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Brain death
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Staying positive after bacterial meningitis
Hi everyone. Nearly all the stories I've read on here have been very upsetting and I really feel for the people involved. It is life changing but I'm writing this to try and give people some hope and to let you know that if you're lucky and with support you can recover from this horrendous illness.
Hi everyone. Nearly all the stories I've read on here have been very upsetting and I really feel for the people involved. It is life changing but I'm writing this to try and give people some hope and to let you know that if you're lucky and with support you can recover from this horrendous illness.
Garfy123
in
Meningitis Now
7 years ago
DBS Off vs DBS On - Deep Brain Stimulation
Hi all This video shows the effect that Deep Brain Stimulation (DBS) has upon my Parkinson's Disease symptoms. I perform a number of tasks with DBS switched off, and then repeat them with DBS switched on - the difference is amazing! https://www.youtube.com/watch?v=D0Hlo_5nDX4 Cheers, Ian
Hi all This video shows the effect that Deep Brain Stimulation (DBS) has upon my Parkinson's Disease symptoms. I perform a number of tasks with DBS switched off, and then repeat them with DBS switched on - the difference is amazing! https://www.youtube.com/watch?v=D0Hlo_5nDX4 Cheers, Ian
Ianfrizell
in
Cure Parkinson's
7 years ago
Methylphenidate (Ritalin) and the diagnosis game
Hello everyone :) I'm about to try and get methylphenidate (Ritalin in the US, Concerta in the UK) on the NHS. I'm in a weird position, because they refuse to believe my brain injury is real. The official diagnosis is "medically unexplained symptoms", which in treatment terms gets you zilch. I'm going
Hello everyone :) I'm about to try and get methylphenidate (Ritalin in the US, Concerta in the UK) on the NHS. I'm in a weird position, because they refuse to believe my brain injury is real. The official diagnosis is "medically unexplained symptoms", which in treatment terms gets you zilch. I'm going
NightBird
in
Headway
7 years ago
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No treatment options available to me
I was diagnosed recently with Hughes/Lupus & Sjogrens and they tried me on Plaquanil and the side effects and reaction was too profound, I had a letter today saying that mepacrine could be an option but it is much less likely to work and I could suffer similar adverse effects. And due to the fact that
I was diagnosed recently with Hughes/Lupus & Sjogrens and they tried me on Plaquanil and the side effects and reaction was too profound, I had a letter today saying that mepacrine could be an option but it is much less likely to work and I could suffer similar adverse effects. And due to the fact that
riannabri
in
LUPUS UK
7 years ago
brain tumour - health anxiety
okay so as i am writing this, i am balling my eyes out for the 4th time tonight as i am totally now convinced i have a brain tumour. I've been having too many headaches that it's taken me over the edge now, convinced it's a brain tumour and i am just balling. I am so worried, upset, fed up, all of it
okay so as i am writing this, i am balling my eyes out for the 4th time tonight as i am totally now convinced i have a brain tumour. I've been having too many headaches that it's taken me over the edge now, convinced it's a brain tumour and i am just balling. I am so worried, upset, fed up, all of it
miasouth4
in
Anxiety Support
7 years ago
health anxiety- need advice
okay so im visiting the doctor soon to discuss my health anxiety and get a therapist, but due to my brain tumour worry because of headaches, how can i bring this up to her? will she even do anything? i want to be checked and reassured, but I don't know if she can do much. Has anyone been through this
okay so im visiting the doctor soon to discuss my health anxiety and get a therapist, but due to my brain tumour worry because of headaches, how can i bring this up to her? will she even do anything? i want to be checked and reassured, but I don't know if she can do much. Has anyone been through this
miasouth4
in
Anxiety Support
7 years ago
Work welfare meeting
Anyone done this? My work have requested a medical report from GP which is done and very supportive of my health. Brain tumour removed and now diagnosed epileptic. Going through big change in drugs. Some days I feel I could return to work most days feel I won't. What happens at welfare meeting. Can they
Anyone done this? My work have requested a medical report from GP which is done and very supportive of my health. Brain tumour removed and now diagnosed epileptic. Going through big change in drugs. Some days I feel I could return to work most days feel I won't. What happens at welfare meeting. Can they
Hidden
in
Headway
7 years ago
Viral meningitis post 10 years.
