I don't know if anyone can help but my husband was sent to Queens Medical Centre Nottingham after going to A and E in Leicester Monday night. They operated on Wednesday and it seems to have gone well. The OP says he does need some help/supervision re cooking. However, I am very worried about having him home too soon - there are only the two of us, and I do realise another fall could be fatal.
I don't know if the consultant was giving worst case scenario but he was saying that he may get some but not all of his mental capacity back and that he would need physio and occupational health at Leicester Infirmary.
Can anyone tell me approx. what sort of follow up appointments the patient has after a craniotomy? I live in north west Leicestershire so haven't been able to get to see him- basically I seem to be getting told different things. I was told he would have to spend a few days back in Leicester Infimary and that would be have been great since I could visit him and get an idea of how he is. He has told the OP that he feels he could cope with a bath but he has told me that he would need his bath mat - which he puts in the bath after it drains. I do feel he would like to discharge himself, but given his age, I really don't want him to do this until I have had a meeting with his assigned consultant or nurse, and gone through his medications. He has been very difficult with taking his pills last few months and very muddled but he assures me that this was due to the bleed on the brain building up.
I don't want upset him by insisting he goes to Leicester Infirmary but don't what else I can do. He seems to think he is coming home tomorrow but nurse said definitely not since they have to take the drain out.
Do they have to go back to the specialist centre to see a consultant? If so, how long and do stitches have to come out?
My husband seems to be blaming everything on the bleed. I do feel very concerned that I am being forced into a carers position and if I do end up a carer, then I really need some support and information. On the other hand, I don't want ot upset by husband by making him think I don't want him home! It really doesn't help that I can't get in easily to see him and his local hospital is different and in a different county to the specialist one!
I really would like to share experiences with other people just to get an idea of what to expect and what kind of care he needs....he has said that they have had him walking up and downstairs but it is only 48 hours after the operation. He has apparently been for a walk and said the OP lady couldn't keep up with him! He does seem to have made a wonderful recover. I do feel rather upset because I have been phoning daily and haven't been ab le to talk to him - his mobile has lost charge, and he has said I haven't phoned. On Tuesday I phoned but they didn't know when he go to Nottingham so I couldn't visit, On Wednesday they said I couldn't speak to him because he was being prepped for op and I did get him on Thursday and today!
Sorry to go on but I do feel very alone - we don't have any family close by.