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Ceftazidime intravenous infusion
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IVIG Infusions Suspended - Covid
My IVIG Infusions were suspended as a result of COVID and the risk of attending hospital at the hight of the pandemic. I have just received my latest blood report to find that my IgG is at 2.3, well below the minimum of 5. So will be asking for my monthly infusions to be reinstated. Anyone in the
My IVIG Infusions were suspended as a result of COVID and the risk of attending hospital at the hight of the pandemic. I have just received my latest blood report to find that my IgG is at 2.3, well below the minimum of 5. So will be asking for my monthly infusions to be reinstated. Anyone in the
RobertCLL
in
CLL Support
4 years ago
IVIG Infusion
Has anyone had the IVIG infusion? If so, what was it like? Did it help?
Has anyone had the IVIG infusion? If so, what was it like? Did it help?
Dermatray15
in
Lung Conditions Community Forum
4 years ago
2019-2020 a comparison
following two emergency admissions, failed chemo, massive reduction of platelets and heamaglobin, weekly blood transfusions monthly IVIG in 2019, I find myself taking 'targeted therapy' on week 16 of 'shielding' and pondering do I really want to go back to work? meanwhile, family life rolls on!
following two emergency admissions, failed chemo, massive reduction of platelets and heamaglobin, weekly blood transfusions monthly IVIG in 2019, I find myself taking 'targeted therapy' on week 16 of 'shielding' and pondering do I really want to go back to work? meanwhile, family life rolls on!
Meic13
in
Cancer Journeys Foundation
4 years ago
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IVIG HELP
I have low IGG so I have IVIG every other month. I have to take it with a 25 drip or I get bad side effects It takes 8 hours for the infusion I’m given Tylenol and Benadryl before the infusion It takes me about 6 days to recover from the infusion I experience fevers, headaches, and my eyes are sensitive
I have low IGG so I have IVIG every other month. I have to take it with a 25 drip or I get bad side effects It takes 8 hours for the infusion I’m given Tylenol and Benadryl before the infusion It takes me about 6 days to recover from the infusion I experience fevers, headaches, and my eyes are sensitive
Kyranbigeyes
in
CLL Support
4 years ago
Sweat smells like ammonia
Hello to my fellow lupies! An update on neuro stuff.... still waiting to get IVIG set up. Have not been able to get in touch with neurologist since appt about 3 weeks ago. Rheum won’t write for it. Getting very frustrated and depressed by this whole situation. I keep physically declining. My vision
Hello to my fellow lupies! An update on neuro stuff.... still waiting to get IVIG set up. Have not been able to get in touch with neurologist since appt about 3 weeks ago. Rheum won’t write for it. Getting very frustrated and depressed by this whole situation. I keep physically declining. My vision
Jmiller623
in
LUPUS UK
4 years ago
Vestibular problems
Hi everyone! Been a long time since I’ve posted. Interesting day today. Saw neuro ophthalmologist today. I have all types of nystagmus. Says it’s probably peripheral vestibular malfunction and maybe something wrong with my ear canals/bones. Wants brain MRI and possible CT angio since I have a small brain
Hi everyone! Been a long time since I’ve posted. Interesting day today. Saw neuro ophthalmologist today. I have all types of nystagmus. Says it’s probably peripheral vestibular malfunction and maybe something wrong with my ear canals/bones. Wants brain MRI and possible CT angio since I have a small brain
Jmiller623
in
LUPUS UK
4 years ago
Has anyone had issues with Hemolytic Anemia?