Hi everyone. I had VM about ten years ago which left me in the hospital month. Docs said the first two days were 50/50 I'm would survive because I was also diagnosed with HIV/Aids at the same time. So I kinda got the double whammy. I was always the type that thought nothing would ever happen to me but
Hi everyone. I had VM about ten years ago which left me in the hospital month. Docs said the first two days were 50/50 I'm would survive because I was also diagnosed with HIV/Aids at the same time. So I kinda got the double whammy. I was always the type that thought nothing would ever happen to me but
dobguy1
in
Meningitis Now
7 years ago
so tired of this
so look where I am again. I'm back to write another post, although this time im not certain what im even writing. I am just tired to this point. I am fed up and tired. Ive had a headache all day, sent me worried. Got home and tried to get my mind off of it and brain tumours but i cant. all i think about
so look where I am again. I'm back to write another post, although this time im not certain what im even writing. I am just tired to this point. I am fed up and tired. Ive had a headache all day, sent me worried. Got home and tried to get my mind off of it and brain tumours but i cant. all i think about
miasouth4
in
Anxiety Support
7 years ago
Cancer Anxiety
Recently, I have been having a lot of anxiety about my health. First, my heart was beating fast and I thought I was going to have a heart attack or I had a heart tumor. Then, I got concerned about my breathing and thought I had a lung tumor. Lastly, I thought I was forgetting things and that I had a
Recently, I have been having a lot of anxiety about my health. First, my heart was beating fast and I thought I was going to have a heart attack or I had a heart tumor. Then, I got concerned about my breathing and thought I had a lung tumor. Lastly, I thought I was forgetting things and that I had a
Mealzies05
in
Anxiety Support
7 years ago
feeling insane... health anxiety
okay so i know i post on here a lot, but i was thinking about something that really made me sound insane. I don't know, maybe I am and need somewhere to tell me that. But I was thinking about what triggered my brain tumour worry. It was when I was thinking about headaches, and i didn't really even have
okay so i know i post on here a lot, but i was thinking about something that really made me sound insane. I don't know, maybe I am and need somewhere to tell me that. But I was thinking about what triggered my brain tumour worry. It was when I was thinking about headaches, and i didn't really even have
miasouth4
in
Anxiety Support
7 years ago
Low results on nerve conduction test. Meaning?
I went in today for a NCV, and and EMG. The nvc showed that my nerves in both my legs had a "slower then we like" results. The EMG showed no pinching or cutting into my nerves were happining. He also had me run blood work today also, lyme disease was included. What could be causing this? I was shocked
I went in today for a NCV, and and EMG. The nvc showed that my nerves in both my legs had a "slower then we like" results. The EMG showed no pinching or cutting into my nerves were happining. He also had me run blood work today also, lyme disease was included. What could be causing this? I was shocked
DestinyFox
in
Pain Concern
7 years ago
anyone else feel this?
does anyone else get this small but sharp pains in random parts of their head? It doesn't last long. I mean it's bearable but it's still there. It really starts to freak me out due to my brain tumour worry and i just start to feel very anxious. It's funny to think that months ago from today i THOUGHT
does anyone else get this small but sharp pains in random parts of their head? It doesn't last long. I mean it's bearable but it's still there. It really starts to freak me out due to my brain tumour worry and i just start to feel very anxious. It's funny to think that months ago from today i THOUGHT
miasouth4
in
Anxiety Support
7 years ago
Natural remedies to help the pain
Anyone have any luck with any essential oils, supplements, diets or anything else to help aliviate the pain. I'm desperate. Tylonal and ibuprofen are not helping. Heat pack helps temporarily.
