On October 2020, I celebrated my 3 year anniversary since my last IVIG which was on 10/16/17. It has been about 2.5 years since needing to do Promacta, prednisone, etc. I am wanting to share my story in case it helps even one person with ITP; I no longer have ITP.
I came back from a trip to Costa Rica and within 2 weeks developed life threatening, crashing platelets so bad that for 7 months I needed IVIG every 10 days along with daily Promacta, etc, (except for the month I was on heavy duty antibiotics). I feel compelled to reach out in case I can help anyone else become ITP free.
I'm 99% sure I got rid of the ITP problem after getting parasites out of my system. I took 2 weeks of Parasite Destroying Pills (from the vitamin store) and 2 Rife ultrasound treatments that targeted and destroyed the parasite cell membrane walls. I got well within one month after these two treatments and never needed IVIG again. I am ITP free since October 2017.
I understand every situation is different, but in the off chance that my story could help cure you or have you look into some other unusual cause for your ITP, it is worth reaching out. I even went to Mayo Clinic and they said there was no cure for my ITP. After Mayo Clinic, I was discouraged and had given up on ever getting rid of ITP until the next month a friend suggested that perhaps I had an undetectable parasite. Even though I had done several stool cultures that did not find any parasites, I decided I might as well give the parasite destroying medicine a 2 week try, what did I have to loose? And thankfully, I did try the medicine and Rife and within a month I was ITP free. My body was no longer attacking my plateletes that it had mistook for the parasites because the undetectable parasites were killed off.
I spent 7 plus months dealing with ITP: life threatening crashing platelets, steroids, Promacta and IVIG and I know how difficult it is. I am sending you all my good thoughts and strength as you navigate your ITP situation. Again, I know this might not be helpful to many of you but just in case anyone can benefit from my story, I am wanting to try and help. Please reach out to me with any questions or comments.
Best,
Cindy
Written by
CDmom
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It is called Parastroy. I also went gluten free and took several homeopathics. Please check in after you take the Parastroy and let me know if it helps.
Thanks so much, Cindy. I haven't been out of the country for 4 years and not to a tropical area so it might not be my answer but I am sure your story can help many people.
You can get Parastroy in a vitamin store. I just asked for the best selling parasite cleanse. It was 2 bottles of capslules. One for morning one for evening. After I did the parasite cleanse my homeopathic gave me stuff to cleanse fungus, viruses and other bacterias and then to strengthen my immune system and adrenals. Please get whatever you decide to take cleared by your helath care professional that it is safe for you. It is what my homepopathics said I needed but again you should get it approved by your doctor to make sure it is good for you and that you will not be harmed by anything you take. Please keep me posted and be well.
Hi kathleenp, Thanks so much for your kind message. I hope you too have some guardian angel type situation and get rid of your ITP or at least it is very low level and not bothersome in your everyday life.
I have been battling ITP for 13 year's and it is a struggle. I'm happy to hear you have found something that has worked for you and prayers for you to be healthy and happy going forward. Thank you so much for sharing!! I'm going to try those pills myself sure can't hurt!! Wish me luck 😃
Oh my gosh of course good luck. Write to me in a private message if you want any more details on my homeopathic journey that I took along with the parasite cleanse. Also, if the parasite erradication does not work, keep trying alternative methods because trust me I was ready to give up trying to figure things out, but by the grace of G-d I had that friend who pushed me into trying the parasite erradication route. And that made all the difference in the world in getting my life back! Best wishes always and please make sure anything you do isn't going to make you sicker. So run it by a good health care professional first. Be Well!
Hi, I'm looking into the homeopathic solution as well and have tried to reach CDmom for more info. Did you get information and did it help you? I am currently on nplate, but my platelets remain between 15 and 40 on a good day. I have tried steroids, transfusion, rituximab, and I'm not really having success with nplate either. Feeling hopeful but maybe clearing some parasites could be a solution, or at least to help. Let me know if you have some information to share. Thanks
Hi Cindy. My daughter came down with ITP a month after a trip to costa Rica for years ago. She was also tested for parasites by stanford and they found nothing. I would love to know what medicine you took. My daughter is starting Promacta next week. Did you take the parasite medicine at the same time as the Promacta? Who did the Ride treatments?Thanks so much
I am so sorry to hear that your daughter is suffering from ITP. I pray she did catch something like I did and you can help her get it erradicated like I did.
My homeopathic treated me for parasites, bacteria, mold, fungus and countless other things. He used the Avitar Machine to dertermine which homeopathics I needed. I have listed the homeopathics below but you need a provider to tell you what is the right homeopathics at the right times and amounts for your daughter. I go to Dr. Elliott Smith at 970-368-6173.
