Experiences with

Carer support

Join our mailing list here: Parent and Carer Support Network Events | Asthma + Lung UK (asthmaandlung.org.uk) https://www.asthmaandlung.org.uk/groups-support/parent-carer-support-network/parent-carer-network-events Parents and Carers – Join our free online ‘Winter Wellness’ session Managing asthma

Asthma + Lung UK Parent Carer Support Network Who are we? Do you have children or grandchildren who are 0-17 and living with asthma? The Asthma + Lung UK Parent Carer Support Network is a group for you.

Join our mailing list and sign up to our next event here: https://www.asthmaandlung.org.uk/groups-support/parent-carer-support-network/parent-carer-network-events Wednesday 24th July @ 7pm: ‘Sweet Dreams’ Helping your child to sleep better with asthma If your child’s asthma keeps them

https://www.asthmaandlung.org.uk/groups-support/parent-carer-support-network/parent-carer-network-events Please note: A parent, carer or responsible adult age 18+ must be present with children at all times during the workshop

Strategies to Resensitize CRPC to AR-Targeted Therapies Castration-resistant prostate cancer (CRPC) often remains driven by the androgen receptor (AR) pathway despite resistance to standard AR-targeted treatments. Numerous strategies – from drugs and combinations to hormonal cycling and lifestyle changes

My partner was diagnosed with psp March 24 but had been living well with this condition for several years before that. Eating well and keeping a consistent routine had kept things relatively stable for sometime. He then tripped and fell en route to an eye appointment in January 25 . At this point paramedics

I have tried this before with no success but am trying again. Is there anyone out there that has experienced mbc to the pancreas? I have bone mets as well but it’s the pancreas doing me in. I am in so much pain and I am working with a palliative care team but the medication just makes me sleep all day

Hello from the UK. My lovely Dad, 73 came out of hospital last week and is having palliative care at home in a hospital bed. He’s completely bed-bound with a catheter and is asleep nearly all the time. He can’t even pull himself up to sit up in bed or put the duvet cover over his shoulders. We’ve got

my husband has moved from end of life care (ie: we were called to say our goodbyes) ….then palliative care at home with plans to not readmit him…..and a DNR in place….Now he has no Edema at all, no breathing issues, his heart rate normal….he has had no medication other than diuretics. he has a previous

** UPDATE ** * I don't know how to share the documents so I will add some helpful documents I created at the bottom of this post. There is so much experience and wisdom on this forum, lots of people can help you. Bring together the MDT and advocate for your loved ones - having a clear diagnosis is important

Hi all. Have any of you heard of a movement called “Common sense oncology”? It’s about looking at all aspects of how to treat people with terminal/chronic illnesses using a more wholistic approach. As in ….. Trials. Radiation therapy. Pain relief. Palliative care/hopsice etc. https://www.pcfa.org.au

Hi Friends some ofbyou know me wellMy Husband has had Cancer for 12 years with all initial treatments of Radiation to the Prostate Bed and Zoladex 3 monthly injections which brought his psa down from 64 to nadir, Zoladex was stopped and it was a wait and watch, we had six years where the psa was trending

Hi, I've seen a couple of items on here regarding the palliative care and making sure its on medical records.My husband was diagnosed 16th December 2024 with CBD after seeing a neurologist. We have been seeing the parkinsons physiotherapists and got an OT that is due to come and access our home for his

About six months ago, I shared an update about my 83-year-old father: https://healthunlocked.com/advanced-prostate-cancer/posts/private/151082007/metastatic-disease-later-in-life-with-dementia Thank you all for your helpful responses. Here’s a brief update on where things stand today: In July 2024

Hi, mom is 80 and has CKD stage V (eGFR 8-10) in addition to diabetes. We’ve been avoiding the dialysis discussion until she had a recent minor fall, likely due to losing balance and dizziness. Speaking to palliative care today but would love to connect with other families who have had some success with

V best friend in Seville, Spain..with PSP end stage...there is NO palliative care avail..i am senior pall care nurse from UK.Recent DRUG CHANGES..VIA PEG TUBE INCLUDE; OLANZEPINE INCREASED FROM 5MGS TO 10MG...AT SAME TIME STARTED V HI DOSE AMITRYPTILLINE 50 MGS...SINCE THEN MY V DEAREST FRIEND IS ' KOSHED

mum seems to be deteriorating daily over the last month. Her left arm is rigid and stays by her side, her posture is slumped over and tilted to the right, her speech has more or less gone. She sometimes has an excess of saliva but still appears to be able to swallow. This week I thought she looked as

Just had my first Gallium PSMA after two years of Abby and Lupie. The tumors which were filled up my abdomen had shrunk substantially to dime size per my last CT in October. My poorly differentiated biopsies could not be Gleasoned. The cancer was stated to be a a rare extremely aggressive variant with

hi everyone… Husband’s HF seemed to arrive from nowhere….in the last few months my husband has been complaining he’s more tired and he has been overweight for some time….literally the month of December was in hospital with fluid overload, BNP 6200 and breathless… echo showed left ventricle EF 10%

I’m looking to connect with other care givers to compare and support each other. My mum is 76, she has had decompensated diagnosis for 1 year and 9 months. The average lifespan is apparently 2 years. She doesn’t drink which might go in her favour but she also has lung disease ☹️ She has been managing