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Trying to get a diagnosis of PA via a GP
Good evening Due to feeling unwell with loss of appetite, feeling of being full, chronic fatigue, shortness of breath, impaired vision with floating black dots - i could go on! and already knowing i was anaemic, I asked the GP for a bit b12 blood test, this came back as normal but I have low serum
Good evening Due to feeling unwell with loss of appetite, feeling of being full, chronic fatigue, shortness of breath, impaired vision with floating black dots - i could go on! and already knowing i was anaemic, I asked the GP for a bit b12 blood test, this came back as normal but I have low serum
4daughters1971
in
Pernicious Anaemia Society
2 years ago
Worth a Spit ? Why saliva could hold the answer
Trying to work out how B12 makes the journey: - Salivary glands produce Haptocorrin (HC), which binds to the B12 in food (the extrinsic factor) - HC/ B12 mix then travels on via oesophagus into the stomach - HC/B12 mix can survive the low PH of stomach - Parietal cells produce hydrochloric
Trying to work out how B12 makes the journey: - Salivary glands produce Haptocorrin (HC), which binds to the B12 in food (the extrinsic factor) - HC/ B12 mix then travels on via oesophagus into the stomach - HC/B12 mix can survive the low PH of stomach - Parietal cells produce hydrochloric
Cherylclaire
Forum Support
in
Pernicious Anaemia Society
2 years ago
Intrinsic Factor blood test - Vitamin B12 deficiency
Today I had a blood test for Intrinsic Factor. Some Autoimmune disease can cause Pernicious anemia. Watch this space for results 💉
Today I had a blood test for Intrinsic Factor. Some Autoimmune disease can cause Pernicious anemia. Watch this space for results 💉
jules1955
in
PMRGCAuk
2 years ago
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Is anyone using/trying this program: Ingredients to prevent or slow progression of PD
Is anyone using/trying this program: any results to report? Ingredients to prevent or slow progression of PD - Knox Van Dyke - Dept of Biochemistry and Molecular Pharmacology, West Virginia University asclepiusopen.com/clinical-... Ingredients to prevent or slow progression of PD (2018): - Inosine
Is anyone using/trying this program: any results to report? Ingredients to prevent or slow progression of PD - Knox Van Dyke - Dept of Biochemistry and Molecular Pharmacology, West Virginia University asclepiusopen.com/clinical-... Ingredients to prevent or slow progression of PD (2018): - Inosine
kstavert
in
Cure Parkinson's
2 years ago
my biologic drugs stopped due to leg ulcer
I’ve had a very rough few months and things are going from bad to worse ! I started IDACIO in January (thinks it’s generic version of Adalumimab). At the time nothing was mentioned of leg ulcer I have which is taking such a long time to heal. However at my recent rheumy appointment when they realised
I’ve had a very rough few months and things are going from bad to worse ! I started IDACIO in January (thinks it’s generic version of Adalumimab). At the time nothing was mentioned of leg ulcer I have which is taking such a long time to heal. However at my recent rheumy appointment when they realised
Flatstanley
in
NRAS
2 years ago
How do you cope with stomach/colon cramping?
I have started to get them more frequently, and they are excruciatingly painful to the extent that I have no choice but to lie down for the rest of the day and hope it somewhat passes by the following day (just for it to come back a couple of days later). Even sitting up can be very uncomfortable!
I have started to get them more frequently, and they are excruciatingly painful to the extent that I have no choice but to lie down for the rest of the day and hope it somewhat passes by the following day (just for it to come back a couple of days later). Even sitting up can be very uncomfortable!
Lewis_mackenzie
in
IBS Network
2 years ago
Dhea supplements and vitamin
Hello beautiful ladies, I want to give an update about my Journey of supplements and vitamins. I took Co q10 ,inositol, vitamin D,C,E, Iron, omega 3 fish oil,selenium, folic acid and Resveratrol for 9 months before my egg retrieval I got 2 eggs 1 fertilised via ICIS but dit not make it to transfer which
Hello beautiful ladies, I want to give an update about my Journey of supplements and vitamins. I took Co q10 ,inositol, vitamin D,C,E, Iron, omega 3 fish oil,selenium, folic acid and Resveratrol for 9 months before my egg retrieval I got 2 eggs 1 fertilised via ICIS but dit not make it to transfer which
Sweethear
in
Fertility Network UK
2 years ago
Omega 3 fish oil
I've read that omega 3 is great for NASH. I'm really not a big fish eater though, a bit of tuna and that's it. Does anyone know if omega 3 supplements are liver friendly?
