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PV - HU vs Jakafai, Insurance Denied Jakafai
So I've been on Peg IFN for close to [u]5 years[/u] and my body can't seem to tolerate it anymore. My white counts just keep going lower. Current counts at just 65mcg are: [WBC "1.51", ABS-Neut ".66", ABS Lymph ".60"]. I was taking over 135mcg for several years. I'm starting to get sick and having
So I've been on Peg IFN for close to [u]5 years[/u] and my body can't seem to tolerate it anymore. My white counts just keep going lower. Current counts at just 65mcg are: [WBC "1.51", ABS-Neut ".66", ABS Lymph ".60"]. I was taking over 135mcg for several years. I'm starting to get sick and having
jon1972
in
MPN Voice
9 days ago
adhesions in mri - please help
hi everyone - I had an mri to assess whether or not to go ahead with a lap. I have recurrent miscarriages and dull aches constantly lower stomach (but not awful) but especially when I’ve been pregnant (before losing). I’m investigating whether my pain is linked to infertility and where the pain is coming
hi everyone - I had an mri to assess whether or not to go ahead with a lap. I have recurrent miscarriages and dull aches constantly lower stomach (but not awful) but especially when I’ve been pregnant (before losing). I’m investigating whether my pain is linked to infertility and where the pain is coming
Maybeendo
in
Endometriosis UK
9 days ago
Just been diagnosed, unsure of what to do next?
Hello! So I finally had the results from my MRI and it has confirmed endometriosis was found. It was honestly just utter relief. I nearly burst into tears. I have been going backwards and forwards, having test after test, advocating for myself, being gaslit by different gp's, for years and now
Hello! So I finally had the results from my MRI and it has confirmed endometriosis was found. It was honestly just utter relief. I nearly burst into tears. I have been going backwards and forwards, having test after test, advocating for myself, being gaslit by different gp's, for years and now
PennyCrowe
in
Endometriosis UK
9 days ago
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MV repair (OHS) – six months on – tips and thoughts……..
Thought I would share my story to help those new to the site….. I had a successful MV repair six months ago over at Oxford (excellent surgeon) – my valve had been prolapsed since childhood but only started seriously leaking last year (NB. I had 2 x covid vaccinations). Two days in ICU then five days
Thought I would share my story to help those new to the site….. I had a successful MV repair six months ago over at Oxford (excellent surgeon) – my valve had been prolapsed since childhood but only started seriously leaking last year (NB. I had 2 x covid vaccinations). Two days in ICU then five days
aviation1
in
British Heart Foundation
9 days ago
Help!
I had valve replacement surgery 11 days ago. I'm not achieving the walking goals and feel quite down. Anyone else further down the path with advice please?
I had valve replacement surgery 11 days ago. I'm not achieving the walking goals and feel quite down. Anyone else further down the path with advice please?
Pamelodie
in
British Heart Foundation
10 days ago
Help for PMR relapse?
The new england journal of medicinen engl j med 389;14 nejm.org October 5, 2023 1263 established in 1812 October 5, 2023 vol. 389 no. 14 From the Hospital for Special Surgery, Weill Cornell Medical College, New York (R.F.S.), and Regeneron Pharmaceuti cals, Tarrytown (A.G., M.C.N., B.A., R.B.,
The new england journal of medicinen engl j med 389;14 nejm.org October 5, 2023 1263 established in 1812 October 5, 2023 vol. 389 no. 14 From the Hospital for Special Surgery, Weill Cornell Medical College, New York (R.F.S.), and Regeneron Pharmaceuti cals, Tarrytown (A.G., M.C.N., B.A., R.B.,
Karenjaninaz
in
PMRGCAuk
10 days ago
anyone had a successful surgery with spinal cord or dorsal root ganglion stimulator surgery?