I am 8 1/2 years into my CLL diagnosis and turned 65 this year, I have had some recent problems with CLL cells appearing in some masses in both my feet and left ankle, but to have a biopsy last week they gave me 4 strong doses of IVIG to support my platelets (i have ITP) as well. I am quite dismayed
I am 8 1/2 years into my CLL diagnosis and turned 65 this year, I have had some recent problems with CLL cells appearing in some masses in both my feet and left ankle, but to have a biopsy last week they gave me 4 strong doses of IVIG to support my platelets (i have ITP) as well. I am quite dismayed
KevinCLLITP
in
CLL Support
4 years ago
ITP and Pregnancy
Hi! I've read through a number of the posts and found them very helpful. I'm 9 weeks pregnant and just found out that my platelet count is at 50. I'm going to see a hematologist and get their expert opinion, but my doctor said she felt that the most likely diagnosis was ITP secondary to an autoimmune
Hi! I've read through a number of the posts and found them very helpful. I'm 9 weeks pregnant and just found out that my platelet count is at 50. I'm going to see a hematologist and get their expert opinion, but my doctor said she felt that the most likely diagnosis was ITP secondary to an autoimmune
FromToronto
in
ITP Support Association
4 years ago
Ibrutinib - Joint Pain
I have had CLL for 20 years and have been on Ibrutinib for 3 years. In recent months I have been suffering with aches and pain in the wrists, hand knuckles, knees, ankles and shoulders. I have been treating the symptoms with oral paracetamol and more recently pulse dosing with oral Ibuprofen when symptoms
I have had CLL for 20 years and have been on Ibrutinib for 3 years. In recent months I have been suffering with aches and pain in the wrists, hand knuckles, knees, ankles and shoulders. I have been treating the symptoms with oral paracetamol and more recently pulse dosing with oral Ibuprofen when symptoms
RobertCLL
in
CLL Support
4 years ago
Could I ask for a little support? Today is the day I have the 5th miscarriage.
Hello Everyone, I came across this forum with a broken heart. I was diagnosed APS (single positive) 5 years after my DVT+non-fatal PE and 4 miscarriages. This is quite sad because I am actually a medical personal and always suspected myself to have this condition. My hematologist did not suspect APS
Hello Everyone, I came across this forum with a broken heart. I was diagnosed APS (single positive) 5 years after my DVT+non-fatal PE and 4 miscarriages. This is quite sad because I am actually a medical personal and always suspected myself to have this condition. My hematologist did not suspect APS
Stillsomehopes
in
Hughes Syndrome APS Forum
4 years ago
Discontinue IVIG?
When we started IVF treatment this time around, killer cell blood tests showed that my TNF alpha was slightly elevated so Intravenous Immunoglobin (IVIG) was recommended which I had before FET. We are now 9 weeks pregnant & the clinic are saying I need another IVIG but it was so expensive last time we
When we started IVF treatment this time around, killer cell blood tests showed that my TNF alpha was slightly elevated so Intravenous Immunoglobin (IVIG) was recommended which I had before FET. We are now 9 weeks pregnant & the clinic are saying I need another IVIG but it was so expensive last time we
CW9915
in
Fertility Network UK
4 years ago
Open Heart Surgery W/ ITP
On 11/8/2019 I had my 1st Heart Attack. Platelet Count was 3K. Stents would not be a option, because of lifetime Blood thinners. Would need open Heart surgery - 3 way bypass. This is not possible until my platelets get to 100K to perform the operation. Starting in late Dec 2019 I would start NPLATE injections
On 11/8/2019 I had my 1st Heart Attack. Platelet Count was 3K. Stents would not be a option, because of lifetime Blood thinners. Would need open Heart surgery - 3 way bypass. This is not possible until my platelets get to 100K to perform the operation. Starting in late Dec 2019 I would start NPLATE injections
Dahle2424
in
ITP Support Association
4 years ago
Post 642 I have been scared 8 May 2020
G’day family. Today is VE day, so of course thank you to all that have served. VE day is Victory in Europe When the National SocialistsGerman Working Mens Party (NAZI’s) surrendered in Europe in World War 2 in case “YOU” did not know. In a few months, the Japanese will surrender as well, but it
G’day family. Today is VE day, so of course thank you to all that have served. VE day is Victory in Europe When the National SocialistsGerman Working Mens Party (NAZI’s) surrendered in Europe in World War 2 in case “YOU” did not know. In a few months, the Japanese will surrender as well, but it
RoyceNewton
in
My MSAA Community
4 years ago
First ivig this week
Scheduled for first ivig on Thursday. My veins like to play hide and seek whenever they are invaded so my lab friends always use a butterfly needle. When I had my transfusion last year after 11 unsuccessful pokes they went down to a 20 needle (I have no idea what that means. Other than it made the
Scheduled for first ivig on Thursday. My veins like to play hide and seek whenever they are invaded so my lab friends always use a butterfly needle. When I had my transfusion last year after 11 unsuccessful pokes they went down to a 20 needle (I have no idea what that means. Other than it made the
Imbub
in
CLL Support
4 years ago
How COVID-19 Has Impacted Clinical Trials for Chronic Lymphocytic Leukemia
[i]"Many patients with chronic lymphocytic leukemia (CLL) rely on the outcomes of clinical trials that examine new ways to treat the disease. But with the new coronavirus (COVID-19) pandemic changing the way health care is provided around the country, so too is participation in these trials, according
[i]"Many patients with chronic lymphocytic leukemia (CLL) rely on the outcomes of clinical trials that examine new ways to treat the disease. But with the new coronavirus (COVID-19) pandemic changing the way health care is provided around the country, so too is participation in these trials, according
AussieNeil
Partner
in
CLL Support
4 years ago
I am in high risk group?