I think I did take the Parastroy at the same time I was on the Promacta. Parastroy is not listed below because I took it about a week before I started with Dr. Smith. I took it at the recommendation of the Rife provider at Vibrant Healing Center at 303-979-5736
Here is what helped rid me of organisms in my body and rebalance my system. But remember this was what was good for me and may not be appropriate for your daughter so make sure you seek professional assistance for what will help her.
Sept 28, 2017 was my first visit with him:Notanum - -- [Manufactured] 1.0 capsule(s) 3 times per week Silvercillin - Design for Health [Manufactured] 10.0 spray(s) Twice a day Cat's Claw Intrinsic - Physica [Manufactured] 1.0 dropper(s) Twice a day Fermented Skate Liver Oil - Green Pastures [Manufactured] 2.0 capsule(s) Twice a day Alka-C - Energetix [Manufactured] 1.0 teaspoon Twice a day Viru-Chord - Energetix [Manufactured] 1.0 dropper(s) Twice a day Moducare - Thorne [Manufactured] 1.0 capsule(s) Once a day
Nov 3, 2017
Silvercillin - Design for Health [Manufactured] 10.0 spray(s) Twice a day Cat's Claw Intrinsic - Physica [Manufactured] 1.0 dropper(s) Twice a day Fermented Skate Liver Oil - Green Pastures [Manufactured] 2.0 capsule(s) Twice a day Viru-Chord - Energetix [Manufactured] 1.0 dropper(s) Twice a day Weaning Schedule : Finish, Comment : Moducare - Thorne [Manufactured] 1.0 capsule(s) Once a day Adrenal Life Force - Physica [Manufactured] 2.0 capsule(s) Once a day AM
Dec 1, 2017
Silvercillin - Design for Health [Manufactured] 5.0 spray(s) Once a day Weaning Schedule : , Comment : Alka-C - Energetix [Manufactured] 1.0 teaspoon Twice a day Weaning Schedule : , Comment : Fermented Skate Liver Oil - Green Pastures [Manufactured] 2.0 capsule(s) Twice a day Weaning Schedule : , Comment : Moducare - Thorne [Manufactured] 1.0 capsule(s) Once a day Adrenal Life Force - Physica [Manufactured] 1.0 capsule(s) Once a day AM Weaning Schedule : 3 weeks:
Jan 11, 2018
Silvercillin - Design for Health [Manufactured] 5.0 spray(s) Twice a day Weaning Schedule : , Comment : Swish for 2-5 minutes Cat's Claw Intrinsic - Physica [Manufactured] 1.0 dropper(s) Twice a day Fermented Skate Liver Oil - Green Pastures [Manufactured] 2.0 capsule(s) Twice a day Alka-C - Energetix [Manufactured] 1.0 teaspoon Twice a day Astragulus - Herb Pharm [Manufactured] 1.0 dropper(s) Twice a day Viru-Chord - Energetix [Manufactured] 1.0 dropper(s) Twice a day
Feb 8, 2018
Fermented Skate Liver Oil - Green Pastures [Manufactured] 2.0 capsule(s) Twice a day Astragulus - Herb Pharm [Manufactured] 1.0 dropper(s) Twice a day Viru-Chord - Energetix [Manufactured] 1.0 dropper(s) Twice a day Adrenal Life Force - Physica [Manufactured] 2.0 capsule(s) Once a day AM Weaning Schedule : 3 weeks, Comment : ImmunoMod-A - Design for Health [Manufactured] 2.0 capsule(s) Once a day
Can start to have dairy 2xwk
March 6, 2018
Astragulus - Herb Pharm [Manufactured] 1.0 dropper(s) Once a day Weaning Schedule : , Comment : Fermented Skate Liver Oil - Green Pastures [Manufactured] 2.0 capsule(s) Once a day Weaning Schedule : , Comment : Viru-Chord - Energetix [Manufactured] 1.0 dropper(s) Once a day Weaning Schedule : Finish bottle, Comment : Adrenal Life Force - Physica [Manufactured] 1.0 capsule(s) Once a day AM Weaning Schedule : , Comment : ImmunoMod-A - Design for Health [Manufactured] 2.0 capsule(s) Once a day Alka-C - Energetix [Manufactured] 1.0 teaspoon 3 times per week Weaning Schedule : , Comment :
Aug 2018 now I am just on astragalis and D3 for immune support.
I hope this was helpful. Please let me know if you have any other questions and keep me posted on your journey. Sending your daughter good healing thoughts.
I'm sending good thoughts for a speedy recovery. Please keep me posted. Out of curiostiy did she go into areas far from the resortand /or ride horses count there. I think the excursion I took is where I got the infection. Not sure though.
I'm doing so so. The medication I was on they ran out of stock of. So my count dropped. I talked to my Dr about the parasite cleanse which he doesn't want me to take. Saddly but I think it's worth a try. Myself anyway. It's been very trying with no thyroid and they can't seem to get that medicine right on top of the ITP. I would love more information on the holistic medicine you used. I hope you are well and still in a positive space.
