even a headache... I’ll keep my fingers crossed and stay hydrated. Wondering if anyone has had IVIG for NPSLE? I know some people get it for PID but at a lower dose
Jmiller623
in
LUPUS UK
4 years ago
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