Search
Search
About
Log in
Join
Experiences with
Carer support
Posts
Communities
781 public posts
Filter results
Tickets Now Available for Prostate Cancer Patient Conference
New York's Prostate Cancer Conference, produced by patients for patients. Twelve great prostate cancer clinicians sharing the latest treatment and quality of life strategies. Lots of time for your questions, too. Enjoy a beautiful fall weekend in New York City Spend Saturday saving
New York's Prostate Cancer Conference, produced by patients for patients. Twelve great prostate cancer clinicians sharing the latest treatment and quality of life strategies. Lots of time for your questions, too. Enjoy a beautiful fall weekend in New York City Spend Saturday saving
Darryl
Partner
in
Erectile Dysfunction Support
5 years ago
Tickets Now Available for Prostate Cancer Patient Conference
New York's Prostate Cancer Conference, produced by patients for patients. Twelve great prostate cancer clinicians sharing the latest treatment and quality of life strategies. Lots of time for your questions, too. Enjoy a beautiful fall weekend in New York City Spend Saturday saving your life
New York's Prostate Cancer Conference, produced by patients for patients. Twelve great prostate cancer clinicians sharing the latest treatment and quality of life strategies. Lots of time for your questions, too. Enjoy a beautiful fall weekend in New York City Spend Saturday saving your life
Darryl
Partner
in
Active Surveillance - Prostate Cancer
5 years ago
Hello!
My name is Lisa and I’m a 48 year old woman from East Boston, MA. I was diagnosed as having metastatic breast cancer (already spread to bone) on May 1 of last year (2018). It was a total shock and it still feels surreal. I already suffer from Major Depressive Disorder and Anxiety, for which I’ve been
My name is Lisa and I’m a 48 year old woman from East Boston, MA. I was diagnosed as having metastatic breast cancer (already spread to bone) on May 1 of last year (2018). It was a total shock and it still feels surreal. I already suffer from Major Depressive Disorder and Anxiety, for which I’ve been
Lisa11171
in
SHARE Breast Cancer Support
5 years ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Hello
My name is Lisa and I’m a 48 year old woman from East Boston, MA. I was diagnosed as having metastatic breast cancer (already spread to bone) on May 1 of last year (2018). It was a total shock and it still feels surreal. I already suffer from Major Depressive Disorder and Anxiety, for which I’ve been
My name is Lisa and I’m a 48 year old woman from East Boston, MA. I was diagnosed as having metastatic breast cancer (already spread to bone) on May 1 of last year (2018). It was a total shock and it still feels surreal. I already suffer from Major Depressive Disorder and Anxiety, for which I’ve been
Lisa11171
in
SHARE Metastatic Breast Cancer
5 years ago
PSP drugs trial?
We were at our
support
group meeting last Saturday when a fellow
carer
said there was a drugs trial going on with the results expected at the end of this year,does anybody else have knowledge of this? Acorneater.
We were at our
support
group meeting last Saturday when a fellow
carer
said there was a drugs trial going on with the results expected at the end of this year,does anybody else have knowledge of this? Acorneater.