I've read that omega 3 is great for NASH. I'm really not a big fish eater though, a bit of tuna and that's it. Does anyone know if omega 3 supplements are liver friendly?
nash1996
in
Living with Fatty Liver and NASH
2 years ago
Normal IF test results
My blood tests came back normal - intrinsic factor normal,B12 levels normal. Private neuro recommended IM injections six years ago, again in November last year, never been introduced. I'm disabled, too sick to work, severe peripheral neuropathy, severe fatigue, muscle stiffness, pain etc. I have Hashimoto's
My blood tests came back normal - intrinsic factor normal,B12 levels normal. Private neuro recommended IM injections six years ago, again in November last year, never been introduced. I'm disabled, too sick to work, severe peripheral neuropathy, severe fatigue, muscle stiffness, pain etc. I have Hashimoto's
MyrtleMac
in
Pernicious Anaemia Society
2 years ago
Essential oils
Hi Can anyone advise please. I have been trying to figure out why my seizures have become worse since January. I have been admitted to hospital twice and have had an immense increase in my seizure activity. I have had medication changes but no help and my my rescue medication is not working too. I tried
Hi Can anyone advise please. I have been trying to figure out why my seizures have become worse since January. I have been admitted to hospital twice and have had an immense increase in my seizure activity. I have had medication changes but no help and my my rescue medication is not working too. I tried
car67
in
Epilepsy Action
2 years ago
Seeking a natural cure for prostate cancer.
I am a 70 y/o , diagnosed with Intermediate Grade Prostate Cancer in April 2021. Biopsy showed one Gleason 8 (4+4), one 7 (4+3) and the rest were mostly 6 s and 7s (3+4). After much reading I opted to go the natural healing route; I spent two weeks in Baja Mexico doing modified Gerson Therapy
I am a 70 y/o , diagnosed with Intermediate Grade Prostate Cancer in April 2021. Biopsy showed one Gleason 8 (4+4), one 7 (4+3) and the rest were mostly 6 s and 7s (3+4). After much reading I opted to go the natural healing route; I spent two weeks in Baja Mexico doing modified Gerson Therapy
Properstate
in
Prostate Cancer Network
2 years ago
Testosterone Injections
I recently had my blood sample taken and results reviewed by the Men's Health Clinic. They couldn't do anything for me because my testosterone levels were in the 'normal' range (specifics below). To be honest they didn't take me seriously from first contact due to me not being in the 50+ age bracket,
I recently had my blood sample taken and results reviewed by the Men's Health Clinic. They couldn't do anything for me because my testosterone levels were in the 'normal' range (specifics below). To be honest they didn't take me seriously from first contact due to me not being in the 50+ age bracket,
testing94
in
Sensitive Issues for Men
2 years ago
Positive Intrinsic Factor
It's obvious to me now i have pernicious anemia. I went round and round with the conventional tests but the symptoms and the positive IF are enough for me. My symptoms are scary and include psychosis so this has been a nightmare. My question is what exactly [i]causes[/i] the low stomach acid to begin
It's obvious to me now i have pernicious anemia. I went round and round with the conventional tests but the symptoms and the positive IF are enough for me. My symptoms are scary and include psychosis so this has been a nightmare. My question is what exactly [i]causes[/i] the low stomach acid to begin
Ecf123
in
Pernicious Anaemia Society
2 years ago
Making rls manageable, a continuing story
I have had quite bad rls for the last two years and over time, very little sleep. However I have tried to persevere without drugs, although my GP has prescribed low dose codeine (15mg) which helped at first but I now try not to take. My rls is currently much better. It hasn’t gone away but it’s sort
I have had quite bad rls for the last two years and over time, very little sleep. However I have tried to persevere without drugs, although my GP has prescribed low dose codeine (15mg) which helped at first but I now try not to take. My rls is currently much better. It hasn’t gone away but it’s sort
Bluebboat
in
Restless Legs Syndrome
2 years ago
Did Anyone With Diagnosed Pernicious Anaemia or B12 Deficiency have rapid weight gain before the deficiency was found?
