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Has anyone heard of GLF for palliative care?
Our matron came this morning and has written in my mum's notes about GLF for palliative care. We know she is detoriating and is now receiving palliative care but I don't know what GLF stands for and what it means. Thank you in advance Val
Our matron came this morning and has written in my mum's notes about GLF for palliative care. We know she is detoriating and is now receiving palliative care but I don't know what GLF stands for and what it means. Thank you in advance Val
Poppin
in
Lung Conditions Community Forum
11 years ago
Update On My Dad
It's been a long time since I've been on here, this is due to my father's condition becoming worse. It has been confirmed that the Cancer has returned and this time he isn't having any treatment (and I respect that) He's getting a lot of help now from his Macmillan nurse and his Palliative care nurse
It's been a long time since I've been on here, this is due to my father's condition becoming worse. It has been confirmed that the Cancer has returned and this time he isn't having any treatment (and I respect that) He's getting a lot of help now from his Macmillan nurse and his Palliative care nurse
Laura27
in
Lung Conditions Community Forum
11 years ago
Living with the enemy
My Name is JJ Kane, I have been living with mis diagnosed Lupus for over 30 years ( i Know that makes me sound old ) I lost both my knee caps to it after 11 operations on left leg and five on the other. I was in constant pain and was on palliative care for many years. I was in a wheelchair , constantly
My Name is JJ Kane, I have been living with mis diagnosed Lupus for over 30 years ( i Know that makes me sound old ) I lost both my knee caps to it after 11 operations on left leg and five on the other. I was in constant pain and was on palliative care for many years. I was in a wheelchair , constantly
JJKANE
in
LUPUS UK
11 years ago
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I am so scared that this is it
Over the weekend, I wrote about a eureka moment, putting my mum's breathlessness down to a faulty nebuliser. Well she has had 3 and half days of a fully working one and is no better at all. As well as her four prescribed nebulisers a day, of ventolin and respontin, she has been having extra ventolin
Over the weekend, I wrote about a eureka moment, putting my mum's breathlessness down to a faulty nebuliser. Well she has had 3 and half days of a fully working one and is no better at all. As well as her four prescribed nebulisers a day, of ventolin and respontin, she has been having extra ventolin
Poppin
in
Lung Conditions Community Forum
11 years ago
Bronchoscopy
hi everyone. i first contacted this great site a few months back and everyone was so suportive. i had been diagnosed with copd. things have taken a turn for the worst i am afriad. docs think that the breast cancer i had 16yrs ago has come back in my Lungs. I was advised to have a biopsy that carried
hi everyone. i first contacted this great site a few months back and everyone was so suportive. i had been diagnosed with copd. things have taken a turn for the worst i am afriad. docs think that the breast cancer i had 16yrs ago has come back in my Lungs. I was advised to have a biopsy that carried
divaanne
in
Lung Conditions Community Forum
11 years ago
A eureka moment
Some of you lovely people know I care for my mum who has end stage emphysema. She is now receiving palliative care and has just been introduced to the hospice at home service. We have been made aware that her next infection could be her last :-( She has home and ambulatory oxygen, and a nebuliser
Some of you lovely people know I care for my mum who has end stage emphysema. She is now receiving palliative care and has just been introduced to the hospice at home service. We have been made aware that her next infection could be her last :-( She has home and ambulatory oxygen, and a nebuliser
Poppin
in
Lung Conditions Community Forum
11 years ago
74 year old in hospital with subdural haematoma
I do feel very concerned that I am being forced into a carers position and if I do end up a
carer
, then I really need some
support
and information. On the other hand, I don't want ot upset by husband by making him think I don't want him home!
I do feel very concerned that I am being forced into a carers position and if I do end up a
carer
, then I really need some
support
and information. On the other hand, I don't want ot upset by husband by making him think I don't want him home!
KingArthur
in
Headway
11 years ago
Has anyone TWO concentrators?
We have been for my husband's oxygen assessment today he used to be on '7' on the concentrator, as his sats have not improved he will now be on '10'. This means that we will have to have two electric concentrators and he needs to use a mask most of the time. Not the news we wanted to hear but they
We have been for my husband's oxygen assessment today he used to be on '7' on the concentrator, as his sats have not improved he will now be on '10'. This means that we will have to have two electric concentrators and he needs to use a mask most of the time. Not the news we wanted to hear but they
jeanghost
in
Lung Conditions Community Forum
11 years ago
I've seen the consultant
Well, Ive seen my consultant. Not sure why I bother going now as you can only be told that there's nothing more we can do for you so many times. But she says it so nicely that I don't mind. Madam had a chat and came out looking okay so that was good. They discussed what happens at the end and if I'd
Well, Ive seen my consultant. Not sure why I bother going now as you can only be told that there's nothing more we can do for you so many times. But she says it so nicely that I don't mind. Madam had a chat and came out looking okay so that was good. They discussed what happens at the end and if I'd
Baldie
in
Lung Conditions Community Forum
11 years ago
Members day NRAS / maybe a good chance to meet some off our virtual friends?
Now I spoke to NRAS yesterday and they would prefer to know numbers as best as possible in advance, and if your taking a friend for
support
or as a
Carer
then you can pay the £5 in advance by sending a cheque or on the day cash, but please try and let them know numbers if you plan to attend.
Now I spoke to NRAS yesterday and they would prefer to know numbers as best as possible in advance, and if your taking a friend for
support
or as a
Carer
then you can pay the £5 in advance by sending a cheque or on the day cash, but please try and let them know numbers if you plan to attend.