Hi - been suffering with pudendal pain due to sports for about 15 years. Has anyone tried spinal cord or dorsal root ganglion stimulators and was it successful? I’m so tired of this pain. I just want to live a normal life. I’m currently on 30mg of notriptyline to help with pain. Thank you
Hi - been suffering with pudendal pain due to sports for about 15 years. Has anyone tried spinal cord or dorsal root ganglion stimulators and was it successful? I’m so tired of this pain. I just want to live a normal life. I’m currently on 30mg of notriptyline to help with pain. Thank you
Hidden
in
Pelvic Pain Support Network
10 days ago
Ureaplasma infection?
hello…has anyone ever had vagina swabs that turned up Ureaplasma but struggled to get rid of it.? I had surgery to removed fibroids last year and since then each vaginal swab has come back positive. I can’t start my FET until I test negative but none of the antibiotics have worked to get rid of it. I
hello…has anyone ever had vagina swabs that turned up Ureaplasma but struggled to get rid of it.? I had surgery to removed fibroids last year and since then each vaginal swab has come back positive. I can’t start my FET until I test negative but none of the antibiotics have worked to get rid of it. I
Chegotsi
in
Fertility Network UK
10 days ago
The NHS app
there have been a few posts over the last few months where posters have mentioned in passing that they don’t have access to their medical records or to the NHS app. Anyone who posts here is a little bit tech savvy … otherwise we wouldn’t be posting here …. so my suggestion is that people in this community
there have been a few posts over the last few months where posters have mentioned in passing that they don’t have access to their medical records or to the NHS app. Anyone who posts here is a little bit tech savvy … otherwise we wouldn’t be posting here …. so my suggestion is that people in this community
Happyrosie
in
British Heart Foundation
10 days ago
fed up with feelings in chest
Had 4 Ecg tests last Thursday at local surgery ,nurse showed Gp who said nothing to be be done at the moment ,but wants to see me This Wednesday for review, since then feeling all sorts of thing in chest area , at work yesterday seem to be short of breath,even though up and down 3 storey building, sometimes
Had 4 Ecg tests last Thursday at local surgery ,nurse showed Gp who said nothing to be be done at the moment ,but wants to see me This Wednesday for review, since then feeling all sorts of thing in chest area , at work yesterday seem to be short of breath,even though up and down 3 storey building, sometimes
mobyfool
in
British Heart Foundation
10 days ago
FEAR!
What do you do when your spouse drinks and is CRUELER than usual and you know you should get away but you fear for the cats, you had hip surgery last summer and still not that strong yet and now agoraphobia returns. Afraid to stay. Afraid to leave. Going to try to go to an Al Anon meeting if I get
What do you do when your spouse drinks and is CRUELER than usual and you know you should get away but you fear for the cats, you had hip surgery last summer and still not that strong yet and now agoraphobia returns. Afraid to stay. Afraid to leave. Going to try to go to an Al Anon meeting if I get
CatsandCheese
in
Anxiety and Depression Support
11 days ago
Covid again
Good morning, this morning I have tested positive for covid, felt flushed and chesty last night and did an eliminating test but was surprised to see that the covid test was positive. I also spoke to my gp surgery last week regarding vaccine jab but was told that I'm not over 75 yet .I have been to breathe
Good morning, this morning I have tested positive for covid, felt flushed and chesty last night and did an eliminating test but was surprised to see that the covid test was positive. I also spoke to my gp surgery last week regarding vaccine jab but was told that I'm not over 75 yet .I have been to breathe
B0xermad
in
Lung Conditions Community Forum
11 days ago
advice please!
Hello. I was diagnosed about a year ago with stage 4 prostate cancer. I was on hormone therapy but that is no longer surprising the cancer. It is in my bones, currently spreading in my pelvic bone and lumbar. I hope to start chemotherapy in the next month. But with my current health I don’t know
Hello. I was diagnosed about a year ago with stage 4 prostate cancer. I was on hormone therapy but that is no longer surprising the cancer. It is in my bones, currently spreading in my pelvic bone and lumbar. I hope to start chemotherapy in the next month. But with my current health I don’t know
BonnieKlyde
in
Advanced Prostate Cancer
11 days ago
Diagnosis Anterior Cutaneous Nerve entrapment syndrome?
