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Asthma + Lung UK Parent Carer Support Network
Asthma + Lung UK Parent
Carer
Support
Network Who are we? Do you have children or grandchildren who are 0-17 and living with asthma? The Asthma + Lung UK Parent
Carer
Support
Network is a group for you.
Asthma + Lung UK Parent
Carer
Support
Network Who are we? Do you have children or grandchildren who are 0-17 and living with asthma? The Asthma + Lung UK Parent
Carer
Support
Network is a group for you.
ALUK_Nurses
Asthma Nurse
in
Asthma Community Forum
24 days ago
Asthma + Lung UK Parent Carer Support Network
Join our mailing list and sign up to our next event here: https://www.asthmaandlung.org.uk/groups-
support
/parent-
carer
-
support
-network/parent-
carer
-network-events Wednesday 24th July @ 7pm: ‘Sweet Dreams’ Helping your child to sleep better with asthma If your child’s asthma keeps them
Join our mailing list and sign up to our next event here: https://www.asthmaandlung.org.uk/groups-
support
/parent-
carer
-
support
-network/parent-
carer
-network-events Wednesday 24th July @ 7pm: ‘Sweet Dreams’ Helping your child to sleep better with asthma If your child’s asthma keeps them
ALUK_Nurses
Asthma Nurse
in
Asthma Community Forum
2 months ago
Bilirubin 500s
Told no treatment, no Liver transplant, blocked bile ducts not resolved after two ERCPs. Left Right intrahepatic ducts. Left to palliative care, no surgery or bypass offered does this sound right to anyone ? Does anyone know of an ERCP specialist? Were South East England
Told no treatment, no Liver transplant, blocked bile ducts not resolved after two ERCPs. Left Right intrahepatic ducts. Left to palliative care, no surgery or bypass offered does this sound right to anyone ? Does anyone know of an ERCP specialist? Were South East England
Dave46
in
British Liver Trust
5 days ago
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Pianolover101
Morning everyone, I haven't posted in a few weeks, but want to say how comforting I find it to read posts and the very knowledgeable replies (I'm thinking of you Katy! ) I spoke to one of the liver nurses a couple weeks ago and she was a total saint and gave me so many practical tips. It's my husband
Morning everyone, I haven't posted in a few weeks, but want to say how comforting I find it to read posts and the very knowledgeable replies (I'm thinking of you Katy! ) I spoke to one of the liver nurses a couple weeks ago and she was a total saint and gave me so many practical tips. It's my husband
Hidden
in
British Liver Trust
7 days ago
The Day I Raced My Palliative Care Nurse
I’m coming off the mountain top! What an incredible experience and I’m sure Nurse Sarah (not her real name) feels the same! I was smiling and laughing all the way home from my hospital! So much fun! I can only say in my life that my wife’s birth to our daughters surpasses this. The only thing that
I’m coming off the mountain top! What an incredible experience and I’m sure Nurse Sarah (not her real name) feels the same! I was smiling and laughing all the way home from my hospital! So much fun! I can only say in my life that my wife’s birth to our daughters surpasses this. The only thing that
TuffNuttoCrack
in
Advanced Prostate Cancer
11 days ago
Hypermetabolic PET results
Hi everyone...God bless you all in this fight. I have only posted once before, I think. But, sure do keep up with all on this board...so helpful!I have triple pos MBC with Pik3ca mutation. Diagnosed about 2 1/2 years ago. Not much luck with treatments...am on my 4th or 5th line...have lost count. My
Hi everyone...God bless you all in this fight. I have only posted once before, I think. But, sure do keep up with all on this board...so helpful!I have triple pos MBC with Pik3ca mutation. Diagnosed about 2 1/2 years ago. Not much luck with treatments...am on my 4th or 5th line...have lost count. My
Tuckermom
in
SHARE Metastatic Breast Cancer
16 days ago
Seeking Advice on Clinical Trials or Treatments for Advanced Prostate Cancer with Bone Marrow Involvement
Dear Forum Members, I am reaching out for guidance and support regarding my father’s ongoing battle with advanced prostate cancer. About a year ago, he was diagnosed with stage 4 prostate cancer with extensive bone metastases but no organ involvement. Recently, we discovered that he has a BRCA2 mutation
Dear Forum Members, I am reaching out for guidance and support regarding my father’s ongoing battle with advanced prostate cancer. About a year ago, he was diagnosed with stage 4 prostate cancer with extensive bone metastases but no organ involvement. Recently, we discovered that he has a BRCA2 mutation
Fightingformyfather
in
Advanced Prostate Cancer
17 days ago
Have you got Respect Form/Palliative Care in place?
