Has anyone been treated with myocet?

Today has been a roller coaster of emotions,was hospitalised yesterday with excruciating pain in the abdomen and vomiting yellow/brown fluid.still have no idea what caused this is the 4 dr's I have seen have all given me different reasons.please let me know if any of you have had this and what was the cause. Today I was told I would be starting myocet, put it in the search box but nothing has come up. My onc said there is only a 20% chance of it working and has referred me to the palliative care team, have been knocked for 6 and could really do with some encouraging news

Shabila x

13 Replies

oldestnewest
  • Hi Shabila,

    I have just Googled Myocet and there is quite a lot of info on it, there is also a McMillan page, hope this helps

    Chris x

  • thank you so much for responding, I have had time to process things and am definately going for a second opinion both on the NHS and privately. I can not get my head round why on the 25th October i was told that there were still lots of options available to be told on the 15th that it's myocet with a 20% chance of it working and pallative care after that. Am wondering if it is a funding issue. I still have a lot of fight left in me and am not prepared to give up this easily. Prayers are needed from all you lovely ladies

    shabila xxx

  • Hi Shabila

    So sorry you have had this awful experience today. I don't know about Myocet, just wanted to send you hugs and a message to say - keep hope alive. Statistics only measure what happened to some people in the past. You are a strong individual, the treatments may work, there may be new treatments, you may be the one to buck the trend. Hang on to hope :-)

    Love Wendy xx

  • thank you so much for responding, I have had time to process things and am definately going for a second opinion both on the NHS and privately. I can not get my head round why on the 25th October i was told that there were still lots of options available to be told on the 15th that it's myocet with a 20% chance of it working and pallative care after that. Am wondering if it is a funding issue. I still have a lot of fight left in me and am not prepared to give up this easily. Prayers are needed from all you lovely ladies

    shabila xxx

  • Wendy is absolutely right.

    Jackie x

  • thank you so much for responding, I have had time to process things and am definately going for a second opinion both on the NHS and privately. I can not get my head round why on the 25th October i was told that there were still lots of options available to be told on the 15th that it's myocet with a 20% chance of it working and pallative care after that. Am wondering if it is a funding issue. I still have a lot of fight left in me and am not prepared to give up this easily. Prayers are needed from all you lovely ladies

    shabila xxx

  • Dear Shabila

    I'm so sorry to hear you're so uncomfortable and have been hospitalised. Let's hope the doctors get something for you quickly to make you better.

    Looks like Myocet is on trial in various countries in the world. The Mac page is more comprehensible than Wikipedia and seems to be the same drug as Caelyx which is used for platinum-resistance.

    I really hope this works for you and that you're home and comfortable again in the quickest of time.

    sending love and hugs. xxx Annie

  • Hi Shabila, so sorry to hear your news are you still in hospital? I was a bit like you last week, I had one day vomiting and the excruciating pain, then just the pain being handled by Amitryptamine, one at night and Oramorph and parecetemol during the day. I asked and they offered me Totopecan, I don't think he thinks I should be trying more chemo and I thought I might be referred to the palliative team but I have got the macmillan nurse. I am amazingly feeling more hopeful, it seems to take about 5 days for me to process this news.

    I am waiting for my appointment for chemo and wondering if I will make it till then, but much more positive today, so we are in a similar boat, do stay in touch I will be thinking of you Love Diane xxx

  • thank you so much for responding, I have had time to process things and am definately going for a second opinion both on the NHS and privately. I can not get my head round why on the 25th October i was told that there were still lots of options available to be told on the 15th that it's myocet with a 20% chance of it working and pallative care after that. Am wondering if it is a funding issue. I still have a lot of fight left in me and am not prepared to give up this easily. Prayers are needed from all you lovely ladies

    shabila xxx

  • I would ask for a second opinion urgently at a major cancer centre. Also I would call Ovacome support line, they might have better advice: 0845 371 0554.

    Please keep in touch and let us know how you are doing.

    I am thinking of you,

    Cx

  • thank you so much for responding, I have had time to process things and am definately going for a second opinion both on the NHS and privately. I can not get my head round why on the 25th October i was told that there were still lots of options available to be told on the 15th that it's myocet with a 20% chance of it working and pallative care after that. Am wondering if it is a funding issue. I still have a lot of fight left in me and am not prepared to give up this easily. Prayers are needed from all you lovely ladies

    shabila xxx

  • Shabila, have you been treated with Caelyx before? It was off the market for a year, but my oncologist told me today that it's being produced again. Myocet is the equivalent, but used for brest cancer, and doesn't give great results for OC. I had 6 cycles of Caelyx, the disease disappeared and I had 6 months disease free. As for a second opinion and keep hoping!

    Thinking of you

    Francesca

  • thank you so much for responding, I have had time to process things and am definately going for a second opinion both on the NHS and privately. I can not get my head round why on the 25th October i was told that there were still lots of options available to be told on the 15th that it's myocet with a 20% chance of it working and pallative care after that. Am wondering if it is a funding issue. I still have a lot of fight left in me and am not prepared to give up this easily. Prayers are needed from all you lovely ladies

    shabila xxx

You may also like...