I had my ovaries removed in February 2020 via laparoscopy. I had had laparascopic diathermy and laser treatment for endometriosis in my 20s and 30s, but eventually taking the progesterone only pill meant I had no periods at all which was a massive result for me and I took them until I was 52. Unfortunately
I had my ovaries removed in February 2020 via laparoscopy. I had had laparascopic diathermy and laser treatment for endometriosis in my 20s and 30s, but eventually taking the progesterone only pill meant I had no periods at all which was a massive result for me and I took them until I was 52. Unfortunately
Jh987
in
Pain Concern
11 days ago
New and saying hi. Trish here from California.
I will be having surgery for a full thickness macular hole in my right eye on July 10, glad I found this place. I have been checking in, getting daily digest. Seeing how others are handling is very helpful. Obv. not thrilled about the face down thing, but I'm sure I will be fine, as have been so many
I will be having surgery for a full thickness macular hole in my right eye on July 10, glad I found this place. I have been checking in, getting daily digest. Seeing how others are handling is very helpful. Obv. not thrilled about the face down thing, but I'm sure I will be fine, as have been so many
trishrg
in
Macular Society
11 days ago
work and what I found out
yesterday I asked my clients who would like me to start back and I found out one I have been replaced and that upset me . Others I am not sure . So far looking at the positives I have two definite clients one I am not sure . Have to see what keeps happening this is absolutely devastating when you built
yesterday I asked my clients who would like me to start back and I found out one I have been replaced and that upset me . Others I am not sure . So far looking at the positives I have two definite clients one I am not sure . Have to see what keeps happening this is absolutely devastating when you built
EmmaJane67
in
Anxiety and Depression Support
11 days ago
Update do i have PMR/GCA
Just a update after being refused a second appinion i spoke to the rhumy department for a answer as to why,was told the dr i was supposed to see recomended i be refered to a nurolagist department by my Dr surgery.cut a long story short all this was to either comfirm or deny i had temprel arteris ,so
Just a update after being refused a second appinion i spoke to the rhumy department for a answer as to why,was told the dr i was supposed to see recomended i be refered to a nurolagist department by my Dr surgery.cut a long story short all this was to either comfirm or deny i had temprel arteris ,so
pink123floyd
in
PMRGCAuk
12 days ago
Chronic Pancreatitis
Salam!I am from Lahore, Pakistan. I have been a patient of chronic pancreatitis for the past 16 years due to pancreatic divisum. Multiple endoscopic procedures like EUS, Gastroscopy, ERCP with sphincterotomy and stenting has been done. My gallbladder is surgically removed through laproscopy in 2017 but
Salam!I am from Lahore, Pakistan. I have been a patient of chronic pancreatitis for the past 16 years due to pancreatic divisum. Multiple endoscopic procedures like EUS, Gastroscopy, ERCP with sphincterotomy and stenting has been done. My gallbladder is surgically removed through laproscopy in 2017 but
Taimoorjutt
in
Chronic Pancreatitis Support
12 days ago
dental clearance form
Hi this is for people who have had to get a dental clearance form, did you have to pick it up or did the dentist send it? I’ve to pick mine up but I thought she would just send it thanks edit* this is the first time I heard of the form as well it’s if you are being considered for surgery they need
Hi this is for people who have had to get a dental clearance form, did you have to pick it up or did the dentist send it? I’ve to pick mine up but I thought she would just send it thanks edit* this is the first time I heard of the form as well it’s if you are being considered for surgery they need
Wanheda1
in
British Heart Foundation
12 days ago
initial treatment question
I am posting for my husband. He is newly diagnosed and we have spoken to the urologist/surgeon only. We were told surgery or radiation were the options. The surgeon said he would remove the prostate, seminal vesicles and 2 lymph nodes. (Said these would be teated for cancer because although the scans
I am posting for my husband. He is newly diagnosed and we have spoken to the urologist/surgeon only. We were told surgery or radiation were the options. The surgeon said he would remove the prostate, seminal vesicles and 2 lymph nodes. (Said these would be teated for cancer because although the scans
FredNick
in
Prostate Cancer Network
12 days ago
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