Hi Tdeller89,I am sorry that you are just doing so so and that your doctor is not being open to your suggestion to try the Parasite destroying medicine. It is over the counter and can be gotten at a health food store. But I am not surprised at your doctors reaction because all my traditionally trained doctors told me to get over my ideas that a foriegn organism was causing my itp. They said I would have it for life and that is what I needed to accept. So I basically had given up after 7 months of looking for a cure and after my trip to a well known clinic where the specialist agreed that I had ITP and to give up any other hope of getting better than a life time of bandaid treatments, Promacta, IVIG, steroids, etc.
Luckily two friends all the sudden entered into my life suggesting I try homeopathy and ultrasonic rife treatment. Thankfully I listened.
The rife therapist at Vibrant Healing Center at 303-979-5736 told me to do the parasite cleanse and the other homeopathic, Dr. Elliott Smith at 970-368-6173,
used an Avitar machine to figure out which body systems had issues and what bacterias, mold, fungus and viruses were still in my system. And then he gave me the correct homeopathics for my particular issues.
He also used the Avitar Machine to dertermine which homeopathics I needed. I have listed the homeopathics below but you need a provider to tell you what is the right homeopathics at the right times and amounts for you.
Here is what helped rid me of organisms in my body and rebalance my system. But remember this was what was good for me and may not be appropriate for you so make sure you seek professional assistance for what will help you.
Sept 28, 2017 was my first visit with him: he had me take Notanum , Silvercillin Twice a day Cat's Claw, Fermented Skate Liver Oil - Green Pastures, Alka-C - Energetix, Viru-Chord, Moducare
Oct 17, 2017- my last IVIG treatment (platelets were 1,000!) Over the next several months I slowly weaned off steroids.
Nov 3, 2017
Added, Adrenal Life Force
Jan 11, 2018
Added, Astragulus
Feb 8, 2018
Added, ImmunoMod-A
Aug 2018 - now I am just on astragalis and D3 for immune support.
What is wrong with your thyroid?
I hope this information was helpful. Please don't give up before going with your gut. Please let me know if you have any other questions and keep me posted on your journey. Sending you good healing thoughts.
Awesome thanks I will see what I can do to get the ball rolling on this. Trying something is better than doing nothing really. I had hyperthyroidism and a groiter so the thyroid was swelled with a mass on it. My grandmother had a rare case of thyroid cancer so all the drs opinions were have it taken out. I spoke with them about weight gain. Was reassured that it wouldn't be a problem and if it was we would deal with it. The endocrinologist that did the surgery and handles my meds was at carti cancer center and the only one in the state that would remove my thyroid. So it's been a year and a half now. I had to change endocrinologist because of insurance. I spoke with my new endo and explained I did not want a Dr that goes only based on the black and white on paper. I want a Dr that will listen to what my body is saying. It has been awful. I am continuing to gain weight, hair falling out, every symptom of hypothyroid I have literally. All they do is say it's in the normal range and that's it. I'm frustrated beyond words. I just don't know what to do where to go I'm just stuck. If I would have known this is what I would be going through I never would have let them take it out. My hematologist thought it was causing my ITP but nope that still as bad as ever . 14 year's now and I'm just here
I have hypo thyroid and they check my t3, t4 as well as TSH to make sure things are within a normal range. Do they look at all that with you? Maybe not appropriate because yours was removed?
A homeopathy dr can help you with tyroid issues, at least mine does. I have a different situation than you but he told me I should eat brazil nuts along with not eating uncooked cruciferous food. I take synthroid for my thyroid.
My mother in law had her thyroid removed like you and was regulated pretty well with a thyroid med like sytnthroid.
You do know not to eat for an hour after talking the med, right? I make sure to keep 4 hours away from vitamins.
Not sure if that is pertinent to you but thought I'd share just in case.
I am sending good thoughts for your health to improve.
Thanks so much I am taking levothyroxine and liothyronine both a t4 & a t3 medicines. The blood work says I'm in the normal range. And if you go only by that I would be. However my body is screaming I'm not normal. My Dr keeps lowering the t4 med dose which just keeps making the symptoms worse. I have tried to find things to help me holistically. The Dr dropped me to a diet of 1200 calories a day . So we will see. I have conciderderd having a gastric sleeve done. But my hematologist said absolutely not. Big surprise there lol. Now I'm trying to figure out what to do to help myself. My hair is falling out so badly the barrette I have used for 3 year's slides out of my hair on it's own. This has started since he lowered my for the levothyroxine to 112 my a day. I feel so much worse since that happened. He just keeps telling me your in the normal range see you in 6 months. Then I found out he has over 5,000 patient's just last week so it's no wonder he doesn't have the time to figure more out then with a blood test.
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