acorneater
in
PSP Association
5 years ago
Infusion
Hey guys, I hope all are doing well and getting through the struggles. There are definitely days where I want to just sit and cry. And sometimes I do. A bit more of an update of where we are; Diet is getting back on track. Thanks to the steroids Ryan has been on, it’s been a free for all cause he
Hey guys, I hope all are doing well and getting through the struggles. There are definitely days where I want to just sit and cry. And sometimes I do. A bit more of an update of where we are; Diet is getting back on track. Thanks to the steroids Ryan has been on, it’s been a free for all cause he
kellyOd
in
Melanoma Caregivers
5 years ago
Help.. confused and concerned daughter.. Sepsis.. PSA Levels fluctuating
Hello Everyone, I'm sorta new here (been around since 2017 but just decided to ask a question for the 1st time). My dad was diagnosed with Stage 4 prostate cancer back on December 26, 2017. I don't recall exactly what his PSA levels were at that time but I want to say high 700 or 800's? He is 77, has
Hello Everyone, I'm sorta new here (been around since 2017 but just decided to ask a question for the 1st time). My dad was diagnosed with Stage 4 prostate cancer back on December 26, 2017. I don't recall exactly what his PSA levels were at that time but I want to say high 700 or 800's? He is 77, has
elliefight4dad
in
Advanced Prostate Cancer
5 years ago
Taxol and fatigue
Hi All. I apologize if I already posted on this but the amount of fatigue I am experiencing on Taxol (3 weeks on 1 week off) is getting to be a lot. Most days I don’t feel as though I can get out of bed. My palliative care NP is thinking to change my pain meds over to methadone from opioids. She said
Hi All. I apologize if I already posted on this but the amount of fatigue I am experiencing on Taxol (3 weeks on 1 week off) is getting to be a lot. Most days I don’t feel as though I can get out of bed. My palliative care NP is thinking to change my pain meds over to methadone from opioids. She said
Purple60
in
SHARE Metastatic Breast Cancer
5 years ago
Talking to professionals - not.
It’s always stated on here that it’s best to talk to the professionals if you are confused. The subject popped up again in my news feed today. Well, my GP advised me to request my appointment to have a discussion around my confusing prognosis and lack of a treatment plan to be reinstated (it was cancelled
It’s always stated on here that it’s best to talk to the professionals if you are confused. The subject popped up again in my news feed today. Well, my GP advised me to request my appointment to have a discussion around my confusing prognosis and lack of a treatment plan to be reinstated (it was cancelled
Grank
in
British Liver Trust
5 years ago
Everyday is a struggle
Morning, I have had AFib for many years now (a lot of those were drs not believing what was going on so no treatment. I’m in the uk) finally caught it on ecg in 2008 and had ablation which worked well for 4 years and then it came back. I am 36 and for the past year have been feeling awful everyday.
Morning, I have had AFib for many years now (a lot of those were drs not believing what was going on so no treatment. I’m in the uk) finally caught it on ecg in 2008 and had ablation which worked well for 4 years and then it came back. I am 36 and for the past year have been feeling awful everyday.
Loobyloo34
in
AF Association
5 years ago
Obstruction / blocked bowel - no surgery. Any advice - PLEASE
Hello - please does anyone have any advice at all. My mum had surgery yesterday for an obstruction but they couldn’t operate and said the cancer had spread too far. And was all across the bowel, my mums CA125 has been going up and we have been back to a&e numerous times. The surgeon is now saying they
Hello - please does anyone have any advice at all. My mum had surgery yesterday for an obstruction but they couldn’t operate and said the cancer had spread too far. And was all across the bowel, my mums CA125 has been going up and we have been back to a&e numerous times. The surgeon is now saying they
eh11g11
in
My Ovacome
5 years ago
Impact of family death on PSP
Hi My dad who lives with us, has been diagnosed with PSP last Nov (confirmed) and we have been providing care within the family for last 2-3 years since his falls onset. It took a long time for diagnosis. At present he is wheelchair bound. We provide toileting, showering, clothing and bedtime care.
Hi My dad who lives with us, has been diagnosed with PSP last Nov (confirmed) and we have been providing care within the family for last 2-3 years since his falls onset. It took a long time for diagnosis. At present he is wheelchair bound. We provide toileting, showering, clothing and bedtime care.
Inarticulate
in
PSP Association
5 years ago
Mum suffered Brain Hypoxia 4 days ago. I feel So Lost And Confused
Hi and thank you for taking the time to read this, everything is such a mess right now and i just need to talk to someone who hopefully knows what i am going through and offer some words or support and advice, its only been 4 days but my mums story is already pretty long so i hope you bear with me.
Hi and thank you for taking the time to read this, everything is such a mess right now and i just need to talk to someone who hopefully knows what i am going through and offer some words or support and advice, its only been 4 days but my mums story is already pretty long so i hope you bear with me.
GrahamJackson
in
Headway
5 years ago
All the Kind, Generous Folk of Our Wonderful Forum !