Hidden
in
NRAS
11 years ago
THANK YOU ALL!!!!
I got a bit down the other day and my other
carer
suggested I look for
support
sites to see whether my symptoms really did match others and found this. I've also joined another site in the US.
I got a bit down the other day and my other
carer
suggested I look for
support
sites to see whether my symptoms really did match others and found this. I've also joined another site in the US.
Zhez
in
Ataxia UK
11 years ago
OUR FIGHT AGAINST TOBACCO& ALCOHOL
-------------------------------------------------- Although ours is the most highly educated state in the country, alcohol and tobacco are stealing the lives of many unsuspecting citizens. Our state has the most per capita consumption of alcohol, both name brand as well as bootlegged. This applies
-------------------------------------------------- Although ours is the most highly educated state in the country, alcohol and tobacco are stealing the lives of many unsuspecting citizens. Our state has the most per capita consumption of alcohol, both name brand as well as bootlegged. This applies
lalachan
in
Cancer Patients Aid Association India
11 years ago
June has passed away after 8 years and 2 months.
June who was diagnosed in 2005 with this terrible condition pass away at home peacefully last night. She stayed at home throughout her entire battle with PSP. She will be sadly missed. I want to thank all the support medical workers that kept June comfortable over the last several years this includes
June who was diagnosed in 2005 with this terrible condition pass away at home peacefully last night. She stayed at home throughout her entire battle with PSP. She will be sadly missed. I want to thank all the support medical workers that kept June comfortable over the last several years this includes
Macd
in
PSP Association
11 years ago
Aeri-Seal
I pinched this article off Facebook. As a treatment for Emphysema, I think it has a place amongst the others. I wonder if it has relevance for those with Collateral Ventilation, where other treatments are not a good option because of air leakage between the lobes in the lung through damaged tissue.
I pinched this article off Facebook. As a treatment for Emphysema, I think it has a place amongst the others. I wonder if it has relevance for those with Collateral Ventilation, where other treatments are not a good option because of air leakage between the lobes in the lung through damaged tissue.
johnwr
in
Lung Conditions Community Forum
12 years ago
Hi everyone
Hello all, I know I hav not been actively on line for a while but have been reading everyone else's contributions. Things have been hairy since November where I stopped after 6. rounds of weekly topetecan as there was no improvements. Since then: Was refused on a biological trial due to an admin
Hello all, I know I hav not been actively on line for a while but have been reading everyone else's contributions. Things have been hairy since November where I stopped after 6. rounds of weekly topetecan as there was no improvements. Since then: Was refused on a biological trial due to an admin
parvinc
in
My Ovacome
12 years ago
Reoccurrence? Terminal cancer? Non operable Oesophageal Cancer? Palliative care the only option? Accessing Charlie's Circle.
To access CC firstly you need to be a signed in member of this site. If you then scroll up to the green menu bar above the black OPA logo you will see the green logo and menu bar of the Health Unlocked group who host this and many other communities. If you click on communities you can access Charlie's
To access CC firstly you need to be a signed in member of this site. If you then scroll up to the green menu bar above the black OPA logo you will see the green logo and menu bar of the Health Unlocked group who host this and many other communities. If you click on communities you can access Charlie's
Charlie36
in
Oesophageal & Gastric Cancer
12 years ago
Would you like to get involved in helping to influence research into medicines for children in the UK? Parent/Carer Members Required
members of CSGs are offered full
support
as well as an attendance fee and expenses for agreed meetings and training.
members of CSGs are offered full
support
as well as an attendance fee and expenses for agreed meetings and training.
Hidden
in
NRAS
11 years ago
Are you a carer, family or friend of someone with anxiety? Do you recieve support for your anxiety? ? if yes we want to hear from you.
Living with anyone who suffers from anxiety can take its toll on the entire family affecting all aspects of an individual’s life. We are currently putting together a carer’s guide and would love to hear about your experiences. Your input would greatly help others in a similar role. What do you feel helps
Living with anyone who suffers from anxiety can take its toll on the entire family affecting all aspects of an individual’s life. We are currently putting together a carer’s guide and would love to hear about your experiences. Your input would greatly help others in a similar role. What do you feel helps
sam1234
in
Anxiety Support
11 years ago
Lymphoma and Leukaemia Patient/Carer Conference alternatives for the 13th of April 2013
http://www.leukaemiacare.org.uk/news_appeals/2589_exeter_patient_and_carer_mini_conference http://www.lymphomas.org.uk/information-and-
support
/patient-and-
carer
-conferences
http://www.leukaemiacare.org.uk/news_appeals/2589_exeter_patient_and_carer_mini_conference http://www.lymphomas.org.uk/information-and-
support
/patient-and-
carer
-conferences
HAIRBEAR_UK
Administrator
in
CLL Support
12 years ago
Never any good news from me
Hello ladies, just an update, and to let off some steam. After the week I spent in hospital with high temperature (and thank you all for the good advice your gave me), I've had 1 more dose of Topotecan, and have now started cycle two. But I don't think it's working. The pain in my abdomen and back is
Hello ladies, just an update, and to let off some steam. After the week I spent in hospital with high temperature (and thank you all for the good advice your gave me), I've had 1 more dose of Topotecan, and have now started cycle two. But I don't think it's working. The pain in my abdomen and back is
Babaloo
in
My Ovacome
12 years ago
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