Experiences with

Carer support

Join our mailing list here: Parent and Carer Support Network Events | Asthma + Lung UK (asthmaandlung.org.uk) https://www.asthmaandlung.org.uk/groups-support/parent-carer-support-network/parent-carer-network-events Parents and Carers – Join our free online ‘Winter Wellness’ session Managing asthma

Asthma + Lung UK Parent Carer Support Network Who are we? Do you have children or grandchildren who are 0-17 and living with asthma? The Asthma + Lung UK Parent Carer Support Network is a group for you.

Join our mailing list and sign up to our next event here: https://www.asthmaandlung.org.uk/groups-support/parent-carer-support-network/parent-carer-network-events Wednesday 24th July @ 7pm: ‘Sweet Dreams’ Helping your child to sleep better with asthma If your child’s asthma keeps them

V best friend in Seville, Spain..with PSP end stage...there is NO palliative care avail..i am senior pall care nurse from UK.Recent DRUG CHANGES..VIA PEG TUBE INCLUDE; OLANZEPINE INCREASED FROM 5MGS TO 10MG...AT SAME TIME STARTED V HI DOSE AMITRYPTILLINE 50 MGS...SINCE THEN MY V DEAREST FRIEND IS ' KOSHED

mum seems to be deteriorating daily over the last month. Her left arm is rigid and stays by her side, her posture is slumped over and tilted to the right, her speech has more or less gone. She sometimes has an excess of saliva but still appears to be able to swallow. This week I thought she looked as

Just had my first Gallium PSMA after two years of Abby and Lupie. The tumors which were filled up my abdomen had shrunk substantially to dime size per my last CT in October. My poorly differentiated biopsies could not be Gleasoned. The cancer was stated to be a a rare extremely aggressive variant with

hi everyone… Husband’s HF seemed to arrive from nowhere….in the last few months my husband has been complaining he’s more tired and he has been overweight for some time….literally the month of December was in hospital with fluid overload, BNP 6200 and breathless… echo showed left ventricle EF 10%

I’m looking to connect with other care givers to compare and support each other. My mum is 76, she has had decompensated diagnosis for 1 year and 9 months. The average lifespan is apparently 2 years. She doesn’t drink which might go in her favour but she also has lung disease ☹️ She has been managing

Patient Power has an excellent article on Neutrophils, HU won't let me past the entire text here so please go to https://www.patientpower.info/what-do-high-and-low-neutrophil-counts-mean? High Neutrophils & Low Neutrophils: What Do They Mean? Part of Blood Basics Updated Sep 9, 2024 By: Carina Storrs

Hello, please can anyone help? My brother (confirmed cirrhosis) asked to go to hospital yesterday as he can no longer walk and had fallen. He then turned back up at 11pm in an ambulance. Completely incontinent, unable to walk. Lives with my 79 yo Mum who cannot lift him. We have no discharge/admission

The Beginning Of A Metastatic Prostate Cancer Journey - Part 1 of 2 If you were new to this Advanced Prostate Cancer forum, then either you or a loved one has likely been diagnosed with metastatic prostate cancer. This is my own situation; I'm now almost 3 years in and doing pretty well! During

I was diagnosed with lung cancer and brain mets in 2014, l was told l would need palliative care. Needless to say, lm still here lol. I had a partial removal of my left lung and a tumour removed from my brain plus radiotherapy. This was followed by two lots of gamma knife surgeries which has since been

This is a report on my experiences with estrogen transdermal patches with benefits and pitfalls to date. first a bit of my information. I’m a medical super responder ( it’s rare, you can google super responder ) stage4advanced prostrate cancer patient. I’ve authorized both my oncologist and palliative

To pump myself for the power walk race, I listened to “Go the Distance” sung by Dan Vasc about a dozen times on the way to the hospital. Four hours later after my appointments, my young doctor of 35 years young (me being double her age) and I power walked the 1500 foot skybridge. Some of the Lyrics

Has anyone got any experience of managing fatigue during palliative care? My mum is struggling so much with fatigue and we are getting conflicting advice. She is on a blood thinner (Apixaban) after a blood clot which has now cleared. Her oncologist wants her to have a steroid (Dexamethasone) and has

On Abby and Lupron for two years. For years before APC, WBC measurements were fairly low at 4K/microliter. Normal monthly trends were averaging around 3.5 to 4 with a spike toward nirvana during hospital stays. Yesterday’s measurements were an extremely discouraging 2.5k per microliter. So the plan

I am having last of 6 Pluvicto treatments tomorrow. I could not wait to have blood work so had it done today on the way to SF. last PSA was 560.6 about 3 weeks ago and today is 1221.88 using the exact dates the doubling time in months is .76 months. I know there can be a PSA spike with various treatments

Hi all My Dad was diagnosed with GMB stage 4 in his frontal lobe in mid September this year. It has been a scary, stressful, traumatic rollercoaster since then. Dad is currently on palliative care at home. Radiotherapy would only acerbate his symptoms. My Dad is an otherwise fit, healthy, positive and

Hi all, Not sure whether I have been here or not. Had upper right lobectomy Aug 5. They thought it was just in the lung and i'd be 'cured'. It was also in the lymph nodes so now scheduled for my second of 4 rounds of alimta and pemetrexate nov 5. I am all alone and nobody will help me. Have called social

Hello all, Before I get into my post, I’d want to note it contains content about my mums end of life care. I do not want to worry or upset anyone so my post is more for those who are either end of life themselves, or have supported a loved one at this stage. If you are a family member, I kindly ask