Chronic Pancreatitis

[Taimoorjutt]

Salam!I am from Lahore, Pakistan.

I have been a patient of chronic pancreatitis for the past 16 years due to pancreatic divisum. Multiple endoscopic procedures like EUS, Gastroscopy, ERCP with sphincterotomy and stenting has been done. My gallbladder is surgically removed through laproscopy in 2017 but still there is no pain relief. Now almost 5 months ago the celiac block was done in PKLI hospital, Lahore. In this duration of 5 months i am feeling better because of pain relief but now my pain started again from last 10 days. I am totally exhausted and frustrated from life due to the constant severe abdominal pain. I am using strong opioids painkillers such as toradol, tramadol, nelbuphine and even morphine but there is no pain relief even for a micro second. I am always screaming and crying due to the pain severity. Sometimes, i thought about suicide because i have no more potential to bear this severe abdominal pain of chronic pancreatitis.

Doctors advised me to go for a Whipple Surgery with Total Pancreatectomy but they said there is a lot of death risk and we cannot guarantee you the pain relief even after Whipple Surgery with Total Pancreatectomy due to this i am confused about the Whipple Surgery with Total Pancreatectomy. If you have a complete cure and better/definite treatment for this dreadful disease then please help me.

[Wopper101]

I’m so sorry you are going through this. You need to go to a place that does the tpait surgery.

[IH8EPI]

Hello Taimoorjutt,

I definitely understand and appreciate your concern.

If I may suggest a website you should thoroughly investigate to help with your issues.

The site on FB is called "Beating Pancreatitis" and it has absolutely help me and a ton of other

AP/CP pancreatitis sufferers. It has info. on enzymes, diet, vitamins, pain relief, etc. etc.

It also has HUNDRED of posts from people who are, or have been affected by this terrible disease. I wish you the best of luck in your journey, and just know that hope is never a thing you should abandon, ever. 👍

[Taimoorjutt in reply to IH8EPI]

Thanks a lot. I will search and join "Beating Pancreatitis".