anyone had a successful surgery with spinal cord or dorsal root ganglion stimulator surgery?

Hi - been suffering with pudendal pain due to sports for about 15 years. Has anyone tried spinal cord or dorsal root ganglion stimulators and was it successful? I’m so tired of this pain. I just want to live a normal life. I’m currently on 30mg of notriptyline to help with pain.

Thank you

[eeeee]

Hi there. I know your pain!!I had surgery 11 years ago which resulted in my genitofemeral nerve being damaged. Of course the lady consultant denied this.!

I had the drg stimulator fitted to target the nerve pain after 5 years of hot rod broken glass pain.Yes it worked. After 3 years I realized the nerve was feeling a bit better without the stimulation so because of the restricted movement I decided to have the stimulator taken out. So after 11 years the nerve pain feels so much better.

Unfortunately I now have sacroiliac joint problems and I'm waiting for a joint fusion.

If you have been offered the drg go for it and hopefully it will give you some relief.💕

[PFCNwondering]

The DRG surgery almost killed me. I thought the pain could not get worse until I had that surgery but it was awful. Then the stimulator did not work at all. I have it implanted and turned off because the doctor is afraid of what might happen if they try to take it out. I am glad it may have worked for someone else but it was the worst possible thing to happen to me and it was what led me to the Mayo Clinic Chronic pain rehab program. That (plus nortriptaline) did help.

[SouthernSally]

I was going to get a DRG last year but my insurance denied it. I’m on Medicare now and it would get approved but I’m consulting with pain doctors and a neurosurgeon for the regular spinal cord stimulator (SCS). A DRG really pinpoints the sacral nerves. I had many injections including the s2 s3, which is often where the DRG leads are placed, and none of them helped. Right now I’m seeing a new gyno specialist and he’s doing injections on additional nerves. If I should get relief I’d rather have injections a few times a year.

I mentioned the DRG is very specific. Depending on the kind of SCS the coverage can be broad, placed higher, and perhaps cut off the pain signals before they go lower.

I’m sorry you’ve got this pain too.

[VFR1200]

I too have PN, it is well managed on 50ml Nortryptaline, I had decompression surgery that was successful in reducing pain but I still cannot sit down conventionally. I have exercise 3 times a week, rarely have pain and recommend contacting Bristol Pain Clinic Dr Greenslade.