Hi after some advice. I live in Scotland and not sure if I should of received the government letter. I have had cll for nearly 15 yrs. Get infections all the time so have IvIg 6mths of every year. Consultant phoned to tell me to self isolate for 12wks. Live on my own . Having difficulty getting slots
Hi after some advice. I live in Scotland and not sure if I should of received the government letter. I have had cll for nearly 15 yrs. Get infections all the time so have IvIg 6mths of every year. Consultant phoned to tell me to self isolate for 12wks. Live on my own . Having difficulty getting slots
Frodo21
in
CLL Support
4 years ago
Leukaemia Care Webinar 8th April - a bit more information
Professor Dr Chris Fegan talked about CLL and COVID19 and answered previously submitted questions. Following on from AdrianUK's post ( https://healthunlocked.com/cllsupport/posts/private/143143147/uk-cll-web-conference ) this is a second report. His main message was that ALL CLL and SLL patients should
Professor Dr Chris Fegan talked about CLL and COVID19 and answered previously submitted questions. Following on from AdrianUK's post ( https://healthunlocked.com/cllsupport/posts/private/143143147/uk-cll-web-conference ) this is a second report. His main message was that ALL CLL and SLL patients should
Jm954
Administrator
in
CLL Support
4 years ago
IVIG infusions - Covid
UKCLLForum - Practical guidelines for managing CLL in COVID pandemic. The guidelines state: Postpone IVIG infusions as risk of exposure to COVID19 may outweigh benefit of infusion during pandemic period. Consultant to assess on case by case basis. Consider stopping IVIG and give prophylactic antibiotics
UKCLLForum - Practical guidelines for managing CLL in COVID pandemic. The guidelines state: Postpone IVIG infusions as risk of exposure to COVID19 may outweigh benefit of infusion during pandemic period. Consultant to assess on case by case basis. Consider stopping IVIG and give prophylactic antibiotics
RobertCLL
in
CLL Support
4 years ago
Structure of CD20 in complex with the therapeutic monoclonal antibody rituximab
The picture shown above is a ‘flower-vase’ plot* of the molecular interaction between Rituxan and CD20. The grey ‘vase’ represents a micelle which stabilizes the CD20 dimer in vitro; in vivo, CD20 is embedded in the B cell plasma membrane. The yellow ‘root’ represents the transmembrane domains of the
The picture shown above is a ‘flower-vase’ plot* of the molecular interaction between Rituxan and CD20. The grey ‘vase’ represents a micelle which stabilizes the CD20 dimer in vitro; in vivo, CD20 is embedded in the B cell plasma membrane. The yellow ‘root’ represents the transmembrane domains of the
gardening-girl
in
CLL Support
5 years ago
Journey home
Yesterday I was in London with my daughter who was having a spinal fusion. I had started my day very early as you do to get her checked in-she went to Theatre lunchtime so it was a long morning. Waited 5 hrs for her to return-they had probs controlling her pain 😢 Left her at 8pm to try to miss rush
Yesterday I was in London with my daughter who was having a spinal fusion. I had started my day very early as you do to get her checked in-she went to Theatre lunchtime so it was a long morning. Waited 5 hrs for her to return-they had probs controlling her pain 😢 Left her at 8pm to try to miss rush
Janzo54
in
Lung Conditions Community Forum
5 years ago
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