Today has been a roller coaster of emotions,was hospitalised yesterday with excruciating pain in the abdomen and vomiting yellow/brown fluid.still have no idea what caused this is the 4 dr's I have seen have all given me different reasons.please let me know if any of you have had this and what was the cause. Today I was told I would be starting myocet, put it in the search box but nothing has come up. My onc said there is only a 20% chance of it working and has referred me to the palliative care team, have been knocked for 6 and could really do with some encouraging news
Shabila x
Written by
trolleydollyuk
To view profiles and participate in discussions please or .
thank you so much for responding, I have had time to process things and am definately going for a second opinion both on the NHS and privately. I can not get my head round why on the 25th October i was told that there were still lots of options available to be told on the 15th that it's myocet with a 20% chance of it working and pallative care after that. Am wondering if it is a funding issue. I still have a lot of fight left in me and am not prepared to give up this easily. Prayers are needed from all you lovely ladies
So sorry you have had this awful experience today. I don't know about Myocet, just wanted to send you hugs and a message to say - keep hope alive. Statistics only measure what happened to some people in the past. You are a strong individual, the treatments may work, there may be new treatments, you may be the one to buck the trend. Hang on to hope
thank you so much for responding, I have had time to process things and am definately going for a second opinion both on the NHS and privately. I can not get my head round why on the 25th October i was told that there were still lots of options available to be told on the 15th that it's myocet with a 20% chance of it working and pallative care after that. Am wondering if it is a funding issue. I still have a lot of fight left in me and am not prepared to give up this easily. Prayers are needed from all you lovely ladies
thank you so much for responding, I have had time to process things and am definately going for a second opinion both on the NHS and privately. I can not get my head round why on the 25th October i was told that there were still lots of options available to be told on the 15th that it's myocet with a 20% chance of it working and pallative care after that. Am wondering if it is a funding issue. I still have a lot of fight left in me and am not prepared to give up this easily. Prayers are needed from all you lovely ladies
I'm so sorry to hear you're so uncomfortable and have been hospitalised. Let's hope the doctors get something for you quickly to make you better.
Looks like Myocet is on trial in various countries in the world. The Mac page is more comprehensible than Wikipedia and seems to be the same drug as Caelyx which is used for platinum-resistance.
I really hope this works for you and that you're home and comfortable again in the quickest of time.
Hi Shabila, so sorry to hear your news are you still in hospital? I was a bit like you last week, I had one day vomiting and the excruciating pain, then just the pain being handled by Amitryptamine, one at night and Oramorph and parecetemol during the day. I asked and they offered me Totopecan, I don't think he thinks I should be trying more chemo and I thought I might be referred to the palliative team but I have got the macmillan nurse. I am amazingly feeling more hopeful, it seems to take about 5 days for me to process this news.
I am waiting for my appointment for chemo and wondering if I will make it till then, but much more positive today, so we are in a similar boat, do stay in touch I will be thinking of you Love Diane xxx
thank you so much for responding, I have had time to process things and am definately going for a second opinion both on the NHS and privately. I can not get my head round why on the 25th October i was told that there were still lots of options available to be told on the 15th that it's myocet with a 20% chance of it working and pallative care after that. Am wondering if it is a funding issue. I still have a lot of fight left in me and am not prepared to give up this easily. Prayers are needed from all you lovely ladies
shabila xxx
I would ask for a second opinion urgently at a major cancer centre. Also I would call Ovacome support line, they might have better advice: 0845 371 0554.
Please keep in touch and let us know how you are doing.
thank you so much for responding, I have had time to process things and am definately going for a second opinion both on the NHS and privately. I can not get my head round why on the 25th October i was told that there were still lots of options available to be told on the 15th that it's myocet with a 20% chance of it working and pallative care after that. Am wondering if it is a funding issue. I still have a lot of fight left in me and am not prepared to give up this easily. Prayers are needed from all you lovely ladies
Shabila, have you been treated with Caelyx before? It was off the market for a year, but my oncologist told me today that it's being produced again. Myocet is the equivalent, but used for brest cancer, and doesn't give great results for OC. I had 6 cycles of Caelyx, the disease disappeared and I had 6 months disease free. As for a second opinion and keep hoping!
thank you so much for responding, I have had time to process things and am definately going for a second opinion both on the NHS and privately. I can not get my head round why on the 25th October i was told that there were still lots of options available to be told on the 15th that it's myocet with a 20% chance of it working and pallative care after that. Am wondering if it is a funding issue. I still have a lot of fight left in me and am not prepared to give up this easily. Prayers are needed from all you lovely ladies
Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.
Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.
Has anyone had problems with Atos?
Anyone has been on Paclitaxel on its own and cyst
Newcomer to Forum - My wife has been diagnosed with Ovarian Carcinosarcoma
How many have been diagnosed with Carcinosarcoma?
My sister has been diagnosed with ovarian cancer. I'm new here so would appreciate any information given. 