Anyone have any luck with any essential oils, supplements, diets or anything else to help aliviate the pain. I'm desperate. Tylonal and ibuprofen are not helping. Heat pack helps temporarily.
100080016
in
Endometriosis UK
7 years ago
lyme disease & underactive thryoid
I am very very confused.... I have had an underactive thryoid since i was 16 (now 22) I have had numerous of health problems since october 2015 and i have been under the rhumotologist for past year as they think i have Undifferentiated connective tissue disease which turns into lupus. I saw my rhumy
I am very very confused.... I have had an underactive thryoid since i was 16 (now 22) I have had numerous of health problems since october 2015 and i have been under the rhumotologist for past year as they think i have Undifferentiated connective tissue disease which turns into lupus. I saw my rhumy
Hidden
in
Thyroid UK
7 years ago
Hi I am new
I have Parkinsons desease since 1996 (at the age of 32), I had DBS in 2013 which resulted in a drama. I wonder if anybody knows if there is a trouble shooting clinic in Europe for people like me? It's very expensive to go to the United States . I live in the Netherlands.
I have Parkinsons desease since 1996 (at the age of 32), I had DBS in 2013 which resulted in a drama. I wonder if anybody knows if there is a trouble shooting clinic in Europe for people like me? It's very expensive to go to the United States . I live in the Netherlands.
Hollandaise
in
Cure Parkinson's
7 years ago
Still recovering from my 2nd bout of Meningitis
Hi everyone. I was rushed into hospital at the end of November 2016 with my 2nd bout of meningitis in 2 years. After the first bout I was left with a constant headache, fatigue, forgetfulness etc. Now it's even worse. I'm 53 but feel so much older. I also suffer from pernicious anaemia and colitis/BAM
Hi everyone. I was rushed into hospital at the end of November 2016 with my 2nd bout of meningitis in 2 years. After the first bout I was left with a constant headache, fatigue, forgetfulness etc. Now it's even worse. I'm 53 but feel so much older. I also suffer from pernicious anaemia and colitis/BAM
lyn17p
in
Meningitis Now
7 years ago
Help ?????
I'm getting no better at all, I feel so much worse, it's driving me mad, I have bad and good days and today was a bad day I felt so detached and I don't know if it was because I was stressing because I got myself grounded, and I have a full week off and I have to sit along, I really am going to drive
I'm getting no better at all, I feel so much worse, it's driving me mad, I have bad and good days and today was a bad day I felt so detached and I don't know if it was because I was stressing because I got myself grounded, and I have a full week off and I have to sit along, I really am going to drive
Madison1234
in
Anxiety Support
7 years ago
To anyone who has/or has had/ a brain Tumour.
A CT scan for memory problems showed up a brain tumour about three weeks ago. Neurologist report,says: " a CT scan of the brain shows a low density lesion in the left frontal region with surrounding oedema. High on the differential is a tumour and I am therefore arranging for a MI Scan of his body."
A CT scan for memory problems showed up a brain tumour about three weeks ago. Neurologist report,says: " a CT scan of the brain shows a low density lesion in the left frontal region with surrounding oedema. High on the differential is a tumour and I am therefore arranging for a MI Scan of his body."
dennisleigh
in
Headway
7 years ago
DBS Surgery
I am considering the DBS surgery, as I am now taking 8 (25/100) Sinemet and 1 (50/200) Extended Release Sinemet each day. I live alone and wonder if that would be a problem. Would love to hear from folks that have had this surgery. Thanks!
I am considering the DBS surgery, as I am now taking 8 (25/100) Sinemet and 1 (50/200) Extended Release Sinemet each day. I live alone and wonder if that would be a problem. Would love to hear from folks that have had this surgery. Thanks!
annmariebaird
in
Cure Parkinson's
7 years ago
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