I have recently added to my full house of Chronic Health conditions with tests showing high platelets , abnormal blood cell size , severe Vitamin B12 and Iron deficiencies and severe Vit D deficiency. I have just had the tests for Intrinsic Factor antibodies , folate , autoantibodies and Coeliac
I have recently added to my full house of Chronic Health conditions with tests showing high platelets , abnormal blood cell size , severe Vitamin B12 and Iron deficiencies and severe Vit D deficiency. I have just had the tests for Intrinsic Factor antibodies , folate , autoantibodies and Coeliac
Blearyeyed
in
Pernicious Anaemia Society
2 years ago
Vitamin Deficiency/ Pernicious Anaemia : How Common Are They With EDS and What's The Best Treatment for Us ? Please Tell Me Your Experience
I have suffered with Vitamin D Deficiency and Anaemia many times in the last ten years. Gastric problems have always been part of my chronic health experience even before I got the answer about why they could be happening was likely to be EDS. I have been suffering with IBS Constipation , difficulty
I have suffered with Vitamin D Deficiency and Anaemia many times in the last ten years. Gastric problems have always been part of my chronic health experience even before I got the answer about why they could be happening was likely to be EDS. I have been suffering with IBS Constipation , difficulty
Blearyeyed
in
Ehlers-Danlos Support UK
2 years ago
Advice from the experts please?
I was diagnosed with Pernicious Anemia 5 years ago, bad story, long recovery and now watching for signs in my kids. My youngest (23 year old boy, history of Graves Disease) has consistently had B12 levels around 200. These are his most current test results and his doctor is not concerned and just suggests
I was diagnosed with Pernicious Anemia 5 years ago, bad story, long recovery and now watching for signs in my kids. My youngest (23 year old boy, history of Graves Disease) has consistently had B12 levels around 200. These are his most current test results and his doctor is not concerned and just suggests
Emmers5
in
Pernicious Anaemia Society
2 years ago
Omega 3's to reduce some MPN issues?
Two of my favorite experts did a podcast: https://hubermanlab.com/dr-rhonda-patrick-micronutrients-for-health-and-longevity/ I already take DHA and EPA but since listening I've increased my doses and changed to another supplement (and now keep it in the refrigerator). This and taking more Magnesium
Two of my favorite experts did a podcast: https://hubermanlab.com/dr-rhonda-patrick-micronutrients-for-health-and-longevity/ I already take DHA and EPA but since listening I've increased my doses and changed to another supplement (and now keep it in the refrigerator). This and taking more Magnesium
Elizka
in
MPN Voice
2 years ago
Low ferritin question
Hi. Would be grateful for advice. My (adult) daughter had always suffered from anaemia to some extent. Last year her B12 came back at 119 and she had a course of injections. Recently she had been feeling weak, tired and with palpitations and tachycardia, so had blood tests. B12 was 300 and ferritin
Hi. Would be grateful for advice. My (adult) daughter had always suffered from anaemia to some extent. Last year her B12 came back at 119 and she had a course of injections. Recently she had been feeling weak, tired and with palpitations and tachycardia, so had blood tests. B12 was 300 and ferritin
Lunadoo
in
Pernicious Anaemia Society
2 years ago
Does Everyone With CKD Have to be on a Statin?
Last year, before my beloved GP retired, she put me on 10mg Crestor as a preventative, she said all CKD patients with a GFR less than 50 should be on a statin, and that it was recommended. So I went on. My gfr dropped 6 points My neph, immediately changed the dose to 5mg. So that is what I have been
Last year, before my beloved GP retired, she put me on 10mg Crestor as a preventative, she said all CKD patients with a GFR less than 50 should be on a statin, and that it was recommended. So I went on. My gfr dropped 6 points My neph, immediately changed the dose to 5mg. So that is what I have been
Hidden
in
Kidney Disease
2 years ago
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