Search
Search
About
Log in
Join
Experiences with
Carer support
Posts
Communities
781 public posts
Filter results
85 with IPF neeed to learn fast
DNOM I have alredy left something similar to this on another IPF blog. But need to know fast from all your experiences on how to deal with this. I have been told that I need oxygen assesment to prescribe what level I need. and I have been practising breathing techniques (from the internet) which has
DNOM I have alredy left something similar to this on another IPF blog. But need to know fast from all your experiences on how to deal with this. I have been told that I need oxygen assesment to prescribe what level I need. and I have been practising breathing techniques (from the internet) which has
DNOM
in
Lung Conditions Community Forum
12 years ago
Longing for Summer
The student house team are introducing a new bi-weekly schedule which varies home visit days and times to support Jake in becoming more comfortable with flexibility and also, along with some additional weekend
carer
support
, to give me some more playing out time.
The student house team are introducing a new bi-weekly schedule which varies home visit days and times to support Jake in becoming more comfortable with flexibility and also, along with some additional weekend
carer
support
, to give me some more playing out time.
Dorsetcharlie
in
Headway
12 years ago
End stages? not sure, any advice
Hi, I have looked after my mum for 3 years since my dad died. mum was diagnosed about 5 years ago. I do have careers that help me now as I cannot do it by myself anymore. We are now feeding mum with a syringe as she cannot open her mouth, she has refused a peg feed but still wants to eat, at the same
Hi, I have looked after my mum for 3 years since my dad died. mum was diagnosed about 5 years ago. I do have careers that help me now as I cannot do it by myself anymore. We are now feeding mum with a syringe as she cannot open her mouth, she has refused a peg feed but still wants to eat, at the same
Victoriab
in
PSP Association
12 years ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
My sister Helen1
Hi ladies, my sister was an active member of your group. I just have a look in order to support her. Sadly Helen1 died on Dec 22nd just gone. Her scan in nov showed extensive liver mets and treatment was stopped and she was referred to the palliative care team.. She had no pain and she had a sense
Hi ladies, my sister was an active member of your group. I just have a look in order to support her. Sadly Helen1 died on Dec 22nd just gone. Her scan in nov showed extensive liver mets and treatment was stopped and she was referred to the palliative care team.. She had no pain and she had a sense
Mairead65
in
My Ovacome
12 years ago
Just to catch up....
Hoping to lose some weight in the new year, and go back to the pool with help from a new
carer
. :-) Thankyou all for your
support
on this forum without you all I don't know how I would have coped with it all.
Hoping to lose some weight in the new year, and go back to the pool with help from a new
carer
. :-) Thankyou all for your
support
on this forum without you all I don't know how I would have coped with it all.
rainbowdancer
in
Fibromyalgia Action UK
12 years ago
palliative care
is there a difference between palliative care and hospice my very ill brother is refusing palliative care because he thinks it means he is near his end his wife needs some help at home as she cannot do it all herself she will be ill herself at this rate my brother has IPF and has been offered palliative
is there a difference between palliative care and hospice my very ill brother is refusing palliative care because he thinks it means he is near his end his wife needs some help at home as she cannot do it all herself she will be ill herself at this rate my brother has IPF and has been offered palliative
brujapatsy
in
Lung Conditions Community Forum
12 years ago
how are you defined to be platinum resistant
I have recently been told that i can not have carboplatin as 3rd line treatment. they have offered me myocept with 20% chances of it working. if it works they say i can have carboplatin again in May as this works well for me but if it does not then it's palliative care. am trying to find out why they
I have recently been told that i can not have carboplatin as 3rd line treatment. they have offered me myocept with 20% chances of it working. if it works they say i can have carboplatin again in May as this works well for me but if it does not then it's palliative care. am trying to find out why they
trolleydollyuk
in
My Ovacome
12 years ago
Erlotinib
Hi, My husband has untreatable nscc of the lung and was told on Friday that the chemo and radiotherapy has not worked, the cancer has not shrunk and there are new nodules. He was offered either palliative care or erlotinib. We did not see his normal consultant and had very little time to make the
Hi, My husband has untreatable nscc of the lung and was told on Friday that the chemo and radiotherapy has not worked, the cancer has not shrunk and there are new nodules. He was offered either palliative care or erlotinib. We did not see his normal consultant and had very little time to make the
lesley51
in
The Roy Castle Lung Cancer Foundation
12 years ago
Being a nurse doesn't help when its your own family!
My husband was diagnosed with stage 3 non small cell lung cancer affectiong 2 nodes and 1 met.Following successful radiotherapy treatment of prostate cancer 4 years ago.This is a new primary cancer not linked. He completed his second course of chemotherapy 7 days ago and this is where we are at loggerheads.He
My husband was diagnosed with stage 3 non small cell lung cancer affectiong 2 nodes and 1 met.Following successful radiotherapy treatment of prostate cancer 4 years ago.This is a new primary cancer not linked. He completed his second course of chemotherapy 7 days ago and this is where we are at loggerheads.He
jaynerebecca
in
The Roy Castle Lung Cancer Foundation
12 years ago
Has anyone been treated with myocet?
Today has been a roller coaster of emotions,was hospitalised yesterday with excruciating pain in the abdomen and vomiting yellow/brown fluid.still have no idea what caused this is the 4 dr's I have seen have all given me different reasons.please let me know if any of you have had this and what was the
Today has been a roller coaster of emotions,was hospitalised yesterday with excruciating pain in the abdomen and vomiting yellow/brown fluid.still have no idea what caused this is the 4 dr's I have seen have all given me different reasons.please let me know if any of you have had this and what was the
trolleydollyuk
in
My Ovacome
12 years ago
Getting help in tough times
Can you help to make sure the family, friends and carers of people with lung disease get the
support
they need? “A
carer
is someone of any age who provides unpaid
support
to family or friends who could not manage without this help.”