Thus our Roles have reversed from hubby being my
support
system to me being
Carer
, Head Cook and Bottle Washer in a manner of speaking.. With MF there are bad days, and they are hard to overcome as I'm sure we can all testify to..
Thus our Roles have reversed from hubby being my
support
system to me being
Carer
, Head Cook and Bottle Washer in a manner of speaking.. With MF there are bad days, and they are hard to overcome as I'm sure we can all testify to..
pontygirl
in
MPN Voice
5 years ago
Hi-Dad diagnosed with PSP
Hi all. Glad to have come across this forum. My dad has unfortunately been misdiagnosed- he was diagnosed with Parkisons about 4 years ago, but after a neurological scan recently and drugs not working, the diagnosis came to PSP. Found out two weeks ago so we as a family are shocked and upset. My dad
Hi all. Glad to have come across this forum. My dad has unfortunately been misdiagnosed- he was diagnosed with Parkisons about 4 years ago, but after a neurological scan recently and drugs not working, the diagnosis came to PSP. Found out two weeks ago so we as a family are shocked and upset. My dad
Emilysmarties34
in
PSP Association
5 years ago
Getting help with Social Care
The final step is for the local authority to produce a care and
support
plan with the person and their family/
carer
.
The final step is for the local authority to produce a care and
support
plan with the person and their family/
carer
.
chopinfan
in
Mencap
5 years ago
COPD terminal diagnosis
Hello, Some may remember me posting regarding my OH serious problems with COPD, pseudomonas and bronchecstasis and his long periods in hospital. Well, after four weeks of various antibiotics consultant said there was nothing more they could do so it was just a case of palliative care - given terminal
Hello, Some may remember me posting regarding my OH serious problems with COPD, pseudomonas and bronchecstasis and his long periods in hospital. Well, after four weeks of various antibiotics consultant said there was nothing more they could do so it was just a case of palliative care - given terminal
Hidden
in
Lung Conditions Community Forum
5 years ago
Reiki For Cancer Patients In California?
Hi everyone. I apologise in advance for a long post. As many of you are aware and may remember from previous posts, I have been trying to bring Reiki into hospitals for cancer patients here in Dublin, Ireland. Even before my husband passed away, I often thought that it would be great to offer Reiki
Hi everyone. I apologise in advance for a long post. As many of you are aware and may remember from previous posts, I have been trying to bring Reiki into hospitals for cancer patients here in Dublin, Ireland. Even before my husband passed away, I often thought that it would be great to offer Reiki
MelaniePaul
in
Advanced Prostate Cancer
5 years ago
A dignified journey
Hi all, I just wanted to pop on here to express my sincere appreciation for this site. I haven't really participated here, but have found it to be a wealth of information while transitioning through the different stages of my dad's PSP journey. Alongside that, it has been really remarkable to know there
Hi all, I just wanted to pop on here to express my sincere appreciation for this site. I haven't really participated here, but have found it to be a wealth of information while transitioning through the different stages of my dad's PSP journey. Alongside that, it has been really remarkable to know there
Lulumacmac231
in
PSP Association
5 years ago
My love - aka ‘Hazard’ - passed away on Monday night
4 years after diagnosis. He was brave and extraordinarily stoic right up until the end. Treatment was stopped four weeks ago and we managed to bring him home for the last week with the help of palliative care, where he enjoyed seeing many visitors and listening to his beloved stereo. On Monday night
4 years after diagnosis. He was brave and extraordinarily stoic right up until the end. Treatment was stopped four weeks ago and we managed to bring him home for the last week with the help of palliative care, where he enjoyed seeing many visitors and listening to his beloved stereo. On Monday night
Kat95
in
Advanced Prostate Cancer
5 years ago
1
...
19
20
21
...
40
Next page
10
20
30
40
Filter results
Clear filters
Posted in
All communities
Advanced Prostate Cancer
100 results
PSP Association
95 results
Lung Conditions Community Forum
77 results
View top 10 communities
Sort by
Most Relevant
Newest