Hi everyone

Hi Parvinc

I am sorry to hear that you haven't been having things easy lately. I hope you can move back into your home soon and enjoy your dream kitchen. I am sorry but I don't know the answer to your chemo question but someone will, i am sure. I just wanted to send you a big cyberhug and say good luck with finding the next stage in your treatment.

Love Wendy xx

Dear Parvinc

I'm really sorry to hear you've had such a lot to cope with. I don't know anything about oral chemo and hope someone has some ideas for you.

It is indeed tough moving back to your parents' home. Do you have a date fixed for your lovely new kitchen to be finished so you can move back. I hope that will cheer you up as much as mine has. I've got a little space by the window where I can put a reclining chair and look at the garden and watch the birds on the feeder just outside. It is a very special place for me and my favourite spot in the house. I hope your new kitchen gives you as much joy and you have better experiences with your oncology team.

xxxx with much love Annie

Dear Parvinc

How lovely to hear from you, I was aware that you hadn't been on for a while and was only thinking about you earlier. I'm glad to hear you are staying strong and taking each day as it comes. You have obviously gone through an awful lot...and still are!

Do hope your kitchen is done soon and you can go home and enjoy it.

Good luck with whatever comes next, please keep us posted.

Love Linda xxx

Hi Parvin

It is really good to hear from you again.

Sorry things have been so rough for you. That is really too much about the biological trial and the admin error!

I can't really offer any help on oral chemo. I do know that sometimes when other drugs haven't been working people are given tamoxifen, and that sometimes has good results.

Best of luck

Monique x

Hi Parvin,

Lovely to hear from you, be assured that even when we don't hear from you for a while you are still in our thoughts, (we just don't like to be intrusive) but I am glad you have given us an update, hope it won't be too long now before you move back home.

Love and best wishes x G x

Hi Parvin,

so sorry to hear you have been having a rough time lately, sending you positive thoughts and hugs,

Jan x

Sending best wishes. I am on the Rotterdam Regime and part of that is an oral capsules Etoposide. I don't know yet how effective it is as I have one more treatment to have next week and my scan April 4th. Will post my result when I get it. The oral capsules then continue 21 days on 7 days off for 6 to 9 months depending on how the body copes with toxicity.

Good Luck with finding another treatment.

Love and hugs

Hilary xxxx

Hi Parvinc

Good to hear from you. I was wondering how you were doing. Sorry you've had such a rough time and hope you will be able to move back home soon and enjoy your lovely new kitchen.

Love & best wishes

Mary xxx

Dear Parvinc ,

Keep the thoughts of going home to your band new kitchen in your mind and lets hope your return home will not be too far away now ...

So very sorry to hear that things have been very tough for you of late .

Take care now x

Love Jan xxxx

Hi Parvinc,

This is the first time I have contributed on this amazing site but I just wanted to let you know the oral treatment that I am on is cyclophosphamide daily plus Avastin every three weeks. After 8 cycles my CA125 has dropped from over 2500 to 39. Hope you find a treatment that works for you soon and enjoy your new kitchen.

hugs

Janice

Hello,

Sorry things have been so rough for you. Are you thinking about getting a second opinion? I hope the new kitchen takes your mind off things for a while. I don't know anything about oral chemo, although I have heard of women who are on it.

I am thinking of you.

Cx

Thank you lovely ladies I'm overwhelmed by all your comments as usual. I'm hoping after the house is back in order to go back and see where to next. I keep being referred to the palliative care team at the hospital and the local hospice. I'm hoping my medical team don't know more than I do but at the moment I am feeling so well ignorance is bliss. I have a syringe driver which is giving me metochlopromide 24hours a day as I really suffer from sickness and eating. I'm going to ask for a scan in April and then will face the music. Thanks again ladies I feel awful that I dnt blog often but sometimes you feel that what you want to ask or say has been said. A veteran to the site it's coming up to 3 years end of may here's to a few more eh.

Hi Parveen

So sorry that you are going through this. Wow , 8 weeks with your Mum , I'm sure you will be delighted to get home and into your new kitchen. You have been through so much , have you had a satisfactory explanation or an apology for the admin error re your treatment.

I know what you mean about feeling a veteran , I also first started using it in March 2013 and then there were only a few posts a week. It,s sad there are so many people out there , but this site is just an amazing resource.

Take care of yourself

Charlie xxx