Can you help to make sure the family, friends and carers of people with lung disease get the
support
they need? “A
carer
is someone of any age who provides unpaid
support
to family or friends who could not manage without this help.”
Hidden
British Lung Foundation
in
Lung Conditions Community Forum
12 years ago
Another stage
Palliative care consultant has been to see mum today and thinks that we have just weeks left. In my heart I knew it really but the wind has been knocked out of me completely.
Palliative care consultant has been to see mum today and thinks that we have just weeks left. In my heart I knew it really but the wind has been knocked out of me completely.
jac001
in
PSP Association
12 years ago
Could I make a cheeky plea?
I haven't provided a geographical location or in-depth personal details but it helps enormously to have some idea of where on the CLL 'journey' people are or indeed if they are a
carer
or medical professional with an interest. Do others agree? In
support
, Newdawn x
I haven't provided a geographical location or in-depth personal details but it helps enormously to have some idea of where on the CLL 'journey' people are or indeed if they are a
carer
or medical professional with an interest. Do others agree? In
support
, Newdawn x
Newdawn
Administrator
in
CLL Support
12 years ago
Anyone else in my position?
Both my mum and I were diagnosed with lung cancer on the same day in the same clinic by the same consultant! September 11th 2012. Both of us are receiving palliative care as there is no cure although I am undergoing chemo which will hopefully slow things down. We are both reconciled to the fact that
Both my mum and I were diagnosed with lung cancer on the same day in the same clinic by the same consultant! September 11th 2012. Both of us are receiving palliative care as there is no cure although I am undergoing chemo which will hopefully slow things down. We are both reconciled to the fact that
robkc
in
The Roy Castle Lung Cancer Foundation
12 years ago
indecisiveness
We are both on benefits, previously we were on income
support
with him as my
carer
. We could go back to that but have the money paid into a seperate account for bills & have personal 'spending' & living expenses paid into our own banks & live independantly, with locks on our doors etc.
We are both on benefits, previously we were on income
support
with him as my
carer
. We could go back to that but have the money paid into a seperate account for bills & have personal 'spending' & living expenses paid into our own banks & live independantly, with locks on our doors etc.
cobweb
in
Fibromyalgia Action UK
12 years ago
North West Conference 2012 Carer's Workshop.
Saying that you are a
carer
can open up the door to
support
such as
carer
assessments and benefits eg Carer's Allowance, and information specifically for carer's such as having an annual flu jab if the health and welfare of the person being cared for is at risk if the carer becomes ill.
Saying that you are a
carer
can open up the door to
support
such as
carer
assessments and benefits eg Carer's Allowance, and information specifically for carer's such as having an annual flu jab if the health and welfare of the person being cared for is at risk if the carer becomes ill.
Jo_BLFHelpline
British Lung Foundation
in
Lung Conditions Community Forum
12 years ago
Snakes and ladders and cats
Hello. I haven't posted for a while so I thought I'd give you all a quick update. After changing GPs, I finally managed to get referred to rheumatology but the rheumatologist refused the referral because my blood tests showed slightly raised urate levels. Although my GP agreed with me that I didn't have
Hello. I haven't posted for a while so I thought I'd give you all a quick update. After changing GPs, I finally managed to get referred to rheumatology but the rheumatologist refused the referral because my blood tests showed slightly raised urate levels. Although my GP agreed with me that I didn't have
GreenFlower
in
NRAS
12 years ago
Vagus Nerve Stimulation Shows Early Promise in Fibromyalgia
August 26, 2011 — An open-label phase 1/2 trial of patients with treatment-resistant fibromyalgia shows that the therapy is safe and effective and may be a useful treatment addition. The aim of the uncontrolled single-center pilot study was to determine whether periodic but continuous stimulation
August 26, 2011 — An open-label phase 1/2 trial of patients with treatment-resistant fibromyalgia shows that the therapy is safe and effective and may be a useful treatment addition. The aim of the uncontrolled single-center pilot study was to determine whether periodic but continuous stimulation
Hidden
in
Fibromyalgia Action UK
12 years ago
Update from lung cancer study day and other things :)
Not written a post myself for a while although I always try to answer other posts and give some hope to others in a similar position to myself. I have had a very busy few weeks since coming back from the USA. We now have our support group up and running, our first 'official' meeting in 26th October
Not written a post myself for a while although I always try to answer other posts and give some hope to others in a similar position to myself. I have had a very busy few weeks since coming back from the USA. We now have our support group up and running, our first 'official' meeting in 26th October
Hidden
in
The Roy Castle Lung Cancer Foundation
12 years ago
Brentwood Support Group
This is an informal gathering, led by Liz Williams, Parkinson’s Specialist Practitioner, and Jenni Nind, a former
Carer
and PSPA Member, where people can gain mutual
support
and advice, meet others who have knowledge of the disease, or help in raising awareness locally.
This is an informal gathering, led by Liz Williams, Parkinson’s Specialist Practitioner, and Jenni Nind, a former
Carer
and PSPA Member, where people can gain mutual
support
and advice, meet others who have knowledge of the disease, or help in raising awareness locally.
PSPA_DebbieB
PSPA
in
PSP Association
12 years ago
1
...
37
38
39
40
Next page
10
20
30
40
Filter results
Clear filters
Posted in
All communities
Advanced Prostate Cancer
100 results
PSP Association
95 results
Lung Conditions Community Forum
77 results
View top 10 communities
Sort by
Most Relevant
Newest