Hi all, I haven't posted for a while, although I have been reading the posts regularly and send my deepest condolescences to all loved ones who have passed away recently. My Father-in-law's (FIL) PSP journey is gathering pace, it's so awful to see a once active man, not a day off in his life due to
Hi all, I haven't posted for a while, although I have been reading the posts regularly and send my deepest condolescences to all loved ones who have passed away recently. My Father-in-law's (FIL) PSP journey is gathering pace, it's so awful to see a once active man, not a day off in his life due to
Loveispatient23
in
PSP Association
26 days ago
Still here ...
We are still here, frailer and sadder. Lost count of the number of chest infections since the last post. She usually responds to antibiotics but hasn't this time. She is receiving less than teaspoons of thickened ensure with her medicine mixed in. She almost finished her second course. The home are
We are still here, frailer and sadder. Lost count of the number of chest infections since the last post. She usually responds to antibiotics but hasn't this time. She is receiving less than teaspoons of thickened ensure with her medicine mixed in. She almost finished her second course. The home are
MRSYafffle
in
PSP Association
1 month ago
2nd TACE
Hello all my husband has just had the TACE procedure on the 2nd tumour, the 1st seems to be holding its own and no cancer ‘lighting up on Scans’. We have been told this is now palliative care husband also has Alzheimer’s, is there anyone out there who is in the same boat? I am struggling with dealing
Hello all my husband has just had the TACE procedure on the 2nd tumour, the 1st seems to be holding its own and no cancer ‘lighting up on Scans’. We have been told this is now palliative care husband also has Alzheimer’s, is there anyone out there who is in the same boat? I am struggling with dealing
Campervan29
in
British Liver Trust
2 months ago
palliative radiation treatment questions
In my prior (first) post, I shared about my 82 year old father’s condition. Thanks for all the helpful and thoughtful responses from this community. He has gone off Goserelin (ADT) injection and now just on bicalutamide pills. As his testosterone seems to have returned, he’s now having more energy
In my prior (first) post, I shared about my 82 year old father’s condition. Thanks for all the helpful and thoughtful responses from this community. He has gone off Goserelin (ADT) injection and now just on bicalutamide pills. As his testosterone seems to have returned, he’s now having more energy
running_kiwi
in
Advanced Prostate Cancer
2 months ago
Fibromyalgia Sun Heat 🔥🔥🔥🔥
On Buprenorphine Patches 15 mgThis tremendous heat through the sun & my fibromyalgia & spine decease is sucking dry my 7 day patch in approximately 3 days Starting on 20mg Buprenorphine Patches very soon hopefully. These patches are not working on me Whatsoever. Having no side effects whatsoever either
On Buprenorphine Patches 15 mgThis tremendous heat through the sun & my fibromyalgia & spine decease is sucking dry my 7 day patch in approximately 3 days Starting on 20mg Buprenorphine Patches very soon hopefully. These patches are not working on me Whatsoever. Having no side effects whatsoever either
Fibroguy66
in
Fibromyalgia Action UK
2 months ago
mCRPC end of ADT--staying the course.
My dad saw his oncologist yesterday. My sister and I were there; we both read “Being Mortal” and watched several videos on the subject. The MO brought in the PSA test and said it was time to start considering a treatment change and the next steps were chemo and there was also Pluvicto. What happened
My dad saw his oncologist yesterday. My sister and I were there; we both read “Being Mortal” and watched several videos on the subject. The MO brought in the PSA test and said it was time to start considering a treatment change and the next steps were chemo and there was also Pluvicto. What happened
lgutman
in
Advanced Prostate Cancer
3 months ago
Hello I’m Graham
After my family and/or myself were told on 4 occasions that I was going to die and I was on palliative care only, we wouldn’t accept their prognosis. We never gave up! I’m now 7 months post transplant and feeling great. I’ve joined this group to offer others, either waiting or post transplant any advice
After my family and/or myself were told on 4 occasions that I was going to die and I was on palliative care only, we wouldn’t accept their prognosis. We never gave up! I’m now 7 months post transplant and feeling great. I’ve joined this group to offer others, either waiting or post transplant any advice
Jaguarfpace1
in
British Liver Trust
3 months ago
Confused about hospice care
Hi,sorry for long post.my mum has been admitted to hospice for heart failure.She was referred by cardiology who said she had weeks to live.This was in fact weeks ago and she is very much still here and seems to be improving.They are now looking for a bed in a nursing home.I am concerned about her meds
Hi,sorry for long post.my mum has been admitted to hospice for heart failure.She was referred by cardiology who said she had weeks to live.This was in fact weeks ago and she is very much still here and seems to be improving.They are now looking for a bed in a nursing home.I am concerned about her meds
mitsy
in
Heart Failure Support
3 months ago
My 80 year-old dad with MPCa, broke his leg and now seems to be giving up. Advice on best anti-anxiety meds desperately needed.
Dear PC family As you will see from my profile my dad in England has been on his prostate cancer journey for five years. He was doing well until March, still actively farming though fatigued, and was due to start Radium 223 in April. Sadly, he broke his leg on March 12 in a fall, was put in a full-leg
Dear PC family As you will see from my profile my dad in England has been on his prostate cancer journey for five years. He was doing well until March, still actively farming though fatigued, and was due to start Radium 223 in April. Sadly, he broke his leg on March 12 in a fall, was put in a full-leg
Lemonpower
in
Advanced Prostate Cancer
3 months ago
Palliative care study
This study highlights the benefits and efficacy of getting involved with palliative care sooner rather than later and using telehealth where possible: https://www.practiceupdate.com/c/167106/32/1/?elsca1=emc_conf_ASCO2024Post-6&elsca2=email&elsca3=practiceupdate_onc&elsca4=202452_ASCO2024Post-6&elsca5
This study highlights the benefits and efficacy of getting involved with palliative care sooner rather than later and using telehealth where possible: https://www.practiceupdate.com/c/167106/32/1/?elsca1=emc_conf_ASCO2024Post-6&elsca2=email&elsca3=practiceupdate_onc&elsca4=202452_ASCO2024Post-6&elsca5
Shams_Vjean
in
Advanced Prostate Cancer
3 months ago
Dad diagnosed with GBM grade 4
Hi, my dad was diagnosed with a glioblastoma about 4 weeks ago. He has gone from being a fairly healthy 58 year old man who travels around the UK and holidays a few times a year abroad to a man who sits on the sofa refusing to go out or do anything. He has got a healthy appetite but is eating way too
Hi, my dad was diagnosed with a glioblastoma about 4 weeks ago. He has gone from being a fairly healthy 58 year old man who travels around the UK and holidays a few times a year abroad to a man who sits on the sofa refusing to go out or do anything. He has got a healthy appetite but is eating way too
KerriC05
in
Glioblastoma Support
3 months ago
Being Mortal Book by Atul Gawande
I want to thank those folks who suggested I read "Being Mortal" especially chapters 5-8. We are meeting with my Dad's oncologist on July 5 and his palliative care doctor on July 8th and I plan to use a lot of what I read during this conversation. My father's pain has returned with a vengeance since June
I want to thank those folks who suggested I read "Being Mortal" especially chapters 5-8. We are meeting with my Dad's oncologist on July 5 and his palliative care doctor on July 8th and I plan to use a lot of what I read during this conversation. My father's pain has returned with a vengeance since June
lgutman
in
Advanced Prostate Cancer
3 months ago
Overcoming Pneumonia Susceptibility
I flunked my first docetaxel infusion in late 2022 and a week later developed pneumonia resulting in me carried by ambulance to the hospital. As I said in my bio, I was told that another six hours without intervention, I would have been lost. I spent four days there with "tank car" loads of vancomycin
I flunked my first docetaxel infusion in late 2022 and a week later developed pneumonia resulting in me carried by ambulance to the hospital. As I said in my bio, I was told that another six hours without intervention, I would have been lost. I spent four days there with "tank car" loads of vancomycin
TuffNuttoCrack
in
Advanced Prostate Cancer
3 months ago
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